MI Survivors

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  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2009

    Judy - I forgot to ask - how is your arm doing? I know that you've been under stress at work, and wanted to touch base.

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    Hello-

     I stumbled across a couple of threads recommending this thread to people from Michigan and thought I would look in-wow are you ladies active.

     I am still in the treatment process, just finished 35 treatments of radiation and am in a furlough period before chemo, but I would like to join your group.

    Thank You

    Barbara

  • rockysmom
    rockysmom Member Posts: 203
    edited September 2009

    Hi and Welcome Barbara! Yes, we can be quite chatty. We also meet up a couple times a year for food and laughter.

    What part of Michigan are you from?

     Aw, Sue, thanks for thinking of me. I was on restrictions at work for a while and then off on Short term disability for a while. I just went back a week or so ago. They are starting a second shift and I had enough seniority to get a pretty decent job on afternoons. That will start Tuesday.

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    Hi!

    Thank you for the welcome. I am from Saline, just outside of Ann Arbor.

    Hope you all had a nice Labor Day

    Barbara

  • JeninMichigan
    JeninMichigan Member Posts: 2,974
    edited September 2009

    Hi Barbara

    Welcome.   I am in Blissfield .. not far from you at all. 

    Jennifer 

  • winggirl2
    winggirl2 Member Posts: 332
    edited September 2009

    JudyRock - How is the afternoon job working out for you? We need to plan another get together soon before the white stuff takes over (snow).



    Sue - Sounds like you had a great vacation so glad you and DH were able to go.



    Barbara - Welcome to the MI gang. Congrats on finishing radation treatment hope you were able to celebrate.



    Jennifer - Do you follow any high school sports? We attend most of the Hudson varisty football games. I know Hudson plays Blissfield soon - I will have to look at the schedule.



    Wendy - How's your son doing? We rode our Harley down to Deal's Gap and braved the Dragon Tail again......beautiful weather. Can you believe we met a semi on that road???? Almost hit head on.......scary!



    Hi to the rest of the Gang!

    Hugs

    WingGirl

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    Thanks again for the welcomes!

    Jennifer-yes Blissfield is close, almost directly south.  I could be wrong but I think our High Schools have met up a few times in various sports.

    Wing Girl- I did celebrate, but it was a bit low key. I took a nap and had a couple of chocolate chocolate chip muffins. I was just so happy not to drive to the hospital every day anymore I didn't need a celebration. I also have a bit of anxiety about my impending chemo so I figured I would celebrate when that's done. All the medical people keep saying "oh you handled radiation so well chemo will be a breeze" So that's what I am keeping in my mind! 

    Where abouts is everyone else from?

    Take Care

    Barbara

  • DianneMS
    DianneMS Member Posts: 105
    edited September 2009

    Welcome Barbara

    Congrads on finishing radiation.  I agree with you on celebrating the fact that you don't have to go to the hospital every day. 

    Well everyone school in MI has started and football/marching band season is under way.  What a great time of year. 

    Dianne

  • rockysmom
    rockysmom Member Posts: 203
    edited September 2009

    Race for the Cure pictures are up at the Komen site!

    Sue and Wendy, there's one of you with a few people at the pink carpet area!

  • Not_Me
    Not_Me Member Posts: 180
    edited September 2009

    Sue...thanks on the report of HI....it sounds very lovely. Welcome back to the real life, eh? Good luck to your husband on his treatment plan.

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited September 2009

    Hugs to all of my adopted MI buddies, but especially to our dear nEEsie!!

    I just got her PM and realize how outta the loop I am.

    ((((((((((((((((((((((((((nEEsie)))))))))))))))))))))))))))))))))

    xx00xx00xx00xx00xx

    My next MI gig is on Dec 1st, so I will be traveling up the day before -- which I think is a Monday. My presentation is in East Lansing. Can I invent a reason for us to have lunch together????

    You tell me where the logical place would be -- and I'll find it.

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2009

    Faith - most of the places we go to would be in the general area where you'll be.

     DH's radiation simulation is tomorrow. Chemo starts next week, along with rads. We'll be really glad to be in treatment - we've waited long enough. The Avastin trials were all closed - well, postponed - evidently, there was a "bleeding episode." So he's doing a 5FU infustion, plus taxol and cisplatin - a tough chemo. The doc's say if it's too much they'll dial back.

    My brother, who also had cancer last year talked to his oncologist at Johns Hopkins about whether T should go there - nope, U of M is the best for esophageal.

     For some reason, I feel safer communicating with other cancer survivors right now - it's like my coworkers, and even my friends don't really get it.

    Will be talking to you all soon.

  • peg119
    peg119 Member Posts: 281
    edited September 2009

    Half way done with radiation today.  Still just slightly red and a little tender.  Using Aloe as the rad/onc said.  Tired but I don't usually sleep well so hard to tell if it is from rads or that.  I haven't really slept well since starting menopause.  No problems from Tamox so far.  Hopefully all will continue to go well.  Got my genetics back yesterday, BRCA 1 and 2 negative.  That is a relief but they still want my sister tested since she has had invasive breast cancer twice.  I think she will have it done but of course just switched to not so good insurance.

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2009

    Peg -

    Hello - sorry we had to meet, but I'm glad you have found this support. 

    I started to react halfway through, too. But my treatment was only 5 days - but after 2.5 days, I was pink and tender. The fatigue also started to kick in then. But I was halfway to DONE! You'll get there too.

    I also don't have tamox problems, except leg cramps, for which I take diet tonic water.

    I actually have a doctor's appointment of my own tomorrow - I made an appointment for a second opinion on my amazingly low D3 (I MEAN, 7?) that has improved now that I'm on 2000 iu per day plus 50,000 monthly. And elevated PTH, and elevated calcium, but not over 12 - Hyperparathyroid, maybe? I don't care, except I just heard that people with elevated PTH die 10-15 years earlier than normal - I got to stop reading.

    Sue

  • gcpommom
    gcpommom Member Posts: 883
    edited September 2009

    Hi everyone!  I need a hand here, if you are willing to help out.

    My niece Christina, pictured below, is a contestant in Miss Michigan this Friday. TOMORROW < THURSDAY> Please help us by going to the link below and voting for CHRISTINA BESH for most photogenic, as it also helps her in the general contest...she is studying to be a Cardiologist and is entering to win a scholarship. Please pass along or post to your profile - your help would be greatly appreciated!!!! The vote is tomorrow Sept 17 THURSDAY ONLY. Thank you so much!

    http://www.missmichiganusa.com/michigan_contestants.html

    trina.jpg picture by gcpommom40

  • peg119
    peg119 Member Posts: 281
    edited September 2009

    I agree that you can definitely read too much.  Knowledge is power though if it is from the fight source.  Good luck with the rest of your treatments.  I have a severe back ache today, probably muscle but I don't think it is related.  Makes it difficult to get up on the radiation table though.

  • neesie
    neesie Member Posts: 1,924
    edited September 2009

    Stopping in to say Hi to all the Michiganders!  Hoping all is well with you and waiting for the next get together..........................not much has changed around here with hubby.  He is doing alot of sleeping lately................in the recliner in the MIDDLE of the living room!  Hey, as sick as he is, I still have to poke a little humor his way just to show you all that I am 'okay.'

    Hospice has been really nice so far.  Tell ya what, in all the years I've worked with Hospice, I never thought I'd be using them.  Very strange being on the other side of the road.

    Sue, hoping Terry is underway with his treatments and is feeling well.

    If anyone is in the area and wants to grab a bite to eat, let me know, usually I can arrange it.

    Hugs,

    Denise

  • Not-Me
    Not-Me Member Posts: 198
    edited September 2009
    Checking in with everyone to see how you are?  Can't believe that it is almost October.  Life goes by fast!!!

    Denise and Sue-hang in there.  Will continue to send good vibes your way and keep you in my thoughts and prayers. 

    I have been painting the interior of my house for the last few months.  Yes, months.  I had a few water problems last Christmas and finally ended up getting it all fixed.  But it meant that I had to paint three ceilings, and several walls.  I figured I might as well paint the whole main level.  It is taking long, but looks great.  Next weekend, I will attempt the two story foyer, not sure how to do it yet. 

    Have a super day!
  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2009

    Thanks for the note, Denise - I think maybe Sphynx has it right - Cancer cooties.

    We are doing better now that DH is actually in treatment - waiting makes me insane. He has no nausea or vomiting, or even extensive fatigue, but his kidneys reacted so badly to the cisplatin that they cancelled it for this week, and are having him come in for daily infusions to coax them back to normalcy. He's bummed, because evidently cisplatin is "the" drug for esophageal - Dr Urbe says that she doesn't believe that Carboplatin affects EC at all. Meantime the 5FU chugs aways, and the taxol doesn't seem to be bothering him (I love that the give him compazine and Emend right out of the gate, so he feels pretty normal).

    Everybody tells us not to expect this to continue - things will get worse, they (Dr's nurse practitioner, radiation therapist)  say. I wish they would shut up - we are almost halfway through the 2ce daily radiation, with the infusion pump, so maybe we'll be among the lucky ones.

    We asked for an oncology dietician consult yesterday during chemo - she was very nice, but obviously a little surprised to be consulting before he started losing weight, and looking bad. But he is a diet-controlled diabetic, whose esophagus is being burned twice a day, and we are being aggressive about prevention. People keep saying things like ENSURE - have you LOOKED at the sugar levels - so I want to be say, thank you, we're working with a specialist on this - In other words, please shut up when you don't know what you're talking about!

    Being a  spouse is so different from being a patient. I sat at rads yesterday, and three of us knitted, and talked about our husband's diseases. Man, there are some really brave women out there, just knitting away, accepting that their lives are imploding under them. When I left, I said, so we'll meet here in 5 years, for their follow-up appointments, right?

    My biggest problem is daughter. She is acting out horribly, and I just have no energy to help. Terry rented a car so she could drive herself to school, thereby easing the problem of getting her here, there or whereever she needed to be. Like all new drivers, she managed to have an accident at 3 months - unfortunately, she totalled our paid-off car, so we have to do something about that. And she is doing nothing about getting herself to school - she went off to play video games and nap when we got home last night (she insisted on going to chemo yesterday, which I understand) I finally asked her to call a friend to see if she can get a ride - the friend didn''t respond - she has a test - I suggested she call a cab, that I'd pay for - she doesn't know how - so I called. And then I called her at noon, to see if she was up yet -she wasn't - her alarm clock "musta been broken." I know, she's emotionally immature and vulnerable, but, heck, I'm only a year out of treatment myself, and could use a little support here, kid! Sorry, I needed to get that out of my system.

    Take care guys, I'll rant soon.

  • Leslie1962
    Leslie1962 Member Posts: 233
    edited October 2009

    New to this forum topic. I am in Marshall in southwest Michigan. Anyone else in this neck of the woods?

  • bearlysane111
    bearlysane111 Member Posts: 735
    edited October 2009

    Just wanted to say hi to my "adopted"state that is so awesome! 

    Denise,I am so sorry that so much is happening and with you in spirit.Sending cool NC thoughts on this fall day. 

    Bonnie,saw that sign abt life and pie above...so right,so right! Add chocolate and ice cream and pie and....you get the pic of my life!LOL  Best to you and little Zach! What a cute baby! 

     Sue,was reading abt your husband and so sorry to hear of his illness. 

     Faith...hi,there! I,love that abt the adopted state and said I am so there!!

    Not-Me,how are you? I don't know if you rememb me from forums a few yrs back when you were diagnosed. Thinking that you have a new grandchild? 

     Thanks for allowing me to stop in and "chat". I read abt your awesome get-togethers and love the fun and the good times you share!

     All the best from Tarheel land,

    Iris 

      

  • Not-Me
    Not-Me Member Posts: 198
    edited October 2009

    Iris-I do remember you.  Thank you for remembering me.  I never even had chemo but I am telling you that it is either Tamoxofin or older age that effects my memory. 

    Sue-I am so sorry for our difficulties.  I feel so bad for you with you daughter and husbands treatments.  You are right, you have just gone thru this and it is so much.  Peace and prayers to you GF!!! 

    Hang in there GFs...we are strong!  Love ya!!!

  • winggirl2
    winggirl2 Member Posts: 332
    edited October 2009

    Leslie - Sorry you had to join our club glad you found us here. I am not to far from Marshall I live south of Jackson in Hudson.

    Neesie - So sorry and sad that you and DH are going through this difficult time. If there is anything at all any of us can do to help please do not hesitate to ask.

    Not Me - Sounds like you have a big painting project going on. I just love a freshly painted room.

    Sue - Thanks for calling it was so nice to hear from you. Thinking of you and DH as his surgery date is approaching.

    Iris - Welcome back to MI. One of these days we will share pie together.

    Faith - We will definitely come up with a meeting place for sure.

    Hi to the rest of the gang!

    Hugs

    Wings

  • peg119
    peg119 Member Posts: 281
    edited October 2009

    Done with radiation today.  Yippee.  No major side effects from Tamox.  Breast is very itchy and nipple area is raw but should begin healing within two weeks.  Still feel lucky that I didn't have to have chemo and didn't have two many side effects.  Hang in there everyone.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited October 2009

    Hi I didn't know there was anyone else` from W Mchigan out there. I live in Dowling.

    Okay, nobody's heard of it. I call Dowling a suburb of Delton. If you've ever been to Delton you get the joke. It's tiny too.I live about 20 mins north of Battle Creek and go to the BC support group in Marshall.

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited October 2009

    Greetings to my northern-buddies.

    Our youngest daughter got married this weekend in Annapolis. The weather was perfect. Thought that you might enjoy having some happy news.

    Iris, it's good to see you, too!!

  • Leslie1962
    Leslie1962 Member Posts: 233
    edited October 2009

    Is the BC support group held at Oaklawn Hospital? If so, please share details.

    Has anyone posting here had treatment at the University of Michigan Cancer Center? I will be going there on Monday (12th) for a second opinion. 

  • Leslie1962
    Leslie1962 Member Posts: 233
    edited October 2009

    Yes, I know the area well. I actually grew up in Adrian and went to Adrian High School and Adrian College. Sure is nice to know others on this board are not too far away from Marshall.

  • DianneMS
    DianneMS Member Posts: 105
    edited October 2009

    Wow What a wonderful pic.  On a dark morning like today it is truely a bright spot.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited October 2009

    Dear Michigan Gals,

       I'm a friend of Neesie's from the Wagon Circle.  It is with deep sadness that I bring you news of Neesie's hubby Fred.  He died this morning at home with Neesie.

       Please keep Neesie, her family and Fred's family in your prayers.

    love,

    Bren

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