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  • marlenet
    marlenet Member Posts: 345
    edited August 2009

    Bette

    You have such a strong support team.  You have been and will be in my thought and prayers.  Your faith in God will help you through this.  Take it one day at a time. God bless you always!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Hugs to all!

    My first chemo infusion is over. Days of hair are now numbered.

    After a 246 mile round trip to VA, it was good to sleep in my own bed 

    DH made a fabulous dinner, and I was able to eat because I am on Zofran.

    God is in control of all my days, few or many.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    As long as He is in control you are in the very best of hands.  Blessings to you and Tom.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Thanks, Patoo

    Knowing God is in control makes all this so much easier.

    Feeling well this mornng. No nausea, but constipated. Days of hair are numbered. Sigh.

    Bette

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2009

    Bette,

    I'm so sorry I missed you. I've been running between Hopkins and my local hospital for surgery follows, recon planning, and scans.  Are you going to be back this Thursday? 

    The best thing I found for constipation was miralax.  It is a powder that you can mix.  I mixed it with applesauce and that worked well for me.  Of all the things in DC, my favorite is the National Cathedral.  Not everyone stops there, but there are amazing views of DC. The cathedral itself is amazing.  Every time I go, I see something different.  Not a lot of walking, just drive up.  The Thursday evening choir is very good (my friend is in the choir :))  Non denominational.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    BrandonMom. Yes, I will be back this coming Thursday and staying overnight. We may try to sightsee on Friday if it is not too hot. I wilt easily these days.

    Tonight I had a scare with temp going up to 101. Tylenol did the trick, thank God. I called VA and they said that 20% of patients get fevers on the first GC cycle. Next week should be better.

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited August 2009

    Saw Tom's post. Hope you are feeling better and are able to leave the hospital today. One step at a time....Beth

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Beth, I am home! Praise the Lord.

    Hair loss from chemo started again today. It stinks to have to go through this again!

    My oncologists say the fever thing may happen every time, and that they always have to rule out infection. If I want to fight my cancer, I have to be patient with my body's reaction.

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited August 2009

    I'm sorry you are having to go through the hair loss again. Those emotions are hard enough the first time, but to have to go through them again especially when your hair has just been growing back is cruel indeed. You have experienced this before, and you will come through it again...today is one more day of your journey...

    I hope a fever does not become your treatment norm, hopefully it is a one time thing and you won't have to experience it again. Our bodies go through so much, and not all reactions are the same every time. Hopefully the SE will be minimal....

    Thinking of you...

    Beth

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Bette, thinking of you and praying that you will come through this without significant issues.  Remember God is with you every step of the way.

    Blessings.

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  • marlenet
    marlenet Member Posts: 345
    edited August 2009

    Bette

    Keep your faith strong and God will carry you through.  Stay strong and positive. I know how hard that can be.  God will guide you. 

    Marlene

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Just returned from VA where I got my treatment and elt well enough yesterday to take the Metro into town to the National Gallery.

    Praying for now more fevers. Hair loss is a lot slower this time. Not so traumatic.

    I am at peace with God about whatever happens in the next days and weeks.

    Bette 

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited September 2009

    Bette,

     How are you doing? Feeling any better this go around?  Are you interested in going to dinner? I have a buy one entree get one free coupon at Fridays :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    BrandonMom,

    I am doing much better this time! Low-grade temps over weekend, but that was all.

    We are going to be back in Arlington on 9/10 for the begin of cycle 2. Interested in dinner if your coupon is still good by then!

    Bette 

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  • kjbell
    kjbell Member Posts: 974
    edited September 2009

    Bette-so sorry you are going thru this again. I am glad your faith is so comforting for you. Bless you and Tom.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Had a beautiful morning at nearby Longwood Gardens yesterday with Tom and my brother Ed, visiting from CA. I couldn't make it to all the things I wanted to see. Renting a scooter next time!

    One doc appointment today, and then the Labor Day Weekend! Woohoo!

    Have a great one!

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited September 2009

    I can't believe it is the end of summer already. Where did it go? Kids start school on Tuesday. Will be some adjustments for them getting up early lol  Oh wait, I have to get up earlier this year too as my son is starting high school and he has a new get up earlier schedule this year lol  Luckily my daughter is very good about getting herself up and going.

    Busy weekend for us, football game Saturday and the State Fair on Sunday. Don't have my kids on Monday they are with their dad, so guess I will have a quiet day, just me and laundry lol Weather is supposed to be great...I'm glad.

    Hope everyone has a great holiday.

    One more week Bette....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Well the fall season and the school year are officially started! I have two medical appointments today; then I can rest.

    This is a travel week for us: chemo in VA on Thursday, and a retreat for couples living with metastatic breast cancer on Friday and Saturday. We are really looking forward to the retreat, which is sponsored by the Avon Foundation Breast Center at Johns Hopkins. It is at the Bon Secours Spiritual Center in Marriottsville, MD. They only accepted 12 couples, and we got picked! I only hope that my chemo SE's do not limit my activities too much.

    Have a great week. (((Hugs)))

    Bette 

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited September 2009

    Bette, My Friday's coupon expired, but I may have one for Ruby Tuesday's.  Still interested?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    BrandonMom, We might be. Leaving for Arlington tomorrow (Thursday) morning and have no plans for dinner as of yet. Will PM you with my cell number.

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited September 2009

    Bette- Guess I missed you as it is Thursday night. Hope your next chemo session gives you less SE and you don't get another fever this time. Enjoy your retreat, sounds like fun! Thinking of you....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Retreat was wonderful! The husbands contributed much, and I hope got something out of it too.

    On arriving home I turned feverish and ended up in the ER by Sunday night. They let me go, but just called tonight to say they reread my chest x-ray and I have early pneumonia. So I am on antibiotics and have to get a repeat chest-x-ray next week. I may not be able to get chemo this week due to my health. This is discouraging.

    Tom is being great.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Hang in there Bette.  It's only a twist in your journey.  You can do it.

    Hugs to Tom as well.

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  • BonnieK
    BonnieK Member Posts: 655
    edited September 2009

    Bette -- I've been following your posts and thinking of you and Tom every day.  You are a very strong person and your tremendous faith and your wonderful husband will guide you through this journey. 

    ((Hugs))....   --bonnie 

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  • dkerler
    dkerler Member Posts: 75
    edited September 2009

    Bette,

    We are all hoping you feel better soon so you can continue with your treatment.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    No treatment this week due to elevated liver enzymes and pneumonia. Antibiotics are starting to kick in, so my fever is gone, and feeling a bit better.

    Many thanks from Tom and I for all the prayers and good wishes.

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited September 2009

    So glad to hear you had a great time at your retreat Bette. I was hoping you'd be able to have some time to enjoy life a little...some time away from just dealing with illness and not feeling well...sorry you ended up back in the hospital when you got home. Hopefully the antibiotics do their job quickly and you can resume your treatment soon. Kudos to Tom for all the ways he helps/supports you....

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited September 2009

    Bette, how are you? Thinking about you :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    I am feeling fine, but unable to get chemo for the past three weeks due to liver inflammation. My ALT and AST have been on the rise for three weeks and are triple the normal values.

    It's discouraging, but I know that if this doesn't work out, God still has a plan for the rest of my life.

    For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    God bless you, Bette.

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