FEC chemo

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  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Maybe that is what I am scheduled for at the end of my taxol. I did my mastectomy (double) first. Then I started Chemo. I will be taking #9 of my 12 weekly taxol on Monday. My Oncologist told me when I completed the taxol I would receive three different drugs and would get the infusion once every three weeks and would take a total of four of those treatments. The nurse did tell me the one we are going with seems to do better on the heart then the others....MMMMM maybe it is FEC.... Will find out.....

    God Bless You All

  • London-Virginia
    London-Virginia Member Posts: 851
    edited August 2009

    Hello - I am about to start 6 rounds of FEc.  It is supposed to be easier on the heart (good).  FEC is used a verry great deal here in Britain, and mainland Europe.  It is perfectly true to say that many people have reported having a no-too-bad time on FEC.  The list of side effects tends to be the usual one, but people I have actually met told me they got on fairly ok.  The nurse at the Chemo room at my central London hospital told me that using coldcap treatment, ladies do fairly well retaining some hair too!   I would guess that isn't relevant for you just now, but others might like to know that.

     FEC is well established here, so it isn't in any way untried.  It is more recently used in the USA, so it might sound new, but isn't!

    Very best wishes for everything -

  • Karen09
    Karen09 Member Posts: 320
    edited August 2009

    I had my first FEC last Friday.  I was really sick - throwing up for two days and very tired.  The tiredness I can handle but the vomiting was awful.  I couldn't keep anything down at all.  I was into the oncology clinic yesterday and the nurses said I really need the dexamethasone, that should really help so here's hoping!  This is day 6 and I'm feeling really good now so yeah for that! 

    You ladies who have had FEC before - how long did it take for your hair to fall out? 

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Karen,

    I have not had FEC yet. I have 3 more weekly Taxol left then it is off to 4 treatments of FEC. I hate to hear you were sick.I have already lost most of my hair due to the Taxol so I cant answer the question about the hair. I did my surgery first... 5/21/2009 (double mastectomy) then I started chemo on 6/15/2009. Have you had surgery or are you doing the chemo first? I will be watching this post just to see how everone is doing on FEC. I will be there soon......

    May God Bless Us All

  • kim40
    kim40 Member Posts: 904
    edited August 2009

    Hello Ladies

    I had the chemo cocktail FEC as well.  I only got sick on the day of treatment and just felt a little bit off for a couple of days after.  As for the hair question, mine started to come out about day 12 - just a few strands here and there. But by day 17, it literally fell out.  By my second session, it was all gone.  Hope this helps.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited August 2009

    Hey Karen - sorry about the puking. I puked too, but like Kim, only for the first day. Then I was fine nausea-wise, but felt weird for about a week. My Onc gave me a Kytril IV for my second round, which  helped a bit, but didn't stop me puking. I actually felt better once I threw up!  If it is any consolation, I had no nauses what-so-ever with the taxatore.

    My hair started coming out day 12 too! I remember sitting on the living room floor playing with my kids and literally pulling out handfuls. I buzzed it before the second round, and then it all just fell out after that. I didn't go completely 'shiny bald' though, and it did start to grow back a bit on the Taxotere. I am three and a half months out and look like I have a very very very short haircut! Waiting for some bangs.

  • Karen09
    Karen09 Member Posts: 320
    edited August 2009

    Thanks ladies.  I went in to the oncology clinic yesterday and the nurses were really concerned that I was so sick, said that doesn't usually happen anymore with all the different meds for side effects now.  We're going to talk my oncologist into putting me on something different next time.

    I'm at day #6 now and I'm going to enjoy the next few hair days.  I'm starting to not mind the thought of being bald as much.  It's only temporary.  I told my friend today that I was looking for a new look but not this one.  LOL! 

    Angelsabove, I had a lumpectomy, then a partial mastectomy with axillary dissection and now doing FEC x 4 and then Taxotere x 4 and then probably radiation.  My doctors have told me a total mastectomy is not "medically necessary" but I have this nagging little voice in the back of my mind.  I think I will probably end up having it done when I can get my courage up - probably before or after the radiation. 

    I keep thinking I am going to be so happy next spring when this is all close to over with!!!

    Take care ladies

  • JacquelineG
    JacquelineG Member Posts: 282
    edited August 2009

    Hi Karen,

    I'm in Georgia and also had the FEC/Taxotere regime. Like a lot of the ladies who've posted, I had mostly nause with FEC (Emend helped a lot) and mostly joint/bone pain with Taxotere. I know for some it's cumulative. For me, the first of each was the worst (first FEC, then first Taxotere). They hit me like a ton of bricks, but then the next rounds were more doable. My advice is, like others have said, stay on top of the pain with Tylenol or other painkillers while you are doing Taxotere - it helped tremendously! You will do great though. This is agressive chemo and hopefully will kill every last cancer cell!

    Oh, and hair fell out right around Day 12-13...

    Jackie

  • vkeys1948
    vkeys1948 Member Posts: 9
    edited August 2009
    First of all God Bless you-I am 61 yrs old and have just finished my 6 wks of radiation.Cool I am also going to MDA in Houston but took my radiation in The Woodlands. I   took FEC and RAD. I was hardly sick however I took the nausea meds they gave me(do not skip a dose-this is the key) , I started getting sick 3 days after treatment lasted about 48 hrs and then I was good until the next treatment. 
  • vkeys1948
    vkeys1948 Member Posts: 9
    edited August 2009

    I lost all of my hair. I had bought a very expensive wig before I lost it ended up wearing the thing just a couple of times ended up wearing caps. It has been 3mos since my last chemo and my hair is coming back it is so soft and I no longer wear caps I just go with the way it is, after all you go through with the treatments you are proud of what you have not what you dont have. In fact I am liking the idea of no bad hair days. Good Luck

  • rinna40
    rinna40 Member Posts: 357
    edited August 2009

    Jackie - did you find treatment 2 and 3 of the taxotere easier than the first? I was given docetaxol, which some people say is the same thing, and I had a rough go. The joint pain was bad, especially in my jaw and back. I had no appetite, and when I ate anything my stomach hurt. Also had the runs something awful. I am dreading the next one. Not sure if I can do two more.

    Rinna 

  • Karen09
    Karen09 Member Posts: 320
    edited September 2009

    Well ladies I have two treatments of FEC in now.  Two left to go and then on to four of Taxotere.  My second round of FEC wasn't bad at all.  I just had one day where I felt really nauseated but I only threw up once and once the nausea past, it never really came back full force.  Much easier to deal with than my first treatment. 

    Take care everyone!

  • gramof4
    gramof4 Member Posts: 66
    edited September 2009

    I had six rounds of FEC and then 12 of Taxol.  For me, the FEC was easier.  Maybe it was because I had it first, I don't know.  I had brain haziness, that horrible metallic taste in my mouth and fatigue.  I too was sick the first day and that was it.  I had Emend also and it worked wonders.  My  hair was completely gone by treatment #2.  Hope this helps.

    Joyce

  • London-Virginia
    London-Virginia Member Posts: 851
    edited September 2009

    Hello FEC ladies!

    Thanks for the info to date - I just wonder, did anyone else get a swollen abdomen on this regime?  Also I seem to be gaining weight horribly quickly........  aaaargh!

    thanks!

  • Marple
    Marple Member Posts: 19,143
    edited September 2009

    Virginia.......if you are taking steroids that could be the reason for weight gain.

  • Karen09
    Karen09 Member Posts: 320
    edited September 2009

    Do steroid pills make you gain as well? 

  • Marple
    Marple Member Posts: 19,143
    edited September 2009

    Steroids can cause fluid retention but also increased appetite.

  • Karen09
    Karen09 Member Posts: 320
    edited September 2009

    Well that would explain why I can't stop stuffing my face.  hehe

  • TXBadboob
    TXBadboob Member Posts: 597
    edited September 2009

    Hi ladies,

      I had FECx3 last year starting in Nov.  I was wondering if anyone else had to wear the IV pump for 48 hours like I did.  I hated that thing with a passion!  I had to wear it to work in a purse over my shoulder and had to hang it on the bedpost when I slept.

      I had nausea on the second day for 2 days, extreme depression, watery eyes, and everything smelled terrible.  I could only eat cold grapes, yum!  I also had to get an additional shot besides my Neulasta, for my RBCs.  I tried eating only high protien foods, but it didn't help.  I was used to the Neulasta shot, but the RBC shot HURT my tummy!  The chemo nurse made me eat a popsicle during the E part of the chemo to prevent mouth sores.  I was already bald from Abraxane when I started the FEC, so I don't know about how long it takes.

    Deen

  • Jayne_in_UK
    Jayne_in_UK Member Posts: 517
    edited November 2009

    Bumping for Luah

  • krcll
    krcll Member Posts: 343
    edited December 2009

    Bumping for current and future FEC ladies (and men).

  • carofin
    carofin Member Posts: 2
    edited September 2010
    Good luck with all that is to come.  I finished a 6 round Fec-t plus radiation dec 31 2009 and understand your fears and trepidation.  So, a few ideas and a whole bunch of hugs.  Unlike most, I chose not to wear a wig or a scarf.  Instead I covered my head with kiddie tattoos, so I had fairies, flowers, butterflies etc all the time. It seemed to encourage people to talk to me and smile rather than get that look of pity and concern on their faces. Also, I had a wonderful friend who accompanied me to each chemo - we talked constantly and allowed those around us to join in.  I actually had people asking to be put in the same treatment room as me for their next chemo.  The sharing of stories and concerns was great and we tried each others remedies.  Unluckily, I had every side effect in spades, so here are some ideas1.  Baby pablum goes down quite well and does not generate the nausea that a lot of other foods do.2.  Chewing ice when having flouracil keeps the nose tingling and stuff down.  Hug3.  Rinsing your mouth with Canada Dry ginger ale helps the mouth sores - the cheaper ginger ales are not as good.4.  Ice packs for the hot spots on your head and your eyes work wonders.  Hug5.  Regular exercise is a must if you want to keep energy levels up.6.  When you start the Taxotere, elevate the bed at your feet, keep your feet up as much as you can, raise your hands whenever possible.  The Tax causes peripheral neuropathy - a severe tingling.  The quicker the taxotere moves out of these areas, the less tingling you get.  Why those areas specifically - Gravity. Hug. Take care 
  • SusanTomenson
    SusanTomenson Member Posts: 1
    edited May 2011

    Hi

    New to all of this! Diagnosed through first mammogram, and surgery within 9 days very recently.   Now awaiting chemo of FEC any day.  Luckily have a friend who has just finished her chemo, and has given me lots of tips.  Would love to hear from anyone who would like to share this journey with me - a bit scary at times!!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Hi Susan, I was diagnosed during my first mammogram too.  I had a BMX in April with immediate reconstruction (SIEA).  I started FEC on May 24/11.  Will be having FEC x3 and Taxotere x3 followed by some hormonal treatment (depending on whether chemo puts me into menopause) and likely radiation too.  My first FEC went well - felt off first night and only side effects since is some fatigue.  I have been told I will lose my hair after about 2 weeks.  I have such thick stubborn hair, I have a hard time believing it will cooperate with the expected loss but we shall see.

    I had my mammogram in October 2010 and have had many many months to get used to all of the new developments and treatments.  I know the initial shock must be very difficult for you.  Waiting for test results is by far the worst experience of this whole BC experience.  Knowing, whether good or bad, allows you to move on with the treatment plan stage.

    I have read a lot on this website and it has helped me tremendously to share in the experiences of others and have questions, almost always ones I did not pose myself, answered.  I hope you have the same experience.

    By the way, I do not have a triple negative cancer but came across this thread when I did a search for people who had experienced FEC-T chemotherapy.  I am mostly posting on the chemotherapy threads.

  • debbou
    debbou Member Posts: 1
    edited April 2013

    I am 51 yrs old.  Diagnoised with TNBC stage 3/4  November 2012.  I have been in treatment since Jan. Did 12 Taxol.  No problem.  Had problems with neuropathy in my feet.  very difficutle to manage, but that was pretty much it except nose bleeds.  I really thought OK I can do this.  However,  FEC.... rough for me.  Mostly just so tired.  So tired.  I just did my first FEC Friday a week ago.  I was pretty sick for about 3 days, but did not vomit.  I was afraid it would cause the mouth sores, I slept for 5 days straight about 18 hours a day.  Finally came out of it on Tuesday, still feeling exhausted.  All n All I think from here it will get better.  I wish you all the best....and wish you the strenght to just get through this.  God Bless...

  • Ufchels
    Ufchels Member Posts: 3
    edited August 2014

    Hi ladies,

    I'm 30 years old and have been through 4 cycles of FEC now. On Friday, ten days after the chemo, at the nadir (lowest point for blood count) I quickly developed a fever. I've been in the hospital now for 3 days as my neutrophils are .7 and they need to be above 1 to let me go. My fever also comes and goes and I'm on antibiodics. I was wondering if anyone else developed a fever around that time and if it common? Everything is so new to me, I'd love to hear some responses.

    Many thanks!

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2014


    Hello Ufchels, sorry your circumstances brought you here but welcome! It might be difficult to get a response from this thread as the last post was back in April. You might like to start your own topic about your experience with FEC maybe in the Chemotherapy forum or in this forum.

    Good luck with everything and we hope your fever eases soon.

    Hugs, from the mods.

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