SEPTEMBER 2009 RADS
Comments
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THanks Christy--he did tell me it is to get more rads to the skin--not sure why i am having it since the close margin was closer to the chest wall--when am i going to start trusting all this--I am a nurse and know better--but I feel I am questioning everything--had # 2 today 31 more--(27 plus 5 boosts) they told me 30 with 3 boosts originally so dont know why the change -- anyway I really need to wrap my arms around this and just havent yet--hope all is well with everyone!!
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Hi! I'd like to join the group and journey along with my sisters. I had my sim today and will begin the first treatment tomorrow morning. So far so good. I'm being treated at Stanford in Palo Alto, CA. I live about an hour's drive away.
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Hi all ! Had my simulation today - the staff was super nice (2 women, 1 guy and a 2nd guy that came in periodically), told me everything in detail that was going to happen and then again when it was happening, and covered me up when there were breaks. They had me facing to the side so I had to rely on them since I couldn't see anything or move. I suggested that they put a mirror on the ceiling so we could watch what was happening - that didn't go over real well.
Also, I learned something new from my radiation oncologist today. (Although, I checked and it does seem to be common knowledge on this board so maybe I'm just the slow kid in class.) Keep Away From Any Supplement That Has Antioxidants. Apparently, since they inhibit free radicals which is exactly what radiations is or does, antioxidants are counter productive for what we're doing. Of course, now I'm left wondering about antioxidants from the foods we eat or wine we drink ?
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I don't think it antioxidants have to do with the foods and beverages...i think it has to do with the vitamin types that you may wish to take....the antioxidants and vitamins that you eat or drink are ok...because they are natural not man made like vitamins. I was told not to take any vitamin c or vitamin d while on radiation...kind of not taking man made folic acid while on chemotherapy,
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Welcome Jennifer B. My rad onc told me just stay away from all antioxidant supplements.
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Welcome Jenniferb--I am in SanJose--and my Doc said also the man made vitamin supplements are what you need to stay away from --vitamins from food are ok--I had my second rad today--but being treated close to my home in the San Jose area--
I had to have 3 days of sims plus an extra x-ray today did any one else have to have so many pre treatment sims-- Laura
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kawee: If you have a Kohl's nearby...look for the Barely There bras there. They carry them.
Also, I just had treatment #17 today. I got those little red bumps at #15...and they itch!!! Rad onc told me to use hydrocortisone cream on that area. What did your onc say to do?
Regarding going bra-less...I am 57 and until this BC dx, I never left my house without having a bra on! I work in an office. My latest attire is layers. I have some plain dark solid colored SOFT knit tops that I wear under a print open shirt or blouse. I am a C cup. No one has a clue that I do not have a bra on! Of course, remember that I am 57....and not as perky any more as some of you young women! I guess there is a reason to be happy about sagging breasts???
Hugs to you all!
Sue
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Thanks, I'll look at Kohl's. We have one nearby. My bumps don't itch, but I see the Dr. tomorrow. I live in Santa Maria, Ca. We have a large breast center here. I feel for all you ladies who have to travel for rad. It's enough just doing it. I only had one sim with an x-ray, and I have to have an x-ray every week. Maybe everyone does? They said it's quality control.
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Ohhhhhh. I've been reading too long and too late into the night. I just saw Kawee's comment about Santa Maria's Large Breast Center and thought "Wow, these guys really do specialize. I wonder if there's any specializing in small breasts." Definitely time to turn off the computer.
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Hi all,
Interesting reading about vitamins. My surgeon and onc both recommended I take vitamin D. I've kept it up and of course reported it to my rad onc. He never said anything? I'm meeting with him tomorrow so I will check it out further - thanks. I also started taking calcium, per my onc recommendation when I started tamoxifin.
Has anyone else's appetite gone crazy since starting rads? I eat everything in sight and can not seem to satisfy my need for more food. It's so different than chemo, when I couldn't eat anything. Plus, I'm thirsty all the time too. I know I need to be careful not to pack on the pounds but my will power is zilch these days.
Is anyone feeling a tightness in the SNB area? Mine seems to be getting tighter and tighter, almost like it was post-surgery. Today was 11 of 33 for me. Already a third of the way done, my how time flies when you're having fun!
Kawee- I have a repositioning x-ray weekly also. I think they want to make sure if you've gained weight or if the area is swollen that they are still targeting the correct spot. At least that's what they told me. Humm...they did say weight gain...maybe that's the answer to my question above. Also I think you wrote earlier about fatigue. I'm beginning to feel like I have iron poor blood and I think it's from the rads. It's not bad, but I've decided not to push it and plan to work only four days a week in Sept instead of five.
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MTG - LOL....thanks for making my evening!
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great body cream for cancer patients. name: Boscia Jujube Rejuvenist Whipped Body Cream It is PH balanced, alcohol-free, preservative-free, 100% natural fragrance and color
Also I have some information on some skin products a while back for individuals who may have skin side effects from chemo or radiation. The website is www.lindiskin.com
My Battle - My Victory
Yesterday I fought a Battle, But I did not fight alone-I had a Protector - A Guide, I was never on my own
This enemy came to me suddenly, No warning as to prepare-
And before I knew what happened, this enemy was everywhere.
I felt so overwhelmed; Did no one know my pain?
How could this be happening to me, How did it know my name?
Today I fight this battle, The enemy with me still
It has not yet taken control, Nor has it broke my will
It is hurtful and it is cruel, It doesn't care the damage it causes
It is wearing down my defenses; I can soon count my losses.
It is ruthless and emotionless, Its purpose to destroy
I can not, must not let it, Will not let it have control
Hear me when I tell you, Please listen when I say
I have many scars from this battle; I do struggle from day to day
It takes many things from me; Within my body it has much power
It affects loved ones around me; The battle has become a war
You may not know by looking at me, Then again maybe you can,
That this enemy shows no mercy, I fall when I can no longer stand
It does not care what age you are, or your status here on Earth
It doesn't count your income, or what you think you are worth
This battle that I speak of, CANCER is its name
And because I continue to fight, I will never be the same!
Tomorrow may never come for me; I live only in the present
My life is right here, right now, What I have is this very moment
But I will continue to fight, For I learned down on my knees
is where I fight this battle, It is where God gives me the victory.
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Holligoog - Absolutely beautiful.
Betsybuzz - Me, too. Absolutely ravenous. The tech told me because the rads burn so many calories, our body is telling us we need to eat more.
MTG - What a riot! Made me laugh and my husband too!!
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Hi
I am finishing up with rads only have 5 more treatment left.
I noticed that there was a question regarding the bolus. The bolus or purpose of the bolus is for pinpoint radiation (meaning not to the entire breast, it is usually given at the end of treatment, with a shorter number of treatments, to the area of the breast that the cancer was removed), it can be given several different ways.
The rad office I have been going to was going to try and do it with a machine like a mammogram, flatten and squish then radiate the area from one direction then the other...I was not a candidate for this (my cancer was located quite near my chest wall) so we are doing it on at CT type machine. I do know that different rad centers do things differently because of the types of equipment they have. What is done in one area may not be done in another. Also the course of treatment depends on which breast your cancer was in and the location of the cancer in that breast. Ask your rad onc (they love to answer questions, mine showed me my chart with thermal scans of the breast really interesting).
kat
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Onco says red bumps are typical, they are inflammed hair follicles. Said to use either Benadryl or cortisone cream if they itch.
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Holligoog....Thanks you so much for your poem....did you write that yourself?...it is amazing...
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Holligoog... Thanks for sharing the poem....beautiful!
re: lindiskin....got some samples last week at my rad facility..creamy oily silky..wonderful feel to it...one was citrus, one was lavender...I forgot to ask the rad therapists about it...will try to remember to do so.
They gave me Aquaflor today as I am starting to get pink under the fold. Isn't that just wonderful. I got the "everybody is different" speech again today. I just wish I KNEW what was going to happen. This uncertainty is tiring. It's like they know and won't tell. I have 9 more tx to do before the "boost". I'm flying to Houston for the long weekend. I think it will be wonderful to "run away" for a few days!
Yes, Betsy, I seem to be constantly hungry also!. I am usually a big water drinker but I find that I just have a hard time getting it down lately. It figures...when I need to hydrate..I don't feel like drinking! Except, I have been drinking that glass of wine per day as recommended in that study published in August. I wish that I had started doing that when I started the rad txs! So, there is something good about having rad txs! You HAVE to drink wine! lol
Hugs to all,
Sue
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Hi all,
I asked my rad's onc about antioxidants and he said stay away from mega doses of vit. C & E. He said the vitamin D and calcium my onc recommended are fine.
He also warned me that next week I should start feeling increased skin irritation. By the end of next week I will be at the half way point or close.The funny thing is my targeted breast its not sore but the back of my arm is. I asked about this and they said yes they are hitting my SN area hard and it hits a part of my arm. I think it's because I tested negative on my SNB initially and then later tested positive. They decided not to do another surgery, added chemo and said they would hit me harder in rads. Oh joy...
I hope everyone is doing well.
Betsy
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Hi guys
Hope all is well with every one. I have been reading and loving all of you from a distance. I will be getting that sims on 9=8 and start 28 days after and this question is for you guys who have been on radiation for a little bit. You all talk about fatigue starting about day 10 or so. What does this fatigue feel like? Can you motivate? Can you work? I HAVE to work through this (I did't have chemo so I dont' have to battle from coming up from that....hats off to you'all who did....I admire your strength and fortitude...and I also just had 2 lumpectomies and am fully recovered from that) but am I going to be 'too pooped to pop'? I am hoping I can have it around 11:45 A, then go hom and snooze for 1.5 hours and go back to work (I have a 2 hour lunch time)....Would that do? Are you taking anything at all that keeps you going strong? Will I be able to go home at night and walk my doggies like I normally do or will I need to nap, wake up and eat and then go to bed? Please fill me in on this fatigue. L
Love to you all.
Becky
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I'm on Rads # 9 today. There have been a few days where I felt like napping so far. Yesterday, I laid down for about an hour, did feel groggy getting up, but after 15 min. or so was able to go about the rest of my normal daily routine. Not that I was in a Triathalon or anything.
On a couple days when I knew I could not rest, I took a B-12 tablet and it seemed to give me an energy boost. I'm not too much of a coffee drinker, and I don't know if that is recommended with Rads or not. I guess I have more fatigue coming in the near future, will just play it by ear. I've always been a fan of the 20-min. power nap.
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Becky I did my 9th rad today. I have felt NO fatigue at all yet. I work all day and work out in the evening. I am tired by about 9:30 or 10 but I figure that's ok. I do take whey protein every day which helps my bone marrow to replenish blood counts which can be affected by rads as well as chemo. I do not do a physical job but it is very high energy and stressful mentally. I have had no problems so far. If they say it starts on day 10, I guess I'll see tomorrow. But I never nap or stop to rest. I tend to be pretty high energy anyway, but I haven't missed a beat so far.
Please do not get discouraged. One thing I would say is to eat a healthy diet - no junk, so that you are giving your body good fuel to burn. PM me if you want to discuss further.
GOOD LUCK!
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Hello all
Had treatment #12 today. I'm sore under my arm and at incision site. I've been using the Aquaphor at night and the Fruit of the Loom Bras have been a godsend. I didn't get fatigued until today. After my treatment, I came home, sat down and fell asleep. . . for two hours! I just couldn't shake it off. The doc had mentioned that usually people feel fatigued when they just sit down and take a few minutes to relax. She was right on; I've been working through it until today and I just needed a break. I'm hoping this isn't routine for me now. Once I got up, I felt a bit groggy and then spent the rest of the afternoon doing my normal routine. I didn't get everything done that I had wanted to, so that's a little annoying. I'm a third of the way through. Yeah!
Holligoog - your poem was beautiful! Thanks for sharing!
It is what it is, ladies. Stay Strong!
Chris
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brookside - I just finished 14. I think it depends on your age, health and other factors. I have lupus and I am fatigued quiet a bit anyway. I am experiencing fatigue from the rads. I feel pretty tired, however there was a lady in front of me who had 19 and she said she wasn't fatigued at all.
My aunt went thru it, no fatigue, my sister, some fatigue. I think it just depends. The lady in front of me today said she takes vitamin B, iron, and exercises and eats really well. She looked great.
I think the rest during your lunch is a great idea!!
Let us know how it goes for you.
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I just had #21 of 33 today. My appt is at 7:24 a.m. I am only 10 min from my facility so I come home, change clothes and go on to work! I'm an office mgr which makes my daily activities varied but I have been able to work with no problems. However, when I get home, I am sleepy...not really tired just sleepy.
Becky, you will be able to work and walk the doggies!! Your body will tell you if you need those naps at noon.
I like that vitamin B-12 idea. I might just try some! New habits forming here....daily glass of wine and vitamin B-12! Wheeee!
Hugs to all,
Sue
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Thanks guys. I am a healthy chunk of a gal. I think I'll take those Vitamins too! B-12 and D. alot of good stuff out recently on D. And hopefully I'll be able to walk my big dogs (4 Newfies - 150 lbs each) and still have a hand free for that glass of wine.
Betty, do you think that maybe your appetite is bigger cuz you're on tamoxifen now? My friends all had TREMENDOUS appetites while on that.
Have a GREAT Labor day weekend to all of you.
Love,
Becky
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Brookside, my rad onc said no vitamin D. Don't want to take any antioxidants during rad. It keeps it from working as well. Ask yours about it first!
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Hope you are all doing well - Betsy, how are you doing?
I hope you all have a good weekend.
Judy xxxxx
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Well 5 down--looking forward to no rads for 3 days--although the more off days the more on days--but need the break!! trying to use biafin and sween cream 3 times a day--I know it is too early for the side effects but trying hard to keep them away--I havent taken any vit. D since this whole process started --I did just have a vit. D level and calicium level drawn to follow up but dont have results yet--figure once everything is done Iwill have a bone density and further labs to see what to do --will probably need something as I am 61 and will be on arimidex anyway--one step at a time I guess--hope everyone is doing well and has a great long weekend--stay strong--if you get a chance go to this link--this a friend of mine who just celebrated 15years from second diagnosis--she has a strong family history and her second daughter was just diagnosed she was interviewed on a tv station in Cleveland--she is a pretty amazing lady!! www.wkyc.com/news/local/news_article.aspx?storyid=120985&catid=3
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My radiologist said no anti-oxidants either during rads. I had #7 yesterday and I haven't had any side effects yet. Skin is still looking good. My problem is when I am on the table during rads. I get radiated in 5 different areas and it takes 20-25 minutes total each time. That is because they have to reposition me and the machine for the 5 different areas. I have an expander and with my arms up, it pulls on it. My upper back starts hurting really bad, my arms/hands fall asleep. I tense up. I can't wait to get up off the table each time. It is quite painful for me.
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Oh, my gosh, and I complain. How many do you have to have? I get really tense too. When the machine starts buzzing, it scares me and I jump a little. After 15 you'd think I'd be used to it.
My breast is fine so far. But I'm really getting tired. Have to watch what I do. Went shopping today -- wiped tonite.
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