Accountability in a police state.

That's what I meant Beesie.  All our BC sisters should be allowed back.

IMO, members with bc should only be banned for a specified period of time, not "for life".  JMO

carrythecross,

The post in question in fact very clearly did violate the rules of the board.  Specifically,

You must abide by the following rules when accessing or using the Breastcancer.org Online Community, including the Discussion Boards and Chat Rooms:

3. You agree not to submit any personally-identifiable information about any person without their prior consent.

The post in question provided information about Paprika that she did not want broadcast to the BC.org community and which she did not authorize released.  The information posted actually led to Paprika's husband signing on just to request that the information be removed.  I posted only after seeing his post, when it became obvious to me that the release of this information about Paprika did not have prior consent. And I specifically made this point before I made the comment about "only needing 5 posts....". 

If there are in fact several people who have been permanently banned who would like to return, then as I said in my earlier post, if the Moderators decide to allow Paprika back, I trust that they will review those other cases and make the right decision based on the facts of those cases.  If they deem that some or all of these individuals should be allowed back, that's great.  But it's their decision to make because they are the only ones who know all the facts.  While I think it's fair that we request or suggest changes, the fact is that we don't run this site and we don't write the rules. If a condition for allowing Paprika back is that everyone who's been permanently banned must also be allowed back, for reasons that we may not be aware of, the Moderators might consider this to be an unacceptable condition.  That's my only point. 

Well I am wondering what the heck happened to my Circle of Prayer thread???.......i would love to find out WHY the Mods decided to delete the entire thread!......I invited EVERYONE and included EVERYONE and I did not see any porblems there......Maybe because I asked for no pictures onthe thread? and only asked for prayers, wellwishes and good karma?......I don't get it........

I suspect the mods read what they can, but if anyone wants to  make sure they see something, they should pm it to them.

I wanted to thank all of you for being so supportive of my wife.  She now has mets in her pleural fluid and is having a difficult time with it all.  I don't know how the rules operate, but do know and agree that anyone with breast cancer should be able to come here for support.  She does have a small group of friends she can talk to, but she really needs the mets forum here.

Terry

  http://www.caringbridge.org/visit/nickispizzirri/journal/add

Some people are just plain heartless.

Athena, I may be able to shed some light as I am a moderator on a photography site.....I imagine the rules are somewhat the same. A post can be reported by any member by using the "report this post button". If the person/persons use this button a certain number of times (five in the case of the photography board), the post is removed with a tag saying it's been removed by member/members. If the number of removals done by member/members reaches a certain amount (again...10 in the case of the photog board), the member is banned temporarily...until the moderator has a chance to review the removals. Posting privileges are then restored, usually within 48 hours, if no rules have been broken. If rules have been broken, an e-mail is sent saying I will be watching using the three-strikes rule. After three infractions, the member is permanently banned. I'm not sure if the same moderation rules apply here, or what the numbers are, but they seem to use somewhat the same system. This of course, does not mean someone cannot begin posting again using another e-mail or IP address and that makes things more difficult when it comes to moderating.

Edited to add: all of this information is from my personal experience as a moderator on another board that may be helpful in determining what is happening on this one. It may not necessarily be the case here...I don't know.

Probably something else I should have mentioned in my earlier post (and again, only my experience as a mod on another board)....For the most part I do not read any or all posts unless they are brought to my attention.  This happens when the "report this post" button is used or abused. The removal of the posts is program-oriented and has nothing to do with the moderator. The post is automatically removed (by the program) after 5 reports. I do not receive an alert that it has been removed until it reaches that magic number 5. At that time it's personally reviewed and reinstated or not, as per board rules. If the same poster is removed 10 times, it is reviewed again and that's when the warning is given if rules are broken, or reinstated if they have not. Thank you for understanding Dierdre that my heart is in the right place....I appreciate you saying that because it really is. It bothers me that members feel their concerns are not addressed which results in women leaving the board permanently, as in your case. What I hope helps is that everyone should be aware that some things happen automatically via computer program and other things are handled on a personal basis. There is no way a moderator could read every post (and I moderate only 2000 members). I rely on the program to let me know when someone's causing trouble. With a topic as sensitive as breast cancer, I think it's even more important that we be civil to each other and abide by the rules laid out by the administrators. I know it sounds like passing the buck, but trust me, there are times when it's absolutely impossible to maintain order between posters and things get ugly (and that's on a photog site). Multiply that by women, stress, disease, emotions, cliques, religion, politics... and you have a disaster in some instances. In cases like that, there is no choice but to delete the entire thread that has caused the grief. I'm not sure what happened in your situation, but I do hope you decide to come back with the knowledge that some things are done on programming auto-pilot....they have to be....it's not personal.

WE ALL NEED SOMETHING HERE!    Who are you to judge?  If you dont like it click away. 

The Moderators know about this thread and I have faith (something I didnt have before) they are working the best they can on this.

Please.  We know what the issues are, at this point I really dont see how it matters.  The point is that WE need to support each other.  If you dont like what is being said click away. 

gracie, I think Deborah was referring to the people who have been deleting the posts.  I didn't interpret her post to be a response to you.

Virginia, yes, I've seen it too, and I'm not referring to the "Five New Angels" thread.  That thread does have a real BC connection, since the woman who died was a breast cancer patient and her husband came here looking for support - any support - after his wife and children died.  His story is true; it hit the news here in Canada when it happened.  I haven't read that post in quite some time but I believe that the women here have continued to support Norm as he's been struggling with his loss.  That thread is neatly tucked away in the appropriate section of the board (Prayers) so personally I don't see it as being a problem.  The more concerning situations I've seen involve women who've never been diagnosed but who continue to come here in a state of distraught.  This happened a few months ago, prompting someone to start a thread about Munchhausen By Proxy syndrome.  Unfortunately some nastiness started up in that thread (some women didn't like that someone was being accused of not really having BC; it turns out that she really didn't) and that thread was deleted.  But the thread provided a good warning that we need to be cautious about what we read on this site.   This site is a microcosm of the world at large and there are going to be people who come here who are not honest, who are not telling the truth, who are here simply seeking attention.  There have been some really devastating examples of this over the years, with women pretending to be Stage IV and near death when in fact they've never had BC at all.  There is a natural inclination to believe everything that we read on this site but it's important to use the same radar here that we use in every day life when we are dealing with people.  If something doesn't seem right, it probably isn't.  If the description of symptoms and/or diagnosis and/or treatment doesn't match anything we've ever seen or heard, then it could be that 1 in 1,000,000 case but more likely, it's not true (either intentionally or inadvertently).

Deirdre, it's great to see you!  I hope that things are resolved in such a way that you do decide to stick around.

I haven't been on the boards in ages. After Deb C died, I just kind of completely lost any tolerance or ability to ignore the fighting and nonsense described in this thread. I "knew" some of the women involved, I knew them under their "original" names, but didn't know any of the back stories. I knew certain women didn't like other women, but I didn't know why (and I didn't want to know quite frankly.)

In any event, it sounds like one of those 2005 - 2007-ish timeframe women is newly stage IV. If it doesn't break any rules, could someone PM me the person's name or original screenname? If it's someone I know (for example someone from the first Circle Girls Christmas card exchange), I'd like to send a card via snail mail.

Thanks

Edited to add: I use quotes around "knew" because I only knew them online, not in person.

Thank you Beesie, I appreciate it.

I am not pointing fingers at anyones post.  I am pointing fingers at the problem at hand.  That ppl try to get ppl banned.  I just think it is sad. 

We need to support each other. 

Gracie sorry if you thought it was at you.  It wasnt.  I just want us all to be able to come here and get what ever it is that we need.  I see you want the samething too.