Accountability in a police state.
Comments
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my typing is so awful ~I might get banned by accident!
after a long time, my nails have grown really long and I refuse to cut the m just now a I start chemo tomorrow so who knows what...!
I find it hard to type on here as opposed to my uysuyal emails or Word - no idea why. (eyesight? doh....)
One thing to say about this site :
I live in Central London. There is absolutely nobody in the waiting room at my hospital (I've been going a lot to get my dressings done) who isn't quite a lot older than me, or who is not retired. Now, I am not at all being ageist, but what I find is that the oncs tend to group everyone together too, because of these arbitrary numbers they use. So I fit into the group between 50 and 80!! So they absolutely ignore all comments about my career etc and simply cannot come to grips with calling me Miss rather than Mrs. So, feeling that it would be good to exchange ideas with a fellow Brit professional (and no slight intended at all to anyone in a different grouping) I spent 3 hours surfing last night trying to find a British one. Nada. Doesn't exit.
So despite some shortcomings of things, as a Brit I am very glad to have this site - there is plenty of traffic so no-one as it were is ignored or waits long for info, and there is golden knowledge to be found evrywhere. AND I really like the sassy approach of so many people on here. In England, the moderators would chuck almost everybody off!! So much for one of the oldest democracies..........
Best wishes to all for continued exchange of opinions and knowledge -
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Beesie, thank you for that explanation. I appreciate you taking the time to elaborate. This is going to be tough for me to say because I'm not one for disagreeing just for argument's sake, but I'm not completely convinced that it works that way. At least that is my understanding and I could very well be wrong. I believe that if a post is reported by the community, however many times to warrant it's removal, it says "this post has been removed by the community". If the mods have done the removing, it says "this post has been removed by the moderators". I don't believe it's an automatic thing. My impression is, and again I could be wrong, that it doesn't reach the "deleted by moderators" stage until after it has been reviewed. Now I'm guessing that with 55,000+ members they are expecting that we, as adults, have the ability to generally moderate ourselves and be civil to each other. I doubt that having them read every post is a realistic goal, nor should it be necessary. It is however, necessary for them to step in and deal with complaints, harassment, bullying etc., but unless they've been made aware of the situation, it's unfair to expect them to step in., given the amount of posting that's done in a day. Having said that I believe that once the situation has been reviewed, they deal with it on a totally impartial, factual basis. Granted they wouldn't be aware of the pm's and the bickering that goes on privately, but I do believe they are making judgement calls based on what each individual has posted. I would be inclined to think that is why some are re-instated, banned temporarily or banned permanently. Having favourites sounds kind of ridiculous. They have no idea who we are and in all probability, don't care to get to know us personally. However, just like in real life, if you're one of those who is a chronic complainer or always blamed for harassment, I can guess it probably leaves an impression and that it might (and it's a stretch) , skew their opinion., though I seriously doubt it. As for members volunteering to help moderate....serious??? There are a lot of women here with issues. Do you really want them in charge of what's appropriate? That would be nuts. Just as a footnote, the most recent proof that they are taking care of things can be seen in the DCIS forum on the "RE: A goodbye" thread. I really do think they are doing their job and doing it well. I know I wouldn't be as gracious in giving someone the benefit of the doubt when it comes to some of the stuff I've read on here, but I truly believe that in the majority of cases, that's exactly what they're doing. If not, I have no other explanation as to why some are still allowed to post here because IMO, they are breaking the rules, constantly. I really dislike voicing my opinion on this again just to re-hash it over and over, but I think it's important for someone new to the boards to feel comfortable. Being new, and reading some of the bickering, IMO, would deter them from participating and that's never a good thing. You never know who is going to hold that one piece of information that helps us live with this disease. Nobody should ever feel uncomfortable, unwanted, stupid or scared to post when fighting a disease as horrible as cancer., yet we see it on a regular basis. Perhaps, if nothing else, it will make us all mull over the rules of conduct to make sure we're adhering to them.
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.....and JO-5, thank you so much for the laugh. I really needed that today...."herding chickens", Ha! I always thought of their job as having to tell a bunch of unruly kids to behave without ruining their self-esteem. We all know how tough parenting is!
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gracie, I looked at the post you referred to in the DCIS forum. I have two observations.
First, I notice that Deirdre has not posted again since her good-bye post. She was a valuable and frequent participant on the DCIS and reconstruction forums, offering great support and great advice. So it appears that the way the situation was handled has in fact driven her away.
Second, the response from Melissa came yesterday, 2 weeks after Deirdre's post. What took so long? As for the response, Melissa does not address the concern that led Deirdre to leave the board except to say "this was the thought to be the best answer (that is, delete the thread)." What's really interesting to me about the whole situation, and the response, is that by coincidence it happens that I raised the exact same issue in a post in this very forum several months ago. I did this after a couple of threads were deleted in response to a just a few posts that were problematic. I had put a lot of time and effort into researching and writing answers to some questions in those posts, and I was very frustrated that my efforts were thrown away and lost. The same was true of a number of other women who had responded in those threads. The answer I got from Tami was exactly the same as the answer Melissa posted yesterday. And interestingly, my thread raising the concern, which several others had posted in and agreed with, was deleted.
So I guess I don't agree that this is an example that shows that the job is being done well. Quite the contrary, in fact.
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And I too blame the moderators, because they allow certain members to play the system in order to get other women banned. That's wrong and it should not be allowed.
And that's what happened again to Nicki.
Gracie, if the "members of the community" delete your posts, after 5 times of that happening, you are AUTOMATICALLY banned for several days, maybe weeks, I think it might be 2 but I don't know. If that happens more than a few times .. which happens easily if you get ganged up on, you are permanently banned. The mods rarely respond to victims of this, just respond with a canned, copy and pasted "reason" for the banning.
The problem many see is that there is no viable alternative to this site. And it happens because women with bc move in and out of fear. When they are not fearful, they are chatting on various subjects, then mammo day comes up and they need the cancer support. Or they are 5 years healthy, involved in Chatty threads and get banned by these stupid women.... then wham! from out of left field, they are rediagnosed and really need to come back. But because they have enemies they are hunted down, exposed and banned again .. this time by the mods.
The mods then tell them they were permanently banned. Excuse me? What is the reason for permanent? Why can't they come back?? It's really the ones who are the hunters who are the devious people.
They really should not claim to be a public board. It is private and riddled with cliques.
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Beesie, I sent you a pm. I hope that's o.k.
Edited to remove a statement I made that is not accurate.
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I am not sure who has been banned here this time, but I must agree that at times the forums here are very much like junior high school ( as in lets get our own thread going girls we are so special, gags me when that happens) cliques suck, but what can you do? if you don't make those people feel as special as they feel they are they don't accept you, oh well, is sad but let them live in their own special place apparently they need that. I would however like to tell Beesie that I find all her posts very informative, get you thinking , and alot of the time comforting , not at all aggressive, and most importantly adult. hugs to all, this site is great even with the catty, self important members, lets not let the claws out, just pity the forlorn sad ladies that need to run in packs.
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I could be wrong but I believe it was started about me (my post and getting banned). Thank you for wanting to change things so that no on else ever had to go through what I went through. I am sorry to see that nothing has changed.
I am confused as to why anyone would not think it was the moderators fault for banning if they are the ones to monitor. I dont know what else they do but their title on the site is "moderator", so isnt that their job? IMHO it means just that, not to just ban people. To do the job properly I would think they would read the reported post then do what is needed to correct the issue. Yes they have the right to do what they want. In my case I was new to the board and YES I did miss blocking out a some cuss words. But I was in such a time of NEED, I was so distressed, I could not imagine why anyone could not see through my pain and report me. But they did. Like I have said before, why would someone not just send me a PM asking me to clean it up? If I didnt then by all means report me. As far as the moderators why not just send me an email asking me to clean it up? Or DEMAND I clean it up or suffer the consequences? Nope. Just banned. To me that is doing a poor job.
This is a discussion board, -noun an act or instance of discussing; consideration or examination by argument, comment, etc., esp. to explore solutions; informal debate
See it doesnt mean that we all agree.
I was sure I knew who reported my post but I was just given information that in fact I was wrong about who reported me. Funny I was all mad at someone for nothing. I am glad I am the type of person that look further into things. I could have stalked the woman I thought it was, sent her nasty pms, or reported her to try to get her banned like I thought she did me. I am so glad I am not like that and I didnt.
Now the really funny thing is the person that MOST LIKELY reported me, I sent a pm to complementing her on something (right after I was allowed to return). We also discussed how the F word offended her. I apoligized. There was no rudeness, no hate. People can agree to disagree. People can also just click away. It is so simple I really just dont understand, why someone would go out of their way to create problems for someone. Dont we all have enough problems?
As you all know I am kinda negative about cancer. Sorry I have yet to be all warm and fuzzy about it. I am however very positive about the rest of my life. I am grateful to all the ppl I have met here.
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I just found the PM that the moderators send me "after" I was banned and they removed my post.
"We also kindly request that you change your avatar and remove any inappropriate words."
My avatar had been changed the week before and I am pretty sure had not been reported. The post was removed; so how could I change or remove anything?
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OK, perhaps I was a bit harsh about the monitors. Sorry Tami and Melissa.
If anyone has constructive suggestions as how to help the site, and protect members please list them so that we can help.
Here are my ideas...
I am not sure if the monitors have a way of seeing who is reporting the posts. If they do, maybe they can keep track of the reporters to see if they are the problem or if the post itself is the problem.
If a post has been removed by "the community" maybe the monitors can reinstate the post if found not to have broken the rules. Maybe with a note stating the following post has been reviewed by the moderators and has been found to be appropriate. Or disengage the report this button on that post.
What other ideas are out there?
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Good ideas. How about this suggestion:
When a post is deleted by the community, the notice that the post has been deleted should include the names of the people who pushed the "Report this Post" button to get the post deleted. That would end the abuse once and for all. This suggestion has been made many times before and those who report spammers (and I count myself among that group) have all said that they would not object to this being done.
Note that I make this suggestion as someone who just had 4 posts "removed by the community" and as far as I can tell, none of those posts were offensive or violated any rules. So I'd sure like to know who removed my posts, and why. And to your point, I hope that the moderators do review all the deleted posts and reinstate those that should not have been deleted because the do not violate any rules.
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Great idea Beesie!
I love bees check it out! This is when I got my mohawk, before I lost my hair. I died it hot pink on top too. LOL The tattoo I got for my birthday last year.
Thanks keep em coming ladies and gents.
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Beesie, I think I must have read those posts and can't understand what upset anyone. That is just nuts!
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What on earth is going on here? There was nothing in Beesie's posts that violated the rules.
I agree -- if a post is removed "by the community" then the poster should be told who complained. Anonymity cannot help but lead to abuse. Remember "The Little Foxes"?
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I like the idea of having to explain why you reported a post. That certainly would be an easy fix. However, against my better judgement, I just have to bring attention to the fact that you can't please everyone, all the time. The mets forum went through a rucus a while back where it was mentioned that non-metsters questions, comments, advice etc were not appreciated. Hence, the moderators created an exclusive forum for Stage IV. A lot more work, I'm sure, but they did it to please. Sure, the members who wanted it were happy. Did that help any? No, it just resulted in many metsters leaving the forum permanently...now they all lose....and now I see the topic rages on. IMHO the mods are in a no-win situation.
Edited for spelling.
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Gracie, you're right - you can't please everyone all the time. And when that happens, the most appropriate response is to "turn the other cheek" (as I said in one of my deleted posts) and ignore whatever it is that you don't like, or the people you don't like. Deleting their posts should not be considered acceptable behavior, even if you've displeased with what someone else wrote. If a post is not in violation of the rules, it should not be deleted. And any community member who deletes posts simply for personal reasons should be dealt with by the moderators. I'm fairly good at seeing gray in things but to me, this one is pretty much black and white.
Did the moderators have to deal with a difficult situation with the mets forum, when a number of early stage women were posting questions there and sometimes making inappropriate comments? Yes, it was a difficult situation. Some people were happy with the resolution; others were not. But the fact is that lots of us have difficult jobs and lots of us have been in situations, either on the job or personally, where we've had to make difficult decisions that we knew wouldn't please everyone. I had one job where I was in that position pretty much every day for almost 3 years. The fact that it's hard or that someone might be upset doesn't change the fact that the job still must be done.
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Beesie, I wish I had the opportunity to read that post...I missed it, but I get the jist. We're almost totally in agreement. YAY! I completely agree with your first paragraph. However....(sigh), that whole thing on the mets forum did nothing but result in three redundant forums and a whole lot of bad feelings. It's just an example of how, even when they try, they fail, in someone's eyes. As you pride yourself on seeing gray, I pride myself on remaining objective and fair. I couldn't do so with the end result of the mets re-formatting. It bugged me and I personally lost a poster who was very helpful to me. It was clear to me what was going on and the (insert whomever or whatever word you like) just ended up getting their way. So to sum up, I have no idea how the mods figure out what is going to happen where, or even why, but the point is, they did do SOMETHING. Ironically (because I seem to be sticking up for the mods alot), not something I personally agreed with. I guess when you reach my stage, where you have maybe a year left, tops....these things all seem so unimportant and trivial. I think we can agree that if you don't like someone/something...use the ignore button....life's too short.
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....and now I will forever shut up on the issue.....I know I promised you that before!!!!!
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Hi All,
The reason that Paprika was banned was because she has been banned previously under different names, and it became apparent over time that this was her again. Although Paprika did not break the rules under this particular name, she did so on numerous occasions with other names. We have to have rules of conduct, and this is one of them. Sorry for this, really.
Melissa
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Moderators have a thankless job. But I'll thank you.
Anne
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Thank you Moderators from me too.
Sahalie
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Thank you Mods for all you do but I have a question. What does it take to reinstate a stage IV lady that used an alias to get back on the board and didn't break any rules this time? Don't we all need to forgive her? I recently read that the guy who bombed the plane over Scotland years ago killing many people was released from jail because he is stage IV. Surely Paprika deserves a second chance, don't you think? She obviously needs something that she finds here.
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Mods,
Thank you for setting things straight. You have a huge job and let me assure you that this site is a Godsend. Hugs, Mazy
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I would hope she could be given another chance. I know that there are several other 'banned' people back under different names.
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People with cancer should NOT be permanently banned. Period.
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Mods - I agree you have a very difficult task in this instance.
But - what about one more try?
The quality of mercy is not strained.........
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It dropeth as the gentle rain from heaven,
upon the place beneath
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Thank you Moderators, just wanted you to know that you are appreciated. Also to the people that want banned people to come back, please make it ALL banned people not just one. Thank you.
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Of course!
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Well, I don't think spammers should be allowed back. I don't think people who come here touting miracle cures for cancer should to be allowed back. I don't think people who signed up only to promote their own websites or sell products should be allowed back. Some people have been banned for very good reasons, let's not forget that.
As I see it, there are special circumstances in Paprika's case. She is Stage IV. And she has shown that she can and wants to participate on the board without violating any rules. If she is allowed back (and that's a big "if"), are there others who have been permanently banned who should also be allowed back? Perhaps, but I don't know if there are any others who have been permanently banned who even want to come back, except for the spammers and those promoting their miracle cures. So let's not pre-judge every situation based on one situation. There may be others who also want and warrant another chance, but if the Moderators decide to allow Paprika back, I trust that they will review those other cases and make the right decision based on the facts of those cases.
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