1 lymph node/each side - IDC found - info needed

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suegmomof3
suegmomof3 Member Posts: 168

Hi ladies,
I am posting on behalf of a friend of mine who is recovering from her BLM that she just had last week.  They thought she had DCIS based on her biopsies, but the path from her surgery showed an invasive component found in 1 lymph node out of 7 on the left, 1 lymph node out of 7 on the right.  So now she & her husband are trying to determine what's next.  I told them I'd post on here (I have found this site so incredibly helpful during my own DCIS / BLM / reconstruction experiences this year) to see if I could locate some ladies who have gone through a similar experience - cancer found on both sides, lymph node (though minimal) involvement on  both sides. I would like to know what course of treatment did you take?  She is being told that another surgery is necessary to remove additional lymph nodes.  They are working on getting a second opinion with one of the top b/c surgeons/oncologists in our state, but in the meantime, I would love to hear from any of you who have experienced this type of diagnosis or have insight that would help them out right now.  I have asked them for the specifics from their path report (ER/PR/HER status, size of tumors, etc) but right now I don't have that info ... I'll post it once I get it ...

 Thank you in advance for your help - you are all wonderful ladies, and we are all so lucky to have this site!!!     Sue

Comments

  • Kindergarten
    Kindergarten Member Posts: 4,869
    edited August 2009

    Hi, there, I hope I can be of some help. So sorry that your friend has to go through this, but know this board is very supportive. Your friend is lucky to have such a supportive friend. I was also diagnosed with bi-lateral breast cancer in 2004. I had a 2 cm tumor and one postive lymph node on the left side and a 1.5 cm tumor, no lymph node involvement on the right. I did my treament at Magee Women's Hospitial in Pittsburgh, Pa. I went through 8 rounds of chemo first to shrink my tumors, then a bi-lateral mastectomy, 37 radiation treatments, and finally a total hysterectomy. I am currently on aromasin and doing well, almost 5 years out. My surgeon and oncologist were very aggressive in my treatment. Your friend will be in my prayers as she goes through this difficult journey. She will get through this through faith, a great support system and a great medical team. I view each day as a gift from the Lord and she will too. I wish you both all the best and please know that treatment is even better now. God bless you, Kathy

  • London-Virginia
    London-Virginia Member Posts: 851
    edited August 2009

    So sorry for your friend's illness.

    I have one node with micro foci out of 2 sentinel nodes removed, and I have been told they want to go back in to do a full axillary strip.

    I have not decided if I am willing to do this.

    I start chemo on Friday (FEC) and will later have rads.

    Not quite the same as your friend but I hope this may help a bit.

    Best wishes

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited August 2009

    Thanks to both of you, Virginia & Kathy, for your prompt responses.  I have forwarded your information to my friend.  I hope more ladies with similar experiences will also provide their feedback!!  Thanks again, and best wishes to you both!!!!  sue

  • London-Virginia
    London-Virginia Member Posts: 851
    edited August 2009

    There is a threadf a bit higher up under in active topics which considers nodes and micromets - it is something of a controversial subject I am afraid.  Some oncs think one thing, others another.

    anyway = all good luck -

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited August 2009

    I wanted to provide more info from the path report for my friend: 

    There is vascular invasion in left breast in addition to ductal cancer.  The tumor size is less than 2 cm in each breast.  18 mm is the size of the tumor in the left; 11 mm is the size of the tumor in the right.  ER/PR/HER status for the LEFT breast is ER+/PR+/HER neutral.  Right side results aren't back yet.  She's been classified as Stage II - having mets on the right side and micromets on the left side. 

    Since I didn't have invasive components to my cancer, I'm in new territory for me.  Any insights that you can provide is much appreciated .... Does it make sense that the next step is to go in and remove additional lymph nodes?  That's what her dr is suggesting.  Remember at this point she's already had the BLM with SNB (7 nodes removed from each side).  Thanks !!!  sue

  • Kindergarten
    Kindergarten Member Posts: 4,869
    edited August 2009

    Yes, after my chemo and the day of surgery, the surgeon performed the sentinal node biopsy to see if any more nodes were affected. I had 28 nodes taken from my left breast and 6 from my right breast. Everything was clear. The one positive node was found before chemo. Chemo does its job. Good luck again. My prayers are with your friend. Again, what a great friend you are. God bless you, Kathy

  • simmonba
    simmonba Member Posts: 41
    edited August 2009

    If they have already identified vascular invasion, your friend shoud ask exactly what the additional lymph node dissection is intended to assess.  If they have already identified mets on the left and micromets on the right and are doing/have done the pathology reports post-mastectomy,seems to me they have most of what they need for treatment planning.  They will probably do a number of further scans to check for other mets (bone, liver, etc) as well.  The axillary node dissection is a pain, and  carries that 20% risk of lympheema, which completely sucks; so I would ask why for sure.  Take care and hugs -

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited August 2009

    Thanks so much, ladies!!  I've forwarded all of your responses on to my friend. Tomorrow she is going for a 2nd opinion with a top dr in our state, so I am hopeful they will get many of their questions answered then .... take care!  sue

  • 55Barbara
    55Barbara Member Posts: 72
    edited August 2009

    I faced similar decisions as your friend after diagnosed with bilateral bc. During my bilateral mastectomy one side sentinal node was positive a a full axillary disection was done. The other side sentinal node was negative but then the full path report found positive nodes. I freaked then had dose dense chemo. My oncologists at Dana Farber in Boston was adamant that I have a full axillary node disection on the other side after chemo and before radiation. My case was discussed at some sort of tumor board there and the full axillary node dissection was their recommendation. My oncologist explained that my treatment plan wouldn't change but it was highly likely there would be other positive nodes and they wanted them out of there. I had the full axillary dissection after chemo but before radiation. I think around 9 nodes were found and they all were negative. Makes we wonder if I should have done this or not. I have no issues with lymphedema at all. 

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