Need Hope Being Node Positive

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited September 2008

    March,

    No! Triple negative is NOT bad news to everyone.  Read other threads in this area and there is plenty of proof.  As of being positive,,,it is a choice we make.  Whatever time we have, we still have hope until all of the options are eliminated.  Research is on going and some of us will try options outside of conventional medicine, and I always continue to look to God for a miracle.,  I'm in line from one until the very last minute of my life.  I'm sorry you are having such a hard time.  I have never stop chemo since my dx, and have had chemo for three years (7 diff kind & 30+) along with three surgeries and rads.  I feel great and continue to work full time job.  Most don't know that cancer is part of my life.  Many have a life in the middle of cancer.  It's a choice we make early on to never stop fighting.

    Flalady

  • March907
    March907 Member Posts: 11
    edited September 2008

    Triple Negative is indeed bad news.  The survival rates are the worst, especially with node positive results.  The mets are faster and the amount of treatments are severly limited.  I am praying for a miracle, too....because that is all we have.  March

  • Vickan
    Vickan Member Posts: 54
    edited September 2008

    Hi March,

    We are all frustrated and have dark days. But we all need support and hear about positive stories which may help us in our daily battles. Cancer is always bad news that I can agree with you. Of course I know that having positive nodes is not positive results. The major thing is that it CAN BE BEATEN!

    Whish you all the best.

    I need positive hopes so please add stories which may help me.

  • nosurrender
    nosurrender Member Posts: 2,019
    edited September 2008

    Christine,

    I am sorry about your status now. But you are on treatment and chemo works on TN. There are so many new tx available to us that your future is not as bleak as it may seem. yeah you are angry and scared- no doubt! 

    I have found though that thinking it will fail before you have a chance to see it is working only makes us feel worse when we are fighting so hard.

    You have every possibility in this world of going for your next scan and discovering that you have a reduction in your mets and a stabilization of your disease. Focus on that and not that it won't work... someone has to make up the positive percentage points- why not you?

    You asked "Why are you all so positive? Triple neg is bad news. Alot of us are going to die soon. Don't you get it?"

    I was diagnosed in 2001. I had substandard chemo for TN and I am still here. I fought a new primary last year, did nine months of chemo and rads and I am still here. To answer your question for myself- I plan on surviving this disease-even if I am told it is everywhere and there is nothing much that can be done. I believe in living life to the fullest no matter what circumstance I am in. I would rather live like I am living than live like I am dying- I hate that song!

    HOPE HAPPENS.

    I wish for you shrinkage and stabilization on your chemo- and if it doesn't work- SWITCH until you find the cocktail that works best for you. Find a new onc if necessary. 

    I HATE CANCER. I refuse to let it get in. It may like to mess with my body but it is not going to touch my spirit or resolve and I will never give it an inch. If it comes at me with a knife my onc will go after it with a gun. I plan on going out swinging because there is no way in hell cancer will have the last word.

    That is how I view it to answer your question.

    Good luck with everything-

    no surrender

  • nosurrender
    nosurrender Member Posts: 2,019
    edited September 2008

    To everyone-

    All I can add is I am NED from my TN dx

    My sister is NED from her TN dx

    One of my best friends is NED from her TN dx

    Several women on this board and on the TNBC board and my board are NED with their TN dx

    HELL YEAH IT CAN BE BEATEN

    And if it comes back as METS- it doesn't mean you are done. It means you are back in the fight and you will be on chemo which sucks BUT chemo WORKS BETTER ON TN!

    Fight like hell

    enjoy every moment of your day -

    Don't let the beast in-

    That is what it wants- I firmly believe the Beast gets more satisfaction messing with our minds than it does our dna.

    Love

    g

  • cmb35
    cmb35 Member Posts: 1,106
    edited September 2008

    Gina - Another NED from my TN dx (May 2005) and going strong! Love ya girlfriend, cmb

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009
  • Scoobydoo
    Scoobydoo Member Posts: 499
    edited August 2009

    Thanks for bumping this thread angelsabove.  This has been so comforting!  Yeah we are going to kick some BC butt!

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Scoobydoo,

    Good to see ya post...Yep needed some more positive. So for that YOU ARE VERY WELCOME. So let us kick cancer butt....lol

  • renahen
    renahen Member Posts: 12
    edited August 2009

    I'm 23 years out having had 22 positive lymph nodes. I suppose it's true that there is no rhyme or reason to this disease, but I know many women who are 5-plus years out from a TN diagnosis. I'm sad (and angry) for the woman who have a recurrence, but I'm optimistic for the many who won't. Rena

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Rena,

    You are such an inspiration to us all. Thank u for posting. Simply AWESOME!!!!!

    May God Bless Us All

  • Tabatha00
    Tabatha00 Member Posts: 133
    edited August 2009

    You know what sucks?   CANCER...........ANY KIND OF CANCER!!!!!   We all just happen to have breast cancer.   So what do we do about it?   WE LIVE!!!!!   We go to Dr's we trust, we do the therapies they recommend and  to quote a line from one of my favorite songs  "GOD SAID IN ORDER TO LIVE YOU HAVE TO BREATHE".    Take it one day at a time.   Do we let get ahead of ourselves sometimes, sure we do.    Are we scared?   Sure we are.   GOD IS IN CONTROL!!!!!   You have to put your life in the Lord's hands and have FAITH....walk in FAITH!!!!!!  

    There are so many diseases in this world that are fatal......not just cancer.    What are we supposed to do just give up and die?   Hell no!!!!!!   I have 2 kids, a fantastic husband and a wonderful family and friends.   I'm looking outside my window at work right now and do you know what I see?   I see the sun SHINING, I see the beautiful green trees and grass.   It's gonna take a lot more to get me laying in the bed wasting my life away. 

    We have cancer, let's kick it's ass and move on.   If it comes back, I'll kick it's ass again.   I know I'm just at the beginning of this journey but you have to have a POSITIVE attitude.   It is NOT a death sentence.  My sister is 11 year survivor.......my aunt a 10 year survivor.   YOU CAN DO IT!!!!!   There is no way I'm going to just stop living because somebody tells me I have cancer.   Sure I'd rather not have it but it's not going to take my life away from me.   I'm going to laugh with my kids, do things with friends, enjoy working (most days....lol).

    GOD IS IN CONTROL!!!!!!!!    Knowing we don't have control over ANY of this is a hard thing to wrap your head around but once you do and trust me I have to tell myself this quite often but GOD HAS A REASON FOR THIS.   If he didn't, he wouldn't have allowed it.

    Oh, and I could get hit by a bus on my way home from work today and I would have worried about breast cancer for nothing.   I'm not saying you can't be worried, scared, throw pity parties for yourself, I've done ALL of those.   BUT YOU GET BACK UP.   YOU FIGHT!!!!!   YOU DIG DEEP!!!!!

    I'm about to start chemo soon.  I have 2 Dr appts on Friday and I'm nervous about both of them but my family is going with me and I'll take whatever they tell me and I'll pray about it.   I have a prayer team like you wouldn't believe.   I'm going to the Dr appointments FOR MYSELF AND MOST ESPECIALLY MY KIDS who are 9 and 15.   If I have to lay on the couch for a couple of days because I'm tired after chemo at least I'll get to hear how their day went.   Oh I'm not missing that for the world!!!!!

    We all have our down days, it's OK.   It really is.   People have told me that over and over but whatever you do YOU DO NOT GIVE UP.  

    You can go read my caring bridge page and see the things I've been through since May 22 the date of my diagnosis.......it ain't fun, it ain't easy but I'm still here.......my kids have their mom, my husband has his wife and my parents have their daughter and my sisters have their sister.  

    So, go read my journey...........www.caringbridge.org/visit/tabathaallen.

    I have good days and bad days.........I'm gonna have a sense of humor no matter what.   The only thing I ask that people do for me is pray for me.  Pray for God's healing hands upon my body.   I pray that for EACH AND EVERY ONE OF YOU EVERY SINGLE NIGHT!!!!!!!!  

    Sorry to go off on a tangent but it just came out of me.   lol

    Tabatha 

  • Tabatha00
    Tabatha00 Member Posts: 133
    edited August 2009

    Oh, and it ain't over until the fat lady sings..............I don't hear her singing!!!!!!

    Tabatha 

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Tabatha,

    YOU GO GIRL.....I have had so many ups and downs.....I am in the middle of my treatment....BOOBLESS and BALD @ 36...Yep IT SUCKS!!!!! There are those that beat it and I pray that GOD WILLING WE DO.....I too have my WONDERFUL husband and three amzing kids....LOTS OF FRIENDS and Family....PRAY PRAY PRAY......

    I pray each and every day that by the blood of JESUS we are healed.....

    May God Bless Us All..

     Did my moping on a lot of days then decided ok that means (Cancer) got that day....I now try to NOT allow (Cancer) to steal my days....

  • jenn3
    jenn3 Member Posts: 3,316
    edited August 2009

    I too am TN - boobless and bald at the moment, but on my good days and there are more good than bad I am getting out and enjoying life.  My doctor feels that I have a wonderful chance of beating this and I believe him.  I refuse to believe the worst!!!

    Earlier in the thread I saw that someone mentioned Avastin causes a hoarse voice - thank you.  Right after I started treatment I became hoarse and figured it was a side effect of something, but wasn't sure what.

  • angelsabove
    angelsabove Member Posts: 363
    edited August 2009

    Jenn3,

    Good to know I am not the only boobless bald girl out there...LOL....Gotta find some humor in this mess. I had my #11 weekly Taxol on Monday and today I am SORE SORE SORE. That is when I have the HARDEST time keeping it positive. The days I feel like dog pooh.....Keep all the positivity flowing.....I did manage to get kids off to school and STAY UP WITH NO NAPS....See there is the positivity...LOL

    Lots Of Love and MAY GOD BLESS US ALL

  • tibet
    tibet Member Posts: 545
    edited August 2009

    Jenn3

    On your signature, you have stage IIIA and mets on it. Do you have mets? Maybe it is a typo and if so, you can take it of.

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