Treatment ends, hair returns, 'support' dries up...
Ok, here I go again. Anyway whos read my recent posts on here will know Im not in a good place. Ive had a terrible time since my treatment finished and quite honestly dont know how I am supposed to recover from this.
A friend went with me to my recent follow mammogram - which was wonderful of her. This friend has been 'helping' me by giving me work (I only have part time 2 days a week work and Im single and my friend is in a managerial position at work and has been using me as a casual worker for the other 3 days of the week for the better part of this year - till now) However, the next day, after my test was clear, she told me that she had just realised that the work was all up to date and as such she could not at this point in time give me any more work - not saying the work will never be there, just not for now anyway.
Is this a coincidence? Or is it that now it has been a year since this journey commenced, and my follow up is clear so now Im on my own. Now have to worry about where the work/money is going to come from....just one thing to the next. I have noticed this with many others too...youre well, you no longer have the head scarf on so I dont have to be as nice to you anymore.
It's so sad that others dont 'get it' till it happens to them. Just because the treatment has ended, and we are looking well, doesnt mean that we've forgotten and moved on. It's like for them nothing has happened. Im not saying that others should try to carry us or whatever, just feels sad to me that it seems as though the message is, 'its been a year, youre ok now I dont have to try to support you anymore' Do you know what I mean, or has this come out all wrong?
Comments
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Look at it another way. Your manager-friend has been squeezing some money out of her budget to help you out. This was a great thing, particularly given the rotten economy. Her budgets are tight and she's spent all the extra she had, plus you've done the work so it's time for this to come to an end.
Be grateful she helped you out and that your mammo was clear! Your situation wasn't ever anything you could do forever, it's only part-time. Now that your cancer situation is stable maybe its the right time to look for a more permanent position.
Your friend will be a good recent reference.
I know you're feeling down and out, but I think it's worth taking a different view on it all. She did what she could to help you out in a bad time --
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Yes youre right, and I have been looking at it this way. I guess it just seems like a disappointment to me that youre better now physically, so youre on your own now emotionally. I know this came across like just a complaint, and it wasnt meant that way...just feeling a bit let down I guess.
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rubyredslippers, tell yourself that she came with you to your follow-up mammo. That's a BIG thing emotionally. If you read these boards, you'll see that it's one of the hardest things to do after treatment. A lot of people go alone since friends/family think "Treartment's over, you're fine". Your friend saw that you needed her emotionally for that appointment and went with you. Even though she can't help you with work any more, she sounds like the kind of friend who will still be "a shoulder to cry on" when others are saying "Get over it".
I just finished rads this week, and I don't know if I ever will "get over it".
(((((((((((((hugs)))))))))))
Leah
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rubyredslippers - it is hard to remember that we are the ones going through this crap - everyone else is just getting on with their lives. As much as they care for you, love you, admire you, think you are a good worker, or just a good friend, their lives just keep on going the way it always did. We get stuck here.
I come here to rid me of the BC demons - I have great friends and family but I don't want this stupid breast cancer to come up in conversation all the time and they certainly don't. I sneak here and find comfort in these lovely ladies who also want to blah on about this stupid stupid disease and I feel like I can walk free in the "real world" just for a little while.
You said it yourself you don't "get it" till you are one of us.
big hugs and good luck with the job hunting
Helena
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Hi,
I am british living in Singapore and as soon as I found out about my cancer, I joined the local breast cancer foundation. A huge percentage of the support group, were people who had their cancer from between 5-10 years ago. In the beginning I wondered why they were still there, assuming that once the cancer was gone that you didn't need support. Now that I am 5 months out of treatment I realise that although we can all look forward and stay positive, we have the rest of our lives with tests and more test on the horizon. It is a scary thing at every point knowing that there is a chance of reoccurance, so being consistently around people in the same situation is comforting and you know that everyone understands.
I'm not sure Rubyredslippers, but maybe you are just anxious about the future and already know that you will still need support and understanding along the way. Is there a breast cancer support group anywhere close to you? Is there a team of some kind you can join for bc suvivors? the girls over here have a fantastic time at every event as we all know that we are lucky to be here. I joined the dragon boat team and what fun. I would suggest keeping other postive breast cancer survivors in your life even if it is only through these boards, they have been so good for me. You could start a group of "lets keep the support going" group, I know you are not alone.
Hope this didn't sound like a lecture. Take care and let us know how you are doing.
Singapore Chris x
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I agree with Singapore. I finished treatment on July 7, and am just now getting involved in a support group. During treatment I had lots of support from my friends and family, but now I need the support of other women who have "been there, done that." I also didn't have the time or energy to go to a support group during treatment, since I was trying to work as much as possible. Only those who have gone through this journey can fully understand the terror that grips us sometimes, the worry always lurking in the back of our minds, and our need to talk, talk, talk about our experience.
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I wouldn`t have known the importance to stay as caregiver to my sister if I didn`t have all of you ladies educating me this past 1 1/2 yr. I am so grateful that I have these threads to read and learn, it breaks my heart that any of you feel abandoned!!! I wish every friend or caretaker knew about this site and to stay involved and to learn that it is just as important to be supportive after tx`s etc!!! My sister feels so guilty and that she is such a burden to us all that she would never tell me or our other sister that she still needs our shoulders to cry on, or needs to call at 2 am because she is scared, or she wants me to continue to take her to appoinments etc, etc,!!! Because of all of you, she doesn`t need to tell us we are there as the 1st day of Diagnosis and will remain this way. I sure would bet if your loved ones knew and had the education they would be there!!! Ruby, tell your friend how you feel, she may just not know.I would have thought the same, "well she is done with chemo, she`s had her mastectomy, hairs growing back, she must be fine" and phew we can just go back to normal, lots don`t know that your normal is no more!!!We can`t possibly even to begin to know what its like to have B/C but we need the opportunity to try, so you need to explain it, help out your friend she needs to know your fears so she can continue her support for you.xoxoxo Deb
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Ruby - I belong to a face to face support group. Some of the women had BC over 10 years ago, a couple of them had recurrences over 5 years ago but they are still coming to group support.
Why? As one lady mentioned "I finished all of my treatment so my husband and family think that I should be ok and get back to where I was before I found out I had BC. What they don't realize is that I still have chemo brain, I still don't have the energy I had a year ago" We got what she was saying because we have experienced the same to some degree ourselves.
One lady is dealing with chemo brain and neuropathy 3 years out of chemo! It doesn't go away just because we have finished treatments.
I am sorry that you had to experience this disappointment but maybe nicely explain to your friend that BC is with us for the rest of our lives. Sure our hair grows back, but we do change both physically and emotionally. I think many times the lack of compassion that we expect out of others is due to their ignorance of what we are going through and what we will continue to go through for the rest of our lives.
In any event, we are here for you!! I plan on sticking around for years and years! I will continue to go to my support group even after I have completed treatments because if anything, maybe I can help make someone else's journey a little bit easier on them.
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There are no support groups in my town, there is one in a town nearby - they meet of a Friday - I work on Fridays.
No one I know asks me how I feel and no one talks about it. If I tell some people I am afraid and so on, you know the drill...Im not coping.
The friend I mentioned above once said if I ever wanted to have a "bitch and a moan" I could talk to her...so I havent.
It's easy to say go to a support group, but for some of us there are no support groups and not much support anywhere else either.
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If you need support ask for it. Send your friend a thank you card for all the help she has been and tack on, if you need me again, just ask. Thank her for going to that appointment. You appreciate her understanding, and although it appears that everything is finished there are some final symptoms to deal with and breast cancer will always be present in your life.
Ask her separately for a letter of recommendation. Make sure she gets the card first.
As support dries up, you will find that there are others willing to be there for you. They are the always friends. The sometimes friends are leaving now. We here are ALWAYS friends too. We just cant hug you physically.
Hope to meet you one day. Come Toronto way. I love company.
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I remember feeling just like you do. I went to a support group but everyone there was on their 2nd recurrence. They were nice but I felt like I couldn't trouble them with my 'silly' gripes. Now I realize they really understood me in ways family and friends couldn't.
This is the best support group that I have found. People here are kind and caring. We have all been disappointed with a friend who just didn't get it. But sometimes the only way you 'get it' is to be one of us. So we really don't want our friend to 'get it'. Hold on and come here to vent. There's always someone here to understand and send a hug. Hugs Maire
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I got something today and on it was - Friends are like stars, you cant always see them but they are always there.
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Dream, that is soooo true
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I really do feel a sense of belonging here, and really do appreciate the support and advice I recieve from other women here. thank you all. xx
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I finally asked my daughter to ask me how I am and mean it---and listen to my ans. I promised to be honest with her, something I'd not done in the past. I kept the pollyanna attitude to my kids, and it was NO help at all for them or me. Of course, it took me a couple of years after dx to get there.
When my dh was dx'd twice in 6 mos, the kids felt comfortable that I was telling them the truth, and I WAS. After all, they are adults and cannot respond if they don't know what's going on.
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