Anyone on just Taxotere and Cytoxan?

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  • Pines
    Pines Member Posts: 94
    edited August 2009

    Dear Beach2Read and Jo Anne, I will be starting TC this coming Tuesday.  I see that both of you are done or almost done.  Did you have a problem with neuropathy at all?

    Shay

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  • Beach2Read
    Beach2Read Member Posts: 34
    edited August 2009

    Hi Shay,

    I occasionally feel a little tingling in my toes or fingers about 10-14days out from tx. It is fleeting and mildly annoying, nothing I am the least bit concerned about.

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  • Madge24
    Madge24 Member Posts: 150
    edited August 2009

    Shay T -- I have had 5 of 6 T/C's and had no neuropathy.  I am 52.  I don't know why some get it and some don't but from reading the threads, it sounds like for most it goes away.  I've had minimal side effects thus far; my dr. said at the outset that most people gain some weight due to steroids and feel fluish 2 to 4 days after, lose their hair, but overall do pretty well.  She recommended drinking 8-10 glasses of water per day for a week after.  I see someone mentioned cysts on the bladder or some such--Ihad not heard of that.  But if you drink alot you will be okay.

    Beach2Tread -- My #4 was fine; #5 was harder.  Like others, I've walked up stairs and thought it was very difficult, heart pounding, but it'll get better if I exercise more, I think.  I've heard the treatments are cumulative, so I am more tired than the 1st few treatments but if that's the worst of it, it's okay.

    For those just starting treatment:  I was terrified to begin treatment.  But now I have one left.  If I can do it, you can too.  Hang in there and remember it's temporary.  I scaled back my schedule considerably, napped almost every day, avoided crowds and parties, and was very careful with hand washing.  Just take care of yourself, get foods you like, and rent some fun movies or read some fun books.  You can get through it!  You'll all be in my prayers and thoughts.

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  • greytmom_17
    greytmom_17 Member Posts: 162
    edited August 2009

    Madge 24 - I too have one treatment left, coming up on Wednesday.  I must be the exception because each treatment has seemed easier on me than the one before.  Here's hoping that's true for this one too!  Not sure if it's really easier or I've just learned trick each time for managing better.  Last time I went to the gym on the 2nd day after treatment; it seemed to work out the fatigue and aches faster.  Oh, well, we'll see.  Mostly I'm worried about school starting - I teach high school and kids start the 12th day after my last treatment.  Hoping the little petri dishes don't come in with lots of nasty germs!

    Good luck ladies.  Chemo sucks, cancer sucks, but it's nothin' we can't handle!  

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  • kimby
    kimby Member Posts: 32
    edited August 2009

    Hey Lynne,

     You must be so excited to be at your last treatment. I'm so jealous. My 2 of 4 is coming up on Friday. I'm anxious to get going. My thrush turned into mouth sores which were horrible but with various mouthwashes and antibiotics they took about 3 days to clear up. No other side effects though. I guess I'll just watch what I eat and do the bicarb mouthwash as a preventative measure to see if thet works.

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  • Madge24
    Madge24 Member Posts: 150
    edited August 2009

    greytmom -- congrats on last treatment this week!!! yay!!!  It's interesting about your tx getting easier.  My #4 was so easy I was suspicious the nurses didn't give me all the drugs!  It was kind of funny.  But anyway, only one more to go and I can get through that.  Good luck with start of the school year!  I just can't wait for my hair to grow.  I have the little white hairs growing all over but we'll see if they continue to grow or fall out to make way for the real hair.

    Has anyone on this thread give up sugar after their diagnosis?  I've read on official web sites that the sugar causes cancer is not true, but among the patients, it seems people ARE giving it up.  Just wondering what to do.  I should probably go see specialist and see what they think.  Anyone?

    Thanks!  Take care ladies.

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  • kimby
    kimby Member Posts: 32
    edited August 2009

    Hi Madge24,

    I had great plans of giving up sugar and dairy since they are both supposed to feed cancer cells but to be honest at this stage I'm concentrating more on getting enough protein and for me that has mean't sticking with the dairy for now. Once I get past the chemo I will revisit. I hardly use sugar anyway so that's not such a big deal for me. I'll be interested in any other responses you get. 

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  • hrf
    hrf Member Posts: 3,225
    edited August 2009

    I was told that the issue is around insulin. Too much sugar (or simple carbs) causes our insulin levels to spike which might feed cancer cells. I don't know what the issue is around dairy. I met with a dietician at the Cancer Centre and she didn't say anything about avoiding dairy but I am reading that many women are giving it up.

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  • lisalisa
    lisalisa Member Posts: 824
    edited August 2009

    I need your VOTE/COMMENT.   This is for a $6,000 branding/website package.  I want to win this and launch HowToFightLikeAGirl.org   Person with the most votes wins!  and I want to build a website for newly diagnosed breast cancer patients....with all kinds of resources to help them!


    go to http://www.ebsiwebsites.com/_blog/EBSI_Main_Blog/   you'll see my name (Lisa Mittleman) and a hawaiin sunset photo.  you don't even have to watch the montage.  just click on the "comments" section below my name.....and leave a quick comment about why I should win.   THANK YOU!!!!!!!!!!!!!!!!!!!!!!!!!!! Lisa  

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  • JourneyNC
    JourneyNC Member Posts: 69
    edited August 2009

    Hello All,

    Madge24: I read sugar feeds cancer...My aunt even stated this since her son has brain cancer. I was told by a nutritionist (cancer) to drink USDA Organic Milk only, which I am doing now.

    I'm not sure about Organic Beef in the grocery store, but I found Fresh Organic chicken which I eat a lot. Also, I have cravings for Lamb Chops.

    So, since my diagnosis, I have given up sugar.  Actually, the only time I put real candy in my mouth is during my chemo session; Boston Baked Beans. I get the munchies from the meds Embarassed

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  • Firni
    Firni Member Posts: 1,519
    edited August 2009

    Lisa, I went to the site and your montage is great.  Start a new thread and LOTS of women will help you reach your goal.  I saw that one guy already has 12 comments!!

    Come on, every one.  It's easy to leave a comment and vote for Lisa! 

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  • lisalisa
    lisalisa Member Posts: 824
    edited August 2009

    Thanks, Firni!  we had trouble with my entry and I had to switch from one true media to you tube...never had done that before.....so I lost a few days.  time to play catch up with votes!

    Where do you think it's best for me to start a new thread?  if you have any places in mind, I'd appreciate it!  I don't want to be annoying kwim?

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Good luck Lisa.....let us know when you win :)

    hugs

    Diane

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  • dimc
    dimc Member Posts: 26
    edited August 2009
    GREYTMOM - I'm with you tomorrow, going in for my last TC treatment.  I'll send good mojo your way.  Can't wait to get done.  I was in today for blood work and to meet with doctor and other than being a little anemic and low blood pressure, we're good to go.  YaHoo!
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  • lisalisa
    lisalisa Member Posts: 824
    edited August 2009

    didle20 - I LOVE how positive you are :)

    you made me smile!  thanks for your vote!

    Lisa

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  • LoriR
    LoriR Member Posts: 131
    edited August 2009

    Lisa

     I just happend upon this thread tonight and saw your post and your entry and voted.  I just finished TC X4 on July 22.  Great idea

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  • jolynn61
    jolynn61 Member Posts: 16
    edited August 2009

    i will be having my last t/c on aug.20th.  had no problems with the chemo, the neulasta  was a different story. chemo was a breeze neulasta gave me severe joint pain that kept me sidelined for 3 days unable to move. pain killers didn't even help. so to your question t/c is doable and i hope your next one goes better  hang in there my  prayers and thoughts are with you.   take care

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Lisa,

    I just copied your post to our March 2009 chemo thread.  Hope you don't mind.  The thread is still very active and I am sure you will get a good response.

    Again, good luck!

    HUGS

    Diane

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Lisa,

    I just copied your post to our March 2009 chemo thread.  Hope you don't mind.  The thread is still very active and I am sure you will get a good response.

    Again, good luck!

    HUGS

    Diane

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Silly internet posted twice......UGH.

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  • Firni
    Firni Member Posts: 1,519
    edited August 2009

    Lisa, someone else had posted a contest for her in the Moving Beyond Cancer forum.  She won.  Try posting it there and we'll try to keep it on the first page of new posts.  Do you know if people can vote more than once a day?  When does the contest end?

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  • JourneyNC
    JourneyNC Member Posts: 69
    edited August 2009

    jolynn61,

    Congrat's to us both, my last will be 8/19!  I was so bad from Neulasta I found out Claritin helps with the pain. I took it prior to my 3rd chemo and voila, hardly any pain. I'm still taking Claritin...can't hurt...it helps!

    Peace and Health

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  • dimc
    dimc Member Posts: 26
    edited August 2009

    journeyNC and jolynn61,

    Same here on the chemo/neulasta side effects.  Minimal with chemo, neulasta a different story.  Took Claritin last time after reading how much good it did others and it did help.  Good luck to you guys with last chemo approaching....can you believe this wild ride is finally almost over.  My last is today.   Sending good thoughts to all.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    You guys beat me to the punch - I was just going to suggest claritan or generic store brand of it - really helped with the Neulasta pain!

    Good thoughts and gentle se's to everyone.

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  • cherneski
    cherneski Member Posts: 726
    edited August 2009

    One of our sisters is trying to win a contest that would give her a website.  Her intention is to design the site specifically for newbies.  Her video is beautiful.

    And please if you are upset that I posted this here, PM me and I will remove it rather than report this. 

    Just click on the link, watch the video of Lisa Mittleman, and  leave a comment.  Even if you dont want to watch the video please leave her a comment.   

    http://www.ebsiwebsites.com/_blog/EBSI_Main_Blog/

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Deborah, I left comments for Lisa AND I also copied her post to my March Chemo Warriors Thread, too!  I hope no one would "report" a post such as this.

    hugs

    Diane

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  • Pines
    Pines Member Posts: 94
    edited August 2009

    I am scheduled to get neulasta at 3:00 today.  When should I take the claritin?

    Shay

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Some take it day of and 1-2 days after. 

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  • Pines
    Pines Member Posts: 94
    edited August 2009

    Diane, Thanks for the quick reply!  Did you take it with Neulasta?

    Shay

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  • didle20Diane
    didle20Diane Member Posts: 404
    edited August 2009

    Yes I did take with Neulasta.......I only had it rounds 2-3 and 4....not round one but got infections anyway round 1 and round 3.  No rhyme or reason to it.  The claritin can't hurt.  My onc had not heard of this but he said I could take it anyway. 

    Good luck!

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