Terrified....

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bella13
bella13 Member Posts: 8
Hi everyone,  I am new to the board and just want to start off by saying how wonderful it is to have a forum like this to discuss our fears and know that what we have to say will be understoodSmile  My story is, I am sure, a common one.  I am 44 years old and just recently went in for my first screening mammogram.  I had no palpable nodules, no signs or symptoms, nothing, other than the fact that my doctor felt that it was time for me to have a mammogram as I was past 40.  Well, I went in, had the mammogram and then left feeling pretty confident about the whole thing.  Three days later I received a phone call asking me to come back for a diagnostic mammogram as I had what was called a focal asymmetric density show up on my right breast.  I was absolutely blown away by this phone call.  I never thought in a million years that I might have anything come up on the mammogram.  So, I waited my three weeks, went in for the test and prayed that it would turn out just to be tissue that had folded over on itself on that would prove to be the reason for the density.  I had the diagnostic mammogram and the technician told me to go back into the waiting area but not to get dressed just yet as the doctor had to look at the images first.  Sure enough, the tech came back and said that they were going to book me in for an ultrasound as things had not changed from the original mammogram.  I cannot begin to tell you how terrified I was by those words.  All I could think of was that I must have cancer, I must have cancer and the worst part of it was that they would not tell me anything more than that.  They just said that I would have to wait for the results to be transcribed and would have to talk to my doctor.  So, I waited and after five agonizing days my doctor called me with the news.  He said that the diagnostic mammogram had recognized a mass with irregular margins at the 7:00 position, right outer breast which was suspicious for malignancy.  He said that there was no sign of microcalcification nor architectural distortion which were positive signs but the irregular margins were worrisome.  The mass is relatively small, 1.2 cm x 1.5 cm.  The next step for me now is ultrasound which I am being booked for this week.  Depending on the outcome of that, I will be booked in to see a breast surgeon and we will take it from there.   So, here I sit, scared out of my mind and expecting the absolute worst.  I just don't know what to think, I feel like I can't breathe....you name it I am feeling it.  Has anyone out there ever been diagnosed with asymmetric density and have it turn into something like this?  I would appreciate any information at all from anyone who might be going through, or have gone through what I am going through now.  Thank you all so much for taking the time to read this post and please know that I appreciate all your thoughts and comments.  Have a great night.....
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Comments

  • leaf
    leaf Member Posts: 8,188
    edited August 2009

    I am so sorry you are going through this. 

    These two studies are OLD (in the 1990s.)

    In this study, the incidence of cancer found in asymmetric densities was 14%. http://www.ncbi.nlm.nih.gov/pubmed/1485695

    "The incidence of cancer per type of mammographically detected abnormality was as follows: mass 11%, mass with abnormal calcification 21%, abnormal calcification 22%, and asymmetric density 2%."   http://www.ncbi.nlm.nih.gov/pubmed/8317508

    This SMALL study opined that under some circumstances that "Pseudoangiomatous stromal hyperplasia is a common histopathologic finding in developing asymmetric breast tissue. Follow-up, rather than biopsy, is a management option if benign imaging and clinical criteria are met." http://www.ncbi.nlm.nih.gov/pubmed/10189460

    For me, I always went to the - well what if I'm the 1 case in the minority.  Some women find distraction helps.  Let us know how it goes, OK?

  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Thank you so much Leaf for your replySmile  I can't tell you what it means to be able to talk to people who are or who have gone through what I am going through now.  It seems like my mind is consumed by this whole thing no matter how much I try to put the thoughts out of my head.  To make matters worse, I am getting married in 3 weeks and the thought of having to go through my wedding with the spector of breast cancer hanging over my head is unimaginable to me.  However, I have the most wonderful, supportive, loving fiance and family and for that I am extremely grateful.  I am trying, as hard as it is, to remain positive and to try to take things day by day which is about all I can do right now.  I am hopeful that I might get a call today to come in for the ultrasound as my doctor is trying to expedite the whole process.  As soon as I find out anything I will be sure to post.  In the meantime, thanks again so much for the information and for your caring thoughts.  Take care of yourself and have a great daySmile
  • Annabella58
    Annabella58 Member Posts: 2,466
    edited August 2009

    Oh Bella, it never rains, but it pours, right?

    Whatever it is or isn't, it's great to be sure it's all OK.  I'd get an MRI to be super sure, myself.

    We are all on here, we've all been thru this scarey process, and some of us bc, some did not.

    Try to focus on your wedding plans....this whole screening process, and a biopsy, if they decide to go there (doesn't hurt, don't worry) can take awhile.

    Whatever it is, isn't, might be, will be taken care of.  You just make up your mind that you'll get thru it, whatever happens, and that it's not going to change your marriage, change your family, change you.  It's a process, and whatever goes on, we are all here for you to help you thru it and the scarey tests.  As of now, they are only scarey tests.  And hey, if there is something nasty there, well take care of it after the wedding and go on with the rest of your life.

    I've had this crap twice, and I'm just fine.  You will be too.

    Congratulations on the impending wedding!!!!

  • leaf
    leaf Member Posts: 8,188
    edited August 2009

    I completely aree with Annie. 

    I know its impossible not to worry, but distraction helps most women.  You have the best kind of distraction possible.

    Even if you end up having to have a biopsy, overall, for all age groups together, about 80% of biopsies turn out to be benign. The mean age to get breast cancer is in one's early 60s.

    We all want to be ready for whatever is ahead of us.  You have much joy ahead for you with your wedding.

  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Dear Anniealso and Leaf,  Thank you both so much for all the kind words and encouragement.  I cannot tell you how it makes me feel to hear that others have gone through what I am going through and came out of it just fine.  Women like you are to be commended not only for your incredible strength but the size of your hearts.  You are both extremely caring and I thank you so much for the support.  I am trying extremely hard to think positive and I will continue to do so.  I work in the medical field and I know that I have to carefully examine the percentages before I let myself get hysterical about something for which I do not know the outcome.  I will hang in there and through the help of my family and friends and of course, with the encouragement of wonderful women like you, I will deal with whatever comes my way and live my life.  Thanks again soooo much for the support-it means the world to meSmile
  • easyquilts
    easyquilts Member Posts: 876
    edited August 2009

    Hi OBella.....I'm so sorry you have had to come here, but so glad you found us. 

    Oh my....Your post certainly did bring back memories....I remember feeling good about  having my mammogram...Just like you, I was confident that it was only routine....

    Getting that call...Telling me that I needed to have a second mammogram...I had something showing in both breasts....blew me away.....There is simply no way a woman can be prepared for that kind of thing...

     Then...Returning the next day for the second go round....The anomoly in the left breast was no longer there, but there were calcs in the right one..The Doctor told me he was pretty sure they were  nothing to worry about..After all, only 20% of the women who have calcifications have any kind of breast cancer....I was then scheduled for a stereotactic biopsy....

    So...When I was sitting here at my desk...at work...alone in the offfice...I got a call from the doc who did the stereotactic biopsy.....She gave me the bad news...DCIS... Something I had never even heard of...Let alone understood....The roller coaster ride had begun!

    So...Yes...All of us here have sat where you are sitting...We have all had that awful fear and anger....It's so normal to be scared out of your mind.....We completely understand what you are thinking and feeling.  

    No matter what happens, we will be here for you...You can rant and rave, whine, get mad....Do whatever you  like, and we will support you at every step....This is the one place you can tell the truth...and know others will "hear" you....

    God Bless,

    Sandy

  • asurvr
    asurvr Member Posts: 14
    edited August 2009

    Hi Bella,

    I am so sorry you are having to go through this.  I stood exactly where you were over 4 years ago, freaking out, trying to be my usual control freak self.  As the others have said, whatever it is, or isn't, you are going to get through whatever it is with flying colors.  We all understand the not knowing part is the worse part of the whole bc journey.

    Distraction is a great thing....I won't bore you with all of my details but I did end up having to have surgery, radiation, and chemo.  However, during all of that I continued to work, keep my family up and running, AND graduate with Honors from college (I was one of those that waited until my kids went to college to go myself).  Anyway, if I can pull that off anyone can do this!

    Use us as a sounding board - if you need to cry, know we are there in thought with you.  if you need to rant, know we are standing right beside you screaming at bc ourselves.

  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Dear easyquilts and asurvr, thank you both for your care and support-it means the world to me.  Since I have posted my experience yesterday, I have received such wonderful, kind thoughts and encouragement and I can't tell you how much it helps.  I guess I am going to be feeling this way until the biopsy is done and the results come back and it is going to be a long road.  I have my ups and my downs, I'm sad then I'm happy.  It is a very strange thing to experience and one that I have never experienced before in my life.  However, having this board and having all of you amazing women to share my experiences with help more than you could know.  I wish each and every one of you the very best and I will make sure to let you know how things go as I take each step on this difficult journeySmile
  • nash
    nash Member Posts: 2,600
    edited August 2009

    Bella, I have found that waiting for the results is as stressful, if not more so, than the bad news itself. I've been through the waiting twice now--once when I found my cancer and once a year after I finished chemo/rads. The first time around I knew it was cancer just by the feel of the lump, so the waiting wasn't too horrible b/c I already knew what it was. The second time involved an abnormality picked up by my screening MRI, and waiting for that biopsy/results about did me in. I thought it would be easier the second time around, but it was actually worse.

    So, that horrid feeling of the stress that comes with the limbo period, waiting for the tests/results, is fresh in my mind, and you have my empathy. I hope everything turns out benign for you, but if it doesn't, you've found a great group of women here, and you will get tons of support every step of the way.

  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Thanks so much for your caring words Nash-it really reallly means alotSmile  The waiting most definitely is the hardest part without question.  I find myself feeling quite good at times about the whole thing because in my mind I have already set myself up for disappointment so that if the results come back malignant I am ready for it.  But then there are times when I am at my most vulnerable, when I secretly hold close the hope that maybe the whole thing is a big mistake and the biopsy will come back benign.  I scarely let myself hope that things will turn out good because I am so terrified if they don't.  So, I find that it's best to prepare myself for the worst and if I get good news then the relief will be of a caliber that I have never yet experienced.  It's funny; before I started into this whole nightmare I didn't even really know my breasts existed.  It sounds stupid, I know, but they were just "there".   I took them for granted, I never felt any pain, never felt any discomfort except during PMS-they were just another part of my anatomy.  But now, since I have gotten the results back all I think about is my breast.  I actually can feel tenderness in the site where the proposed tumor sits, I can feel pain in my upper back, I can feel twinges under my arm....it's just amazing what your mind can do.  However, with all that being said, if the mind can convince me that I am feeling all these things, then the mind can also do wonders when it comes to positive thinking.  I just need to learn to channel that positive feeling and that's what I am working on.  I know the next few weeks will be incredibly emotional; waiting for the ultrasound and then I suspect, having the biopsy and waiting on those results.  However, I am bound and determined that with each day I will get stronger and with the help of such a wonderful group of women such as yourself, I know that I can make it.  So thank you so much for your support-I wish you all the very best in this worldSmile
  • clowe
    clowe Member Posts: 14
    edited August 2009

    Hi Bella

    I am in the same situation.  The finding of my abnormal memogram is also asymmetric density  found on my right breast.  Went back for additional views, compression and ultrasound.  Desity was still there but ultrasound did not find any cystic or solid mass.  Told to came back for follow up in six months.  On one hand I was happy but I found myself also wondering constantly what is the density s______? to the point that I can not sleep, eat, and hard times keeping up with my blood sugar .  (I am insulin diabetic)  I called my primary doctor and asked for a referal to see a surgon.

    My appointment is next month.  Waiting is the pits. 

    I will try to think positve and pray for B9 for everyone who is dealing with this SSSSS-------TTTT

    Take care. 

  • Shannon-GA
    Shannon-GA Member Posts: 76
    edited August 2009

    I'm somewhat new to all this, but from what I've read and what the surgeon has told me, density in and of itself without a mass isn't unusual.  Asymmetric density means that the density is greater in one breast than the other.  From what I was told by the breast surgeon, the reason they have you come back in 6 months is because the density could obscure the screening making it harder to read, so they want you to come back in 6 months to see if anything comes up that wasn't shown on the original mammogram or see if the density has changed at all.  My mammo report also indicated asymmetric density in the right breast, but since I had a palpable lump that wasn't showing up on the ultrasound, I went to the breast surgeon.  It ended up being a swollen lymph node.

  • sheila888
    sheila888 Member Posts: 25,634
    edited August 2009

    Hi Clowe

    My experience is more with 6 months follow up. I was in same situation with these nonsense waiting 6 months. But i took action because I knew if that wasn't checked right away my emotional health couldn't handle it. I had the stereo tactic biopsy and the results were benign, even if they weren't i had a peace of mind knowing. Not knowing is very stressful. This experience was about 10 years ago.

    You did yourself such a big favor by not waiting.

    Good luck to you and please keep posting.

    Smile Sheila Smile

  • clowe
    clowe Member Posts: 14
    edited August 2009

    Hi Shannon from Ga

    I really appreciate for your reply and wonderful information.  I was not even aware the density was on my breast since last year because I received a leeter from the Radiology Department informing me that my mammogram showed no evidence of breast cancer or significant change.  Thinking, great, no need to ask for the memogram report finding.  I was shock when I find out not only the density was there for a year but it had increased to 1 cm. 

    My mind is working overtime, now, I am finding all types of imaginative bumps, lumps,,,,God, I need to stop or my next stop is at the psychiatry office. 

  • Shannon-GA
    Shannon-GA Member Posts: 76
    edited August 2009
    Hi clowe - I completely understand.  I've been freaking out for about a month and half now and I'm exhausted!  I have another appt with the breast surgeon in a couple of weeks to evaluate this swollen node.  I'm not sure what will happen, but at my first visit he told me that if it hasn't gone down or has gotten any bigger than he will most likely take it out for evaluation.  Ugh.  I keep hoping it will just go away. Smile  Good luck to you and hopefully the breast surgeon can give you some solid answers and ease your fears.  Please keep us posted!
  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Hi clowe, thanks so much for posting and sharing your experience with me.  I most certainly can relate to what you are feeling.  The waiting has to be the absolute worst part of the whole experience for me so far.  I find myself going from positive to negative, up and then down, thinking I am going to be fine and that this is a big nightmare and then at my lowest moments, thinking that my life is coming to an end and I am only 44.  However, I pick myself up and get back on track and start to think using the facts first and foremost which is that until a biopsy is done I cannot surmise, I cannot panic...I can't do anything until I reach that step.  I know how you feel, trust me, but please know that I am here sharing this experience with you and praying not only for you but for all the women who have to go through this horrible experience.  No matter how hard it is and how impossible it seems, think positive and have faith. The fact that no mass or cyst was found is absolutely wonderful news so please try to hold on to that and not worry about your future appointment.  My heart goes out to you because I am going through exactly what you are going through and experiencing the same emotions but I am not going to let this fear get the better of me and you can't let it get the better of you either.  We are all here for you and wishing you the very best so enjoy each day and try to remember to think positive because it really does make a difference in how you look at things.  Please take care and let me know how things goSmile
  • clowe
    clowe Member Posts: 14
    edited August 2009

    Hi Ladies:

    Bella13-Thank you for sharing your thoughts and support.  Whenever I feel anxious, sad, or depress, I found myself going back to this site and re-read commets, advise,  from all these wonderful ladies, somehow, I found relief and regain my faith.  "Mind can take over your body"- now, I know exactly what that means.  Yes, we must keep our faith, think positive, overcome our fear.  Take care, Ladies, thanks you again.

    CLowe

  • leigh123
    leigh123 Member Posts: 6
    edited August 2009

    Hi Bella.

     When I was 45 I had my first mammogram and went through something very similar. "Asymetrical density" and was called back for more xrays. I was horrified. Then, they wanted....an ultrasound! They found something 'suspicious' with the ultrasound (a round nodule) and scheduled....a BIOSPY!! Yes, I was in a panic the whole time. When I got the biopsy (acutally it was a fine needle aspiration) I was lying there praying to God, and saw on the screen that the nodule started to collapse, and the doctor said "Oh, it's gone. It was just a cyst." I was shaking with relief.

     I do think that with the first mammogram, they are more likely to call you back to investigate things, as they are always cautious. The odds of a benign finding are definitely in your favor.

  • my3girls
    my3girls Member Posts: 3,766
    edited August 2009

    Bella,...((((BELLA)))) hugs to you as you wait. To all of you ladies waiting for your results. It is by far one of the hardest things about this whole cancer journey. Honestly...hearing it is difficult...but the weeks of waiting...very very emotially tough.

    I am praying for all of you, that your tests come back clear...

    xoxo

    Lisa

  • JCinAZ
    JCinAZ Member Posts: 21
    edited August 2009
    Hey Bella...  My story starts out the same way.  I'm 36 and adopted with no family medical history.  So my dr said this year I should get a mammo.  She figured since i had no history, we'd be better safe than sorry.  So off I went without a care in the world to get my boobs squished.  A month long story and one core biopsy later...  I have an appt for an excisional biopsy on the 26th.  When they made this last biopsy appt, I thought "wow, 2 1/2 weeks until I get this done and get some concrete answers, that's not so bad."  Well that was 6 days ago and I keep looking at the calendar and I can't believe how slow time is going.  The wait is just wearying.  But there are so many positive people here, they really are inspiring.  And you've got a wedding to look forward to...  Try not to let this be a dark cloud over such a joyous occassion.  Everyone loves a bride.  Smile  This is your fairy tale time, they'll be plenty of time for reality later.  Let yourself enjoy your day.  Best of luck to you and your fiance.
  • bella13
    bella13 Member Posts: 8
    edited August 2009
    Dear leigh123, my3girls and JCinAZ, thank you all so very much for the kind words and support.  It is absolutely amazing what the caring thoughts of others can do for your mindset.  I am finding that with each day that goes by I start to think more and more positive about the whole process.  I still have my ups and downs, my good days and bad, but I try to put as much of the negative thought process out of my mind as possible and instead focus on the positives.  I know the facts; I know that breast cancer can be beaten as so many wonderful women on this site have proven and that is the one thing that I hold onto during my worst moments.  I have found that scouring the internet for information, looking for a glimmer of hope is probably not the best route for me to take as so much of the information is disheartening when what I am looking for is something that says no, you don't have cancer which of course, is impossible to predict without a biopsy.  So, instead, I focus on this site and others like it that give hope to all of us simply by allowing other strong, determined women to share their thoughts, their feelings and their stories of what they have gone through and in return, show all of us who are still waiting for our answers, that there is a light at the end of the tunnel and there most certainly is life after cancer.  So, thank you all again so much for your care and support-without it I would probably have lost my mind by now!  LOL  Best wishes to all and lots of hugs......Smile
  • clowe
    clowe Member Posts: 14
    edited August 2009

    To all ladies who sent encourage words and support, Thank you.  You have no ideas how much your words mean to me. 

    Bella:  I am happily married to a wonderful guy for 26 years.  Congratulation, when is your wedding? May I ask? 

    Leaf:  I looked up the web site and read the publication.  It is very informative.  Thanks,

    Best wishes to all and take care.  CLowe

  • bella13
    bella13 Member Posts: 8
    edited August 2009

    Hi Clowe,

     Of course you can askSmile  The wedding is on September 5th....it's coming very very fast!  LOL  Congratulations on your wonderful marriage-I hope that ours will be as long lasting and as happy.  He is a wonderful man and I am truly blessed to have him especially during this difficult time.  Have a great day and all my best to youSmile

  • valeriekd
    valeriekd Member Posts: 287
    edited August 2009

    HI Bella, I am in a waiting pattern myself and was first in the GPs office w/ a lump on 7/3 but not dxed til after a biopsy result and (several other tests) on 8/3. Got a positive dx and now waiting for a second surgery to get margins and a sentinel node biopsy. That will be on 8/27 - ugh - the waiting is such a mind trip the treatment has to be easier. Make sure u get a second opinion tho b/c first surgeon said mx and second said lumpectomy w/ the same survival rate! BUT the good news is if it is negative you can celebrate and if its not you caught it so you can enjoy a long and happy life. Good luck, Valerie

  • tiffany247365
    tiffany247365 Member Posts: 2
    edited August 2009

    I was reading your post today and the responses from all of the wonderful women here this morning as part of my obsessive need to find assurance.  Of course, as you know, finding assurance that everything is going to be OK is impossible and the Internet is both good and bad....

    I am going through the same thing.  I'll be 43 in October.  No family history of breast cancer that I am aware of (I know for sure my mom always had negative mammograms).  Three children (22 years, 3 years, and a little under 2 years).  Did not breastfeed with any of them (I've heard that can affect things).  I had a baseline mammogram done about 5 years ago just past my mid-thirties and prior to having two children (Aug 2006 and Nov 2007).  Missed going for my mammogram last year partly due to it being a busy, stressful year which I realize in retrospect is not a good reason.  Went at the end of July and a week or so later after it had completely slipped my mind, the report came in the mail.  When I opened it I was actually excited to see what I thought was the results of my recent cholesterol check.  I was immediately horrified by the report which included references to scattered fibroglandular something or another, non-malignant appearing calcifications, and asymmetrical breast tissue in the upper outer quadrant of my right breast.  The report recommended follow up spot compression and a possible ultrasound of the asymmetrical area.  Now I do not have the report in front of me as I am typing this, but I think my paraphrasing here is pretty accurate.  I did a few hours+ of research on the the Internet that evening once I got past feeling like I was going to pass out and a bit more the next morning.  I also called to schedule the follow up the next morning and the woman I spoke to indicated call backs were pretty common and I believe when I told her about the asymmetrical issue she indicated that was common.  Similar comments were made when I called my GP's office.  

    I was OK for about a week and then Monday morning, the fear just suddenly hit me again.  I think it was spurred by a sensation in my right breast.  Not a shooting pain or such, but just a relatively mild sensation.  Maybe just the result of my period which was tapering off at that point.  Since then, I have felt a lot of sensations in both breasts, but mostly my right one.  Like you, I never really paid attention to my breasts before and never noticed any sensations in them, but now perhaps I have become hypersensative to my body due to my intense fear that I may have cancer and will die.  So, I have noticed every twinge in my body over the last few days, trying to figure out what each one is and fearful that I have cancer that has spread.  

    My follow up spot compressions and possible ultrasound are scheduled for tomorrow morning.  I was told that the ultrasound would be right after the spot compression if the spot compression results warranted it.  

    What I've read indicates that asymmetrical breast tissue is not all that uncomon and does not in and of itself indicate cancer. However, I am so freaked out!  Like you, thoughts about it consume my day and I keep saying to myself how much I want to live a normal life.  I've had a bit of anxiety to say the least about dying over the years and I've somewhat come to terms with death at the end of a normal life span, but I'm still freaked out about dying prematurely from something like cancer!  I also keep saying to myself, "I should not have missed going for my mammogram last year!" and "would it have made a difference if I would have breastfed?" and stuff like that.

    I've had a few other health scares but I think that this one is the most intense.  In my early 20's, I had an abnormal pap and the end result wound up being a cone biopsy (when I asked my doctor if that did not "work" what the next step was he said hysterectomy and that would defintely resolve it, I finally was relieved after months of being freaked out).  I had pretty bad postpartum hypertension (a few close calls with going to the ER) that took months to get under control and live in fear of having a stroke or heart attack.  

    It's so hard to function.  I've talked about my feelings to my husband and two close friends over the past few days.  They each assure me that I'm going to be fine.  Then there's the medical offices that mentioned it was common and not to worry about it.  I just cannot help but be consumed by it.  I guess that my biggest fear is that it has become this widespread cancer!  

    I so appreciate your post and everyone's support on this forum!  I will definitely check back and post again.  

  • Jenna45
    Jenna45 Member Posts: 7
    edited August 2009

    Glad I found these posts!!
    I am in awaiting pattern and going crazy with worry for an appointment with Breast Care Center on 8/27

    Had a normal Mammogram in June, the funny thing about that is I get call backs every year and this year I did not! I have gone through the second call backs as I have dense tissue and lumpy breasts. 

    About three weeks ago I woke up at night to a very sore nipple and thought I may have pinched it while sleeping, but no it had a blister like sore that had broke open.Having been verysick over the last six months with recurring bronchitis and facing stress from work I have been pretty oblivient to any changes but upon checking I see that my right nipple is looking very different, scaly skin changes and fuller than my left. Went to Dr who also thought there were some concerning changes and has reffered me to a very well known Breast care center near Boston. He had me collect all my previous mammos and reports and reading them has just heightened my anxiety. A lot of calicifications with no archetectural structure ( from what I read that is good) a nodule on left outer quadrant of my breat that is  thought to be a node with no changes over last three mammos. Density on left breast- no changes... 

    Even more scarier is a rash on my  upper right breast that is red raised and not pimples but not going away and started a couple of months ago that I fear concerned my primary as well. Paget's is what I am afraid of, but the more I read the more I think IBC...or skin mets....I am telling you my mind is a dangerous place to be. My BF wants me to go to skin Dr...but I think I should follow the advice of primary and go to Breast Care center and than if they give me the all clear, skin Dr...

  • tiffany247365
    tiffany247365 Member Posts: 2
    edited August 2009

    Hello Bella and ladies.  Jenna, I don't see any posts since your one on 08/19 and I hope that you have found out more about what is going on with your situation. 

    Anyway, I just wanted to take this opportunity to follow up on my post of a week ago (Wed. 08/19).  I hope that my post will help at least one person feel even a tiny bit better about his/her situation....  

    After my post that morning, I was consumed with fear the remainder of the day. I was lucky enough to speak to a few more friends and my therapist (who I met when dealing with postpartum anxiety) that day.  One of the friends I spoke to had a mammogram scare a few years ago and said that she was as scared as I was and that after weeks of being terrified, the results were good - non-cancerous cyst.  She offered to go with me for my follow up images and I took her up on it.  So, I went in the next morning, Thurs. 08/20. 

    First I saw the mammography tech who showed me the asymmetrical density area on the first set of images from late July and confirmed my understanding that they were only concerned about that area which was relatively small because they cannot "see" what's in it and that it is very common to have dense breast tissue, especially in the upper outer quadrant of each breast.  I guess I am just an oddball because I only have density on the one side.  Kind of like my asymmetrical jaw (another story - noticeable if you really look, is a problem for my teeth grinding problem but otherwise not an issue).  I was scared but a tad relieved in the confirmation of my understanding that they were not concerned about any other area of my breasts and just wanted to make sure there was nothing in the area that they were going to "press out" with the spot compression.  Anyway, she warned me it would be uncomfortable compared to the mammogram.  I let her tighten it up two times past where she started and did not feel any pain (though my whole upper body was sore afterwards for a few days) - perhaps a little adrenaline going - I wanted them to get the best possible images they could get.  She took maybe 10 minutes from start to finish.  I was taken to a little waiting room where I waited for almost the longest 10 minutes ever for her to to show the images to the radiologist.  When she came back, she indicated that the doctor wanted to proceed with the ultrasound to be sure that nothing was there though she was pretty sure it was just going to be dense tissue. 

    Another 10 minutes.  The ultrasound tech came and got me.  She talked with me and answered questions during the procedure.  I did not look at the screen because I did not want to freak myself out more by looking at something I do know how to interpret.  There were a few moments throughout where she would stop talking which freaked me out, but in retrospect I am sure that she was just focusing on taking still shots of her work, kind of like when they do ultrasounds of babies in the womb.  She left me in the procedure room to check with the doctor for what was probably the longest 10 minutes in my life.  On her way out she indicated that "hopefully I'll be able to come back in a few minutes and put your mind at ease."  Well, my mind was racing with fear the entire wait.  When she came back in, she said something to the effect of "you're good to go, we'll see you back in a year."  I could not believe it and asked what that meant and was told that neither she or the doctor saw anthing other than the dense tissue. I started bawling and got a comforting hug from the tech.  

    I got the official report in the mail on Monday and it indicated the same thing as what I was told with a birad rating of 2.  

    Oh, and I talked with another good friend about my experience later the day of the good news and she has had two scares over the years.  One of my old high school friends indicated having a scare about five years ago.  So, of four good freinds I'm in contact with more regularly, three have had scares.  Knowing this helps one to not feel so alone.  

    Since the moment I got the most wonderful news on Thursday, I have had a renewed sense of the importance of one's health and the joy of life and living.  But I've also had some ongoing frequent fearful/anxious thoughts throughout the day, though not near as intense as my near week of constantly being terrified. My thoughts have morphed more to general thoughts about one's mortality, a subject I've had difficulty with and can get stuck in my head occassionally for perhaps a month or so, usually following some life changing or scary event (birth of my oldest daughter almost 23 years ago, birth of my son three years ago, and during my bout with uncontrolled high blood pressure following the birth of my youngest in late 2007).  I am guessing that my current "thoughts" are a period of my mind trying to get back where it was before all of this.  

    Well, ladies, I thank you all for being here for me, each other, and those who will yet come to this site! 

  • ariesniemi
    ariesniemi Member Posts: 1
    edited August 2009

    Hello,

    What an amazing place this is.  I'm so happy to have found it.  I am also going through this process and things are happening at a whirlwind pace.  I had a clinical breast exam on Wednesday and because I'm 46 and was having a bit of tenderness, my physician sent me for a mammogram.  Lucky for me I was scheduled in the very next morning (yesterday).  I had the screening mammogram and went back to work.  Within an hour they called back and asked me to come back in for more views and an ultrasound.  They took me in an hour later.  They concentrated on one area of my left breast so I knew they had seen something on the first mammogram.  By the time I got back to work there was a message on my machine from my family doctor asking me to come in to see him.  Of course my heart sank as it was obviously urgent.  I had the first mammogram at 8:00 a.m. and by 1:00 p.m. the same day I was sitting in my doc's office being told that they had found, and confirmed on ultrasound, a 12 mm spiculated mass in my left breast.  Being a nurse myself, I knew what spiculated mass meant and that sent me into total panic mode.  So now my waiting begins.  I have an appointment next Thursday at the breast health clinic and the doc will decide whether she can do an biopsy there or if I'll have to be scheduled for one under ultrasound (could take up to a month to be scheduled for that).  I day into all of this and I'm already losing my mind.  I lost my husband to cancer 6 years ago so of course my mind is racing.

    Thanks to everyone who shares with such honesty on this website.  If you have any prayers left, please say one for me.

    K.C.

  • Caritasita
    Caritasita Member Posts: 3
    edited December 2014

    Hi,

    I am really glad that I found this forum. I had my mammogram a little over a week ago and the result was they found 2 cm of asymmetry in my left breast at 3:00. I am really concerned. I had my biopsy today. Now the waiting for the results begin.

    I have been searching the internet trying to find out if I could stay in college while going through the surgery, radiation and chemo and I stumbled across the post in this thread by asurvr. It gives me hope that I will be able to keep up my daily activities including school even if I have breast cancer and have to go through treatment.

    I am thankful for all of the posts in this thread. The posts are informative and filled with care.

    I wish everyone the best.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2014

    Hello Caritasita,

    Sorry you found yourself here but we'd like to send you a warm welcome to the boards.

    You will find a wealth of information and compassionate support, and we're really glad to hear you've been finding the community posts informative so far.

    Just letting you know that this thread has been inactive since 2009, and so you might receive more responses if you start your own topic in this forum.

    Here is a link to the help section for more guidance: Help section

    We are also sending you a link to some resources you may find helpful: Waiting for test results

    Sending our best wishes to you

    Best,

    The Mods

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