APRIL Rads Anyone?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Had a bone scan today to check for bone mets. Results tomorrow.

    Just started knitting a baby blanket, pale yellow, for someone in church who's adopting. One day the BC will take me, but every family in church with kids will have a blanket! I get excited about welcoming new life with one of my knitted creations.

    Two medical appointments tomorrow, then Thursday morning we leave for VA .

    Bette 

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited August 2009

    Bette - I'm willing to venture a bet that you'll see many of your "babies" grow up, too.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Thanks, Jane. Actually the baby I want to see the most is not conceived yet. My daughter has been married or only two years and is not ready to start a family yet. They bought a house last year, and she is doing well in her career. I am so blessed that she is healthy and happy, but I do wish to see a grandchild in my lifetime.

    Bette 

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited August 2009

    Bette - Boy, I can relate to that.  My son and his wife have been married for 5 years, but he was only 18 when they got married and he went right into the Navy.  They own their own home in Virginia Beach but haven't had any luck having a baby.  She has PCOS (Polycystic Ovarian Syndrome) which sometimes causes problems conceiving.  Her doctor tells her she needs to lose weight.  I, too, hope I get to see a grandbaby from them.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    My bone scan was NEGATIVE. Praise the Lord!

    Am packing for VA and the PARP trial appointment tomorrow.

    Bette 

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited August 2009

    Amen, Bette!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    YAY!  Bette, praying for the same positive results from your VA trip.

    HUGS!

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  • marlenet
    marlenet Member Posts: 345
    edited August 2009

    Bette

    What wonderful news! Sending you prayers!   God bless you and Tom.

     Marlene

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2009

    Hey Bette,

     You are in my neck of the woods!  I hope you get good news on the trial.  I'm headed to Baltimore on Wednesday and may stay at the Best Western based on your rave reviews!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009
    Just got back from VA. Desperately tired, but doing laundry anyway.

    The PARP trial looks good. We signed the consent papers. Now have to wait to see if I get in. We stayed an extra night because they wanted some tests and were able to schedule them on Friday. Our hotel had a lovely pool and a king size bed, so the afternoons and evenings were like a little vacation.

    For anyone who is curious, the drug is BSI-201. It is a Phase III trial comparing it with gemcitabine and carboplatin in triple negative metastatic breast cancer.

    If we get in, there will be many more trips to VA. Three hour drive. But this is my life we are talking about, so Tom is willing to do it. What a blessing he is!

    Bette 
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  • marlenet
    marlenet Member Posts: 345
    edited August 2009

    BETTE 

    sounds like you and Tom did have a pretty good time.  That's nice.  You guys deserve it!   Take it one day at a time and god will guide you through this.  God bless you.

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited August 2009

    Bette - you're not triple neg.  Do you still qualify for the study?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Jane, I have to modify my diagnosis. My breast cancer has mutated to triple neg, according to my recent biopsy. That is why Femara did not help me.

    BiPar Sciences will study my pathology slides and make their decision. It is in God's hands.

    Bette 

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  • EleanorJ
    EleanorJ Member Posts: 752
    edited August 2009

    Bette, so glad to hear that there is no bone mets :) Woo hoo! You had to get some good news at some point right?

    Where is the baby being adopted from? Our 2 boys are from Russia. We're all pro adoption here, it's a great thing. Jane, maybe you can throw the adoption card next time you talk to your son or his wife? We dealt with infertility for a few years and just didn't want to wait any longer. I know too much stuff that one person doesn't usually go through in a lifetime. Infertility, adoption, now BC! I'm hoping that this is it with the unusual stuff!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Caroline,

    The baby will be from the US, but perhaps special needs. The blanket is now almost 5' long after all the waiting rooms I was knitting in on our trip. I am hoping to get it done before the family gets the phone call to pick up their baby.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    It is hot in PA today.

    Received a call from the trial today asking for more medical information. No other news.

    Guess I will stay in and knit this afternoon.

    Bette 

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  • marlenet
    marlenet Member Posts: 345
    edited August 2009
    Thinking of you Bette. Smile
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  • marlenet
    marlenet Member Posts: 345
    edited August 2009

    Bette
    I just read your caringbridge page! You will be in my thoughts and prayers!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009
    To all my "breast friends"
    I received a call from the clinical trial coordinator tonight. I am into the trial. It looks like I will be doing chemo again in August 2009. I start next week. I was randomly placed in the control arm of the trial, but can cross over to the experimental arm if I do not respond to gemcitabine and carboplatin.
    The waiting is over for now. I am not sure how I feel about chemo again and the long trips to Arlington, VA.  To anyone in that area of the country, maybe we can plan a get together!
    Bette 
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Bette, will continue to pray for you as you go through the chemo.  As TripleNeg, Stephanie, says, "God is able".

    Blessings.

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2009

    Bette,

    I live very close to Arlington.  I'd love to get together with you when you are in town.  Just let me know. I stayed at the Best Western on your recommendations, and even though I didn't get into the club floor, I found it to be a very nice hotel.  Thanks for the recommendation!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Next Thursday we have to be in Arlington for a 1:45 appointment with oncology. We are then staying overnight, and have chemo on Friday morning at 8:30 AM Still have to book a room near Virginia Hospital Center, where the trial will be held. After that we will be in town every two out of three Thursdays.

    I was up to my wrists in peaches making ice cream for DD's visit tomorrow when the phone call finally came about my appointments. I knew they would call if I stopped waiting for the phone. LOL

    Bette 

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  • kjbell
    kjbell Member Posts: 974
    edited August 2009

    Bette-I am glad you know what is going on, the waiting game is over. I wish you well. I am glad Tom is by your side. Bless you both!

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited August 2009

    Bette,

    Next Thursday I'm getting my bone scans and CT done, but I'd be free in the evening.  Just let me know which Thursday you would be up for some company!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    BrandonMom, I will PM you with my cell number. I would love to at least talk to you on the phone.

    Bette 

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  • bethaib
    bethaib Member Posts: 125
    edited August 2009

    I have been on vacation and had so many things going on with my daughter getting back from China, and trying to get ready for our family vacation, then back one day and helping the kids get ready for vacation with their dad...whew...I am tired...feel like it has been forever since I was here last..

    Bette- I cannot tell you how happy I was when I read that the bone scan was negative!!!! I will have to do some research into the PARP trial as I am not clear what that is. But I am soooo glad you were accepted.

    I can't even begin to imagine how hard it must be to go through chemo and have to do it all again. They say people come into our lives for a reason...and I am sure Tom came into yours to help you through this journey. Having someone such an important part of your life when you need it the most, there is nothing better.

    Keep knitting lol  and stay strong....

    I had my final appt with my rad doc yesterday. Said everything looks great, but I can call any time if I have any questions. I told her that I hope I never have to : )   Seems a bit strange not going for rad treatments every day, it became so much a part of our lives and we made it day by day. Feels like something is missing somehow.

    Hot flashes have subsided a bit with the Tamox, but still get overly hot when it is hot outside or in the office, so I think they are still around. I had a tough time with the heat in DC last week. It was high 90s every day. What possessed me to want to go to DC in the summer I'll never know! LOLOL  Walked around DC with my umbrella to keep the heat down and keep the sunburn away. Worked for the sunburn anyway! lol  I think my family has forgotten that it is not so long since I went through all that I did and I am still "recovering", my muscles feel like they have gone to pot and I still have a lot of pain in my back.  I struggled at times to keep up with everyone. But it was nice to be on a family vacation. There won't be many more like them. I wonder how my mom did with us kids growing up and leaving home? I'll never know... Had a good time, but then the kids were off again with their dad. It is going to be busy, but a tough year, getting ready to send one kid off to college next fall. I know these little tastes have really been nothing, but they have not been fun...

    Time to go read or something. Home alone tonight....feels like a little too much of that these days....night ladies!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2009

    Chemo moved up to tomorrow(Thursday) at 2 PM. I guess we will be leaving early for VA.

    We are still staying an extra day in Arlington. The hotel is near a Metro stop, so we may go into DC and take in a museum, if I am feeling OK.

    Bette 

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited August 2009

    Thoughts and prayers going with you Bette

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  • dkerler
    dkerler Member Posts: 75
    edited August 2009

     Bette

    You are such an amazing woman.

    You are in my prayers.

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  • bethaib
    bethaib Member Posts: 125
    edited August 2009

    Bette

    We did the Natural Museum of History, the American History Museum, the National Air and Space Museum, and one of the art museums (don't remember the name) when we were in DC last week. I found it to be quite a bit of walking to walk up/down the National Mall to get to them but we enjoyed them. The Smithsonian Castle is interesting...not much in there...so I would suggest someplace else. Hope you feel up to doing something while you are so close to DC.

     My thoughts are with you....as you start your chemo...

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