Starting Chemo in July 2009
Comments
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Three words:
Activia, Colace and Prunes...
Aaaaahhhh! Relief!
Have a Great Sunday Triple J's!
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Today is day 12 for me and I woke up shedding worse than my labrador retriever (that's a lot!). I'm thinking I'll have to shave in a day or two.
Gillyone - Roasted corn is one of my favorites and it's actually remained pretty tasty to me. I did, however, open a favorite bottle of wine and after one sip told my husband it was bad. He said no, it was really good. So I know what you mean.
jaycee - I am also avoiding soy and I found Bluebonnett brand whey to have nothing in it except whey, dutch chocolate and stevia.
Hot flash tip - take an ice cube and rub it along your inner wrist. Cools things down in a hurry.
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Hello Triple J's!!!!!
Today is a no SE day for me!! I'm 10 days after 2nd tx. Going to get blood work tomorrow. Hopefully it will all go well!
glassist: You crack me up! Labrador retriever..hehehaha Thanks for the hot flash tip!
o2bhealthy: Glad you got some relief!!!
Hope everyone has a great day!
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hi all well im in day 11 after first chemo and god my bum is killing me lol thought of goin to loo makes my eyes water (now i know how a baby feels) as for the hot flushes i thought id share how i cope.......i purchased a chillow pillow from http://www.chillowpillow.co.uk/ it stays cool all night it was £25 and best money ever spent....as for hair its now coming out strand by strand coulnt bring myself to shave as yet so have had it cut short and wear a hat but will prob have to face clippers next week
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Happy weekend JJJs! Day #4 post treatment #2-miserable this time around; mostly because it's been way over 100 for days now & my a/c has decided to work inefficiently. My daughter & I slept with every door & window open last night. Had to do a prayer circle around the house before I went to bed for protection from critters & burglars!
Rachel shaved my head for me last night-couldn't stand the stubble anymore. I like the smoothness-just wish I felt better.
Joni2
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glassist- also have a retriever, flat coat and wanted to blame the piles of "fur" on the floor on her. You may feel very empowered and relieved if you do go ahead and shave it. I didn't think I would but boy was I wrong.
Eph3-12- Ugh, hate the stubble. I've been shaving it about once ever 5 days. Sorry to hear about the horrible heat, at least you don't have a head full of hair keeping you warm, right?? I cold wash cloth on my bald head feels soooo good.
My mom has also taught me that a cold wet cloth on the back of your neck, even an ice pack, works well to keep you cool. I have been very sensitive to hot and cold.
Everyone stay well, stay cool, and stay beautiful.Love to all, Lisa
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Just have to share that my taste buds are back!!! I celebrated with a steak on the BBQ for dinner and even though it ended up overly well done, it tasted great!!!
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Yeah Lori!
My cardboard corn has been followed with a sore mouth today.
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Gill... Sorry to hear that your mouth is sore today, I know exactily what you mean about cardboard corn though, For a few days everything I ate seemed to taste like cardboard. Because my tongue felt swollen and fuzzy, food was actually unpleasant and I was having a hard time eating. When I woke up this moring, I realized that my tongue was returning to normal. I savored my coffee and enjoyed every morsel I ate that tasted as it usually does.
Now I know what to expect in my next chemo cycle There will be a few days of tongue fuzzies where eating may be unpleasant, but I will be well stocked with soups, deli meats and other items that I found to be palatable during this cycle.
In the meantime, I have a new appreciation for taste buds!
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Hery everyone, A quiet day on the boards. For everyone who is having chemo today, hope it all goes well and you have not SE. I finshed up this weekend with extreme fatigue. Sleep most of the weekend. I am going good today. Still tired but not spending all my time on the couch. had friend bring me food yesterday. That was great and my husband thought so also. My kids came by and they thought so to. i have found that everyone wants to help, let them. Have a great day Dianne
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Dianne...
I am with you on the fatigue thing, spent most of yesterday in bed, and it was day 4 after 2nd AC. Today, I am still tired, and slight nauseous...this really gets old FAST!!!! I am hoping for a better afternoon and an even better tomorrow for both of us!!!
Linda
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it certainly has been quiet. I'm 7 days past my 2nd TAC and I've been feeling blah for days. I hope I can snap out of it soon. I feel like my emotions are running wild
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Went to Look Good Feel Better...what a great program. Thought I looked like a hooker with all the makeup on....jk!! Such great makeup and cleansers. Also got a nice little silicone breast insert for my bra.
Whair oh whair did all this hair come from???? It's falling out by the handfuls. I'm almost certain tonite will be the night I shave the head. What a nuisance to have hair falling out all over the house, car,work....
Still feeling good and tasting good as well. One week without symptoms will be very welcome.
Happy Monday Triple J's,
Joni1
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Good Morning Triple J's:
Day 6 since 1st T/C feeling sooo much better today...going to talk my DD shopping for school supplies (Starts Wednesday)...Other then flu like body aches and constipation I had very minimal SE's for which I am extremely grateful. Like Niknak, emotions are running wild and I have general lethargy...it is a struggle just to motivate for a quick walk around the block with my kids...and I always feel so much better after getting up and moving around...
I am having some tenderness on my scalp and some SERIOUSLY BAD HAIR days with my short do... my son said I had a Frohauk(?) yesterday and couldn't stop snickering until I tamed the mess...
I have a phone appointment with my naturapath this afternoon and will ask specifically about what to do for constipation because I so do not want to go that route again. He currently has me on L-Glutamine, Glycine, Vit C and multi vitamin - (why can't supplements be packaged smaller, I swear I am swallowing 40 veggie caps a day full of supplements and it was a HUGE struggle to keep taking them...I hate taking pills). I have been skipping doses because it is just too much...another thing to talk to him about...cutting back... Before BC I never took any med's and often didn't even think about an aspirin for a headache...now I feel like I could open my own pharmacy...
I miss life before BC...
Enough whinning...
Sending big positive healthly vibes to everyone, I hope that today is SE free and relaxing, big HUGS to everyone and lots of love.
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Hey-it's Monday! Well, I'm at work today, but certainly not dancing through the office like I did the 1st go around. This time has DEFINITELY been harder; part of it is the heat and the broken air conditioner, but most of it is lack of energy & feeling like crap. I must say though, I was channel surfing last night & came across the movie True Lies with Schwanzanager & Jamie Lee Curtis-pretty fluffy for an action movie, but the scene where Jamie Lee is pretending to be a hooker is funny stuff! I love that woman-In my mind's eye I look like her, but of course, don't even come close!
Joni2
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I love True Lies and Jamie Lee Curtis is pretty awesome! I look like her too (in my minds eye)
I am struggling with the decision to go to work...my employer is 'whenever you feel like it...we are not busy at all'...I am struggling since this is a new job (was hired just before surgery) and I have only worked a week...I am scared about learning a new job and chemo at the same time and I don't want to go to work when they don't have anything for me to do...I would feel like a leech sucking $$ away...but at the same time my savings is almost gone and we need the income. What if they decide they made a mistake??? I guess I am just scared and not sure how to start the conversation...any suggestions?
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Hello Triple J's!!!!
Came down with another sinus infection yesterday and today it has decided to travel down to my bronchials. After my first treatment the same thing happened...so called my doc and they are calling me in an antibiotic....I've tried to be good about germs....I use sanitizer like it is going out of style!
Went and got blood work today (fingers crossed!). While speaking with the girl taking my blood she told me she is doing the three day Susan B. Komen walk in Chicago coming up and I thanked her. She went on to say her sister had breast cancer. I said, oh, how is she doing? She said she had it 8 years ago and everything has been fine until recently. They just discovered it is in her bones. I heard if cancer comes back it usually doesn't come back in the breast, but somewhere different. UGH!!! I have been so bummed now. I didn't ask what stage she was diagnosed originally and I wish I did. I just feel like crying. CANCER SUCKS!!!!
Eph3_12: Sorry you are having such a time with the weather and SE's!
PauldingMom: Your hair keeps growing through this? I'm still down to stubble and am just waiting for it to do it's own thing, one stubble at a time..or lots or whatever it decides to do. I do have some red dot rash things...like little stupid pimples or something....anything to do for this? Your mom is so smart! I tried to cold rag on my neck trick......cooled right down...tell her thanks!
NewportLori: Glad to tasters are back! Isn't that the greatest feeling? You never know what you can't taste until you can't!
Gillyone: Have you tried Biotene? Seems to help with my mouth.
Nicknak0320: We all have those tired, depressing streaks. Keep reading and pull yourself up and out of it. Some days I just count the hours til the day is over and hope I wake up the next day better than I was the day before! I'm thinking of you and praying you perk up!
O2bhealthy: I'm with you.....I too miss life before BC. But, it will make us stronger in the long run. I can say I definately have a new appreciation knowing someone is going through chemo. Before, it was like, oh bummer, but I didn't really know what that meant. Now I do. This is definately the place to whine...so go ahead and whine and get it out! Can I ask what type of work do you do? If you need the money, and they are willing to work with you through this...go ahead and go for it! It may help take your mind off the whole "c" thing too! If they decide they made a mistake, it wasn't meant to be. Do your best...that's all you can do.
Well, I have been looking for a job, but very nervous as I don't want to scare them with the "c" thing. So, I don't know...I just don't know.
Ladies....hope you all have a great day today!
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Michelle (AKA JLC2-cuz I'm 1 this time!) If you're employer knew all about your struggles prior to hiring, I'd say they want you. And I'd say you go in when you feel you can give at least 80-85%, but not less! And like Kim said-if they decide it was a mistake, better you know now that they are impossible, irresponsible, unkind, savages than after you've worked & given it your all for months to years at the grindstone!!!
Joni2
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Just got back from having my 2nd A/C today. My hair started falling out yesterday. My hubby told me I was shedding worse than the dogs.
Hope everyone has a great day.
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Carole....
How do you do the first day of your AC?? I am praying for no SE for you!!!
Linda
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I did it!
For all of you struggling with the shaving thing, I have to tell you what happened to me. I started shedding terribly yesterday so I drug myself, along with all my pity and misery, to the wig store. The first person I saw was a young girl walking around with a huge smile, beautiful tan, and completely uncovered bald head. She was just so beautiful and confident. She told me she was 25 (she has a very young son) and on her second breast cancer. Her first was at age 19. She bought a wig, but she left the store with her husband, son, and lovely bare head. I can't tell you what an inspiration she was to me. I bought a wig, came home and proudly shaved it all off! And yes, Pauldingmom, it does feel empowering. Go for it gals, it's not near as bad as you think.
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Linda: My with my first A/C I had several bad days. Mostly due to Low WBC, anemia and anxiety attacks. I think I am more prepared this time. Nuelasta is working, Have ativan for anxiety and anemia is not that bad. Hair is falling out, think that is going to be biggest obstacle.
I really hope you get to feeling better.
Thanks for your prayers, I will be praying for you also.
Carole
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good for you glassist! I think we need a new thread to proudly share photos of our bald heads...it can be a source of comfort to those who are not "there" yet
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Hey all! Hope everyone is having the best day possible. I am a little sore tonight. Had my port put in. Almost left when the tech. told me they would put a wire or something in my jugular (I was thinking oh no you are not) but finally convinced myself I had to do it. As with all you great ladies I will be glad when this is behind us and life returns to some normalcy. For those having the blues when that happens to me I try to remember their is someone in this world who would gladly change places with me as they have it worse than I. It helps me refocus. All have a great night. MGBY
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Hello Triple J's,
Got chemo #3 (AC) at 1:30 today. Felt really hungry and tired when I got home so ate and took a 3 hour nap. Woke up feeling great, but gassy. My husband just laughed because I would walk and fart very loud. Well at least no heartburn and burping thanks to prilosec. My doc said to take prilosec everyday during AC. I plan to take 2 benadryl to see if I can sleep through the night. That's my doc's biggest concern and I'm not willing to take prescription sleep medication.
I did not shave and my hair began falling out on Day 17 through day 20. Although many might not agree with my approach, I'm glad I did what made me feel good and was best for me. I cut 12 inches off on July 4th and donated it to locks of love. I did not shave my head and lost most of my hair except for the hair along my hair line so when I wear hats or scarves, you can't tell I'm bald on top. Losing my hair was a little sad, but I'm glad it hung on around my hairline as it did my mother's 12 years ago. The hair falling out can be messy so my vaccuum and a lint roller really helped speed up the process.
That's all for now. Yippee, 3 AC down and 1 AC to go, then 4 taxol. Doc and chemo nurses say I'm doing great and will be done before I know it. They are so upbeat and positive which really helps. I really think that sucking on ice chips during chemo and drinking a gallon a day is helpign to keep the side effects away or only having minimal SEs. Also the doc cutting steroid meds in half during 2nd round of chemo helped me not have the constipation, head and neck aches, red dots on shoulder, and other SEs from 1st round of chemo.Wishing all a good night!
Connie
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Hey Lori - don't ya just love it when that happens - the taste buds come back - although I seem to want to eat everything! After my first treatment my sore mouth involved what seemed to be an inflamed taste bud - OUCH!
Connie - I did the same thing with the hair. I really thought that I would take control and shave my head - but just could not. Now, I'm glad that I didn't shave it cause I have hair around the hairline. When I wear my baseball cap there's hair all around the back. Can't say a whole lot for what's left on the top. We can talk to each other - but bottom line is that everyone has to do what's best for them.
Pam
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Hi ladies - had my 2nd of 4 T/C tx's today. Didn't go as smoothly as last time. Had an allergic reaction to the taxotere. Nurse sits with her taxotere patients to make sure they don't have a reaction before she leaves to tend to another patient in another room - lucky for me. We were chatting about her upcoming vacation when I had to interrupt her to tell her I was feeling warm in my abdomen. Before I even finished saying it, she saw that my skin was turning red and she jumped up and stopped the infusion and went to get me some benadryl and pepcid(not sure why the pepcid - but that's what they give). I did start to have a little trouble breathing, but it didn't progress. I'm not really surprised that I had a reaction. I have allergies - suffered for 2 years with a bout of cold induced urticaria (I was allergic to the cold - who's ever heard of that?!) so I think my immune system is flaky. And last tx, I did have the tiniest bit of an itchy throat just after she left the room. It went away though. Then later after the allergic reaction, when I was in the bathroom, my saline ran out and my tube got clogged or something and they had to fuss with it to get it going again. I felt like a bad patient. I also had the slightest headache on my way home - possibly from the Cytoxan - even though she ran it pretty slowly. But it went away. So all in all- I guess the tx turned out well so far. Aloxi is doing its anti-nausea job very well.
Still being stubborn about the hair - just can't make myself cut it off. There isn't much left. I'm sure most of the rest of it will come out in the shower in the next few days. I have spent more time cleaning up hair in the bathroom in the last few days...I guess I would just feel more comfortable going around the house without my head covered if I had even just a little hair. But I can't get a good idea of whether the wigs I bought fit right or whether I need to exchange them until the hair is gone. It would be easier if it just hurried up and fell out on its own. Maybe now that I've had tx#2, the rest will come out this week. If not, I guess I'll just have to get the scissors.
Hope all the SE's subside right away for all the ladies suffering with them. Best of luck to everyone having tx this week.
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PDaw - Thanks for understanding about the hair thing. I could have easily shaved it all off like many others, but I was inspired by mother who is a 12 year BC survivor. My mom sharing tips has really helped me get through this. She is a 5 ft japanese women and very caring, very wise and very strong.
You are so right when you say everyone has to do what is best for them. No one wants BC and all this crappy stuff that goes along with it, but at the end of each day, I'm happy with the choices I make and that's what counts.
I do appreciate this forum and the support and helpful tips too.
Good night and sweet dreams!
Connie
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Connie,
Hope you are doing great after #3. I had # 2 today, feel pretty tired and lightheaded but otherwise okay. Did the ice chip thing during chemo today hope it helps keep some of the SE's in check. I am following your lead on the hair. I could not cut it, it is real thick so I am hoping some stays around the hairline. Its starting to come out now I am sure it is going to get worse over the mext few days.
Good luck to all, hope the side effects are minimal.
Carole
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I cannot express how much I love coming here and reading all these posts. I am so proud to be a part of such a strong, diverse group of women!
Just wanting to wish peaceful dreams to all!
Many Hugs...
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