Starting chemo January 2009?
Comments
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Of course the only picture I could fine was when I had hair and I had a goofy smile on my face. I can't find my gray hair pic. Oh well, I'll keep looking.
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Hey Jewels... just got back from a visit (with my son) to the Twin Cities... we lived there for a little over 3 years.. so we went back to see old friends... had a GREAT time.... but I really noticed the "chemo brain"... traveling with a 13 year old... (just the 2 of us)...I kept checking, double-checking boarding passes and flight info and I seem to have NO trust in myself remembering things... I felt flustered ... defiinitely more anxious because I don't feel mentally all there.... but besides that... it was great!
Having an xray on my back today or tomorrow... onc is going to help me figure out why it hurts all the time... it's been bothering me quite a bit... she said she is not at all concerned it's cancer related but we will do an xray and maybe an mri to try and figure out what the deal is...
Is anyone getting a Lupron shot right now? I am getting one monthly..... to shut down my ovaries so I can take Arimidex....(apparently you have to be in menopause for Arimidex to work) but I had my hormone levels checked and gynocologist says the test suggested peri-menopause... concerns me a little as I'm supposed to be in full menopause so the Arimidex works... anybody in this situation? I think I need to get these ovaries out and be done with it... I don't want to worry now if they are shut down or partially shut down ....
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Jilly - I love your hair too. Nice color. Is that the same as you had. Mine is coming in way too slow and I am getting real tired of hats. I think it is coming in gray too. It was light brown when it came out with maybe a touch of gray. 37 miles. Wow! My DD and I are walking every a.m. at the Mall for about 30 mins. Not sure how far we get but probably not even a mile. Its a start. Saw rads dr. today and lost 1 lb this week. Whooopie!!
Jess: will try to change picture so you can see me holding baby. It is great to have her here but I still get tired way too fast. Both DD and son-in-law have found jobs!!! Thank God. I watch baby about 25 hours a week. Will be hard when I return to school this fall but hopefully I'll have more energy when radiation is over. 13 down 20 to go!
Kim: Love the new baby smell. Did not think I was ready to be a grandma but am loving it. DD and husband really should have waited longer so they would be more financially secure but hopefully staying with us for a while will get them on their feet.
Gotta go lie down my back is killing me. Hopefully just from walking every day.
Love you all.
Patti
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Hi Jewels, I haven't been over here in awhile, post chemo and going thru the reconstruction stages. I wanted to stop by and let you all know....Malcolm....my son whom received the liver transplant in April.......thanks again for the support during that difficult time.......well he was put back on the transplant list a few days ago....he is home....he is doing good and looks really good...the doctors say this liver is failing and fast for whatever reason, I wanted to let you ladies now and thank you for the continued prayers.
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Aww Misty... I am sorry to hear the news about Malcolm's new liver.... continued prayers coming your way....
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Misty. Dear jewel, I've been thinking of you and Malcolm and wondering how you're doing. I'm so sorry the transplant is not working, but hope it has improved his health as he waits for the new liver. What a disappointment and worry. Big hugs to you both and lots of good wishes for a getting a new liver ASAP.
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Misty: Sorry to hear the news about Malcolm. Have been thinking about and praying for him. Hopefully he'll get back to the top of the list quickly and as Kim said hopefully his improved health will last while he waits. ((((hugs)))
Patti
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I am so sorry to hear the news about Malcolm.
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ladyJane--i love your hats. My husband has wonderful hats and he looks great in them.
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Misty: please keep us updated, thinking of the two of you every day. If there is ever anything we can do, cards, calls, please let us know.
Jess, just had to put out a hi, I think we need to meet up one of these days
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Thank you all ladies and I promise to keep you updated, YES I think this liver will keep him healthy as he waits for another one, that is what I am praying for. Continued healing to all you jewels, bless each and every one of you.
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Kmmd---I would love to ....During August I have a bit of time.- except when I have to take dd to work...irgh she is hesitating getting her license.
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Misty, thinking of you and Malcolm, he's been through so much, I hope he does not have to wait long on the transplant list.
Well, I am officially on my 'getting through cancer/chemo' vacation. We are at the airport in Calgary heading to Glasgow Scotland. Then we're on to Edinburgh and finishing our trip with a few days in London. I have never been overseas so I am so excited. Talk to you all when we return!
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Patti-What a great picture, and such a beautiful little bundle you're holding. Congrats to your dd and son il for getting jobs in this economy. When my son gets back to his trip and again takes up residence that's a goal..we'll see.
Holtbolt--Laughed when I read your post. When I flew home from my ds's grad last month I had my 19 yr. old dd, and she was a big help. Flying by myself today and with 14 yr old on Sun. I think I have everything I need. Hope your back feels better.
Got my blood test yesterday, needed before port removal on 8-18. I'm nervous.
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Misty- My heart goes out to you and Malcome. It is not fair for you to have so much to process in your little family in so short a period of time. I will be thinking strong thoughts for both of you. I wish I was at second level Reiki so I could offer to send some to him from a distance but I don't know how to do that yet.
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Misty - thinking of you and Malcom. Hope he gets a new liver soon!
JillyG - your vacation sounds amazing. have a great time....you deserve it!!!
to all - I go in Monday for surgery (my hysterectomy and other vaginal repair stuff). I should be in the hospital 2 to 4 days. I'm hoping to get out sooner rather than later. Remember my good friend who was fighting lymphoma? well, she lost her battle. She passed away earlier this week. I'm hoping to be in good enough shape after surgery to attend her funeral. She left 2 young boys (4 1/2 and 3) and that part has been the hardest for me to cope with.
I've decided though, that I have to find my own joy. I can't be down as I go into surgery. So...I'm working on it!
Lisa
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Thanks ladies for the kind words, they do mean a lot.
Lisa - I am so very sorry for the lose of your friend and my heart bleeds for her 2 little babies, so young to lose a mother, I will pray for them and you as you face surgery.
Blessings to all.
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Hi ladies. Well went to the dr. yesterday hoping to get the drains out, but no luck. I'm still draining too much. I have an appt. Tues. to have it out cuz I'm going to W.V for a few days to see my sister. I will have to go back and get checked for any fluids left in me. Its such a pain walking around with this and trying to hide it. Also its its setting back my rad treatments.Anyway, have some good news. I don't have to get genetic testing done because the drs. think my bc was caused by all the rads I had years ago from the Hodgkins that I had. That was a relief. I may have to get tested for the ovaries because my grandmother passed away from ovarian cancer but I don't know when that will happen. I am also a good candidate to enter a clinical study for Bisphosphates for 3yrs. I will let them know next week that I wam interestested. The study is closing for 6 months so the deadline is Aug. I'm hoping it helps.Other than that, I'm feeling good except my arm is still sore. I'm supposed to get a therapist but my home nurse said my insurance has to approve it and hasn't heard anything yet. The exercises I'm doing really hurts but I need to get my arm back to normal.
Misty- I will be praying for you and Malcolm and hope everything works out.
lisalisa-I will be praying for you as you recover from surgery.Is this something that had to be done or you decided to just do it? I am so sorry to hear about your friend. I will be praying for her family.
jillyg- hope you have a great vacation. I envy you. I won't be going anywhere anytime soon.
All of you have a great weekend.
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Plutz - take it easy this weekend and hopefully your drains will be ready to come out! drains are a pain for sure! hated mine! you'll be so happy when they are out!
I have a friend who also had hodgkins as a child and then got breast cancer too. They also told her it was from all the radiation. So, she didn't have to do BRCA and she also doesn't need tamoxifen or any hormone therapy.
I'm having my hyster just to be safe. My tumor was highly estrogen positive. I want the estrogen gone. Also, I want to be on an AI rather than tamox (AI's are more effective) and I'm premenopausal. Lastly, I want my ovaries gone. Chances of ovarian cancer are higher for breast cancer patients and ovarian cancer is hard to catch at an early stage. So.....I'm choosing this! It's not for everyone, but it's right for me.
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Lisa, good luck with your surgery, so sorry to hear about your friend
Plutz: bummer, I hated those drains. My PS told me that if I used my arm too much the drainage would be more. I was supposed to keep moving it to keep it from getting stiff, but to not use it too much. Have to admit, when I was more then ready for them to come out I went a couple of days hardly using it at all to get that drainage down to the numbers they wanted.
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I had a fairly decent Friday evening .I went to dinner with some friends and got a call from my dd-quite distressed. Through many bits and pieces of a somewhat bad cell phone connection, I realized my dd-who had been out taking photos of the moon and at night with her fancy new camera ,also had her dog outside as well. It was quite distressing at first because all I get is my dd's squeal of stress and click nothing. Then another call I get a bit more high pitched concern from her and her mention of our dog, then click. Finally I get more stressful sounding babble, our dog's name, a description of the dog foaming at the mouth, running in wild circles in the living room and rubbing her head on the carpet! I have this looming dred my dd is hurt and then this dawning of understanding that our dog met with a critter. Yeah, and when I ask her how does the house smell, she says in a very snooty tone" Well, mother, It was NOT a skunk! Roxy was foaming at the mouth and she yipped in pain when she came running into the house!"
yeah, right....it was a viscous wild animal which smells just like a skunk!!! I gotta say, now I am really going to get the carpet steamer. I have tried the home remedies to get rid of the smell on the carpet, and the dog is banded to her dog house, and I keep lighting the incense. Sigh. I guess I'll have to get new carpet! There is always a silver lining.....I've been wanting new carpet for a while!
I hope you all have a nice evening and I am going to try real hard and not worry about cancer returning.!!!!!
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lisalisa- I will have to go on the tomoxifen when my radiation is done and then I will be taking the Armidex sometime. Was told by my onc. dr. that i am going thru menopause although I have no symptoms. No hot flashes or anything so I don't know what I'm supposed to be feeling at this point. I just know that I am feeling almost normal. My legs don't hurt anymore and my teary eyes are gone. Just want some lashes and hair. I do have hair but its salt and pepper right now. I look like an old man, but my husband says i'm still beautiful. What a guy.
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Wow Plutz, no symptoms? I had some hot flashes before dx, and now I have hot flashes, racing heart and some dizziness without any tamoxifen. It's gotta feel good that the aching legs and teary eyes are gone. My hair is salt and pepper right now and I decided I am getting it colored tomorrow! I was gonna just leave it, but I just can't.....One good thing, if I don't like the color, it will go away much more quickly with short hair!!!
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Plutz, you have no symptoms coming to you, something has to go easier, right?
Jess, hope you get that new carpet soon, that does not sound fun at all. My eyes are still bugging me. I think I'm going to just let the grey stay. Hate how curly it is. DH and everyone else keep telling me short looks good. Yeah right, but thanks for trying
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II had a wonderful family day yesterday. I overslept my yoga class in the morning
Used the time to get ready for a late day beach trip. DH took DS to Home Depo to do that children;t project and DS had a great time and was in great spirits. He did not even complain about having lost tv privileges for the mornning due to being a royal pain on Friday morning. Anyway, we headed out to a special beach around 3 in the afternoon. It is the beach were we got engaged and we have taken DS there twice since he was born, three times now. We spent several hours running in and out of the water (DS was for once excited rather than scared by the water), building sand moutaints and motes (sp) and eatting sandwichs and drinking lemonaid and playing Frizbe and water gun tag (game DS made up). Then after getting cleaned up at the unheated showers, we tried to fly a kite without success, but also without tears or other negative reaction. Then we hit the playground. Then we drove in traffic to the boardwalky area where we ate pizza and ice cream and watched fireworks. Then we headed inside for arcade fun. DS won gaves of air hockey against both of us and generally had fun. When we were turning in out tickets for prize(s) a couple of teenagers gave DS there tickets. They must have realized that he would get much more pleasure out of the token gifts then they would. So DS walked away with a cheap harmonica, a back scratcher, a spider ring, and several pieces of candy. He was so cute asking if he could please have this or that and saying no thank you to the girls recommendations. Then before leaving we had a machine draw a family portrait of us for $3. We changed DS into pjs for the ride home and he finally fell asleep around 12:30 and stayed down when we moved him into bed at home. All in all it was an awesome day. I felt good. DH felt good. DS was in a good mood pretty much all day. Just a few minutes of crankiness when he woke from a nap in the car on the way there. The stuff memories are made of. Just all three of use digging in the sand togehter was so wonderful.
Today I will get some new plants in the ground. I could not resist some $1-$8 plants and the grocery store when I was getting supplies. How wrong can you go at that price? Varigated Hosta's for $6? A Mandaville for $6?
I need to go. DH just woke up and DS is still alseep. Time to work on the Mojo.
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Hi All; Just got back frim a 2 week vacation at a lake cabin. It was nice to be away from the real world for a while. Still catching up on posts - will take a while.
Lisa: prayers and hugs to you tomorrow and through the recovery days ahead. Your gettin' there girl!
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Welcome back Kt57. We did mention your name as someone who may want to bring Wisconsin cheese to our get together!!!
Btw, do you ever go to the Wisconsin Dells? (sp) I hear about it from some Michiganders.
Berkeley Kim---I think you are also on vacation, yes? My husband sipped a nice glass of 2006 Beringer 2006 FE----He toasted to you and lisa. Anyway, if you missed this because you are gone somewhere in the wonderful redwood forest or something beautiful like that, I'll bring it up again. I am cutting way back on the sipping of the merlot, though we do go every year in the fall to the areas in Michigan where there is wonderful vineyards. It is quite beautiful.
Renrel---good deal on the plants! Our flower garden is wonderful this year. We have sunflowers, jacobs ladder, echinachea, roses, primrose, impatients, begonia, silver flash, and two flowers I bought on sale and I can't remember their name. ONe is an orange hybrid that is drought resistant(of course it has rained all summer) and another exotic looking flower that grows on a orange stalk.
Lisa---I am so sorry about your friend.
Jilly---I would love to go to Scotland-went there years ago -we looked up ancestry stuff.
Love to you all.
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Hi everyone, I haven't been around for quite some time but have just tried to catch up on some of the happenings with the January Jewels.
Lisa, I am thinking about you and hope your surgery goes well and you get home soon. So sorry to hear about your friend. It is so difficult to lose our friends and loved ones.
Misty, I am sorry to hear about Malcom. My SO's mother is waiting for a kidney. It is so hard. She is on dialysis 2x a week until they find one for her.
Jilly, we went to Scotland 2 years ago. It was fantastic. We loved it. You will have a wonderful time.
I finished my rads last week and will see the oncologist Thursday for my follow-up. My reconstruction will not be scheduled until sometime in November. Sounds like we are all pretty much through with chemo and rads and getting on with life. I have to tell you, it seemed like this day would never come. I've been very busy with my job, thank God, because it kept my mind off everything else. Now things have calmed down a bit and I am trying to continue with a positive attitude about things to come.
Love to everyone and keep on keeping on!!!!!
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Have a day home between trips. Got back last night from LA. Was fun to walk all around San Pedro with my sister's dog and hang out at beach and pool with the kids. Glad to be back from the humidity, though. Saw my 90 yr old aunt and my cousin out visiting from Nebraska, and of course my mom, who I hadn't seen since my diagnosis.
Lisa--so sorry about your friend. So sad. Hope your surgery went well today and you get home asap.
Doing laundry and getting packed and house ready from our trip through Oregon, Wash., Vancouver. Can't wait but I have so much to do, including some paying work so I better sign off and get busy.
Hugs to all Jewels.
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Hi Jewels,
Thanks you all for the well wishes and I see everyone has been busy..busy...busy.. a day at the beach with a little one sounds so much fun...those were the good old days I must say...watching our little boys explore the world and little trinkets meant the world to them then.
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