Anyone starting chemo in June 08

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Me too!  Night.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    How is everyone?  I took yesterday off work.  Had PS appt and fill in expander.  I am contemplating going in today for half a day but I just don't feel that great.  Hope all you are doing OK.  It's been in the high 90's here the last few days so just don't feel like doing anything outside. I guess I just don't feel like doing much period.  Well, guess I might as well shower and decide if I can make it to work.  Take care all of you....HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Thank God it's Friday!!!  I'm DAT and wish I had a beer.  Hope everyone is doing good, and HunkyD, I hope you just stayed home in your pj's.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Leggy....I did end up going in to work for half a day today.  I feel like a better employee for it and I think I got a little bit of sympathy credit too.  I am not doing much physical work so it isn't to bad...just the same pain as if I'm sitting up on the couch or puttering around the lab.  I am with you....glad it is Friday.  Our other gal pals are being pretty quiet....I know some are doing trts probably, and some are off on summer vacation.  What the hell is a vacation?  Bonnie...if you are back...hope you had a great time!  I do think about you all often.  KKing....how are you doing with work?  Please say it tires you a little so I don't feel like a total whoosie.  Wyoming...hows the counts and trts?  Hope you are doing OK.  Same for you Kelly.  Still have great thoughts coming both your way.  I give you so much credit Kelly for being able to go through this with teenagers at home and a business to run.  I was healthy and barely escaped insanity with teenage years.  I love you all....HunkyD

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Kelly have you had any news?

    HunkyD take all the sympathy credit you can. If for no other reason than to boost your ego. I has been HOT here also.

    LeggyJ and HunkyD when you have your beers drink one for me. I don't like the taste of beer but I will drink one in spirit.

    I took a trip to Laramie with hubby yesterday. He had a meeting so I went to the farmers market and bought Colorado peaches. If you ever get the chance to eat a Colorado peach, they are wonderful. This has been one of the busiest summers I have had especially since last year was such a bummer. I go next week for another txt and blood work. Keep you fingers X that my numbers go down. My platelets were low last time. I'm black and blue every where I bump my self. Since I don't tan it makes for a colorful display when I wear shorts or short sleeves. People probably think hubby is beating. I love to make people wonder!!

    Enough rambling. I will keep posting as my summer is getting less busy.

    Wyoming

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wyoming...I love fresh peaches.  Tell you what....you eat a couple of those for me, and I will have a couple beers for you.  We actually have some areas around here that we have access to some nice fresh peaches.  DH often stops and gets some when he is in the area.  Hope your trt brings the #s down.  I have not had shorts on yet this summer.  I don't own any with elastic waste which, unfortunately, I am currently stuck wearing and still this hot abdominal binder.  Plus, I still feel I am more sensitive to the sun post chemo.  Might just be my imagination, but wearing tee shirts I notice my arms tan/burn quickly.  I have not been outdoors a lot since all the surgery anyway.  Very funny about the spouse abuse story...you certainly have a good sense of humor. You just worry about the trts doing there job and not the side effects.  I hope your platelet counts go up. 

    I am going to make an appt in a couple weeks for another hair highlighting job.  The little gal that does my hair is so sweet.  Her mother went through breast cancer and recon so she is so good with me.  She also works at a little coffee hut in the mornings.  That's where I stop to get a latte before I go to work.  So, she gets a lot of my money and a lot of good tips.  It's a drive thorough little place with a express windows on each side.  They see me pulling in off the main road and the gals start making mine.  I know it pisses a lot of people on the other side of the window waiting in their vehicle, when I pull up to other side and mine is ready.  Oh well, got to love it!!  Hope everyone is staying cool.  We are running our AC and I will be happy to pay the gas bill.  I still have some hot flashes in the evening and just stick my head under the cold water in the sink.  One of the positives of short hair.  XXOO to ya all.....HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hi Girls,

    It has been quiet, like HunkyD said, but I hope that means your all having fun out there.

    AAAHHH Hair. I'm keeping mine short, until I get rid of this chemo. hair, in fact I have an appt. next Sat.  My hair is still awfully thin, but it's better than nothing, as we all know.

    Well, I'm going to go and watch a netflex movie...see ya

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    HunkyD, isn't great to know the right people!!! Most of my shorts that I have worn this year have been elastic waisted not because of a binder but my tummy has grown plus they are longer. My  body has changed a lot in the last year. Gravity, firmness, cellulite, etc.Money mouth

    I'm getting my hair trimmed and hight lighted in August. My hair is pretty fine and what curl I had has now turned back straight ( stick straight). I've actually had my hair this short before on purpose. But since I haven't had to fix it for over a year I am struggling. It is like I have no coordination with a curling iron. Hopefully it is like riding a bike. HAHAHAHA My scalp is tender. Has any one else experienced this?

    LeggyJ what movie did you watch? Hubby and I watched "Taken" last night. It was pretty good. I went to see "My Sister's Keeper" the other week. I had read the book and didn't like how they ended the movie. It was a pretty good movie otherwise.

    Everyone have a great week. Something to think about---we are all a year out as survivors.

    Wyoming

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hi Wyoming,

    Let's see, last night I watched "Frozen River" and "The Edge of Love", and I liked them both. Today, I'll watch "The Painted Veil" It co-stars, Diana Rigg, I don't know if anyone remembers her, I do but can't remember what TV show she was on.  Goggle...I watched "Taken" last week and liked it.  One of my friends, got me a yrs. sub. with Netflex, when I was doing Chemo, which was a great gift, but when I was sick I couldn't watch much TV.  About all I watched was the cooking channel, and God only knows, "Ice Truckers", on the Discovery channel.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    We watched the The Horsemen last night (netflix).  Pretty wierd show.  Haven't seen Taken.  The last book I read was called Firefly Lane and didn't know it was included a sad cancer ending.  I stopped reading as soon as I knew what was coming.  Kind of like that dog movie.  I just can't seem to get through these sad movies/books anymore.  Wyoming...my scalp isn't tender.  Maybe it is a side effect of your current trt.  My hair is not long enough to work with curling iron.  At least not the size I have. My hair is not stick straight, but not poodle curl either.  Just a few waves here and there.  My body has changed also.  I still am much less active, but considering surgeries I am just going to have to hang in there. I am going to try for 6 hours work days still this week.  I have found out that overdoing is not worth it.  I am considering my feel good time a lot more important than I ever did in the past. There is a lot more to life than work.  Ya, know....when I was diagnosed last year....I didn't know if I would see this year.  Can't say I have had that many feel great days but that is still to be expected.  Those considering jumping straight from chemo or radiation to prophylactic mastectomy and reconstructive surgeries...it's not a cake walk. I know I had a lot done in a short time but I figure...go for it.  Happy Sunday...XXOO HunkyD.  P.S. Wyoming...I will have a couple beers for you tonight.  Barbequed chicken breast via DH and maybe a baked potato.  We are out of some good vino so out comes some beer.  Speaking of Vino.....haven't heard from that little gal in a long time.  Where are you Vino?   

  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    No news is good news so far,  had three biopsies the other day and the surgeon thought it looked better than I thought.  I am feeling better now and should hear back from the lab by the end of the week. 

    I always like reading your posts so everyone keep telling us what is going on please,   Good thoughts for a great week ahead~   Kelly

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hang in there Kelly!   It can't always be bad news!!! 

  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    Well, I get to do this crap all over again.  All three sites were positive.  They are having a conference to decide how to go forward and we will decide by next week.  Hopefully will have surgery within next two weeks.  Guess I will be selling practice by Christmas and spending all my free time bothering my kids.  :)       It could be worse...                  Kelly

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Kelly, I can empathize with you as when I found out my cancer had metastasized I thought not a again. Let us know what you next step will be. So far my txt isn't as bad as the last time. I still have my hair. I know you probably have said what your practice is but I don't remember. I think bothering your kids is a god given right!!!!! Mine are all grown and having families of thier own and I still bother them. They still love it.

    HunkyD I was ready the earlier post and saw that you have a 29 yr son. Is he close by?

    Also while I was reading earlier post I see we have only a few people who still post this site. I can't imagine what I would have done without you all. My older sister has Addison's and she doesn't have anyone to share with. We talk which helps but is nice to have some one with the same experiences.

    Have txt tomorrow and will find out how things are going then camping in the Big Horn Mt.

    Have a good weekend.

    Wyoming

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Kelly, I am sorry about the recurrence.  Hopefully they can get good clean margins with surgery and you won't have to go through too harsh of a trt plan.  Is this what they call a local recurrence?  My thoughts are with ya Kelly.  I am totally on spot with Wyoming....enjoy your kids.  I only have one, just turned 30 and I enjoy him so much now that he is grown up.  He does live in the same town.  I am so thankful for that.  I would retire but don't have enough time in and age.  My insurance is through my employer, or I would quit in a second.  Wyoming....good luck at trt tomorrow also.  Maybe there is some online group for those with Addisons for your sister.  This board has been a very great thing for me also.  Can I borrow your camp trailer for a month....LOL....Just wanted to say hi to the rest that are still posting here...Leggy, Bonnie...Later!   HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    I'm so sorry Kelly............... Keep us posted.  Sure wish I followed you girlls more when I was doing chemo., but I was so sick.  HunkyD, my work place, was so good to me when I was doing chemo.  They waved my insurance, so I didn't have to go on Cobra, it was such a blessing, but it is difficult to work, and wish I could retire as well.

    Leggyj

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Kelly  When I went to the onc today I thought of you. I have a friend who has more surgeries and recurrences and she is doing great. I know talk doesn't always help but we are here for you.

    Leggjyj and HunkyD I would love to retire too but I started my career late so I have to wiat until I'm 60 at least. Luckily I get to have three months off in the summer. HunkyD you can borrow my camper anytime!!! LOL

    I have one more point to go down then I will be in remission. My once asked my if I could do one more cycle of txt to get the #'s down and I said HELL YES. Not really but I was thinking it.Couldn't have txt today because my playlets were too low, so I will wait one week.

    I'm off camping. I feel so good today and am blessed with all of the support here.

    Wyoming

  • KKing
    KKing Member Posts: 425
    edited August 2009

    Wow, a lot has happened since I was away on vacation.  We had a week of camping..it only rained two days and a week at a friends cottage..rained two days there as well.  Back home now and off to work next week...3 days 4 hours... not sure how I will feel about that.

    Kelly...so sorry to hear about the recurrance... we are all here for you .... I hope that it is a local recurrance and that things will work out well.

    Wyoming... you are a tough cookie also... hoping that the txt works.  Funny you mentioned bruising... I have been finding dark bruising on different parts but don't remember bumping that part.   Could this be a sign of low platelets??     My scalp isn't sensitive really..maybe it is the treatments.

    HunkyD.. give you alot of credit working the 6 hours... will let you know if I fall apart in the next couple of weeks..as they increase my days and hours each week.  They assume I will be back to working full time by Aug 31.  Make sure you are not overdoing it.

    LeggyJ.. I have seen Taken as well....Love Liam Neeson.   Diana Riggs was in the Avengers years ago...I loved that show. 

    Well, got to go out and do some grocery shopping... my kids....should say young adults ate all the food while we were away.  

    I am so glad to come here and feel so connected to all of you.  I always feel that together we can fight this beast.  

    Take care Junies..........Karen

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Welcome back Karen.  Good to have you back.  DH and I are headed about 1 1/2 hours away to the mountains.  Hope to find a campsite tonight.  Just going to build a fire and cook some hotdogs.  He bought me a lounge chair so that will feel good.  Not taking off till a little later this afternoon.  Guess I will either be sleeping in the loungechair or the back of the pickup with canopy.  Wyoming took the trailer!  LOL....Will have to let you know how it went tomorrow.  I know what you mean about working up to full time.  I am going to try for 8 hour days this week and then the next week I will have my final expander fill and know that is going to set me back again for a bit.  Have a good weekend...HunkyD

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited August 2009

    Hi Everyone,

    I am finally back from holidays and my sons wedding, all went very nice except the weather was so hot I just couldn't stand it. I was so glad to get home only to find the weather was hotter here than in Alberta.  From the day we left no matter where we went it was hot, guess I shouldn't be complaining it could have rained all the time and that wouldn't have been nice.  Glad everyone is back from holidays and hope all is going to be good for everyones tests or whatever they are doing.  Wish I could win one of these big lotteries and I would fix it so none of you would have to go back to work.  Well better go and get the house cleaned up and things put away.

    Talk to you all later

    Everyone take Care - Hunkydory, KKing, Wyoming, LeggyJ, Kelike

  • hunkydory
    hunkydory Member Posts: 1,241
    edited August 2009

    Hi Bonnie...welcome back.  Just getting stuff together for a little over night camping trip if we find a campsite.  If not we can just drive home.  Glad you made it safe and sound.  It is 92 here.  Later!  HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited August 2009

    Everyone sounds like their having a good time.  I worked really hard this week, and so I'm resting a bit, but I had to do some pruning out in the front yard. Personally, I do enough gardening at work, and put it off as long as I can at home, but my Mom has been nagging me.  Sure wish I could take a holiday, but I'll wait until the winter when business slows down, hopefully they won't lay me off, and just cut my hours. I'm worried about losing my health care, since it has been so good to me.  I'm off to watch Lavender Ladies...

    Bye Bonnie, Hunky, Wyoming, KKing, and Kelly

  • Kellke
    Kellke Member Posts: 424
    edited August 2009

    Still waiting here, all biopsies were postive so went off for another PET scan but have heard nothing since then...  My surgeon thinks I should have radiation again before surgery but won't see the radiation oncologist until tomorrow.  I kind of prefer a cut it out approach but will have to listen to all the opinions.  After that exciting meeting I will run right back to work.  Fun stuff.

    I am swinging wildly between "lets just march through this all over again and it will be okay" and wanting to sit down and cry for days.  I think I am better when I just go go go.  Hopefully I will know soon what direction to go go go in.  :)

     I want to go camping again soon, you are all giving me good ideas for last minute summer plans,   Kelly

  • Wyoming
    Wyoming Member Posts: 381
    edited August 2009

    Welcome home everyone and LeggyJ. Had a good time camping. It rained on Friday but Sat and Sun we had sun. When we came home it was 90. Warm one today also. Bonnie and Karen glad you had a good time.  

    I have been matching bills with ins. EOB's. What a pain but I guess I shouldn't complain, at least I have ins.

    HunkyD how did work go today? I hope you aren't too tired. Did you get to use your lounger? I think I need a lesson on sharing, don't you since I hogged the camper. LOL

    LeggyJ I will keep my fingers crossed for you that you don't lose your job. You can never tell in this economy.

    Bonnie, HunkyD, KKing, Kelly and LeggyJ have a good week.

    Wyoming

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Hey...worked 8 hours today.  First time in a while.  Kelly, I think you are right about idle hands.  I bitch about work but find that I am not thinking about cancer a lot of that time.  Hang in there.  Did you have the breast area radiated before in the same spot?  Praying it all goes well for you!

    Wyoming...I think I would have killed for a trailer Sat night.  We left late in the afternoon and I was worried there wouldn't be a spot.  There was one spot...the worst around the lake.....actually, it wasn't even by the lake. That's why it wasn't taken.  It was at least 200-300 yards to the outhouse and haul your own water.  Actually, a trailer wouldnt fit there...just had tent pad.  I just told DH lets build a fire and take this spot and we can always leave.  Several beers later we knew we weren't leaving.  Cooked hotdogs (only dropped mine in the firepit once...LOL) and watched a little female deer most the night.  She came within 10 feet of us and just stayed there.  I guess because we really were so far away from the other camps.  I was amazed.  Sooooo.....it becomes late and the embers are barely going...it's cold too.  93 when we left and I'll bet it was 53 when we went to bed.  Or...I should say seats.  Husband had to much stuff in the back of truck so he didn't ever get the foam pad and sleeping bags out.  So, we slept in the front seats of pickup for about 4 hours.  I couldn't hardly move when I woke up and DH was stiff and cramped too.  We pulled out of there at about 6:00am and when I got home I went for the hot shower and my hydrocodone.  Spent the rest of the day watching TV.  My new anti gravity camp recliner is really nice.  Had it out by the fire all night but it started getting cold when the fire went out, so I headed for the truck.  Husband got me blankets and fired up the truck every so often for heat.  Whew...long story....but I found out I am too old for that business.  Especially this close out of surgery.  Oh, I still want to share this with you too...my hair is at that stage that they call "bed head" when I wake up.  It is horrifying.  I'm not bitching about having hair mind you, but I did look like hell the next morning.  I never took my sunglasses off on the way home and we didn't stop.  Husband used all the water making sure fire was out so I couldn't even wet it down.  Wow...well, that's my overnight camping story for you all.  I am so glad the other gals are back..Karen, Bonnie.  Hope I didn't bore ya all....Later!!!!!  HunkyD

    Edited to add:  Not leaving you out Leggy

  • LeggyJ
    LeggyJ Member Posts: 726
    edited August 2009

    Oh it's great that you girls get out there.  I'm living vicariously through your lives, and enjoying the camping story.  Reminds me of a few nights, I've had camping.  Even with my little teardrop trailer, I have back pain, after a few days of it. My dog Wolfie looks at me with this CAN WE GO HOME, NOW, look on his face.  He did not like the night racoons, invaded our camp. Some guard dog, he hid under the covers, and wouldn't even bark...Big Baby. 

    About hair...I have what looks like a bad mohawk every morning.  I've been keeping it short, cause it look so bad.  I used to be a bottled blond and now its salt @ pepper, with lots of curls that go every which way.  It's still awfull thin on top.  Sure hope it fills in someday.

    I've been waiting over 2wks for a simple x ray on my hip.  I've had bursitis for years, and had a cortisone shot in Dec.  which didn't help this time.  My GP didn't have the rad. report when I had an appt. with him last week, and his computer didn't work, so he fumbled through the appt.  and looked really nervous.  Then he ended the appt. with "Well I don't think it's cancer related, but we need the report, and you may need a bone scan".  Gee I just thought it was a simple pain in the hip, and it probably is, but how can they say something like that, and keep you waiting on pins and needles.  I'm sure glad, I didn't have to wait that long for bc surgery's...chemo....rads....now I'm back in line, with everyone else.

    Sorry, to bit#$ and moan.  Rough day.  They laid off the HR director today, and gave him until Dec. to find a new job. They also closed the corp. office. Looks like I'll have a vacation in Dec. after all.  But it would be hard to downsize me, I'm the only one who does my job. 

  • KKing
    KKing Member Posts: 425
    edited August 2009

    HunkyD...sounds like you had quite the time camping.  Seeing the deer would be exciting.  How was the working 8 hours....did you find it exhausting??

    Wyoming..sounds like your camping was good..it is so much nicer without the rain.

    Kelly..Sounds like you have some crappy decisions to make all over again... I really hope that it is'nt too hard for you....Just know we are all here for you.

    Leggy.. Winter is always a nice time for a holiday...I am sure you will need one by then.

    Bonnie...welcome back, glad the wedding went so well. 

    Had a nice weekend...went to Wasaga Beach for the day yesterday.  It is about 1/2 hour from my brothers place so we hook up with them and go to the beach.  My brother and his wife talked about last summer ..we did go the beach but they said I sat with a towel over me trying to stay out of the sun.  This time I made sure I went for a nice dip in the water.   Well off to work I go..hi..ho..hi..ho...   ugh.

    Glad to hear from everyone.  Talk later

    Karen 

  • Wyoming
    Wyoming Member Posts: 381
    edited August 2009

    HunkyD, I laughed at your camping trip. Hubby and I had a similar experience about 5yrs ago. That is when we decided to get a camper.

    Kelly any news or decisions yet?

    I have enough hair to have bed hair. Hubby laughs every morning. Unfortunately my hair looks like bed head most of the day.

    Talk to everyone later.

    Wyoming

  • Kellke
    Kellke Member Posts: 424
    edited August 2009

    Sometimes I feel guilty for telling all of you before my family,  it is easier to say this the first time to an understanding group and easier to write than to talk.  My family wants to jump in and help and of course I am more emotional around them.

    So here goes:   Went for visit with surgeon last week, he sent me for a pet scan, they had an almost immediate opening so went there last Thursday.  No news until today.

    Went to see radiation oncologist today (the one I had my radiation with over the winter)  He has PET scan results faxed over to him when I asked if he had them.  Thank you, I was on pins and needles waiting for the call since Thursday. It was only dated yesterday so I guess I shouldn't be so impatient.

    So radiation is not an option now.  He said "get to surgery right away", then if possible do more chemo, then if I have a new tissue flap over the area previously radiated he may be able to follow up with another round of radiation. 

    I think I blanked out for a few minutes while he was talking, then he said "there are two suspicious areas on your lung and liver"  If they are not gone after a while, you should biopsy them in case they are mets.  The Dr that read the pet scan had the opinion that they were just inflammatory areas becasue they are singular and cancer I guess usually presents in multiple areas. 

    I have my doubts about that because if I had not found the "inflammed" lymph nodes on my chest we would not have known the big C was back and active.  My onc told me cancer cell clusters need to be about 1cm to be seen on  a pet scan.  Lucky for me I lost weight during treatment so I can feel these new guys and ask for additional treatment.  I am trying to remember the phrase It could be worse to make myself feel better.   Ugh  and now I have to go back to work to keep myself busy.           Kelly

     PS my husband is now feeding me all sorts of cancer fighting foods, I know he wants to help but I don't think I can go without bread and carbs like he wants me to     :)

  • LeggyJ
    LeggyJ Member Posts: 726
    edited August 2009

    Oh Kelly, I know the rest of the girls will have words of wisdom, all I can say is shit, shit , and more shit. 

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