Starting Chemo February 2009?

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  • apple
    apple Member Posts: 7,799
    edited July 2009

    sorry about your oozing Jamieh

    love the pics Michele

    great recipe Judy.. (i make quadruple batches for gifts and donations.. freeze the dough or the cookies).. i love the toffee flavor and oats.. i'm sure i will like them. (not so sure about the others who believe cookies only should be chocolate chip.. - no matter, more for me)

    I always wanted to have red hair..

    whatever is this balding carp about?

    Did i mention I have a dog? he has to take a walk

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2009

    Judy~ It was from my exchange surgery.  You would think it would have shown up already it's been 5 weeks.

  • gcpommom
    gcpommom Member Posts: 883
    edited July 2009

    Just got home from the hospital, DD is still there, they admitted her again.  Can't take any chances with a picc line, poor thing has had like 8 infections and reinserted picc lines in the last 18 months.  She HATES being alone at the hospital, but I had to come home to take my own meds.  It's a long, dark, deserted drive from there, so I was glad to make it home, lol.

    Apple:  You're welcome, hope you like the cookies, mine came out too flat, stoopid oven.  Soooo, that doggie is a 'he'???  What's with the pink outfit??? LOL!  I thought it was a girl dog, he's very cute though!   

    Jaimie:  geez, that was a while ago!  I didn't think you'd had the other surgery yet, so I was confused! 

    Good night all

    Judy

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2009

    Oh, Judy, I hope your daughter is OK. How long will they have to keep her in for? It must be hard on her, being so young. I can understand how she hates being in hospital. Not my favourite place either. Let us know how she is doing!

    The cookie recipe sounds so good. I'll have to try it. I love anything oaty too. My family loves baking of any description, I can't keep the tins full! 

    Jaimie - oh, my, how revolting sounding. I was cringing for you. Hope the stitch was the culprit. 

    apple - love the photo of your doggy! It reminds me of my son - my daughter dresses him up in her old pink clothes, and thinks it is hilarious, poor boy!  He has a pink "Fairy magic" nightie on right now...!

    Michele - love the photos. Sounds like you had a wonderful time. Don't you feel so liberated not having to put a jolly wig or scarf on every day? Great idea to offer your old scarfs up, I think I will drop mine off with the hospital volunteers next time I go to the cancer centre where I had rads - they gave me a whole bunch when my hair first fell out. 

    Well, my BIL drove my MIL down from Ottawa yesterday, so she will be here for my Surgery. It is on Tuesday.  Getting nerves already.

    Anyhow, hope you all have a lovely weekend. It is grey and rainy here, so we will have our garage sale next weekend, as long as I am recovered enough. 

  • gcpommom
    gcpommom Member Posts: 883
    edited July 2009

    Good morning everyone!          

    Kerry:  She is usually in there for about 4 days for a picc infection....once they pull out the infected picc line, the infection must be clear for at least 24 hours before they'll insert the new one, so that's the main reason, plus the IV antibiotics.  The longest she's been there was 10 days, then a month of IV antibiotics at home....that was tough.

    Tore out son's carpeting/pad last night---omg, it was so icky....will never have carpeting again (well, after we tear out the last 2 bedrooms' worth).  Now I feel sick, I'm so tired from all the work.

    We're off to an Art in the Park in my city this afternoon, they just started this tradition....there is a local artist's shop that wants to see my mosaics....they take 30%, but still...I'm kinda excited!  I won't be showing them my stuff today, but will be talking to them.

    Hugs

    Judy

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2009

    Judy~ I hope they are a good match for you.  Getting paid for doing something you love it sooo much fun :)

    Well busy weekend for us we stayed home and went out in our boat and today we have a wedding.  We also were able to book our trip to Disney World for Oct. :)  I am thrilled !!  My kids have been there before but we are staying on property and getting the meal plans so I will be rolling home after Oct. 9..loll...... 

    I hope everyone is enjoying their weekend. 

  • apple
    apple Member Posts: 7,799
    edited July 2009

    hopefully everyone is bald enough to not be offended by this blond joke.. i thought is soooooo funny.

    ===================================


    A blonde woman was speeding down the road in her little red sports car and was pulled over by a woman police officer who was also a blonde.

    The blonde cop asked to see the blonde driver's license. She dug through her purse and was getting progressively more agitated.

    'What does it look like?' she finally asked.

    The policewoman replied, 'It's square and it has your picture on it.'

    The driver finally found a square mirror in her purse, looked at it and handed it to the policewoman. 'Here it is,' she said.

    The blonde officer looked at the mirror then handed it back saying, 'OK, you can go. I didn't realize you were a cop.'

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2009

    Oh, apple, you gave me a laugh! That's funny.

    Judy - hope your daughter is Ok, and home soon. Sounds like no fun for anyone. I have spent hours and hours pulling wallpaper off the walls is this house. I would never wallpaper, ever. Such hard work. Every room was wallpapered when we bought our house. We also pulled the carpet up before we moved in and got the floors refinished - my husband has dust allergies, and we would never have carpet. Well, we have it in the basement, but the rest is hardwood.  Good luck with the Art Shop, that would be wonderfiul if you could sell your work.

    Jaimie - hope the wedding was fun! Any photos of you looking glamourous?? I am so so so so jealous of you going to Disneyland, wish we could afford it, but we are too poor after doing the bathrooms.  The kids would adore it. Me too!

    Well, it has been thundery and rainy all weekend. Went to a kids b'day party this afternoon, so everyone is exhausted. Hope you are all enjoying the weekend!

  • living4today
    living4today Member Posts: 215
    edited July 2009

    Hi Furies--isn't it so good to be posting about our every day lives instead of about C?!

    Judy--hope your daughter heals quickly so she can come home soon!  Also hope you can follow your dreams of mosaic work--how cool for you!

    Jaimie--I'm jealous too....we are taking a an overnight trip to the Omaha zoo in two weeks, with two adult children and their spouse, girl friend...all we could manage was just a two day trip.  We are so looking forward to it, sure hope I am not too tired from rads. 

    Kerry--we went to a kids bday party today too--3hours a from our home, so it was a long trip. 

    Well, I have to admit, I am having a bit of a challenge emotionally with rads.  The center where I go is very nice and the techs are great, but something about being bare chested and bald headed and having to lay still for 45 minutes every day while someone markers up my chest is just NO fun--oh, yah--I forgot, none of this fighting cancer crap is fun--hopefully only 25 more treatments to go...

  • Gramof3
    Gramof3 Member Posts: 301
    edited July 2009

    Hi Furies,

    I had my gdaughters for a few days--well, almost.  I picked them up Wed. and the older one got homesick Thursday (she's been coming down here for 4 years), so met my son halfway (100 miles up the road) and dropped her off.  The younger one wouldn't go with her, so brought her back with me.  She got homesick Friday, so drove her all the way home Friday night.  Was too tired to come home until Sat. evening and have been doing absolutely nothing since. 

    Michele:  Thanks for the information on the lesion.  Yes, I'm older--62.  I'm taking the questions with me next week when I see the neurosurgeon.  I hadn't thought of some of those, so I do appreciate your imput.   I do have another question--you mentioned pulling your tumor markers.  What does that mean?  Sorry I'm so dense about some of this.   Also, I have a question about the Zometa study.--I think I remember you saying you were either getting Z or were in the trial???   I've been thinking about that clinical trial (especially since I was unblinded in the Avastin study and was getting the placebo), but when I went to my dentist for the exam, he was very much opposed to the Zometa.  I'm going to get a second dentist's opinion, but did yours have any problems with it?  BTW, loved the  pics.

    Judy,  Thanks for posting the cookie recipe.  I got the ingredients, but will wait for a visit from the energizer bunny before I  get to the baking.  I love cookie dough, and this sounds delicious--MAYBE I'll actually get some baked.

    Apple,  Cute joke. And the picture is great--what a terriffic young man.  

    Grace,  Hoping for good news tomorrow when you get the MRI results--I'll be thinking about ya.

    Kerry,  Hope your surgery and recovery go quickly.  Sounds to me like you have everything very organized--meals in the freezer, house clean, I can only dream of being that together.

    Jaimieh, So glad you are planning for Disney World.  What a time you'll have!

    Hope you all have a good week ahead.  I'm going for #11/12 Taxol tomorrow--counting down!    Take care.  Helen

  • Gramof3
    Gramof3 Member Posts: 301
    edited July 2009

    Michele,  I'm sending you a PM.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2009

    Kim - I have been thinking too how nice it is that we are able to chat about more "normal" stuff! Hope rads gets easier for you. It didn't bother me but I know others who didn't feel comfortable with it. I did feel like I got more "used" to it, the longer I went, so hopefully you will feel better about it with time. Your trip sounds great! My husband and I have just booked two nights away by ourselves in Montreal for mid-August, then 6 days camping with the kids. I can't wait to get away!

    Helen -  Hope Chemo goes well today. You are so nearly done!

    Anyhow, it's sunny here after a very wet weekend.  Hope you all have a good one!

  • apple
    apple Member Posts: 7,799
    edited July 2009

    I didn't mind RADS so much.. the girls who administered them.. or ran the machines were like zombies tho... (hello.. are you in there?_

    get a personality or something if you are going to be working on women's chests.

    The weather has been so fantastic.. i really feel great.. i think i see hairs coming in to replace the ones that are falling out.. i have the weird white hair thing going on around my eyebrows and and chin..

    i'm gonna have to shave my face.

    Have a great day gals.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2009

    I hope everyone had a great weekend.  I had a blast but now it's time to get back to reality and realize that my house has got to get cleaned this week.  I have been so ache lately and I'm not sure why but my joints are really bothering me.  I have been on clodronate for a month and I have progressively gotten more and more stiff.  Michele do you have any problems on clodronate ?? 

  • susan13
    susan13 Member Posts: 732
    edited July 2009

    Hey ladies! I haven't been on the boards much so I wanted to check in.  Jamie and Kerry... you go girls... look at that hair!!

    Well I've been on tamoxifen for 2 months now, no noticeable side effects. And , knock on wood , my hot flashes have gotten better so I am sleeping much better these days.

    We went on a weeks vacation to the beach, and had a great time.  It sure is nice to get back to normal living!

  • Grace4me
    Grace4me Member Posts: 47
    edited July 2009

    new not good. suspicious for metastactic breast ca................bone scans stat are being ordered.

    pray

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2009

    Oh, Grace, I am so, so sorry. Still, it is only "suspicious" , not confirmed yet, right. Let us know as soon as you have any news. Will be thinking of you.

  • MicheleS
    MicheleS Member Posts: 937
    edited July 2009

    Oh no Grace!! Lots of prayers. 

  • apple
    apple Member Posts: 7,799
    edited July 2009

    of course i'll pray Grace.,, with all my might.

    i have spent more time needlessly worrying and it is one of the worst things about having cancer.  arrgh.. Is this about your arm and shoulder pain?  I have been on my femara (whatever type of maintenance drug it is) and have awful pain.   it really makes me hurt.. i hope your doctor is just following thru and nothing new is happening. 

    why do we always have to be so scared.. ?

    shudder.

    I'll share a picture with you to make you laugh. (no offense anyone, please)   

    I belong to another forum -  a piano forum.. I am a long time, almost original member, very active and well regarded.  Someone found out that they had scheduled brain surgery for me and posted  that information..

    well, to make a long story short, after many well wishes,  i found out i didn't have to have surgery and found this great picture to let people know what i would have looked like, if i had had a craniotomy.. (which was what was actually scheduled - it was kind of a hurryup emergency thing so i could start another round of chemo right away.   ((( gee, how could they do that to me?))))

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  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited July 2009

    Grace~ Praying for you ((bighugs))

    Kerry~ I am hoping and praying that your surgery goes smooth and you have a quick recovery. 

  • apple
    apple Member Posts: 7,799
    edited July 2009

    and Susan..  you look fantastic.. a real hair do.

    your girl is so gorgeous. 

  • MicheleS
    MicheleS Member Posts: 937
    edited July 2009

    Kerry, You surgery is tomorrow, right?? Good luck and lots of prayers.

    Susan, love the pictures!!!

    Helen, My dentist isn't all too fond of bisphonates because of the risk of ONJ.  However, he and I agree that I'd rather be potentially dealing with ONJ down the road and not mets. Soooo... I'm on clondronate.  Toanswer your PM: The phytoestrogen I take is flaxmeal.  But, it isn't like soy and I'm not ER+.  I avoid all other hormone stuff... If I were ER+, I'd likely avoid flax too (maybe).  JMHO.

    Jaimie, I'm super-achey too. I assumed it was exercise-related but I've never had joint pain/stiffness like this before.  I wonder if it is the clondronate??? I'll have to ask my onc what he thinks...

    Apple, LOL!  You always make me feel so much better.  Thanks.

  • Bethie1
    Bethie1 Member Posts: 393
    edited July 2009

    Hey gang!!!  it's your partner in crime here.  I missed you guys; haven't posted in a while.  I had my girlfriend up from Richfield Springs (in between Utica and Syracuse, NY) and we stayed at my sister's house.  The family had a surprise birthday party for me as I'll be 39 Wednesday.

    Need to inform you of setback #2.  You remember setback #1 right???? Well, NO radiation was done today nor will it be the rest of the week.  My skin is peeling as it should, and I'm doing everything I'm supposed to--saline soaks, aquaphor, blow dry on cool, etc., but my skin is breaking down faster than expected.  I still should do the soaks, but only apply Aquaphor on the skin that is intact.  I can't wear my prosthesis for a week, should wear extra loose clothing.  I was supposed to be done wirh RADS 3 days ago, but walking pneumonia backed that up to Aug 4, now this!!! I won't be done until Aug 11 IF I don't have anymore problems!!! 

    Love all your stories

  • MicheleS
    MicheleS Member Posts: 937
    edited July 2009

    Judy, So sorry to hear about your DD.  I don't know how you do it... Staying sane, I mean.

    Grace, Keep us posted.

    Hugs Bethie!!

  • living4today
    living4today Member Posts: 215
    edited July 2009

    Grace4me---((lots of hugs and prayers your way))  So wish we could all take the worry and scare away....please keep us posted! 

  • Artemis
    Artemis Member Posts: 759
    edited July 2009
    (((Grace4me)))  I'm praying.
  • Bethie1
    Bethie1 Member Posts: 393
    edited July 2009

    grace4me- I'm with ya!!!

  • Gramof3
    Gramof3 Member Posts: 301
    edited July 2009

    Grace, I'm praying hard for you.   Please let us know what you find out.   This constant turmoil is so terrible--and we're supposed to be reducing stress in our lives (?!).  Praying for strength and peace for you and that you get a good report soon.

    Apple   Your crainotomy apple makes me wonder what I'll look like if I have to have that procedure--I don't think my eyes will be that pretty.  Hmmmm

    Kerry  I'll be thinking about you tomorrow as you have your surgery.  Best wishes.

    Michele  Thank you for the information.  I agree about the Zometa--it looks to me like the trial checks for ONJ  before every treatment, and you can quit at the first sign of trouble.  I think I didn't explain very well my concern about the mets factor.  Am getting a second opinion tomorrow.  Thanks again for taking the time to answer my questions.

    Susan  Great pics--what a beautiful child (and your hair is great).

    Now Bethie   Partner in Crime LOL.                                                                                        

             birthday cake with 4 candles animated gifHappy Birthday on Wednesday. 

        I'm sorry you are having these setbacks.  Here's a little Furie-Fun to help during the wait--Cheers!  x_coctelexo.gif (24195 bytes)

     Had my chemo this morning...lucky I went in early.  My labs were scheduled for Noon, with NP appointment at 1:00 to be followed by tx.  I went in to the alternate lab at 8:00 instead, to get lab out of the way and go to my office for a few hours.  Lab Receptionist told me my chemo had been cancelled for today.  GRRR.  I figured that when the Cancer Center rescheduled my neurosurgeon appointment (which they had made for today at the same time as my chemo!), everything, including the chemo, had been removed from today's schedule.  So, downstairs to the Cancer Center. I know I looked mean and somewhat angry--baldheaded, clinched teeth--receptionist called onc office and infusion center and actually said, "She's under the impression that she's to have chemo today, but that's wrong."   I leaned over the counter and said loud enough for the onc nurse to hear, "Please send the order for my labs and drugs because I'm tired and I will lie down in the waiting room until I get my treatment or you send for security.  It worked--oh the empowerment.  I was actually finished by 1:15 pm!   Apple, do you think it could be the meningioma having an effect on me?   Actually, during my law enforcement life, it was easier to be assertive since I had a badge and a Glock.  

    The Good News--only One More Taxol.  Yep, I'm loaded on steroids--too chatty so am off to clean something.  Take care, Furies.  Helen 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited July 2009

    You go Helen! Actually, i heard one women refer to her new found assertiveness as Chemo Tourettes!

    Grace - will be thinking of you all day. 

     Susan - great to get the update. you are looking wonderful!

    Michele - I was told to avoid Flax (I'm ER+) - it is incredible how many bakery products it is in!

    Well, I am off for surgery in a couple of hours. Thanks everyone for your good wishes. I will let you know how it goes.  I am really nervous.....

  • apple
    apple Member Posts: 7,799
    edited July 2009

    Oh Kerry.. I always find that you are the first to post in the morning. 2 hours before i reach the computer.  I'm sure we wish we all could go and wait in the hospital's waiting room.  the surgery is supposed to be a piece of cake..  (that's what everyminute said)

    ooopherectomy is really a weird word.

    wishing you luck.

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