DIEP in NY

OG56
OG56 Member Posts: 897
edited February 2019 in Breast Reconstruction

I am at a crossroads right now trying to decide what will be my next steps. Quite possibly it will be a bilateral mx. I am interested in DIEP but the whole surgery is scary to me. I am 55 does that mean my risks are greater? Has anyone had a failed flap? Everything I have read states that women have been happy with this procedure and have not had any major mishaps, is there another side to this story? Any opinions on Dr Keller in NY or BS Dr. Kostroff???

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Comments

  • SandyinSoCal
    SandyinSoCal Member Posts: 2,034
    edited July 2009

    Linda, women in their 60's and 70's have had DIEP and have done just fine.   It's a big surgery, but it is all superficial, with no entry into body cavities or loss of muscle, so it's very well-tolerated by most women.    Yes, there have been failed flaps, so your choice of a surgeon is critical.   There was a failed flap at St. Joseph's Hospital in Los Angeles this past week, and one of my flaps nearly failed.  The overwhelming majority (for instance, over 99.5% with the top surgeons in NOLA) survive and thrive.  The odds are hugely in your favor that you will do just fine if a DIEP surgeon has determined that you are a candidate.

  • kcheval
    kcheval Member Posts: 12
    edited July 2009

    I just had a bilateral DIEP in New Orleans with Dr. Massey on July 1. This is a fabulous doctor, I just love her! Anyway, she does great work and the facility is like a spa in Phoenix. I couldn't believe it. I'm 55 and pretty fit and I have a pretty good nutritional regimen. I did have to gain weight starting last summer when I started thinking about it because I knew I wouldn't have enough fat otherwise. I had implants that had hardened and were painful. I am so glad I had this done. It's not an easy or painless surgery, but the results make it all worth it. It's like getting your life back. There is a low chance of flap failure, since I'd had a skin sparing masectomy with expanders and then implants after, I didn't have a skin flap so I think I had better odds. It's great to have breasts that feel like breasts again. Good Luck on your journey.

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited July 2009

    Take a look at this site in NY.  They're on Long Island, I think, and are supposed to be good.

    http://breastreconstruction.org/

  • OG56
    OG56 Member Posts: 897
    edited July 2009

    Thanks ladies, and thanks Tina I will read up on it. I was hoping someone had used Dr. Keller and could give me a thumbs up or down. My BS recommends him and I will visit with him.

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited July 2009
    HI - I didn't use Dr. Keller - but did you try to call his office and ask for the names of two or three of his patients who would be willing to speak to you? My new PS on Long Island is a doll - you'll find him at www.breastreconstruction.org. I did hear through the grapevine that Dr. Keller is highly regarded.......not sure where I read/heard that.........I've been bouncing around the internet for so long now - and talking to so many doctors - I know his name came up favorably. Good luck and I hope you'll get a good report on Dr. Keller soon!
  • Nordy
    Nordy Member Posts: 2,106
    edited July 2009

    Former patients of Dr. Keller's have a website: www.diepsisters.com    You can start there. I never used him, but spoke w/him over the phone last year. I found him to be very personable and knowledgeable regarding DIEP. As it stands, I am not using him for reconstruction because I am not a candidate for DIEP so am going somewhere that does B simultaneous GAP. Good luck in your search.

  • nancyu
    nancyu Member Posts: 97
    edited July 2009

    My surgery was done by Dr. Jane Petro of the Institute for Aesthetics at Northern Westchester Hospital in Mt. Kisco, NY.  NWH has private rooms.  It is a first-rate hospital.  She just retired from the practice to be the Medical Director of the first burn/recon/cosmetic only hospital in the world - in Dubai.  Check out her website: drjanepetro.com.  She was an angel.  I will still be receiving care by the practice.

    I grew up in Westchester, and have lived all over since.  My parents were health care professionals and I worked in post-graduate academic medicine managing Continuing Professional Education Programs.  I worked at NY Medical College in Valhalla, affiliated with Westchester County Medical Center, and 30+ affiliates in the tri-state area. 

    I had two breast surgeries at WCMC years ago.  I had been in NWH when I was a kid.  I had opinions done at Sloan and University of Vermont.  I was at my endo at Columbia last week.

    A good resource to check on anyone in any specialty is Castle-Connolly Guide.  Hudson Valley magazine, Westchester Magazine, etc. also rate physicians. 

    If you have any questions, let me know.

  • karmi2az
    karmi2az Member Posts: 42
    edited July 2009

    I am also considering DIEP, bilateral. I had a mastectomy 15 years ago on the left side, now have breast cancer on the right.  I am determined to restore both sides this time, but get overwhelmed with making a decision.  Next week, I will find out if I am candiate to have DIEP at Mayo Clinic.  They are predicting a 14 hour surgery.  The surgery, the pain, and the scars scare me just as much as the cancer diagnosis. 

  • OG56
    OG56 Member Posts: 897
    edited July 2009

    It is all so freaky and I am waiting to see if I have cancer again or just very sick breasts full of LCIS, so I think I am looking at prophylactic which just confuses the hell out of me. I am going next week to see if I am even a candidate for DIEP, I had a colon resection in 2001 so I have a scar midline 3" on my tummy. If I can't have a DIEP I don't think I want anything. Do you think it would be to strange to do nothing?? I'm with you surgery risks scare me almost as much as the cancer too. Have you checked out NOLA, if one of the developers of the DIEP wasn't right here I think I would go there. Let me know how it goes up at Mayo please

  • karmi2az
    karmi2az Member Posts: 42
    edited July 2009

    It is not strange to do "nothing".  I had my first diagnosis at age 37, had mastectomy with the intention of reconstrive surgery at a later date.  I never wanted to take the time out of my life to have another 6 wk re-coup so now 15 yrs later, I am faced with a mastectomy on the other side.  I could do nothing but there are some inconviences not having a breast too.  This time I am going to reconstruct.  You have to do what is right for you. 

  • karmi2az
    karmi2az Member Posts: 42
    edited July 2009

    Can you give any suggestions for coming home after at DIEP?  Special clothing, or aids that really helped.  I have heard of people wearing a binder around their torso for support.  Did you feel like your abdomen was going to bust open at all?  Do you have feeling in your abdomen or is it numb?  Thanks

  • gestexas
    gestexas Member Posts: 14
    edited July 2009

    Hi karmi2az 

    I also had mx 17 years ago w/ no recon. on left side.  Aug'08 DCIS right side. Did skin saving mx w/ double diep.Tough surgery 10 hours but now worth it.  I am 58 years old.  Went to San Antonio, Tx.  PRMA.

    Good Luck,

    GES

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited July 2009

    GES, take a look at the breastrecon site referenced above.  It has all sorts of suggestions for how to prepare for after surgery.  Good luck.

  • karmi2az
    karmi2az Member Posts: 42
    edited July 2009

    Did they restore your breast to a similar size?  Do you have any trouble fitting in a standard bra?  Thanks

  • karmi2az
    karmi2az Member Posts: 42
    edited July 2009

    Thanks for the suggestion.

  • concernedsis
    concernedsis Member Posts: 256
    edited July 2009

    Dr Keller was highly recommended by sis' first surgeon- I believe he operates out of NSLIJ. Google him there is a lot of info. Only thing she didnt like was the rush to surgery by both the breast surgeon and the plastic surgeon and I think they wanted big money up front. So for us he was tainted.....once she saw the oncologist- she ended up needing to do preop chemo and is having surgery in September and radiation to follow. The rush to surgery would have been a disaster. Have you seen anyone at Sloan?

  • OG56
    OG56 Member Posts: 897
    edited July 2009

    No, but I am trying to schedule an appointment there. Do you have a suggestion for whom I should see at Sloan?

  • Nordy
    Nordy Member Posts: 2,106
    edited July 2009

    What about Dr. Smith at Beth Israel? There is a link somewhere around here that has an interview w/him and a breast surgeon and shows DIEP w/skin sparing mastectomy. I do not know anyone that has used him, however.

  • ASL
    ASL Member Posts: 202
    edited July 2009

    I'm only slightly younger than you and had bilateral mast/DIEP with Dr. Smith at Beth Israel in NYC last fall. My BS was Susan Boolbol and I think they are both top notch. Dr. Smith also operates with BS Michael Osborne, who is also very highly regarded. You can take a look at the online video Nordy was referring to by going to www.marksmithmd.com       Scroll down to the bottom of the page under "Other Links" --fhe first one is "DIEP flap--view live surgery." Click on the top one for the hour long version (interview with Smith, see the surgery--it's a little gory so you might want to look away in parts!) --the "Preview" underneath is just a 5 minute summary of some things related to DIEP. There are some women on the video who talk about their DIEPs --one definitely looks like she's in her 60's. And I've heard of many women who are older than you who have had successful DIEP (or GAP) surgery.

     Based on my experience and talking to other women who used Dr. Smith before I had my surgery, I would definitely recommend him. But I can't comment on how he compares to the plastic surgeons you have on Long Island, closer to where you live--I've heard good things about Dr. Keller but don't know anyone who used him. And SwimAngel definitely researched her PS a lot before using him. If you can find someone who you're totally comfortable with closer to where you live (rather than going into NYC), I think that would be great. Things to consider when deciding how comfortable you are........speak to the plastic surgeon's patients--are they happy with him? see photos of his work (sometimes you can even see his "work" in person); how many has he done (it should at least be hundreds); what is his track record (should at least be 98-99% success rate); are you confident in the breast surgeon he operates with? Are you happy with the hospital he operates in?  I'm sure there are other things to consider, but those are some that come to mind.

    In terms of Sloan, there's a woman who posts here who had her surgery with  PS Dr. Babak Meherara and was very happy with him--Momtogreyhounds. Maybe she'll see your post and chime in--she had DIEP with him previously and just used him for TUG. Maybe do a search for him on this site and you'll see what she wrote about him. 

     Dr. Robert Allen, one of the pioneers of the DIEP also operates part-time out of NYC--if you do a search you will find a lot about him. He operates with BS Michael Shapiro or Amber Guth at NYU, which is supposed to be a great hospital too. 

    Good luck! I know it's hard checking out all your options--I was doing the same thing this time last year. 

  • iamrosey2
    iamrosey2 Member Posts: 1
    edited July 2009

    Hi Linda.  I'm also considering a DIEP right now and hopefully not a TRAM.  This is th efirst time I've ever been on one of these discussion boards.  I'm not quite sure how it works.

  • concernedsis
    concernedsis Member Posts: 256
    edited July 2009

    Dr  Monica Morrow  is the chief of breast surgery at Sloan thats who was recommended to us. She's a surgical oncologist. She was very thorough, very up to date on studies and highly recommended for her surgical skills - she was a little aloof but I can accept that to get the best surgeon. We dont have a plastic surgeon yet - see the doc next month to determine lumpectomy vs mastectomy and options. If you need as medical oncologist Tiffany Troso at Sloan Rockville Centre has been a godsend. She explains the options very clearly, is very patient with questions and has been so supportive in every way from the examinations, to adjusting meds to even filling out those pesky forms for work. I honestly cant imagine if we hadnt found her.

  • concernedsis
    concernedsis Member Posts: 256
    edited July 2009

    Hi Rosie

    You can respond to a thread or start your own or just search topics and read. If you go to your home page you can see what threads you are involved in. Good luck to you.Welcome

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited July 2009

    Nancy - I also had my mx and reconstruction done at the Institute for Aesthetics at Northern Westchester Hospital in Mt. Kisco, NY, but it wasn't with Dr. Jane Petro. Can I ask you what kind of breast reconstruction you had done and when? Is Dr. Petro a microsurgeon who can perform Dieps?

    Unfortunately for me, my PS did NOT give me the promised Diep, but a muscle-sparing free tram - and I ended up with an abdominal MRSA staph infection at Northern Westchester. Anyone who wants to know the dirt on Northern Westchester Hospital - feel free to PM me - suffice it to say, I do NOT recommend this hospital to anyone planning on Diep surgery. And for anyone contemplating ANY surgery, please visit www.hospitalinfection.org to eduate yourself about the real risks of MRSA and C-diff infections.

  • OG56
    OG56 Member Posts: 897
    edited July 2009

    Thanks everyone I am doing as much research and interviewing as I can. I am just sending all my reports to Sloan so I can see a surgical oncologist and hear opinions on pleomorphic LCIS. Although I have decided to have a BMX I fortunately don't have to rush. I have to say I love the results of the DIEP but for some reason it scares me....I hate pain, although I have had plenty in my lifetime LOL

  • ASL
    ASL Member Posts: 202
    edited July 2009

    Linda, I don't have personal experience with Sloan (didn't take my insurance) but I've heard from a number of women that they limit the number of consults you can have with each type of specialist. So if you start out with one plastic surgeon there and they don't do the type of reconstruction you want, you might not get to see another. And supposedly, certain breast sureons only work with certain plastic surgeons. Again, this isn't firsthand knowledge but I've heard this many times from women. The woman that had her DIEP/TUG with Dr. Mehrara is also from Long Island and used Dr. Lisa Sclafani as her breast surgical oncologist..........she saw her out at the Commack Long Island facility but had her mast/DIEP with her and Dr. Mehrara at Sloan in NYC. Unless you have other doctors in mind at Sloan, that might be a good way to start for you. You could see the surgical oncologist right on Long Island and know that she works with an experienced DIEP PS.

  • jondy
    jondy Member Posts: 46
    edited July 2009

    Hi THere

    i had diep on 4/21/09 with Dr Feingold in Great Neck Ny..im also from Long Island. He was wonderful and has two other partners. Im only at three months and am so pleased with my results, i am so glad i chose diep. Yes its scary but so worth it and i recovered wonderfully. My breast surgeon was Dr pezello also of Great Neck ny and she works with Dr Feingold. They came highly reccomended. Dr Feingolds office also dealt with all my insurance..I have Blue cross blue shield. Ive also heard wonderful things about Dr. Keller too..i think hes in the same vicinity.Any questions or if i can help in any way just PM me...you will do great!

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited July 2009

    Hi Jody - maybe we'll bump into each other soon! In May I had my Stage 2 free-tram revisions  with Dr. Israeli (who's in the same practice with Dr. Feingold.) He also helped with my abdominal hernia repair - and will be doing a "Stage 3 - nipple etc" revisions soon. I'm happy you're doing so well at three months! Did you get a bi-lat Diep?

  • NancyD
    NancyD Member Posts: 3,562
    edited July 2009

    I'd like to hear some more about Drs who do DIEP in NYC or the northern suburbs. I'm in little ol' Rockland Cty and there's no one here that I know of that does DIEP recons. They only want to talk TRAM or implants.

    Mark Smith sounds interesting. I watched the video a couple of times, and he and his partner sound knowledgeable and more than capable. Of course, like most PS, he is out of network. That's OK since my insurance will still pick up a good part of it, but does anyone know if he will take credit cards for the remainder?

    Also, I've heard so much about how the drs at NOLA will lipo areas to sculpt the contours of your body around the scars and recon area...all as part of their service. Does anyone have a PS in NY to recommend that does that?

    I'm starting to get my nerve up to call a few PS and see what they're like, but I won't want to make more than a couple of visits. I'm running out of personal time at work. So I want to get as much info before as I can, and perhaps eliminate a few based on things they do or don't do.

    Please PM me if you have info you don't want to share openly. 

  • swimangel72
    swimangel72 Member Posts: 1,989
    edited July 2009

    Nancy - Dr. Israeli is very easy to reach on Long Island (easier to reach than the docs in Manhattan). His office is in Great Neck, just over the bridges - off the LIE - check out his web site:  www.breastreconstruction.org

    He's very meticulous - he did lipo my abdominal area during my surgery -  you should definitely call his office. He's out-of-network for all insurance companies, but willing to work with you. Good luck!

  • Angel10
    Angel10 Member Posts: 682
    edited July 2009

    My sister used Dr. Israeli and is very happy with her results!

    Good luck!

    Angel 10

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