Anyone starting chemo in Aug. 08?

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  • Misty1
    Misty1 Member Posts: 272
    edited July 2009

    Good Evening, Girls,

    Lots of action on the board this week, and I don't like the way any of us have to deal with scares again. 

    Bette, you are really getting some hair up there-love the pic-your hair looks straight.  I wish my waves and curls would go away!!  I am glad you have a date for the biopsy.  I am hoping you will get good results and this whole situation will be resolved.  YOu have been tested enough!!

    Corinne, so sorry to hear about you being down.  You are such a strong woman.  I know things will look brighter soon.

    Jeannine, I can't believe you have to deal with a scare, too.  Let's hope you have a positive outcome as well.  You deserve to be able to move on and get that reconstruction going!!

    Hi to all the other girls, Roya, Deen, Stacy.

    As for me, one summer week turns into another as I continue to relax and enjoy the summer.  I hope everyone has a good week.  I agree with Roya, everyone is surrounded by positive thoughts and lots of love.  Just so sorry any of us have to even think about a scare.

    ~Misty

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Misty, My hair IS straight, and I miss the tight curls I had for my whole life before chemo.

    We have been tested a lot, but I believe the Lord gives you strength to go through whatever tests you face exactly when you need it . Before BC, I was not as strong because I didn't need to be.

    Thank you all for the prayers, good thoughts and love.

    Bette 

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  • Roya
    Roya Member Posts: 346
    edited July 2009

    Bette, sending positive thoughts and prayers your way.

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  • Corinne6
    Corinne6 Member Posts: 311
    edited July 2009

    Hi all, doing much better. Thank you for all your prayers. I got refocused on the Lord and am doing lots of stuff. Today I cleaned my house, did 4 loads of laundry, hung out 4 loads of laundry, painted the porch, took care of my horse, and am now heading for the pool. Tonight if the weather holds out I will ride my horse. Very excited no rain is forcasted that I know of unless they changed it again. We had rain for 7 weeks every day at some point. So happy to see the sun shining outside as well as in my life. I am still always praying for you all and love each one of you.

    Bette: my hair came in straight and then poof curled like crazy now. One good thing that I can tell you about straight hair is it looks like you have more than if it's curly. I am hoping mine will go back to straight but............I am just so thankful to have any hair at all!!!!! (Especially happy my eyelashes grew back!!) I will have to take a pic and show you my real hair. I still sport a wig from time to time. However, with the summer here and hot flashes I have gone out without one for about 5 days. Have not gone to church without one yet.

    There is not a day that goes by that I have not checked the posts and thought about each one of you and prayed. Karen, I hope that you continue your Herceptin. Misty so glad you are done!! I will be finished with mine I think at the end of Sept. Started in Aug but had that heart thing for 2 of them so they told me that they would tack them out on the end.

    Anyways, have a great day and hugs to you all!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Corinne, I have not worn my wig since March 28, my wedding day. I just decided that my "hair" at that point was good enough. I wore scarves to accent it, or sometimes wore hats, but no wig. It felt so good to wash and dry it, then put it away in its box.

    If the biopsy comes back positive for cancer, I may be starting chemo again, in August 2009. That would make me a repeat "hot baldy" We are praying that it will be benign, but I am emotionally preparing myself in case we get bad news.

    Today, Tom and I went to the pool. The water was chilly, but sitting by its side was very relaxing.

    Bette 

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  • g94u67
    g94u67 Member Posts: 436
    edited July 2009

    Thank you all for your prayers. I've been in tears all week (& now too).  To think I may have to go back on chemo kills me. To also think I could have avoided this probability having done the DMX in Nov. REALLY gets me. But I can't go back, only forward. 

    Yes we ALL need a big group hug.  This just sucks!

    Corrine: I'm so sorry to hear about your meltdown. This damn disease is such a mind blower.  That long drive really sounded like the right thing to do. I hope you're feeling better. I just may end up on the rode to Neverland again.

    Bette:  I'm praying for benign results for the 2 of us!  My biopsy is Thursday. You're still doing reconstruction?  I'm happy to hear that.  Some women don't w/IBC and I really am looking forward to this. 

    I know you ladies think I'm nuts but I'm in the process of obtaining rattlesnake blood.  I finally found a link. Who knows?  I just can't think of chemo again.

    Big ((((Hugs))) & Prayers to all,

    Jeannine

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  • g94u67
    g94u67 Member Posts: 436
    edited July 2009

    Thank you all for your prayers. I've been in tears all week (& now too).  To think I may have to go back on chemo kills me. To also think I could have avoided this probability having done the DMX in Nov. REALLY gets me. But I can't go back, only forward. 

    Yes we ALL need a big group hug.  This just sucks!

    Corrine: I'm so sorry to hear about your meltdown. This damn disease is such a mind blower.  That long drive really sounded like the right thing to do. I hope you're feeling better. I just may end up on the rode to Neverland again.

    Bette:  I'm praying for benign results for the 2 of us!  My biopsy is Thursday. You're still doing reconstruction?  I'm happy to hear that.  Some women don't w/IBC and I really am looking forward to this. 

    I know you ladies think I'm nuts but I'm in the process of obtaining rattlesnake blood.  I finally found a link. Who knows?  I just can't think of chemo again.

    Big ((((Hugs))) & Prayers to all,

    Jeannine

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Jeannine, My PS said that as long as I am not on chemo six months from now, we can go ahead with my DIEP reconstruction. I am hoping that , if I need chemo again, it will be over by January.

    The PS told me about a patient of his with brain and lung mets who wanted recon, even if she only had a year with her new breasts. He did the surgery, and she is still going strong three years later. That encouraged me. I also want my breast back, for the rest of my life!

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Good afternoon to all!

    Jeannine, I am praying for your biopsy tomorrow to be B9.

    I finally got some sleep last night with the help of an Ambien CR. Did not wake up until 11:30 AM! I needed it, as I have not been sleepy much during this time of uncertaintly.

    Lisa and LaShon, my prayers are with you as well.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Jeannine, I am praying for you today that the biopsy will be B9

    I again slept for almost 12 hours. What is this about?

    My prayers are for all the strong women on BCO who are dealing with things they shouldn't have to deal with.

    As for me. Less than a week to wait, and God is in control.

    Bette 

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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2009

    Jeannine ~  We have you covered in prayer today! 

    How is everyone else doing?  Karen -- we haven't heard from you in a few days.  Is everything okay? 

    I'm off to see my PCP this morning.  Spent yesterday a.m. @ the ER with my 26-year old son who had a sudden attack at 5:00 a.m. of absolutely excruciating pain that turned out to be a kidney stone.  I never knew younger people got those, but I guess it's fairly common, especially in areas where it's easy to get dehydrated -- like our summer heat here in the desert.    

    Thinking of you all  ~ Deanna

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    I am going swimming again. It is hot and hazy here in PA, so my DH slathered me with SPF 100+ sunblock. So hopefully I won't burn. I have been more sensitive to the heat since chemo and rads.

    Deanna, I do hope your son is feeling better. Kidney stones can be awful.

    Jeannine, is your biopsy done? Sending up a prayer for you.

    Bette 

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  • g94u67
    g94u67 Member Posts: 436
    edited July 2009

    Hello friends,

    My biopsy is at 3:30 today.  Thank you all for the warm wishes, hugs & prayers. They're never enough. I slept pretty well considering. I think I dreamt was at the Dr.

    Deanna: It was so comforting to hear your voice and talk last night. Thank you so much for your friendship and for reaching out. Only our BC sisters really know the emotions and anxiety we deal with.  (I hope your son is doing okay.  That panic attack sounds really scary).

    Bette: Thank you for praying for me.  I'm praying for you too!  Good to hear that you can get the DIEP. I can't wait for my reconstruction. I just hope it's soon.

    I will let you all know as soon as I get the results. Aww the scary part..

    God Bless,

    Jeannine

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    I am thinking of Jeannine right now. It is about 3 PM in CA (6 PM here) so I know the biopsy is soon. I am praying that they get the right tissue, and that it is B9.

    Bette 

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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2009

    I'm right here with you Bette -- praying for Jeannine.  

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  • TXBadboob
    TXBadboob Member Posts: 597
    edited July 2009

    Jeaninne and Bette, I'm praying hard for you both right now!

    Love and hugs to all of my chemo sisters,

    Deen

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  • g94u67
    g94u67 Member Posts: 436
    edited July 2009

    Hi Everyone,

    Well surgeon didn't like what he saw.  He said  bc has spread.  He did not want to clasify it as IBC since he said I don't have classic symptoms. He is scheduling my PET Scan and wants me to have BMX ASAP since chemo didn't get it the 1st time. I guess I knew it and didn't want to believe it could transition so quick.He said it may evolved since I didn't have RADS but I believe it's due to my type TN & BRAC+. 

    He said I'll have to hold off on the recon. for now.  The challenge will be trying to find a chemo that will work. I keep thinking of our friend FLady. I'm okay though. I'm at peace and giving this to God. It was odd.  In the waiting room, news was on and showcased a young boy stricken w/ leukemia.  Poor thing was so frail, almost out of med ins. and needs to do 3 yrs of chemo. I think the Lord wanted me to know, if that boy could take all that, I could handle more adversity.

    Thank you all for the love & prayers.

    Love you all,

    Jeannine

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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2009

    Jeannine ~  I just PM'd you.   Deanna

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  • mamakaren
    mamakaren Member Posts: 225
    edited July 2009
    Jeannine~ Remember that you are a STRONG WOMAN and you will SURVIVE this. I am praying for you and just know that we are here anytime (of course you know that). Kiss
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  • alibug05
    alibug05 Member Posts: 182
    edited July 2009

    Jeannine - I am so sorry for the news you got BUT you are a strong woman and we are ALL here for you NO MATTER what you need!!!! You are in my thoughts and prayers!!! Bette - I am praying for good news for you too!!!! Loves to all............

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  • everyminute
    everyminute Member Posts: 1,805
    edited July 2009

    Jeannine - I follow along and lurk here (since I was an Aug 08 starter too!) but never post.  Have been following along and keeping you (and others - BetteLou) in my prayers.  Please discuss PARP inhibitors with your doc.  They are cutting edge for BRCA+ TNs and have shown wonderful promise!!!!

    Mary

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  • g94u67
    g94u67 Member Posts: 436
    edited July 2009

    Slept about 2 hours last night. I've contacted City of Hope. I think that's a step in the right direction. I need to find a new specialist quick.

    (Also still in process of locating Rattlesnake blood).

    Thank you MamaK, & Alibug and Deanna for your support. I'm trying to stay strong.

    Hugs, Jeannine

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  • Hood1980
    Hood1980 Member Posts: 537
    edited July 2009

    Ladies,  I apologize for not being here for you lately.  I've been busy with personal stuff & haven't had much time to be on here.  I do pray for you all every day and will continue to lift you up in prayer - Jeannine, Corinne, Bette, Lashon.  Are there others that would like special prayer requests, just let me know. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Jeannine, I am so sorry you got the news you got. I continue to pray for you, especially for wisdom now in finding the best treatment.

    We are leaving tomorrow on our trip, which will end with my lung biopsy on July 22. I am taking my laptop to try to try to stay in touch.

    I am praying for all my BCO sisters, especially Jeannine, Lisa, LaShon, Corinne.

    Bette 

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  • Corinne6
    Corinne6 Member Posts: 311
    edited July 2009

    Jeannine: No words in the world could erase what you are feeling right now.  I am also there with you and for you!!  I am praying for you daily and know that the Lord is going to be your strength through all this. I wish we lived closer so I could be there to comfort you but I am asking God to wrap his arms around you for me. Love and hugs, Corinne

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  • Misty1
    Misty1 Member Posts: 272
    edited July 2009

    Jeannine, I am so sorry to hear your news.  But, I know what a fighter you are!!!  You will win this battle and be able to move to bigger and better things.  Since we are like a big family, we will all be there for you no matter what you have to go through with treatment.  I am so amazed at your positive outlook!!  You are truly a strong woman!!  I will be thinking about you every day.  Please keep us posted!!  I am so glad you have been such an advocate in checking out this situation.

    Bette, good luck with your upcoming biopsy.

    All the pretty ladies, I will be in Atlantic City with my DH from Sunday - Wednesday-he has a business conference and I am tagging along.  I don't know if I will have access but I will be thinking of all of us, especially Jeannine and Bette.

     ~love, Misty

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Misty, have a great time in AC with your DH!

    Jeannine, Prayers for the best doctor at UCLA

    We are leaving for Lancaster County today, and will have limited computer access. Please keep me in your prayers as we then journey to Baltimore for my consult and bronchoscopy. The procedure has been described to me, and I am not looking forward to it. They have to identify what the nature of this lesion is.

    Will report back ASAP.

    Bette 

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  • TXBadboob
    TXBadboob Member Posts: 597
    edited July 2009

    Jeaninne,  I am so sorry you're having to go through this.  It seems like all of our biggest fear.  I'm glad they're going to rush your BMX, and the next chemo should kick ass on any C that might be left!  We will certainly be here for you and our prayers are with you.

    Bette,  have a nice trip besides the testing.  Still praying for good results for you.

    Misty,  have fun on the AC trip!  Maybe you'll win millions and host a party for us all!:)

    Corinne,  glad to see you feeling better.  Maybe that was just what you needed!

    Hope all of you ladies have a great weekend,

    Deen

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  • Corinne6
    Corinne6 Member Posts: 311
    edited July 2009

    Hi all, Going to church in a minute. Love you all so much!!! Yesterday was a really good day for me. I got up at 6:30, read my Bible,  went walking at 7AM fed my horse, visited a friend, went to a picnic, and got to watch our local fire works. We know how to do fireworks!! Last year at this time I had found a lump under my armpit. Tomorrow is my one year anniversary.  My DH is going away on business so I am going to go camping with my two girls. Is that gutsy or what??? Yes, I am using a tent!!!

    Bette, Jeannine, Karen, Lisa and Lashon,  KEEP ON KEEPING ON!!! We are praying for you!!!!!!!!

    Love and hugs to you all,

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    Awesome, refreshing, relaxing time in Lancaster County. Sight and Sound was super. Today we visited a local church and went shopping and out to lunch. Tom told me that his shift has been changed so that he will be home at night. What a wonderful surprise!

    Tomorrow is on to Baltimore for the medical business part of the trip.

    Bette

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