Starting Chemo in July 2009
Comments
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Do some research on Thrush. I have heard that a mouth wash of Benedryl and Milk of Magnesium may help. as well as acidophlus capsules. Since Thrush is caused by yeast you might want to up your yogurt intake. Everything I have read says that if on Chemo. call you doc. there is meds. you can take to make this go away.
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PS73 the info I was given states that for a coated tongue you should have pineapple juice or fruit, or dissolve a quarter tablet of effervescent vitamin c on your tongue once or twice a day, or get your dr to prescribe Daktarin gel and apply it to your tongue.
Hope you find something that works for you.
Jayne xoxo
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PS73-I hope you feel better quickly. I don't have the thrush symptoms, nausea, or too much bone ache, but I have got heartburn and I'm not eating poorly!!!! Never had to deal with it in my whole life & I am glad! Hope it leaves soon. Also, as PauldingMom points out-very, very tired! Hope I'm able to work tomorrow.
Joni2
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hi .i to will be starting chemo on the july 21 thank you for inviting me to this group. i have had a masactomy on 1 side ...doctor has said he got everything but since i had 1 lypph node pos chemo would be the best thing for me .......i am a bit scared but all of you have helped me. eliz
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eliz46 taxotere/cytoxan july 21 2009
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i am still new is this tc
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Hi i start the same combo on july 21 i could use some info too, everything is happening so fast. eliz
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eliz, it does seem to be going fast doesn't it? if you page back thru this thread you will see quite a bit of info re: Taxotere/Cytoxan and other combinations of treatment. I went to a few different other threads too to pick up more information. It's overwhelming. You need to sort of figure out what things you want to know about, research that & then move on to the next thing you're curious about. And be sure to stop before you hit overload!
Joni2
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PS73....I made up a mixture of 1 tsp. baking soda, 1 tsp. salt in a cup of water and brushed tongue with that as well as used it as a mouth rinse. Helped my hairy tongue. Patti
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Hello there, I started my 1st chemo on July 2nd. The first day after chemo I was wound pretty tight, I felt as though I could run a marathon..you just have to make yourself rest, take a long hot shower and get into your fav pjs.
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Hello to All -
I start my chemo on July 23rd. 6 rounds of Taxotere and Cytoxan 3 weeks apart, with a shot the day after each round (forget what the shot is called but will but asking again). I have not read all the posts here yet, but will get that done in the next or 2.
It has taken forever from my dx in April to get to the chemo, not sure I am ready for it but it is here!
Prayers for all
Shae
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I wondering why some doc. rush Chemo. and others are not as aggressive to start. In my case,(all about me syndrome), my mother was dx 10 days before me. She still won't know if she starts chemo. for 3 more weeks!! I'll be on my second dose by then or as I like to think about it, half way done.
Eliz46 I betcha you are getting a shot for Neulasta. It is used to build up white blood cells in your body. It works on your bone marrow and that is the reason for the bone pain (growing type pain).
I am not a doctor, I just play one on BC.org.
I miss my morning coffee but didn't like the effect it was having on my and nurse said I should avoid it if possible. Found some yummy decaf. green tea with ginger. Gets me over my morning hump.
Today is my Look Good Feel Good Class! I can't wait. Probably take a nap before I go. All you newbies and procrastinators need to sign up for this. Google American Cancer Society and find the location nearest to you. They can also set you up with a free wig and information. My only disappointment with them has been that they no longer encourage self exam. I found my lump all by my little self. They said, "It tends to give women and excuse not to have a yearly exam by a professional." I don't disagree with that, but isn't both better? I'm teaching my daughters both, that's for dang sure.
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PauldingMom,
Thanks, made me laugh,"I'm not a doctor, I just play one on BC.org", my first laugh of the day thanks for that! I'm also going to the Look Good Feel Good class today, I'm very excited, how sad is that, that this is what my life has come to. Free wigs and make-up, whippie!!!!
I felt a little bone pain yesterday, but very bearable. I actually stopped taking advil to see what it felt like. It was mostly in my back and only hurt when I stopped moving, needless to say I didn't stop moving. Still not losing hair but I have a feeling today/tomorrow for sure, oh well might as well get it over with. I'm running low on shampoo anyways.
Have a good day everyone!
Julie
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Shae – It took a long time for me to get from dx to chemo as well, and I think I’d still be waiting if I hadn’t pushed it with the onc. I teach and go back to work on Aug 3. I was hoping to be halfway thru by then, but now I’ll just have 2 of 6 done, and the 2nd will be the day I go back!
Paulding – I gave up the coffee, too. I miss it but figure it will taste twice as good when this is all over. Good luck with you class today, I haven’t signed up. I ordered a wig from Paula Young. It came a few days ago and looks adorable on the wig stand, but when I tried it on it looked like an animal had crawled up on top of my head and died. I couldn’t stop laughing. What are the details on the free scarf from franceluxe? Do you call or order online?
PS73 – Hope you are feeling better today and get the thrush resolved today.
First Chemo today – nervous but ready!
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HI gang. Thanks for the hairy tongue info. I was given a rx of nystatin but its not gone yet, I have done three swishes so far and still have a very white tongue. pretty nasty Also noticing that I didn't take the claritin yesterday and yesterday was by far the worse day so far. Just a tip as it may actually be helping w/ the hit by car at 65mph pain I felt yesterday. I told the nurse about claritin with the neulasta shot and my nurse said she would pass the info along to other patients if we all feel like its helping with pain management, so kudos to the bco teams. Day six is not a walk in the park but nothing was as bad as yesterday.
Thanks for the encouragement!
Stay strong gals!
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I am also doing the Look Good Feel Good class today, we need to compair, first chemo in 2 days,
Thank every one for the advice on FMLA, I am on FMLA but I have had 3 different surgeries and am eating it up fast. I had a lumpectomy with SN biopsy- found 1/2 Lymph nodes+. ONC suggested bilat mastectomy but PS insisted that I have radical node dissection on right and SN biopsy on left, then I had a bilat. mastectomy with TE placed.
I had the best sleep last night since i had the radical node dissection, I've had so much swelling I could not sleep on my side until last night and I am very much a side sleeper.
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I am also doing the Look Good Feel Good class today, we need to compair, first chemo in 2 days,
Thank every one for the advice on FMLA, I am on FMLA but I have had 3 different surgeries and am eating it up fast. I had a lumpectomy with SN biopsy- found 1/2 Lymph nodes+. ONC suggested bilat mastectomy but PS insisted that I have radical node dissection on right and SN biopsy on left, then I had a bilat. mastectomy with TE placed.
I had the best sleep last night since i had the radical node dissection, I've had so much swelling I could not sleep on my side until last night and I am very much a side sleeper.
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Morning everyone,
Day 5 here in Oregon-I'm at work; feel fine-a few bone aches here & there but really nothing I didn't have before. I had the heartburn over the weekend, but it didn't bother me last night & get this (whisper) I ate pizza! It was soooooo good! I have my Look Good class next Monday-I don't do make-up now, but I've been contemplating it for a while because of all the wrinkles, so anything that helps, I'll go for at this point.
Try to have a good day. I'll be shooting up prayers & best wishes for y'all.
Joni2
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Greetings from the Sahara Desert (that's what it feels like here)....
ONC nurse called last night (Sunday) with resuts from PET/CT scans. Everything looked good...except a few incidentals......enlarged lymph nodes in chest, which they feel is due to the surgeries (HOPE), and 2 cysts on liver (HOPE). Said I must be a very fast healer cause the CT showed almost no trauma in the chest area....then why do I feel like a steamroller ran over my chest??? Let's see, also tumor markers for bc came back normal. So, all in all, a good report. Will see onc on Wed.
All you ladies take pics of your Look Good Feel Better selves....can't wait to go!! Mine is Aug 3.
Welcome to all the new ladies.
Joni1 (yes there are 2 Jonis)
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Just wanted to pop in and say WELCOME to all the newbies, I think I have updated our July ***** crew list with everyones name, date and cocktail (see pg 7)...if I am missing anyone please let me know.
Thank you to all who have already started...your posts are so comforting and informative, thank you for detailing what you are experiencing and the helpful hints on how to counteract some of the SE's.
Pauldingmom - do we have a name yet?
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Look Good Feel Good class was very nice. They served little tea sandwiches and cookies. The makeup was top of the line and a professional cosmetologist helped us apply. There were 4 of us ladies with cancer, two with hair, two without and one sweet lady who hadn't started chemo yet and was still in that "scared to death" mode. I gave her this web site and hope she will join us soon. I learned to make eyebrows, something I haven't yet needed to learn. They also talked about wigs, wraps and what not. Lots of good, up lifting information.
o2behealthy- so far as the voting is going it's leaning on number 6.I'll wrap it up tomorrow AM.
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I highly recommend the Look Good Feel Good class as well. There were six in my class and the instructor was great. All top of the line make-up from Bobbie Brown, Chanel, Mary Kay cleansers and moisturizers. It was very informative, I'm glad I went.
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Good job Joni 1. Glad to hear the scans look good. Hang in there.
I go for my pixie hair cut on sat and am donating my hair to wigs for kids. The very sweet salon doing my hair cut is donating make up to me since I have to dump my old stuff - they did my wedding parties hair and even the manager showed up to the church to see the nups. Its hard to find a true blue good salon like that anymore isn't it? ..i do need to find that look good class though. any suggestions? all I found was look good, feel better.
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PS73 - I went to www.lookgoodfeelbetter.org & got a # for the local class here.
Joni2
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Yep, that's the class, don't know why I keep calling it look good feel good. Blame it on the Chemo.
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I'm starting chemo on Thursday (7/16/09). 12 weekly treatments of Taxol followed by 4 treatments (3 weeks a part) of CEF. I already picked up a wig and ordered a halo wig from TLC to wear under a ball cap for comfort around the house.
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Welcome to tall the new people. Had chemo #2. the reason some doc do the DD A/C is that I have a positve node with clean margins on the tumors and not close to the chest wall. Had a mastcomy so no radition. So I am playng doc#2. The second chemo was much better than the first and faster. i am being very pro active on nausea this time and taking the meds at the first sign of stomach problems. Anybody that acid reflux asl the doctor about pepcid or prilisc before chemo so heartburn, I went on the prilosc and No heartburn tonight. Also claritin and alve before the shot and everday after for awhile. Still losing hair Strength and hugs Dianne
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backagain - I feel your pain. I was diagnosed with DCIS in 2006 (noninvasive, stage 0) lumpectomy followed by 36 rads. Hope treatment went well for you today.
I too have handed all of this over to a higher being - it's way too big for me to handle by myself.
I receive some good pre-information from my cancer center. They gave me a whole bag of stuff including information sheets on different things that could happen - constipation, diarrhea, low blood count, etc. On each sheet it tells you how you will feel if this is happening - what to eat - what to take and when to call them back. Also received a cookbook - "Eating well with Cancer". It's really good and has recipes and shopping lists for all the Side Effects. If anyone is interested, I'll post more info regarding the book.
One thing I've learned is to always take something to do - even for regular check-ups. My dr. office seems to pride themselves on keeping appointments timely, but occasionally something goes wrong. I'm planning to keep a small paperback in my purse all the time.
Joni - are you sure that what you see is swelling. I had my put in June 1 during my lumpectomy surgery and I have a bump where it's located.
Gillyone - I had a CT, bone scan and MUGA also. I have no lymph node involvement - but was told that it was possible that one microscopic cancer cell could have still slipped through the nodes.
I started my treatment July 2 - A/C every 3 wks. x 4 and then Taxol, weekly x 12, followed by radiation. I began listening to the june threat. This is the place to learn a lot from each other. Keep the faith!
Good luck to all having their first treatment this week!
Pam
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July Chemo Babes (soon to be known by new name!)
Michelle (O2B) Thank you so much for listing me as an honorary member--I truly am honored! I love reading all of your posts and it is wonderful to see how you are supporting each other. You have taken charge of your situations--shows how strong you are now; believe me, you will come out of this even stronger. My onc told me that women who participate on sites like BCO, do some research, ask questions, and just generally are more "involved" in their care, have "better outcomes." I didn't really understand until a couple of weeks ago, I sat in the chair next to a woman who just kept repeating, "My doctor said I'll get really sick and lose my hair" to anyone who would listen. Geeze. Yeah, we may get sick (but thank God for Emend and Aloxi) and we may lose our hair...but we're going to have great futures! So, go for it.
Off soap box now (but slightly strung out from steroids today...sorry) will soon go wash some windows or something to work this off.
Quarter405 I believe this is referred to as Chemo Farts! I have a friend doing chemo for colon cancer and she gets it really bad sometimes. It hit her in a meeting a while back, and when I realized why she was heading for the door, I tried to "cover" for her and distract the others until she could get away. Problem was I started laughing so hard--guess what...yep.
Jacee Thanks for sharing the info on the node dissection and lymphedema. I found some stuff on the lymphedema threads, but your info made it come together. I didn't realize about the pad rather than a string, either.
PauldingMom Good points about Ports. The stabilizing stuture on my first one broke, so the port flipped over...long story, but I ended up needing to have it removed and a new one put in three weeks ago. It's working fine, but if I had problems, I would definitely go for number 3. A port helps you make the best of a bad situation.
PS73 I hear ya on the constipation. My sister (no BC) has that problem naturally, so I asked her for advice. She said she eats dried apricots every night. I bought a 12 oz. box, sat at my desk and snacked on them all day--so healthy. That night I had the most God-awful cramps and diah. I ever remember having. Called sis; she asked how much I ate. She ended up laughing at me so hard I hung up (well, I had to go to the bathroom anyway). She told me later that she eats exactly 4--I have eaten 0 since.
Too long post--apologies. Off to find the Windex. Take care. Helen (Gramof3)
BUT WAIT...there's more. Some time when you're a bit down, check out www.chemoangels.net. It's a group of wonderful, dedicated women who support chemo patients by sending cards and small gifts. It's a free service, and I have been blessed by Angel Diane from PA and Angel Michelle from MD. It has been fun and uplifting, and I'm planning on becoming a Chemo Angel when I've finished my TX.
O.k. this is it. hb
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Okay Ladies. Voting is over!! We have a name!
July Jedi Jug-A-Nauts A.K.A. Triple J's
I will put this in the opening post so all newbies will also be aware.
Thanks for all the additional information, and I almost fell outta my chair about the Chemo. Farts. Here I sat suffering in silence,.....well not silently, but in silences as in verbally. We had the family all sitting around watching a movie the other night when "it" hit. I sat closes to the nearest exit but still had to get up and leave the room ASAP more than once. It finally got to the point where I just whispered to my DH "I'm gonna go read in bed" of course in full volume with just enough hint of frantic to make everyone look, he asked. "are you feeling okay?"
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