Any isolaters or hermits out there?

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I live alone and am not working right now. I have no true friends here. I was beginning to come out of hiding in April before diagnosis. Now I am having a lot of trouble making myself get out there. I feel the depression rearing it's head. I want to sleep a lot and I am not eating well. Maybe the low energy will gradually shift since my body might still be recovering from the constant stress I was under. There still is stress/anxiety, but it has calmed down quite a bit.

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Comments

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited July 2009

    I can relate so much!  I am trying hard to stay positive.  AFter working through a major depression this past winter I am finding myself isolating again.  I should take the dog for a walk, go to the store, call a friend, but I am isolating at home reading and sleeping.  I am off work for the summer.  Maybe we can tag team to motiviate ourselves?

    Ellie

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Hi Ellie,

    That's a great idea to tag team. Oh those Winter depressions are nasty. Somehow this year I got through without major depression--first time in years. I should take a walk, go to this picnic this weekend to meet people....Getting in the shower today is a good goal...Undecided

  • pabbie
    pabbie Member Posts: 370
    edited July 2009

    I can also relate. And I'm also not working. The television is my friend. My current TV addiction is watching all the news channels concerning the death of Michael Jackson.

    I am forcing myself to go for a walk if only for 30 minutes and to go to the gym and wear my lymphadema compression garments. But I do find myself preferring to stay home. I did recently accept a 4th of July BBQ only because my husband is getting stir-crazy being inside.

    In this year's time, I've been diagnosed with major depression and now a mood disorder. My doctor thinks I have more of a mood disorder-very irritable.

    Cleomoon and Dr. Decker-Are you taking any meds for depression? Let's hang in there together. Now I don't feel SO alone. Thanks for sharing & take care of yourselves.

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Hi Pabbie,

    The computer is my friend...I am addicted to this sight. One of my goals is to stay off the computer for a whole day. Good for you for forcing yourself to walk everyday. And the gym..wow! I picked up the schedule for the gym yesterday--baby steps. I want to do the water classes again. I am taking an antidepressant, antianxiety,sleep helper and mood stabilizer. 

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited July 2009

    Hi guys,

    Yes I am on lexapro and wellbutrin, and alot of prayer.  How about I promise you guys I will walk tommorow and check with you tommorow night. 

    Ellie

  • MBCR
    MBCR Member Posts: 161
    edited July 2009

    I've been feeling a bit blue. I just finished rads. I haven't gone back to work yet. I was thinking of waiting until September being that kids are off from school now. I'm also a little bored being home.We haven't made any plans for the summer because we didn't know how long my treatments would be & if my son would have to go to summer school.. It's hard to make plams last minute for a BIG family vacaton. I think I'm rambling now, I'm going to bed. Good Nite All!

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Hi MBCR,

    Sorry ur feeling blue.

    Ellie,

    Let us know if you walked.

    I am going to cut out some of my chain smoking starting tomorrow.

  • flfish
    flfish Member Posts: 423
    edited July 2009

    Hello ladies, I was happy to see this thread started.  I quit work last summer when I was going through my treatment and now that I would like to go back to work, I can't find work and my old job is no longer available (the company shut down....great).  So, I too am alone and isolated all day.  Let me tell you that walking helps a LOT.  I walk for 45-60 minutes every day.  My dogs love it, my legs love it and it seems to help with the Tamoxifen depression.  Lucky for us we have the computer to help us share these feelings.

    Bless you all.

    Ellie (yes, DrDecker--I go by Ellie too....there are not too many of us!!)

  • Isabella4
    Isabella4 Member Posts: 2,166
    edited September 2009

     I love my own company, I don't find it easy to socialise, and don't want to anyway !

     I am just safe in my own isolated house, well away from others. I work from home, so can stop

     and start as and when I want. My hobbies are solitary, I garden, sew, and mess about with my

     cars, all alone.

     Right from being a child I have sought solitude, never was a 'joiner', the only ones I let into my

     world are my children and grandchildren.....they all think I am 'odd' because I just don't get

     involved in anything but family, and never allow them to bring anyone with them when

     they come visit !

     I really wouldn't bother if I was the only person left after a nuke attack  !!!

     Isabella.  

  • leaf
    leaf Member Posts: 8,188
    edited July 2009

    I also tend to isolate myself a lot of the time.  But I do like to relate to people, which is probably why I repeatedly come to this site.  I am single, no kids, and my closest friend (closest being defined as I saw her once a month for lunch and a movie) passed away last year.   My immediate family doesn't know about my major health concerns.

      Now my closest friend is probably my family therapist.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009

    I have no friends, really. I go to work, come home, go to bed, you get it. I am fortunate enough to work in a large peopled environment, but my clients change every day so I don't have to become close to anyone. The people around me are my support team, so any interaction is strictly work-related.

    My DH and I go to bed around 8 pm if you can believe it! I read, fall asleep, read....etc till morning, then get up and go to work! I know it may be unhealthy, but because I work with people all day, I really don't have the interest or energy to deal with people after hours.

    With my two kids wedding showers this year, all invitees have been family (7) as I truly have no one I could invite! Does it bother me? No. I only have the energy to deal with me and my immediate family.  I see my brother and his girls about 2-3 times a year, my kids every couple of months and everyone else once a year if that (out of province or country).

    I am just trying to work to pay the mortgage and bills. I am very focussed and have to be. I get Tuesdays and Fridays off as I work every weekend, so socializing with normal people just doesn't happen.

  • pabbie
    pabbie Member Posts: 370
    edited July 2009

    Good morning ladies:

    I haven't worked full-time in a year and a half. I was on short-term disability for 1 year & now I have applied for long-term disability in which I can work very part-time. I was working for a college last semester for 13 hours per week in the dining area as a cashier.

    I had to swipe a credit-card like card through a credit card like machine. Some days we would have 500-600 students come through. In a nutshell, my lymphadema in my right arm got worse because I wasn't wearing my compression garments due to the hot climate of the kitchen area.

    I'm now off for the summer in which I've received manual lymph massage for 2 weeks by a physical therapist to bring the arm down. She says if I return to that job, I have to wear my compression garments and she gave me a note re: this. I feel I need a fan if I'm going to return for Fall semester.

    But, I've been looking for very part-time work with no luck. Perhaps a job that is a little easier on my arm and hot flashes.

    Why are others not working?

    Cleomoon-The medications I am taking are zoloft, clonazapam & eskalith for depression, anxiety, and a  sleep & mood disorder. And of course the Big "Tamoxifen". 

    Good luck with the walking everyone. Generally when it gets hot outside, I TRY to go to the gym. I ride the stationery bike and do some appropriate weight exercises that my physical therapists gave me. It hasn't helped that my hermit habits and bad eating habits have increased my weight. Have a good day.Cool

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009

    I can't see you ladies being hermits if you go to the gym! That is WAY too out there for me..... I applaud you.

  • flfish
    flfish Member Posts: 423
    edited July 2009

    Good for you guys going to the gym.  I tried that but I HATED it.  I do enjoy my walks with my dogs, no one bothers me there, so that is what I do.  I do find that excercise does help my moods. 

    It seems like a lot of us are out of work.  I would LOVE to go back to work, but I have had NO luck finding anything, even part time.  The recession has hit where I live hard, and I was in construction sales (and design) so with the housing market at a stand still, there is no work for me.

    Maybe we should all try to reach out a little more.  I think when I was diagnosed I just became afraid of everything and retreated to my home and immediate family because that is the only place I felt safe.....and that is where I stayed.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009

    I think it's admirable that we can be so honest on this thread and continue to use this forum for our connections.

  • EWB
    EWB Member Posts: 2,927
    edited July 2009

    Fifish- I think you said it well when you said -- I think when I was diagnosed I just became afraid of everything and retreated to my home and immediate family because that is the only place I felt safe..-- I had that feeling for the longest time, very much how I felt after the 9/11 bombings (we like very close to NYC and had friends who were directly effected). Bad stuff happens you go out, so its  safer to stay in.

    I feel some days like it is too much energy to socialize, that afterwards I have used up or had all my energy sucked out. Does that make sense to anyone else? I like being out and do things but often I am content to do things on my own.

    I tried working for a year or so after dx, but SEs made it tough so we decided it would be better to reitre and spend my time & energy on things to help manage the SEs. I am in this for the long haul, no end in site. Most people I know are all working so its hard to meet new people, or to know where or how to meet others.

    Hope everyone here is having a good day, nice to meet you all (expect Barbe- nice to see you)

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited July 2009

    Hi everyone,

    Haven't walked yet but will try to get motivated to do so, definitly can relate to being afraid and retreating, my girlfriends call me all  the time and I don't return their calls--that is also on my list of things to do.  Put up a great front for my kids ( 27,23,21,20) but still fighting the depression that scared us all so much last winter.  Also I am moving because I can't afford my house after being out sick last winter and not getting paid.  So lots of stuff, but I am trying hard to stay positive and will try harder to reach out to my friends who have always been there for me and are wonderful supports.

    Ellie (hi other Ellie, mine is short for Ellen)

  • hollyann
    hollyann Member Posts: 2,992
    edited July 2009

    I fight depression every day......And so does my dh...Only dh hides in his room all night and I sit in the living room..........I lost my job and it makes it harder still to come out of the funk.......I am trying to get my old job back but I don't know if I will  .......I stopped calling family and friends acouple weeks ago.......And now dd is in California til Monday night so gonna be lonely this weekend cause hubby is a hermit and can't deal with my cancer and my loss of a job ......All I can say to that for him is...wah!!!..Put on your big boy pants and DEAL!........If he had to deal with half he crap I have had to he would really be down.......He says he understands how I feel but how can he when he won't even get out of bed to give me any support?........Oh well,  maybe tomoorow will be better but I doubt it.......I have no  motivation to do ANYthing anymore.......

    Ellen........Good luck with the move...Hope you feel better soon.....

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Oh my goodness. I got tears in my eyes when I was reading all of your posts. Thank you for coming out of your shells to share. I get overstimulated really easily, and a feeling of being unsafe too.  I am a Petsitter and actually only have one client right now who I sit for a couple of times a year. I am on disability due to depression. My day lacks structure which has been a big problem for years and reinforces the hermit in me.

    Love you all

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2009

    I too am an isolator when I am depressed.  I had been having a very bad couple of years following my husband's loss of work and everthing that goes along with that.  I often wonder if it was the stress of losing everything that brought on the breast cancer.  I am staying in the house all of the time, not even wanting to face people.  I literally hate it and know I need to be getting out more, but I feel incapable now.

  • cmharris59
    cmharris59 Member Posts: 496
    edited July 2009

    My debilitating ses have put me on disability for the last two years. I was a geologist and can no longer do my job even if my doctors released me. I have 5 siblings and none are working a full  time job right now. I am the youngest at 50 and live alone with 5 cats in a small town far from any family. My parents are still alive, but my mom is blind and my dad has alzheimers. My parents live 4 hrs away.  I depended on friends for the first year of my tx. They have all burned out and my doctors are saying that my ses are permanent and that I may never work again. I watch TV and play on the computer. I am no longer able to do the activities that I once enjoyed.

    I am taking Paxil, Xanax, and Buspar for the anxiety that has developed since the dx.  I have had manic panic attacks regarding leaving the house that have lasted hours and days not minutes.  The quality of my life has diminished. I was always independent and gregarious, but now I am unable to keep up with anything. Chemo brain has prevented me from doing what once were simple things for me, like balancing the checkbook.

    Sometimes I think if it wasn't for the cats, I would just curl up and die.  I despise getting out with friends now most of the time because I cannot do anythiing without help. I cannnot walk without a cane and that doesn't last long. I cannot sit for long periods of time either. Both cause me great pain. Even lying in bed all day stiffens my whole body and I am so cramped that I can bearly make it to the kitchen for a drink.  

    I hope for the rest of you that you are once again able to get out and do the things that you love. I was an amateur belly dancer before dx and was told just yesterday that those days are definitely over.... permanently...

    I get very depressed over my body image now. I was one of the few women that was not unhappy with her body. I was very content with it before the dx.  Now I have no libido and have informed my on again off again SO that it is over for us. I no longer feel like having any kind of relationship with the opposite sex. I have no desire for anyone to see me naked now.

    Fighting the insurance companies and the disability folks has drained me completely.  I am not surprised at the number of women suffering from depression and desiring to be house bound.  For some it sounds like it has been a voluntary decision, for others it seems to be a consequence of tx or depression related to tx.

    I have been very interested in how many women have found themselves very depressed over having to adjust to their NEW NORMAL. I, for one, do not have any feeling of gratitude to my doctors for saving my life.  I feel betrayed and abandoned by those same doctors. They have lied and told me half truths.  They have hit me broadside many times with unwelcome and belated news regarding the ses. I do not feel that I could have made an educated decision regarding my tx because they did not fully disclose the possible outcomes.  I did my own research but was told that either my cancer was particularly aggressive or that it was nearly impossible for me to have serious permanent side effects from the tx because I had been a healthy and concientious person.

    HAH! My tx history has been a roller coaster ride that started with the post-it telling me I had cancer and ending with the pronouncement that the one activity that made me feel vibrant and alive is no longer a viable option for my NEW NORMAL.  Yeah.... I am depressed... Isolating... and lonely.... gee whiz.... I just realized how much I have ranted in here. Not my original intention, but I guess it is obvious that I have a lot of anger and pain festering...

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 1,585
    edited July 2009

    Dear cmharris,

    Go ahead and rant!  That's what these boards are for--I am sorry you are having such a rough time of it.  It must be so hard feeling betrayed by your doctors.  The side effects sound awful, and with the added pressure of your parents' health, I am sure that it feels overwhelming.  A geologist--that's great it must have been an interesting job.  Good luck and stay strong

  • cmharris59
    cmharris59 Member Posts: 496
    edited July 2009

    Thanks Dr Decker!!!  My job was very interesting . I worked for a mining company in a very responsible position. Even though you probably can't tell that from my typing.  My neuropathy makes my hands shake and it is painful sometimes to type.

    I used to be the successful professional in the family. Whenever anyone needed help financially, I was there. I was also the primary person that my parents depended upon for financial advice, insurance questions, tax dilemmas, and help with their disabilities. Now my whole family has been impacted by my disanbility and I feel guilty that I cannot help them anymore. 

    My "team" of cancer doctors never understood the art of communication with me or between themselves. In fact, none of them mentioned to my PS that I had the debilitating side effects and CHF.  So now, the next series of surgeries that was expected to begin this month has been delayed again. 

    I think sometimes that I have won the lottery for the worst tx ever until I look at these boards and realize that it is a small  percentage that come out of this feeling like the ones portrayed on TV.  Something needs to be done.  I always thought that I was independent, active, healthy and strong. Now, I feel weak, pathetic, and like Blanche DuBois - dependent on the kindness of strangers. I just wish my dependence was as fun as hers must have been.

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    I don't know why I do this to myself. I put out feelers to get information about events I wish I could attend, and then I don't show up. Tomorrow the picnic is literally 1 1/2 miles from me. An opportunity to meet at least 20 other women. Should be oh wow an opportunity for fun. Instead it is anxiety, negative body image, and feeling like I have to put on the fake suit if I were to go. We might have storms here tomorrow so I am hoping there is a major thunderstorm around 2-4pm. This way I won't feel like a complete loser because the picnic will be cancelled. Highly doubtful the storm will happen. Odds are my ex will be there who I have not seen for two years might be there. Two years u think I would not care if I see her there. We broke up because I disclosed I was on disability for depression. Now that adds more anxiety and shame on my part.

    This just plain sucks and is sad.

  • cmharris59
    cmharris59 Member Posts: 496
    edited July 2009

    Cleomoon,

    Do not beat yourself up over this feeling. Obviously you are not the only one that looks to socializing with dread.   I have friends and health care providers that insist that I would feel better if I got out once in awhile. Oddly, when I have gotten out... I haven't felt one bit better.   I think everything that you are feeling is natural. I know I truly believe that everything I feel is warranted. Anxiety, negative body image, and feeling like you have to wear a facade just to get through a picnic is not a trivial matter.  If it was do you think that the physicians would be prescribing us so many anti-anxiety and anti-depressant drugs?  heck, you are on disability for a reason and obviously, someone else thought so too or you wouldn't be getting those benefits.

    Take care of yourself and don't sweat the small stuff.  If you don't feel like going... my advice is don't go. It may be too much for you to handle right now. Start off smaller... Lunch with one or two friends, a solitary walk, sitting on the porch or in the backyard, that is my plan. 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009

    I used to feel this way before BC though, and I think a lot of us here might be the same way. The BC just gives us an excuse to stay hidden. Embarassed

    Cleo, I bet at least 10 of those 20 women at the picnic will feel the same way you do! It's amazing what we put ourselves through, but most of us do. Some people are social butterflies, but most aren't.

    There's an expression: Fake it till you make it.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2009

    Meant to add, if your GF broke up over your health issues, can you imagine what a horrid relationship that would have turned out to be over time? There's usually a good reason why things happen, we just have to really dig around sometimes to find it!

  • pabbie
    pabbie Member Posts: 370
    edited July 2009

    cmharris: I also have 3 beautiful cats. When I was first dx'd with colo-rectal cancer in 1999, my husband (being raised with cats) thought a cat would be good company for me during all my treatments and he was right. My first cat is a Maine Coon (20 lbs.) and I consider him my home health nurse. Then we got a second cat (half-persian) so our first cat would have company when I went back to work a year later. And 2 years ago we got a Manx, Shelkirk, Ragdoll mix. (my first girl) I had to go out and get her her own little kitty cat condo. Yes, I also feel my cats have saved my life at times. They love me no matter what.

    Cleomoon-Good luck with the picnic. My husband has to push me to go out. He's been through 2 cancers with me so he knows the drill. But I would prefer to stay home. And sorry about your break-up with your GF. I've heard many stories in the last 10 years where the husband leaves the wife or the wife leaves the husband because they can't handle the cancer dx and all that entails. And filing for disability is not an easy process or decision. Hang in there. 

    Have a good weekend and take care of yourselves.

  • cmharris59
    cmharris59 Member Posts: 496
    edited July 2009

    Pabbie,

    My first cat was my landlord's tabby cat. She became pregnant and it was obvious that she wasn't getting the proper care and attention that she deserved. She more or less let me know in uncertain terms that she wanted to live with me.  I took her in and she had the babies in bed lying next to me on Palm Sunday morning 1998.  She had 3 kittens - 2 boys and 1 girl. I kept them all.

    Then I had two strays arrive on my porch in 2003, a couple of years after I had moved into my own home.  One was another adult Tom - tabby like my other four and the other was a beautiful, perfectly marked, female, tuxedo kitten.  The little Tom has feline leukemia but he is faring very well all things considered. In the summer of 2007, halfway through my first chemo (AC) tx, I came home and found my little 4 yr old tuxedo dead. She had curled up in my closet on a shelf and appeared to have passed out in her sleep.  I nearly died myself that night.  I was hysterical and I am not sure that I have recovered from that yet. 

    I still have 5 cats that are adorable and devoted, but every day I feel the loss of Cinderella Spooky. I don't know what I will do when I lose the older kitties. They are getting older and are over 10 yrs old. Although cats can live to ripe old ages I am constantly worried that I will come home or awake and find another has passed away from me.  They have been such life savers to me. 

    I know that I can stay in my house all day and play with the kitties or just watch them sleep without a thought of leaving the confines of my home.  Sometimes I joke to them that I am becoming half cat. LOL  We had a catnip party the other night to celebrate that my PS was in his Dr Jekyll mood and not his Mr Hyde personna.  Yes, I have completely lost my mind and do not care. LOL

  • lynnea
    lynnea Member Posts: 226
    edited July 2009

    Hi Ladies,

      Cleo you sure can pick good topics! I'm pretty much a loner, but I like to be around people a little bit, if that makes any sense. My sister lives out in the woods with no one around-that would drive me nuts, I like to live in a neighborhood with a lot of casual aqaintences. But I still like to do solitary things. I used to think I was a "cat person" because for many years I had a siameese cat. Anyone who has lived with a siameese knows they are a lot like a dog personality wise. Then I got a yorkie puppy and I had to walk it. Having a puppy is a GREAT way to interact with people in a casual way. I used to laugh that everyone knew my dog's name but didn't know mine! My yorkie died in 2003 and now I have a little black poodle named Molly. She is a great companion, but I feel guilty that she's alone alot. Now that I take care of my mom I don't have a lot of free time to go for walks with her. And even though I'm a loner, I still miss that casual interaction you get when your walking your dog. Cleo you pet sit, but do you have any pets of your own? Get a puppy it's a great outlet in many ways. I love having my dog-she's so silly, sometimes she's the only thing that gets me laughing!!                                      Lynne

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