Anyone starting chemo in Aug. 08?
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Happy 4th of July Everyone!
I went to Neverland Ranch w/DM yesterday. I just had to be nosey. It was a great ride on the Santa Barbara coast. It was funny. The Google address led me to someone's ranch w/cows &cattle! The lady said I had been the 2nd person up to her house. She quickly steered us to the hoopla circus down the road. So many MJ fans from all over the world It really is beautiful there. I'm posting some pix on my Facebook.
Corrine: I am so sorry to hear about your daughter's loss. I hope she's doing okay. You're in my prayers. Re: the DIEP surgery. I was surprised I wasn't a candidate because many girls are too small. What is a concern is it's a 6hr. procedure and requires a week in the hospital but if it's for you, great. Deanna has a lot of info on it.
Bette: I'm so happy to hear some uplifting news for you. I can't wait until my reconstruction too. I've been praying real hard for you.
Misty: So you're going 1 size up huh? I do remember your size but thought it went well w/your size. Whatever floats your boat! My friends have suggested to go D but I want to remain a full C.
Wishing you all a great holiday weekend!
Jeannine
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Hi, and Happy 4th of July to everyone! DH and I were out of town for a few days, and I didn't have access to a computer, which was especially hard for me, knowing Bette was meeting with her doc on Wed. Bette ~ I'm sorry they didn't give you the all clear, but I am still praying and truly believing that those small spots they're seeing are something other than bc. I will continue to pray for a totally benign outcome to your biopsy. I can only imagine how rough this drawn out process must be at times for you.
Corinne ~ I'm so sorry about your daughter.
Jeannine ~ I'm surprised the PS you saw wouldn't do Diep flap recon for you. If you want a second opinion, you know how high I am on Dr. Festekjian @ UCLA. And I know another gal on here who is getting a referral to him who has the same insurance you do, so I think it's possible to see him if you're interested. And he does all kinds of recon, not just Diep, which is more involved and maybe wouldn't be the best choice for you.
Misty ~ I can't believe you're almost done with Herceptin! WooHoo! Then you can really relax and enjoy the summer!
Stacy ~ So good to hear from you! Sorry about the bothersome scar tissue, but hopefully when they fully confirm that's all it is, you won't worry about it as much. And have a great time in FL.
Hope everyone's 4th is safe & fun! Deanna
7/5 - Rather than post again, I'm editing to add ~ Lashon, Lisa ~ We haven't heard from either of you in awhile, and it looks like neither of you have posted recently either. Just thinking about you both tonight, and hope you'll let us know how you're doing. I am praying that your situations are stable or improved. Please let us know.
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This is the week when we hope to have the biopsy scheduled. I am not sitting around, waiting for the call, however, because this is Vacation Bible School week at church, and today I am telling a story to the children, the Creation story from the Bible. I pray that I do it justice. I used to tell stories as a children's librarian at the public library, so I volunteered to do this. Preparing for it has kept my mind off of myself.
Lashon,Lisa, I pray for you every day and hope to hear from you soon.
Bette
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What a great attitude Bette! I truly admire you!
Corrine, I'm so sorry about the loss of your grandchild. I will keep your family in our prayers.
Jeannine - It's so sad about MJ, but am happy you got to go by the Ranch. I wish I could go by there. Maybe one day.
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Bette, I admire your courage.....sharing your time with others, despite what you are going through yourself.
My prayers are with you and I will keep your name before our prayer circle.
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The storytelling went really well. The kids listened and participated. I can still do this!
NO PHONE CALLS concerning a date for the biopsy today. Hoping for tomorrow. The waiting to learn is the hardest. I need to know what I am facing, so I know how to fight!
We have decided to get my care for this episode of the cancer journey at Hopkins. The attitude toward my illness at home seems too casual, as it did at the beginning. "This is my life! Please take it seriously!" is what I want to shout.
Thanks to all those who are praying. I will keep in touch.
Bette
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Hello Hope everyone had a great holiday. We just got back today from some family time at a golf resort and we had a good time.
Corrine~ I hope that your daughter doesn't give up hope. Sorry that this happen
Jeannine~ That is so cooool to have went to Neverland Ranch. Glad that you are always busy and having an adventurest time.
Bette I'm praying that everything is good for you.
Misty~ Congrats on being almost done with Herceptin! wish i was
Deanna~ Glad your doing great! Keep being that positive inspiration for us all.
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Hi everyone! Back from the 4th at my in-laws house on the lake. We had a great time, but there were 9 kids aged 10 and under! A little crazy to say the least!
Misty- so glad you are almost done! A size larger? You go girl! I am actually considering recon down the road now...my "divot" it rather large and I didn't have much to start with. I was "nearly an A". Can't believe there was enough tissue to even get bc to start with!!
Corrine - so sorry to hear about your daughter. She is in my prayers!
Bette - still praying...keep us posted.
LaShon and Lisa - HUGS and PRAYERS coming you way too!
Well, I am off to pack for our beach trip!! Will check in again before we leave on Saturday.
Love to all!
Stacy
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Learned today that a needle biopsy is too risky due to the location of my lesion. They said my lung might collapse. So now the pulmonary specialists are looking at my scans to see if they can do a bronchoscopy. I looked it up and it does not sound pleasant.
The end result is more waiting. At least today I got three progress report phone calls from a fantastic CRNP at the Breast Center. It makes it easier when you know what is going on.
Bette
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Bette, we continue to lift you up in prayer.
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Today a scheduler from my local hospital called offering an appointment for a needle biopsy TOMORROW. Based on what we learned from Hopkins yesterday, we declined. The pulmonary specialists at Hopkins are still considering what the safest procedure would be.
I am doing OK with the waiting today. Working with the kids at Vacation Bible School helps. So does Tom, who has been extra considerate and affectionate during this time.
Thank you all for your prayers
Bette
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Bette ~ I am so glad you're linked in with JH! It's shocking to me that one doctor would offer a procedure that another one says is so dangerous he won't even do it. Boy, we sure need to be our own advocates throughout this, don't we?!?!
Continuing to pray for you, sweet bc-friend... Deanna
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Deanna, I was surprised that they offered to do the FNA here as well. It is scary that if I didn't have the input from JH, I probably would have said yes to the procedure. The thought of having a pneumothorax at the hospital here in PA scares me.
Bette
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Bette, what did you say an FNA is?
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An FNA is a fine needle aspiration, basically a needle biopsy. They believe at Hopkins that they can't get to my lesion with a needle, without risking collapsing my lung.
Today we got a phone call saying that the pulmonary medicine department has my records, but due to the doctors surgery schedule, we won't hear about an appointment until next Monday or Tuesday. I guess I'll relax tomorrow and this weekend knowing that I don't have to wait for the phone to ring.
I saw my radiation oncologist for a follow up exam today, and she said my skin looked really good. She then counseled me not to stress out so much about the PET scan as they often show false positives. I am glad I went.
Tomorrow is the last day of Vacation Bible School. It has been great to work with the children this week and has kept my mind off the biopsy issue for at least part of each day.
Bette
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Bette i'm so sorry that you are having such a hard time with all these appt and test taking 4-ever. I'm praying for you and that you are given peace and tranquility. POSITIVE THOUGHTS
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Hi ladies,
Hope everyone had a great holiday. We spent the weekend at our little cabin in Matagorda, and had such a great time. I really needed that, even though I'm still not allowed to swim. The water was unusually clear, blue and beautiful. Great being with my friends.
Bette, my prayers continue for you.
Joyce, how are you feeling? Good, I hope.
Jeaninne, I agree with Deanna, go for that second opinion. Sometimes PSs don't recommend procedures that they aren't familiar with, or experienced at, especially the DIEP. You will feel better if you know you looked at all of your options, trust me. I don't feel like I looked around enough, and now I'm questioning myself about that.
Misty, glad to hear your Her txs are almost done!
Corinne, I'm so sorry to hear about your daughter's loss. I pray she will be allright.
Hope everyone has a great weekend,
Deen
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Hi Everyone,
I had a visit w/my Onc. today. I'm very worried I may have IBC. I was kinda ticked because I've seen like 5 Dr's and they don't seem to really know what's going on. I've had this rash for sometime and DH noticed my rt. breast has swelled. This is so scary and frustrating. I missed my surgeon appt. only to find out he's the one to do the external biopsy. Now I have to wait another week. Dr. doesn't think it's IBC but I just read I'm at huge risk.
Please keep me in your prayers.
Deanna: I still have your referral card to your Dr. However, I just don't know if that surgery is for me? I don't like the idea of being under the knife so long. I really did like this PS. He showed me many pix of his patients w/ both types of surgeries. Your friend Sandy e-mails me about the NALA meetings. I still plan on attending one.
Deen: Happy to hear your weekend went well. I will meet w/another PS just to explore my options. I remember Deanna saying you need an experienced Dr (for DIEP) and of course mine said he's done lots of them but there are more serious SE's. I'm learning that we can't believe all the advice they tell us.
If all goes well w/the biopsy, I'm getting my DMX ASAP.
Lisa, Bette & LaShon: You have been in my constant prayers. Try to relax this weekend Bette.
Prayers & ((((( Hugs)))))
Jeannine
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Jeannine, I will pray that you don't have IBC. It is very rare. I do have it and have survived over one year and am going strong except for this little bump in the road.
I am planning to have DIEP in six months if all goes well with my biopsy. My PS does tons of them. He was very encouraging at my last visit.
Lisa an LaShon, I pray for you every day.
Bette
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Jeaninne, I'm praying hard for you. What a shock for you! I'm shocked! I hope they do your biopsy asap. I'm so sorry you're having to go through this, and I know you'll be fine. Waiting is probably the hardest thing right now. You'll get your DMX yet! Maybe they can do your oopher at the same time? My BS would not do it at the time of DMX, but they did it at the same time as my exchange, so it saved an extra surgery to go through.
Bette, still praying for you, be strong!
Deen
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Deen, thanks. I am staying strong. Weekends are more relaxing because we are not waiting for the phone to ring.
Tom had a longer than usual night at work last night and is sleeping. Soon I will make a pot of coffee and wake him up. The highlight of the afternoon will be getting an oil change on his car(and praying that an oil change is the only thing it needs).
We have another area of concern in our lives besides my health. The Commonwealth of PA has not passed the budget for this year, and if it has not been passed in the next two weeks, thousands of state employees, including Tom, will not get paid for time worked. Please pray that the Governor Rendell and the legislators can cooperate to pass the budget in time. I have been trying not to stress out about this, but it is on my mind, along with the biopsy.
A good Saturday afternoon to all!
Bette
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Hi all, I know I have not written in about a week. I have had alot going on. Had an echo on Monday and everything is okay. Had treatment on Thurs. I have been keeping up with everyone and continue to pray.
Jeannine: I too am praying for you and hope that you are okay. You must be having a hard time waiting.
Bette: I am wating with you. You are all such a BIG part of my life. When something happens to one it really happens to us all. I think it is all the prayer and time we have invested in one another!!
I don't know exactly why this happened but I had a melt down week. I mean a real MELT DOWN week!!! Yes, my daughter lost her baby. That was one thing. Then I was in church on Sunday and Pastor said, " When we get to heaven Corinne you will not have to worry about your cancer coming back or have any tests and worry about any spots showing up on your tests...." That started the tears rolling. Then something else pushed me over that day and I took off for a drive....Until 1 AM on Monday morning!!!!!!!!!! I just drove and cried. My husband talked with me on the phone for 4 hours. I hope this week will be better. Love to you all
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Corrinne, I am sorry that you had such a tough week. At times it is good to have a good cry to release tension. Sounds like you released a lot of tension. I'm glad your husband was there for you on the phone.
I have had many minor meltdowns and cried in Tom's arms over the past few weeks. This weekend I am calmer. Monday we will be waiting for a phone call again, and that will start the silliness. I plan to worship the Lord with gladness in my heart tomorrow, no matter what looms on the horizon.
Bette
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Corinne, sounds like you had a lot of feelings stuffed down that needed to be let out. We tend to put a happy face on everything even when we don't feel right, and it gets to be a habit. I know this is true for me, I've even started noticing when I do it. I bet your DH was very scared, and I'm glad he was there for you, even on the phone. I'm so sorry you're feeling down, and I'm praying for you to feel better. This is one crazy rollercoaster ride, isn't it?
Have a better day,
Deen
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Corinne, I hope this Sunday stated you off to a great week of trusting the Lord, and leaning on his promises. You are an inspiration to me with your faith AND your ability to exercise so faithfully.
Right now Tom and I are spending a mellow Sunday afternoon. He is cooking dinner, we have music on and candles lit. That guy knows how to help me relax.
Next week he is taking me away for the weekend. We have theatre and B&B reservations. So exciting! It eclipses the stress of what may happen this week.
Bette
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Still waiting. No phone calls this morning. It is quiet in the house, and Tom is sleeping. Have been using the time to get caught up on computer stuff.
Bette
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(((Corinne))) It sounds like you had a lot of suppressed stuff to still deal with, and that your daughter's miscarriage was one thing too many for you. I'm so glad you made it home safely. How are you feeling now???
(((Jeannine))) OMG! I can't believe you have to worry about the possibility of IBC now!!! How soon will you find something out? I'm praying hard that this is just a bad scare that will be over and done ASAP.
(((Bette))) Thinking of you, too, and hoping you will also be getting some answers this week, and that those spots turn out to be nothing serious.
{{{GROUP HUG}}} to you all! Deanna
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Received a call from a very nice oncologist at Hopkins. He emphasized that I need a biopsy to see if this is BC mets or primary lung cancer. The treatment is completely different. Then he told me that the pulmonary specialist at Hopkins has been on vacation and may be backed up. He said to try and find a pulmonologist on this end as well to see if we could speed things up a bit. So I have a call in to my onc, to see if she could hook me up with a biopsy. That is all for now. Still waiting for the phone to ring.
Bette
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Thank you for the {{{GROUP HUG}}} Deanna. Lets circle and surround our sisters, Bette, Corinne and Jeannine, with our love and prayers as we support one another with faith and courage. {{{HUGS}}}
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Biopsy at Hopkins now scheduled for Wednesday, July 22! They had been trying to call the WRONG NUMBER to set up the appointment. So glad I called them. Have to see the pulmonary specialist the day before. We have a hotel room reserved in Baltimore, and are going there straight from our romantic weekend getaway in Lancaster County, PA.
I am so happy that this is settled. Now pray for a safe procedure and a benign result. The other possibilities (BC mets or lung cancer) are too scary.
Bette
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