Bioidentical Hormones on L.A. TV Tonight
Comments
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Hello
Just wanted to let you know that Fox 11 News in Los Angeles is airing a story about bioidentical hormones tonight July 7 in the 10pm newscast.
One of the patients profiled is a breast cancer survivor.
After 11pm PST the story will be posted online at myfoxla.com.
We would welcome your feedback.
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Good, piece!.
The doctor opposing bioidenticals got several facts wrong. And she misstated that bioidenticals are unregulated.
I'm not stating, "I think" she had her facts wrong, I'm saying she made factual errors I can verify. The anti-bioidentical people repeat the same errors over and over because they listen to their own gossip rather than look stuff up. You would think they might check the facts before going on television.
These docs don't even have to be especially research-savvy. They can ask any pharmacist about the approved bioidenticals, Prometrium, Estraderm, Estrace, etc.
There is much more to say, but I'll leave it there. NewsProducer, we appreciate your posting here and keep up the good work!
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it was a good piece, Anom you are right as usual, the opposing doctor definately got many facts wrong, its a shame really, I hope the women watching do their own research! I start my topical progesterone today!!
NewsProducer, thanks!
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Thanks Fairy and Anomdenet. I could have spent an hour exploring BHRT myths vs. fact, but in TV news we have a very short time to tell our stories.
Feedback to the station often results in future stories.. something to keep in mind if you want more exploration of a particular topic.
I have heard a lot from patients who are happy with BHRT, I have heard almost nothing from patients who've regretted it. Still, I myself am not convinced yet that it's safe for all women. The fear I have is that it could fuel the spread of undected cancer if it's already there. But boy... if you're feeling awful and this treatment could give you your life back there's a good case to be made for giving it a try. I don't believe it should be used frivilously however. For the record... I am not a doctor.
In case you missed it.. Here's.a link to the story online: http://www.myfoxla.com/dpp/news/local/Are_Natural_Hormone_Therapies_Harmful_20090707
All the best,
NewsProducer
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Hi NewsProducer!
There are of course certain hormones you shouldn't put into your body if you are an ER+ BC survivor. There are so many hormones, the "bad" one estridiol is what causes havoc in our system, but progesterone and estriol are protective (see attached link for more info on progesterone), its key to have balanced hormones, not eliminate all of one's estrogen, that is just setting yourself up for a host of other problems i.e. heart disease, bone loss etc. I don't know if you have time, but take a look at the 2:16 ratio, the good stuff 2 hydroxyestrone is protective the bad stuff is 16 hydroxyestrone so the goal is to keep the balance between the two so you are not dominant with the 16 hydroxyestrone - again this is the one that causes problems. I have been "estrogen dominant" my whole life (unknowingly), which was evident by me having entometriosis, fibrocystic breasts, very bad PMS, ovarian cysts. I have been trying to balance my hormones naturally, this morning I had an ultra sound on an existing ovarian cyst and guess what it has shrunk by 1/2, it just convinced me even more that balance is good, not eliminating, so if a women has her hormones tested properly by someone who knows what they are doing, they are able to tell exactly what is going on and treat accordingly, one size does not fit all which seems to be the trend in traditional breast cancer treatment.
http://www.yourlifesource.com/progesterone-breast-cancer.htm
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I always learn so much more from patients than I ever can from doctors.
Thanks for informing me Fairy.
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I know how you feel!! We learn more on these boards and from each than we can learn from our docs, sad but true, knowledge about this disease is power, we research our butts off, hopefully we can help others somehow......Keep doing what you are doing, it WILL make a difference!
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I too want to voice my appreciation of news stories like this. Please continue with them. I get so tired of the worn out phrases of "unsubstantiated claims" or "we are concerned about the long term effects" or "these products are not FDA approved or regulated." A lot of helpful products are not "FDA evaluated" simply because the FDA chooses not to make the evaluations! Translation: there are no deep pockets that provide the necessary fuel for an evaluation.
As a result, we are gripped in the stranglehold of powerful pharmaceuticals, alluded to in the last sentence of the story. Breast cancer patients are expected to take 'hormone therapy' pharmaceuticals to prevent recurrences, yet there is little attention devoted to monitoring estrogen levels. My oncologist refuses to test my estrogen levels, and even when I have my ob-gyn send him the information, he says he "doesn't find the information useful."
And this is in the context of estrogen, the hormone that gets the whole spotlight. Progesterone fell into a black hole and gets a lot of head scratching and shoulder shrugging. Estrogen gets all the attention with its responsibility for cells cycling into existence. Progesterone, which is in charge of cells cycling out, is mysteriously in the dark.
I hope you continue investigating this topic. Thank you for posting the link to your story here.
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Well IF the doc (I didn't watch the piece) had errors within the facts - isn't it good journalism to call those corrections out? Wouldn't that be the job of a producer? Also if no one is "fact checking" how can anything in the piece be considered "fact".. and then shouldn't that be stated as well?? Just saying that journalism needs to be a "clean" process and if errors are stated they should be corrected..
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Ivorymom Writes: "What I find really odd is how estradiol is now prescribed for some stage IV women. How does that work??? (that was a rhetorical question...
) "
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Hahahah! That is really funny! If all we get from doctors are rhetorical answers then it really does make all our questions to them rhetorical. I never thought about it that way before.
Eek!
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A study came out showing that for 30% of the women who were given estradiol orally (6mg's per day) after an aromitase inhibitor failed them -- the estradiol "confused" the tumors and had shrinkage for a period of time. Then, when the cancer readjusted to the influx of estradiol and started to grow again, you go back on one of the AI's that originally worked and then failed and the estradiol "rebooted" the efficacy of the AI. 30% is a higher result rate than chemo or tamoxifen for stage IV's, which I am. I have been on estradiol for over 2 months and will be scanned after three months. However, my gyno feels that if the estradiol is working and I continue to take it for another 3 months, that I should take progesterone to counter the possibility of uterine cancer that can come from what he calls "unopposed estrogen". This tx is for Stage IV only but wanted to address IvoryMom's question.
Robin
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RobinWendy,
Apparently the positive outcome of taking HRT after breast cancer diagnosis has been fairly well-studied. Even for those at earlier stage breast cancer. There are about 20 studies there.
Why weren't we told this?
Oh, wait, that's another rhetorical question.
See www.breastcancerchoices.org/hrt
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Newsproducer-While I did not see the show, I am not from your area, I wish that that news reports would just stop doing these kinds hit pieces on health. They always just give a little of the story, and just as in this case, they may feature people who misrepresent the facts. People go away with the "I heard this is bad for me" mentality and the truth never comes out. If you don't have time to explore the facts, then why do you just do a partial story? Maybe you need to do a series so that you can give more information.
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Hi Girls! I lurk OFTEN - and my dear friend vivre has educated me on the phone and in person - for hours on end - about bio-idents...thanks vivre!
I watched the news clip... just wanted to add my opinion here:
Asking a traditional Dr. if they think bio-idents are harmful is like asking a hair stylist if you should get your hair cut...
Most traditional Drs know NOTHING about balancing hormones.
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I listened to the story again and most of it focuses on women who are using bioidentical hormones and feeling great as a result. Yes, the story does include mouthpieces trained by the big pharma to be naysayers cautioning women against the unknown risk of taking bioidentical hormones. I expressed support of more stories on this based on the assumption that future stories would shed light on the errors stated, such as bioidenticals being 'completely unregulated.' Yes, since it's untrue, it shouldn't have been in the story at all. But since it was in the story, what are the plans to correct this misinformation?
And what about some answers to questions like these:
If women are taking bioidentical hormones and feeling great, how does this translate into the FDA viewing them as "unsubstantiated claims"?
If mainstream doctors know so little about hormones, why is it such a widespread practice for oncologists to prescribe hormone therapy to their breast cancer patients without so much as a glance at existing hormone levels, let alone monitoring during treatment?
The next time a doctor advises caution against bioidentical hormones based on 'unknown risks,' perhaps you could ask if that same doctor warns patients of the death rate resulting from properly prescribed AND administered pharmaceuticals (which is 100,000 per year by the way, 2.5 times the death rate of breast cancer). If they're SO concerned about patient safety, how does that translate into persistent ignornance surrounding bioidenticals while they recommend hormone therapy to breast cancer patients without a second thought. Arimidex alone can cause serious joint pain and bone loss, and serious impact to the quality of life. How is that ok and bioidenticals aren't?
These are the kinds of questions I like to see answered. Otherwise, I agree with some comments of others -- if you're going to participate in the continuing practice of spreading lies about bioidentical hormones, just leave it alone in the first place. Personally, I'd like to see layers of lies peeled away. If that is the goal of further stories, I support that.
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Amen Althea!!!!
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I read all of your posts thank you all.
IThe detailed information you are asking for is a tall order in a news story that runs less than 3.5 minutes. With a mass media story you have to keep in mind that most of our audience doesnt know even the most basic info about bioidentical hormones, Before we can get into details, they're interested in rudimetary stuff like what it looks like, how much it costs, what it feels like. Along with that we try to squeeze in information valuable to more knowledgable viewers like you.
As for why ask an establishment doc -- We do it be because their views reflect those of the doctors most of our viewers go to and trust. And I also need to include them to get my story past an editor who wants to hear what critics are saying. In the future I would ask more probing questions.
Maybe one day I'll do a story called "Standard of Care" about the practice of defensive medicine. From the comments I read hear y'all might find value in a story like that.
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NP, I think our frustration is obvious, its because its not just about bioidentical hormones its everything, the "standard of care" for BC is just that, one size fits all, and it doesn't. The poor women out there, who will be diagnosed don't know whats in store for them, the lack of choices, the onc's who just won't step outside the box. Some of the women on this board know more about this disease than the doctors do, I trust them more than any one out there. I personally am exhausted from researching, my brain hurts, my heart hurts, for all of us here now, and those to follow ,it sucks beyond words, I friggin hate breast cancer and I hate that we are nowhere near a cure and we never will be if there aren't more doctors open to alternative options.
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You're right, it would be a tall order to address all those things in 3 minutes. Taking just one thing at a time would be a place to start, such as examining these 'statements' that compounding pharmacies which produce bioidentical hormones are unregulated.
I'd wager a guess that your very own program is also fueled by dollars from big pharma. Drilling all the way down to the truth is not likely to happen on your show. So, perhaps you could just refrain from further spreading of untruths as you encounter them. That in itself would be an improvement. On the other hand, if you really want to report accurate information, there's a world of information deserving of media attention.
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