Anyone starting chemo in June 08

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  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    I had to really think to figure out DAT.     ha ha  :)     Kelly

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    OK, LeggyJ and Kelly I can't figure out DAT. I always think there should be a cuss word. Shows where my mind is!!!! HAHAHA

    I see my onc tomorrow and have treatment. I hope everything is good so I can start spreading txt out. I have been having really really weird dreams. Dreaming about people I haven't seen for awhile, my daughters when they were young, and places that I don't have any idea where. Any one else having weird dreams?

    Hubbby and I are still stimulating the economy, we traded in our old camper for a new one. Spent the weekend with my Mom in Hill City, SD. We are leaving July 10th for Flathead Lake in MT. We will tour Glacier Nat. Park while there. If anyone has been in the area let me know if there is anything we should see or do.

    Everyone have a great week.

    Wyoming

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hi Wyoming,

    DAT, is Dead a$% tired!  It took me awhile to figure that out as well.  You are so lucky, to go to MT.  My aunt has a house on Flathead Lake, and my Mom worked at Glacier Park, during the summers, as a teen.  My Mom is now 79.  As soon as she gets home, I'll pick her brain.  A few years ago, she drove with lady she grew up with, to a family reunion in MT....I sure wish I can go!!!

    Have Fun! 

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wyoming, Do you have a camp trailer or camper?  I have been getting the camping urges.  Last weekend we drove to the mountains and I swear if we didn't have other plans that campground we pulled into could have been ours for a night.  I would have had to have help getting in the back of DH's tundra to sleep and if I would have had my meds with me and some other necessisities, I would have thought about it.  A lot of people were out and about on the fourth of July which doesn't really thrill me either.  I had appt with plastic surgeon today.  He was very happy with my progress.  My appt with onc got canceled for tomorrow.  I go next week for that.  Hope your trts go well Wyoming and you have a blast at Glacier.  I know I was there, but I was very young.  Should be gorgeous scenery!!!!   I am jealous.  I am going to have to save my vacation time I have coming for October for third surgery.  Wow...what a vacation huh?  Anyway...I am sincerely jealous.  HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Wyoming, my Mom said to see St. Mary's Lake, Lake Louise, and Lake McDonald.  The best fish and chips, at St.Mary's lake Hotel/cabins.  Hiking at The Garden Wall, above the highway, if your up to that.  I'm jealous, too.  I have a teardrop trailer, and haven't had it out since January, when we had a warm spell.  Now I have to work, while it's busy, but plan on camping, in the fall.

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Thank you for telling what DAT. I Love it. I seen the onc yesterday and I need to go down 4 more point then I will be in Chemical Remission. Last time when numbers didn't move was just a blip. So far everything is going well. I got home from txt yesterday and was DAT.

    HunkyD, we have a camper. It is a 26' Danali. We tried it out on the 4th parked at my Mom's. I loved it.

    LeggJ thanks for the info. It helps to have an idea where to go. Also, hubby and I like to explore. The hike sounds like fun.

    Have good week.

    Wyomimg 

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wyoming...just thought I would wish you good luck before you leave.  Hope this last trt knocks your counts down.  Hope you have a great time and take some pics if you can.  We were looking at trailers this summer too but thought we had better wait and see what new boobs cost us. Told you I wanted a new couch and chair too.  That would be a lot cheaper.  Guess I've spent so much time on our couch this last year it is worn out!   Leggy, do you like your teardrop trailer?  Maybe my surgeons can get a new trailer. I am still DAT too and still not working but getting there.  I don't know what we are doing for the weekend, guess it depends on how I feel.  Bonnie, Kelly, KKing hope you guys are all ok.  HunkyD

  • Bonnie02
    Bonnie02 Member Posts: 193
    edited July 2009

    HunkyD, Wyoming, LeggyJ, sounds like you guys all are having a little excitement in your life's. I wish we could have a camper or what I would really like if I won the lottery of course is a motor home and then you could travel a bit more.  We are going out to Alberta for my sons wedding on the 25th of July. We thought we would leave a day or so after my treatment and go down through the states and shop around and just look around, we used to do that a lot, until my husband had a stroke and he was forced to quit work. That was about 10 years ago and he is fine now but he will never be able to work again with a gimpy leg and brain lol (not that bad) just can't remember things and his mouth never stops, how I hate that especially when you are trying to watch a movie. 

    Anyway I hope everyone is doing good, everyone keep your chin up although I know it must be hard for you HunkyD

    Well better go now

    Bonnie

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hi Everyone,

    It sure was nice to have a three day weekend, and now it's almost friday, already!!!  HunkyD, I love my teardrop trailer, it has just enough room, for me and Wolfie.  The only problem, is they don't have a toilet, and the older I get....Anyway, I take it to the beach, quite a bit, and stay near the bathrooms.  Hope ya'll are doing OK.

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Had trt on Monday and counts are down. Just 4 more points then I get to stretch them out. We will be leaving early tomorrow morning.

    HunkyD you just keep wearing out your couch. Like I said earlier, when you go to buy a new couch lay down and test it out. Get the most comfortable one you can find. Lay on you couch for me too. The last couple of days I have been DAT. I love using (DAT).

    Bonnie, Kelly, LeggyJ, KKing, HunkyD keep posting and I will read them when I get back. I will be thinking of you while I'm gone.

    Stay healthy.

    Wyoming

  • KKing
    KKing Member Posts: 425
    edited July 2009

    Wyoming...hope you have a nice time and will pray that you do go down 4 more points.

    HunkyD...glad to read you are feeling better

    LeggyL and Bonnie...sounds like things are good for you both... Bonnie...how does it feel to know your son is getting married.....I figured when my son gets to that in his life that I would be a blubbering idiot....he may not invite me....lol

    Well back to work...only three days but I am DAT... I like that too.   We had a family party this weekend....we have four birthdays in July so we get together and celebrate...we call it the summer Festivus...we have a good time but I am DAT again today.   

    Glad to hear you are all well and will check in later in the week....we are off camping next Monday the 20th but we sleep in a tent on the air bed with the two dogs....should be fun.

    Enjoy the nice days ahead.

    Karen

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Karen, hope you had fun at your summer Festivus.  Sounds fun.  I just emailed my boss and told him I was thinking of coming back half days starting this Wed.  I will just have to see how it goes.  P.S. hasn't released me but I figure if I don't do any lifting I can make it half days.  I have appt. and bloodwork with onc. tomorrow....yuk.  Camping sounds fun.  My DH had to work Sat so we didn't go anywhere.  Maybe next weekend we can take off somewhere.  My bills have been rolling in from the surgeries so that kind of has settled my itch down on the furniture shopping.  Bonnie, have fun on your trip to Alberta and sons wedding.  It is time for me to get moving this morning!  Later all!  HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Boy, it's hot today, here in CA!!!  It's 6pm, 92degrees, and still to hot for the dog...Poor Wolfie.  HunkyD, don't go back to work, too soon, like I did, but then again I was suck home with my 78yr old Mother, who had a knee operation, when I did chemo. That got me out of the house.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Hey girls.  Went to work half day today and made it.  Thanks for the warning Leggy.  I just went through and changed computer (govt) passwords,deleted about 300 emails, and visited, but it was work anyway. I am not going to do any physical stuff yet and still only half days.  Will Wolfie get in a ditch or water?  We have a Lab/shorthair cross that loves the water.  That's what she does on hot days.  Had oncologist appt yest.  Bloodwork was ok but did get called back today cause they forgot to put part of my blood in the dark for B12 check.  So another couple pokes today.  My onclologist I think had fun checking out my new foobs.  I mean in a medical sense.  I think he likes seeing how they turn out is what I meant.  Hope all you gals going places or are gone have a great time.  I am home now enjoying a cool one and should have gone out on walk but it is 92 here and when I got home from work I wanted to make sure the refridgerator light still worked I guess...LOL!   Take care all....HunkyD

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    That's funny HunkyD, about the foob check, with Onc..  I had a lumpectomy, but saw my surgeon, and Onc. in June, and they both, said "OK open up let me see um".  So I whipped open my gown, and they said "Wow it looks great".  Course, I don't believe them, but then I wish now, that I got foobs.  I'm not all that happy, with my boobs, anymore...Oh well I made the decision.

  • KKing
    KKing Member Posts: 425
    edited July 2009

    Wow you are dealing with 92 degrees.... we are still below the average temp...we are getting about 75 degrees...will be freezing my butt off next week camping....I'll drink a lot of wine and toast all of you.

    I can't believe you are all ready attempting working HunkyD... you are one tough cookie.  Make sure you don't over do it.

    LeggyJ...I had the lumpectomy as well... are you finding they match even less now and do you find you have swelling around the incisions still??  

    Hope all the Junies are doing well.

    Karen

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hey KKing, Oh yeah, I'm still swollen, have pain, and yes they don't match.  My nipple is larger, and I have a huge dent, when I raise my arm....Plus my rads. tan shows all my imperfections...stretch marks.  Geese, thank goodness, my scar, is 3 o'clock, and underneath my boob.  We have very similar Dx, did you have a sentinel node biopsy, at first, and then axillary node removal?  My positive node had just a speck (1mm), and I didn't want anymore nodes removed, since I work as a gardener, and kayak( though I can't lift it yet).  My onc. said it he didn't need anymore nodes, to make his decision, on my treatment...chemo.(TACx8) and rads. 5wks., followed by Tamoxifen, for who knows how long.  Did you have clear margins, with the one lumpectomy?  My surgeon, had to go back in and take out more, 5.6x2.9cm.  When my surgeon, came to my beside, and told me he had to take out a big chunk, I said " Well, did you take out some on the other side, to even them out"?  He said he'd leave that to the experts...Don't get me wrong, I loved my surgeon, and I know it could be worse, but I used to like my breasts...Oh well, I'm 53 yrs. old, and don't have a line around the block, of guys, wanting to see them, anyway.

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Hi everyone. I'm back from camping and had a geat time. My hubby, youngest daughter, son-in-law and I are going to Cheyenne Frontier Days this Sat. to see George Strait. I then will be home for a while.

    Karen and LeggyJ I also had a lumpectomy on my right breast. If I lose weight my right breast is a little bit smaller. My bra's fit pretty much the same. I had two surgeries so my scare is about 3" long. I also have a scar under my arm.

    HunkyD be careful working. I'm glad you feel good enough to go back but don't overdue. Whenever I get bills I get a OMGOD feeling. I can relate, hopefully you can get new furniture later. I see my radiologist Wed. I'm sure I will have to flash him. I have flashed so many people I'm not sure who hasn't seem them!!!!!!!

    Bonnie send us a picture of the wedding when you get back.

    Have a good Friday.

    Wyoming 

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Welcome back Wyoming, how was Montana?  Tell us more! 

    My Onc. called me tonight.  He's never called me before.  My test results are in, and looks like I'll be on Tamoxifen, for the next few years.  It seems, I'll an intermediate metabolizer, not the best news, but not bad, he said.  He also said it was the only thing to help stop a recurrence, for the next one to three years, then I'll be over the first hump.  I think I feel better, it was nice to get a call, anyway.

  • hunkydory
    hunkydory Member Posts: 1,241
    edited July 2009

    Yes, welcome home for a second Wyoming.  Have fun at the concert.  Leggy, I have been on Tamoxifen since end of radiation but my onc doesent use the metabolizer test.  I don't know why.  Every time I go to onc I am so shook up about other things I forget to ask about it.  HunkyD

  • KKing
    KKing Member Posts: 425
    edited July 2009

    Welcome back Wyoming...glad you had a good time.

    LeggyJ...yes I had clear margins but the sentinal came back with 6mm so they took another 14 nodes which they claim were clear.  As it is still all healing it seems larger than the other one but indented where the lump came out and I have the scar from the lymph surgery.  I did get a biopsy of a lump there this past June but it was fluid filled.  They said that this may just be a something I have to put up with.  

     I am on Tamoxifen as well... you wouldn't believe what my onc said when I asked him how he would know if it is working....You ready for this...I assume he thought he was being funny.... He said...if you don't die within 5 years.....UGH.   I didn't know what to say.    He said they don't test to see if a person is metabolizing it.   Keep my fingers crossed.

    HunkyD...like Wyoming said....don't overdo it.   It is hard looking at the bills but hey  our health has to come first.

    Well ladies... Will be gone for the next couple of weeks....so everyone stay healthy and enjoy the nice days.   Will have a wee toast for you all when I am away.

    Karen

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    I know what you mean, hunkyD.  I made up a list of questions, for my Onc. and left it in the car, only remembering it when I was in the doctors exam room, undressed. 

  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    I think I am starting to have bad news.  Its a bummer too since I felt like mostly I had an easy time of it this last year.  I felt two small lumps under my scar the other day and by the time I went in two days later there were two more. My onc says I need to have a biopsy but although he doesn't like to be pessimistic it appears to be a reoccurance. 

    So far only my husband and I have talked about it and it is strange to be so scared again.  I keep crying when I think of my kids especially since the teenagers are always mad about something and I am afraid all they will remember about me is all the nagging I did.  My onc says I can have more chemo and surgery and I will but right now I am "take to my bed sick to my stomach" just thinking about this.

    I am so glad I can talk to you all.  I don't want to get my family all upset again unless I have to.  Thanks for letting me vent.   Kelly

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Oh Kelly, I'm sorry you have to go through this again.  Sounds like you have a good support group at home, as well as here.  In May, I had to have a biopsy, by my beloved surgeon, and he was pretty sure of his work, though, and didn't think it was anything, but scar or fatty tissue, and he was right.  My prayers are with you, "Fear not, only believe".

    Leggy 

  • hunkydory
    hunkydory Member Posts: 1,241
    edited July 2009

    Kelly, we will be here for ya.  You are very strong.  Your family knows how strong you are too.  You will get through this.  It is not easy and it certainly is not fair.  Like I said before, we all live the fear everyday.  I will pray for scar tissue that you just did not feel before.  I was never one to feel around my scar much. Vent away here girl!  My thoughts and prayers are with you.  HunkyD 

  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    Thanks,  I feel much better today. I just needed to go through the worst case scenario for a few hours to put things in perspective.  I am crying much less now   :)  Kelly

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    I do that too, think of the worst then hope I can handle it.  Usually, Thank God, it's never as bad, as I imagine.

  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Kelly, Sorry to hear the news. I understand your fears, especially about your family. You will get through this as you did last summer. We are here for you. We can laugh, vent, cuss, and cry with you whenever you need!!!!!!

    Karen did you want to hit your onc when he said that to you.

    HunkyD and LeggyJ I rehearse what I want to tell my onc and still forget because something else comes up. Plus I get pretty nervous. My heart rate goes up every time.

    On a positive note George Strait puts on a great concert. He just sings song after song.

    Everyone keep thinking good thoughts.

    Wyoming

  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    KKing, I think we have the same doctor, or they have the same sense of humor.. 

  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    I just posted and it went away.  I wish this f'ng disease would too.  I hope you are all well.  Karen...I don't even have a comment on the onc comment.  My onc. has excellent bedside manner as he lost two family members to the disease.  That's what encouraged him to go into the field he said.  

    I have been having kind of a rough time physically as I increased my hours this week to 6 hours a day.  I think I might have gone back too soon.  Doc doesn't know that I did go back.  Maybe he will guess as I called yesterday to get a refill on pain meds.  I go to see him on Thursday for another expander fill and I bet that will feel not so good again either.  I am not planning on working this Thursday or Friday.  Still keeping good thoughts for ya Kelly.  Wyoming...sounds like you had a pretty good vacation.  I think tamoxifen has made me into a very old woman.  I'm sure the chemo and radiation played a part too.  I am going to drink a beer and try to forget f'ng cancer for tonight.  Wish me luck!  HunkyD

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