scared

prv · July 2009

I had bil masectomies 6/17 for invasive lobular ca with two positive nodes. underwent bone scan which was negative. ct showed multiple hemangiomas in liver (benign) and a 2.5 cm lesion they can't characterize - mri pending Wednesday. I also saw a gyn oncologist for 3 cm lesion on ovary which he doesn't think is mets. (what is it?). He removed an endocervical polyp too. He doesn't seem worried. (It's not his body!) I will see him again next Wednesday when he has reviewed studies with his radiologists and has pathology from polyp back. I had a benign endocervical polyIp before. I am very scaried and don't who to talk to. I have a sinking feeling about this and feel I have a very bad prognosis. What I thought was my diverticulosis kicking up may have been this ovarian thing. It hurts alittle now. I am tried and alone. I am taking adivan which is helping alittle but not much. I would think that if he thought it was mets he would be up front with me, right? this cancer thing is the hardest thing i've ever done.

idaho · July 2009

Oh prv- I am sorry you have to go through this- yes, cancer is the hardest thing probably any of us have done....I don't know what to say to you except I hope your test comes back as just being a cyst, and that you can find peace and happiness.... Tami

konakat · July 2009

If your doctor was pretty sure it was mets I would expect him to express some concern. If he's not sure or pretty confident that it isn't mets I don't think he'd worry you. I try to think what I would do if I was the onc. I would tell my patient my concerns but not say it was mets if I wasn't sure. You've had a benign polyp before and it's probably the same thing again. I hope it all turns out benign and that you will have a big sigh of relief.

I hope Wed comes quickly for you and you have good news.

xox

Rabbit_fan · July 2009

Hi prv,

I've had a bad feeling many times during all of this, and for me the worst case scenario that I had in my head didn't come true. From my experience the doctors won't tell you that they think you have a specific condition until they get the tests back, but they do know if they think it is serious or not, and if they say that they don't think it's mets then I think they really believe it.

Good luck! Eileen

Gitane · July 2009

Hi prv, Soft hugs from all of us, as we know oh so well the feelings. There is no point in any of us telling you don't be afraid. It's a normal emotion as all the diagnostic stuff unfolds. Not to mention it seems to unfold veeeeerrrrry sloooowly. I remember how sad and afraid I was. How I cried! The waiting for results is so hard, and, of course, in our heads is always the worst case scenario not the best. That's our ol' problem-solving brain working overtime. Try to wrap your head around the fact that you just can't know anything until Wednesday, so you might as well keep yourself busy, distracted, and away from too much computer searching until you know what's what. (Ya, easy for me to say, but hard for you to do, I know!) You can always come here and talk. Fingers crossed for good news. G.

JannaC · July 2009

Hi Ellen, My diag is similar to yours, however, I am older, a young 57. But my oncotype was 19, that terrible gray area, and my oncologist said the benefit from chemo would only lower my chance of recurrance by a couple of points and didn't feel it was worth it, so I to chose not to do chemo. Just radiation and then Femara. Femara because I am past memopause. Luckly, I have had no side affects for the drug. She did take my case to the weekly panel she goes to to discuss my case with other doctors. I trust her completely, but am still frightened of mast. good luck to you and thank you everyone on the board for posting such valuable information. You are right, lobular cancer does seem to not have the research that DCI does.

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