Do You Ever Just Want To Say...

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I find myself miffed. Does this happen to you?

I'll be listening to one of my "caregivers" complaining about their daily pitfalls-their boring or stressfull circumtances they've encountered in their day. My eyes start to glass over. I'm no longer listening to them. I'm thinking I want to yell at them, at the top of my lungs "I Have F@#$%n Cancer!!! Give me a break. When is someone going to listen to me"!!!?????

I have 2 people in my life that are supposed to be making things easier for me... They're not... I was hoping that my daughter would help me to get a handyman to fix 3 things in my apt. that are going to be a problem for me after the operation. She hasn't. My other caregiver didn't call for 3 days after I told him that I was worried about my doctor not doing my operation. Am I crazy or does this seem like a lack of concern to you all. 

Now I'm a little worried about my care after the operation...Thank God for Therapists!

Comments

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Yep I am easily miffed these days. I would be upset too if I was you. Two caregivers already not providing the care...!!!  I sure hope they turn around.

  • otter
    otter Member Posts: 6,099
    edited May 2009

    makingway, you've described one of my family members.  She called me just 3 times during the 6 months between my BC diagnosis and my last round of chemo.

    One of those times, she started the conversation by asking, "So, how are you feeling?"  I said I was doing okay, but the chemo was giving me some problems, etc.  She listened for a few minutes and then launched into a long tirade about how much trouble she was having with her boyfriend.  This went on and on, for at least 45 minutes, during which I asked questions and offered all kinds of advice.  I finally said I was getting tired and needed to go, so I could take a nap (which was true).

    Since then (I finished chemo nearly a year ago), it has been all about her.  A couple weeks ago, we were talking on the phone and she was once again complaining about her boyfriend.  Their relationship has fallen apart and the split is becoming really messy.  I was making some observations and offering suggestions, but she was rejecting everything I said.  I just could not get her to look at things objectively, or find solutions instead of looking for more problems.  She finally shouted (over the phone), "You just have no idea how stressful this past year has been!!!"

    By then I was getting angry and frustrated, because she was sounding like a 15-year-old instead of a woman in her mid-50's.  I probably shouldn't have done this, but I replied, "Well, actually, this past year has been pretty d*mn stressful for me, too."

    She said, "What do you mean?".  I said, "I had cancer."  Her voice dripping with sarcasm, she said, "What does that have to do with it???"

    <sigh>

    Sometimes the people you hope you can depend on the most, end up being the least dependable.

    otter 

  • cleomoon
    cleomoon Member Posts: 443
    edited May 2009

    Oh otter Yell

    Can't share the other words and thoughts I had about your family member....cause well they are quite nasty...

  • makingway
    makingway Member Posts: 799
    edited May 2009

    cleomoon- thanks for listening :)

    Otter- I'm sorry, but I just had to laugh when I read your post. Not at you, at the situation itself. The comment your friend made, "What does that have to do with it"? My God, this woman is frikin emotionally retarded!!!! It never ceases to amaze me how people can get through life being so stupid...My sister is just like her. And, this is why I haven't told my sisters, nor my mother. I don't need their drama, I'm dealing with my own!

    Take care Otter and remember "Ignorance is Bliss" ;)

  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2009

    makingway ~  One interesting thing you will find out as the result of breast cancer is who is really there for you, and who isn't.  And sometimes it's not who you think it will be, but maybe someone you didn't know as well who steps forward and gives of themselves beyond anything you would have ever expected.  Try not to be too hard on the ones who disappoint you.  I honestly think it's because they just don't know and can't relate to what you're going through.  In the mean time, maybe let some other friends or family know your needs.  You might be surprised at who steps forward and supports you throughout this journey ~   Deanna

  • billf
    billf Member Posts: 1
    edited June 2009

    I'm a husband of a woman who was diagnosed nov. 2008. Our surgeon who performed the Lumpectomy was very good and happend to find a second distinct cancer in the biopsy,with 2 of 7 Lymph nodes involved. The surgery went well with clear margins, the recovery went as expected. When we met with the new medical oncoligist at our local hospital all hell broke loose . Before we left the building I told the staff to stop setting up appointments because we were not coming back. We contacted the patient liason that same evening and I was on the hunt for an alternative the next morning. We ended up finding one of, if not the best oncoligist in the area and will never regret our choice. Since then I've taken most of the notes although my wife has done all of the research, I've been to every treatment, every appointment and read every report prior to printing it for her. I guess what I'm trying to saay is that every individual is unique, every situation is different, I have a verrrrry hard time discussing my wifes cancer with her or ayone else. So please don't get all worked up over people not falling all over you because of your diagnosis. They may be scared. Next week we're having a double masecectomy followed by radiation and then maybe or not reconstruction. In the meantime a family reunion with a family who's mother passed many years ago from cancer, a reunion with a family who my wife is the first member to be diagnosed, and life goes on........ when you get those calls from people who are needy and you don't feel like dealing with it then don't. Pass them off to someone who can say no. caller ID is great

    Good luck, my prayers are with Y'all

  • EWB
    EWB Member Posts: 2,927
    edited June 2009

    Best wishes, hugs and prayers for your wife, prayers of thanksgiving for such a supportive husband to you!

    Just go one day at a time, trust her and your instincts,  remember to take a few minutes everyday to remember all the good in your life and remember to breathe.

  • sagit
    sagit Member Posts: 28
    edited June 2009

    dlb823, u r so right when u say that u don't know who will be there for u. my family totally betrayed me after i was diagnosed, and my sister is so insensitive like u wouldn't believe! fortunately, i have a good friend that really came through for me, but all and all, this whole experience has made me much more reclusive. i just rather deal with things on my own.

  • pabbie
    pabbie Member Posts: 370
    edited June 2009

    Makingway,

    Thank God for psychiatrists!

    Take care of yourself. I come to this site often; it makes me feel not so alone.

  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

    Ditto!!!  I saw my psychiatrist, today.  I walked into her office crying.  Thank God, I had an appointment....

  • Mary22
    Mary22 Member Posts: 779
    edited June 2009

    Yes, I get tired of hearing everyone complian about their lives and all I want to do is scream "look at what I have been through"  I had 2 surgeries, rads, which i had to rake my children with we, b/c nobody would help out. I was promised all kinds of help, but nobody helped when needed. Some of the people who offered would have helped, but they had children that had to be put on the bus and their children went to different schools. My SIL was not working and did not offer any help.

  • saint
    saint Member Posts: 1,877
    edited June 2009

    If forced to deal with ridiculous ppl I don't hesitate to say, "I would gladly trade places with you!".........it is amazing how that one line can change a whole conversation---yep--I play the cancer card thru the back door sometimes....LOL

    be well & stay strong 

  • AussieSheila
    AussieSheila Member Posts: 647
    edited June 2009

    Saint your little one liners, (thanks so much) and some of the other ladies' here, need to be put into a booklet for all of us non comediennes.  I would have to read it like a text book just to be able to remember some of them but if I could just have a reply slip off my tongue when the situation calls for it I, along with quite a few others, would be so grateful.

    A lady I met recently was hit with the "Yeah, and I could get hit by a bus tomorrow" line when telling her ex D-i-Law so I told her to say "That's true, but at least you're not standing in the road watching the bus coming toward you."  The lady was so excited to have an in-offensive reply loaded and ready, she hugged me.  So, I am not the only one who needs such a thing and have often wondered what some of the better known female comedians would say at such times.

    Sheila.

  • saint
    saint Member Posts: 1,877
    edited June 2009

    LOL--I always respond to the "hit by the bus" by saying--Yeah, but this bus has my name on it, it's looking for me & will jump the curb-& I think it's an express!

  • KAK
    KAK Member Posts: 1,679
    edited June 2009

    LOL, Saint. Love your comebacks!!  You and Barbe ought to write a book.

  • Jorf
    Jorf Member Posts: 498
    edited July 2009

    I'll tell you that one of the biggest lessons I learned through cancer and all the emotional and relationship fall-out after it is that I never really knew how I'd react to something until it really happened. I always kind of thought I had some things all figured out and, when it came to pass, I did not. In retrospect I realize that I did not have cancer figured out. I fell into the trap of thinking that <gasp> I had cancer and that cancer is the worst thing that could ever happen to anyone and it should all be about me, me, me. And, I'll tell you, I would have denied that completely at the time.

    Yes, it's overwhelming. Yes, it's terrifying. Yes, it hurts, it makes you nauseous, exhausted, stupid. Yes, it takes up 99% of your energy. But so do a lot of other hurts and we need to recognize that in those around us. I had family members going through extremely stressful times at the same time as my cancer, friends who were having life changing events. It took me a while to let go of myself as the absolute center of the universe (even tho, obviously, we are the centers of our own universe I had to finally figure out how to make sure that I wasn't making myself the center of everyone else's universe) and, even through the hell of treatment, be a friend, a sister, a partner. Actually, cancer treatment was the first time that I actually let go of the role of "the strong one" (even while I was striving to be incredibly physically strong: exercising regularly, going to work as much as I could, etc). While that was a good thing (a very good thing) I also needed to learn the balance.

    You get to pick and choose your friends and who you want to have around you. If someone who is having their own hard time is unable to be there for you if you are there for her/him then maybe you need to rething the relationship. But my advice is to remember that it's a relationship and it's take AND give - even if I think that my crisis is bigger than your crisis - it isn't, even if it's cancer, it's just mine.

    It took a long time to heal some of the wounds that occurred during that time - both to my body and to some very close relationships. I really don't know if I could have done it any differently. I hope that I could have if I'd really recognized what I was doing to myself.

    I'm only asking you to consider if this reflects any of how you are relating to your loved ones. It's just way too easy to get wrapped up in the Cancer thing. Remember also that, as much as it freaks us out it freaks out the people around us. It's probably worse for them because they can't DO anything about it. All we do is DO something about it and they just have to wonder what to say and how to act.

    Oi, it's waaaaaay too late and I'm rambling. Love to you, sister.

  • Debonthelake
    Debonthelake Member Posts: 244
    edited July 2009

    Well put Jorf,

  • saint
    saint Member Posts: 1,877
    edited July 2009

    Jorf! ALL true!

    I have always felt that while we as patients can focus on our tx, our loved ones & caregivers have the harder emotional battle of just standing by & watching! They really must feel helpless & not know WHAT to do or say so much of the time!! Knowing we may not be able to step back & be objective, I too advise that we TRY to take a good look at what is really going on!

    Thanx for your honesty! Be well & stay strong

  • dkhancock1948
    dkhancock1948 Member Posts: 433
    edited July 2009

    Hi!  I am new to this thread, but feel completely at home!  Although cancer has been a very humbling experience for me, I have went through different emotions that I never ever would have thought I would.  Even though I know I have cancer, been through chemo, left breast mastectomy and now radiation - it sometimes doesn't feel real.  I guess I had expectations (unspoken expectations) of my children.  My husband passed away on Thanksgiving 2006, so I didn't have that support.  He was my best friend and his favorite line was, I'll do anything for you, and he would have even when he didn't feel good.  My son started living with us before my husband died and still lives with me - until 7-11.  He is getting remarried to a wonderful lady.  My daughter lives a block behind me.  I was "expecting" more from my daughter that I think she did.  She has her own family and a part-time job.  Her favorite line when I asked her to do something, was Patrick lives with you, he should do that.  Usually I asked her when I was by myself.  He had a full-time job, going to college full-time, has his fiancee, and his children he gets every other weekend.  He would ask me if I needed anything whenever he was home.  He did get the essentials several times.  He would go on weekends to his fiancee's, saying call me if I needed anything.  I would be by myself those weekends, expecting my daughter to call and just find out if I was okay.  So, I was putting expectations on them that I had never talked about.  I got depressed, realizing that I could have died and no one would have known about it for 2 or 3 days. (Like someone said, center of the universe without realizing it). 

    So though this thing, beast, nightmare, called cancer, I have learned quite a bit about myself.  I need to be more social.  I don't want to be alone the rest of my life. I have went through some things my husband had and I had no idea the extent of his pain.  He had diabetes - never high enough for insulin - but it did its number on him.  He couldn't see well, had neuropathy in his feet and hands, indigestion problems and constant pain.  I have now had neuropathy, eyesight has changed, indigestion problems from taxol and the shingle pain is still letting me know it hasn't left.  I just hope I remember all of this when I get back to "normal" (whatever my new normal might be) and have more compassion for others. 

    One of the things that was said to me, after several treatments of chemo, was after I was asked how I was feeling, I said I am just getting more tired from the chemo, and this lady said I am tired, too.  I wished I had that one liner, I would gladly trade places with you.

    Thanks.  This thread has helped me so much.  I wished I had seen this one sooner.  Actually, I wish I had this whole website when I was going through everything from the beginning!  I feel like I can say completely what's on my mind, even if it is not positive!

    Debbie

  • Britt
    Britt Member Posts: 731
    edited July 2009

     . . . . F_____ Tamoxifen!  My third day - and I am an emotional wreck!

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