Anyone have a mood disorder before diagnosis?

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  • konakat
    konakat Member Posts: 6,085
    edited June 2009

    NativeMaine:  How horrible having those flashbacks!!  Can your doc adjust your meds some more?  I loathe to hear of someone suffering like you.  It's not fair and not right, you've been through enough!!!!  Please ask your doc for more help, you don't deserve this!!  I hope there is some way to help you!!

    Elizabeth

    xoooo

  • cleomoon
    cleomoon Member Posts: 443
    edited June 2009

    I have been doing a lot of thinking and research into doing PBM. Also have decided to look into nipple sparing...can't hurt to at least have a consult with a PS. I thought that since I have "only" been diagnosed with LCIS this month, that I could put the worry and obsessing about my choice of treatment options behind me for a few months. Last time after biopsy in November, I was able to have about 2 1/2 months of peace. This time is different. I don't think I can move out of the anxious state and focus on other areas of my life until I make a decision and put some action plans in place. I have created a list of things I want to accomplish before the PBM. Freaks me out a bit each time I get closer to choosing the PBM. I have even started to use language as if I already have chosen that option. I was looking through my clothes yesterday and I found myself saying "that will look cute and fit when my breasts are removed." Hum it seems that the rational mind has made the decision to have the PBM. Now I need to keep seriously working on my emotional mind.

  • rgiuff
    rgiuff Member Posts: 1,094
    edited June 2009

    Thank you all for your input.  Sorry NativeMainer to hear about your extreme reaction to all the treatments.  Sounds like you had a very difficult time.  Have you also been on any type of antihormonal meds?   Bookgirl, I've never heard of Pristiq.  Is that an SSRI?  And I find it very interesting about the homeopathic remedy working.  I've been reading up a lot myself about herbs and homeopathic/alternative remedies, but there are so many, it's just confusing figuring out which ones to try.

    Cleomoon,  I was on the lowest dose of wellbutrin, 150mg.  I told the doctor I was ok with splitting that in half, and the doc said ok, as long as I no longer was having the heart palpitations.  If those continued, they wanted me to go off it completely, and I agreed because I felt like I was on edge and the shortness of breath that came with the palpitations was really hard to live with.  Then I realized that half a pill wasn't helping with the sex problem much anyway and I also read that you shouldn't break the pills in half because then the med would not have the same timed effect as when it's swallowed whole, so I just stopped taking it a few days ago. 

    The funny thing is, I'm feeling so up these past few days.  Don't know why and I keep thinking that a down mood is probably due to come again soon, or  maybe whatever good the wellbutrin might have finally  started doing for my mood is now going to go away once it really gets out of my system.  Or my up mood might be because recent events have been positive and I'm working with a new group of people now and so far I feel like I fit in more with this group than the previous group and I've been trying to really push negative thoughts away as soon as they come.  I don't know if it's the events or the med or the hormones or a combo of all that have the most effect on my mood right now.

  • rgiuff
    rgiuff Member Posts: 1,094
    edited June 2009

    Thank you all for your input.  Sorry NativeMainer to hear about your extreme reaction to all the treatments.  Sounds like you had a very difficult time.  Have you also been on any type of antihormonal meds?   Bookgirl, I've never heard of Pristiq.  Is that an SSRI?  And I find it very interesting about the homeopathic remedy working.  I've been reading up a lot myself about herbs and homeopathic/alternative remedies, but there are so many, it's just confusing figuring out which ones to try.

    Cleomoon,  I was on the lowest dose of wellbutrin, 150mg.  I told the doctor I was ok with splitting that in half, and the doc said ok, as long as I no longer was having the heart palpitations.  If those continued, they wanted me to go off it completely, and I agreed because I felt like I was on edge and the shortness of breath that came with the palpitations was really hard to live with.  Then I realized that half a pill wasn't helping with the sex problem much anyway and I also read that you shouldn't break the pills in half because then the med would not have the same timed effect as when it's swallowed whole, so I just stopped taking it a few days ago. 

    The funny thing is, I'm feeling so up these past few days.  Don't know why and I keep thinking that a down mood is probably due to come again soon, or  maybe whatever good the wellbutrin might have finally  started doing for my mood is now going to go away once it really gets out of my system.  Or my up mood might be because recent events have been positive and I'm working with a new group of people now and so far I feel like I fit in more with this group than the previous group and I've been trying to really push negative thoughts away as soon as they come.  I don't know if it's the events or the med or the hormones or a combo of all that have the most effect on my mood right now.

  • bookgirl
    bookgirl Member Posts: 128
    edited June 2009

    I'm not sure about pristiq, it is a similar antidepressant to Effexor  I believe, there is a web site about it now. I had just weaned myself off of Lexapro last summer (after 4 years) when I got the BC DX. My doctor put me on Pristqi when has been great, very few SE. The Bach Flower essences were recommended by my acupuncturist (who is also an RN) she is from Germany and said they have been used there for years. They really have helped me, they sound a little silly when you read the labels but they seem to work. Bach makes one for sleep as well, it's a spray called sleep remedy I think. I swear by it!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited June 2009

    I have talked with my PCP about the flashbacks.  She recommended increasing the prozac but I chose to wait and see how things go over the summer.  I think part of the problem is from the lupron I take for ovarian suppression and the arimidex. My mother had anxiety issues during menopause, so I think I am, too, especially since menopause for me is chemically induced.  The depression has gotten a lot better since I got off tamoxifen (when they say depression is a side effect they REALLY mean it).  I, too, use Bach's rescue remedy when I have a flashback (when I remember I have it with me) and find that it helps.  Since I work per diem over the summer I can take time off when ever I want, so I've started keeping notes, trying to figure out what, exactly, scares me so I can make plans to control the fear. When I start getting tired the flashbacks seem to get worse.  If things aren't improving by September I've already agreed to go on a higher prozac dose.  The biggest help I've gotten so far is from these boards--knowing I'm not the only one takes away the fear that I'm going crazy on top of everything else.  Since the nightmares I used to have almost every night are now down to once or twice a month, I'm hoping the flashbacks will start spacing out, too, soon. I'm just really tired of taking more and more medication so I guess I'm being a little stubborn. 

  • cleomoon
    cleomoon Member Posts: 443
    edited June 2009

    The anxiety has gotten a bit better now that I have my Klonipin. I am sleeping soundly. Now I am finding myself thinking I have cancer. I want to call my breast surgeon and ask for another MRI. Even another Mammo. I am not due for my next scans til Oct. I know this is not good. I dont really have a life and need to get focused on trying to make one for myself. According to my scans I have LCIS not cancer. My breast is still not healed and that makes it hard for me to forget about my breasts. I was crying today. I do have an opportunity to meet with the breast surgeon to discuss the second opinion on the pathology in a week or two. I am afraid to tell her my fears. I am afraid I will cry if I try to talk to her. I am seeing a therapist, but I dont think that will help me not cry if I talk to my surgeon again. I guess I need to cry and stop running from the crying and fear. Fears of other stuff and this.

  • konakat
    konakat Member Posts: 6,085
    edited June 2009

    Cleo -- I know we all try not to cry around people, but maybe it's OK in front of your surgeon so she fully knows that you are upset -- concerned about the pathology.  She's used to seeing women in distress.  Tell her what you're worried about, even if you think you're overreacting.  It will help if you get lots of info and reassurance from her.  Better to have her understand your concerns and tell you lots than have you wondering after the appointment.  I think you should lay it all out -- you have a right to have all of your concerns addressed and it will help you until you get your next scans in October. 

  • konakat
    konakat Member Posts: 6,085
    edited June 2009

    NativeMainer -- I understand not wanting to take more and more meds.  I get sick of them too.  I'm glad the nightmares are much less frequent.  I do hope over the summer the flashbacks become less too.

  • jules4evr39
    jules4evr39 Member Posts: 203
    edited June 2009

    IT"S HARD to deal with BC...I have broken down so many times...it really sucked when I went through my closet and got rid of all my strappy tops and v-necks...I cried about this all to myself..this is hard!!! I fight it daily...try not to bring it to family..if I bring it up to very close friends..well even family..they don't even hear me and just change the subject...they don't want to think about us being sick..ok...but i still have to deal with it...the decision about TX is especially a hard one...I chose mastectomy...now whop-sided...and so sick of hearing""""at least you are alive""" I lost a freak'n body part people...devastating..

    I feel the pain of every woman on here...this is hard no matter what your DX....It was hard to take the first Tam. pill.......We have each other on here...I know it would be better if we were all together...but we do have each other...and all of us understand you!!! ....jules

  • konakat
    konakat Member Posts: 6,085
    edited June 2009

    Oh I know Jules -- I have some tops I just can't wear anymore.  Then I get depressed sometimes when I see women with healthy breasts in skimpy tops.  Breasts are so tied up into our sexuality and femininity.  We hear that our partners say we look just fine, but still...

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Thank you Elizabeth. Your words were very comforting. I have teared up and cried out in public now three days in a row. It's scary to be vulnerable, but so far there has been nothing "dangerous" about it. That is a good lesson for me to learn. I am tired tonight from the emotional stress of the last week. Looking forward to going to bed early.

  • rgiuff
    rgiuff Member Posts: 1,094
    edited July 2009

    Cleomoon and Nativemainer, have you ever considered finding a breast cancer support group.  I've been in one for 7 weeks now, it finishes next week.  But it was great having a variety of women to talk to who all have had the BC diagnosis.  In the beginning, it was all about the negatives, until the last few sessions, the Social worker who runs it has been getting us to focus more on the positives and on how we can move forward with our lives.  We've discussed many ideas about how to not obsess over the whole thing, like getting immersed in an activity or hobby or making an extra effort to get out socially with people and get our minds off it. 

    We are also planning to continue meeting in the future, maybe a couple of times a month.  I think it's helped me some, to at least get out of the house and away from the computer, which was really making me feel crazier.   

    I've also heard some fabulous things about yoga from so many different people.  I've heard that it's great for many parts of the body and calming the mind as well.  I am looking for some inexpensive classes to take for myself.  My library has them starting up in about a month for 10 weeks for only $30.   Besides yoga, I've also heard that some of the Chinese type exercise classes are also good and acupuncture if you can afford it.  Some places even offer these type of things for free for women who have or have had breast cancer.  

  • konakat
    konakat Member Posts: 6,085
    edited July 2009

    I hope you're feeling better Cleo.  I find the more I try to bottle things up the more those "surprise" cries happen, the simplest things trigger them, or it just happens for no reason.  So, if I feel like crap, I allow myself to feel like crap.  It's so overwhelming trying to hold it together for the benefit of others.  Sometimes we just have to go with our emotions and get the release with just letting ourselve be. 

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Hi Rose,

    That is a great deal on the YOGA classes. I have considered joining support group.Thanks for the suggestion. I am gonna try to get back to swimming and try to find some social things to do. First I have to clean up this apt....OH MY WHAT a DISASTER AREA...and laundry...

    No crying spells so far today :)

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited July 2009

    Cleomoon--I cry at every doctor's appointment. Every one, even the podiatrist, since diagnosis, for the last 2 and a half years.  I've given up trying not to cry during doctor's appointments, it's not worth wasting the energy, and it communicates to the docs and thier staff that I'm human, stressed and afraid.  It's become a bit of a joke at my PCP's office--the nurse who takes my blood pressure and such double checks to make sure there are tissues in the exam room!Crying is a natural response, and it fells better to let the emotion out than to try to keep it in.  I got that pearl from MY therapist.  My crying spells tend to happen in the car, usually triggered by driving past the hospital where I got the radiation torture treatments, or going past the exit to the hospital.  Sometimes I have no idea what triggers the tears.  But since I decided to stop worriying about the crying spells they don't seem to last as long or be quite so intense.  Give it time, it does get better after a while. 

    Rgiuff--I looked into breast cancer support groups in my area, but every one of them were focused on chemo.  Since I "refused" chemo, I don't qualify for most support groups, and the few that I could get into talked about nothing but managing chemo side effects.  Also, most of the support groups near where I live want a referral from an oncologist in the area, and I see an oncologist 90 miles away, which is just too far to go for a support group meeting.  I've even gotten 2 referrals to Reach to Recovery and never got a call back until I contacted them directly. 

    I used to do yoga regularly, but got out of the habit during rads when I was so tired  and in so much pain that I couldn't do anything but feed the dogs and drag myself back and forth to treatments.  I'm glad you mentioned it--I should start doing it again. 

    I've been blessed with good friends that are very accepting of my crying jags and occasional emotional outbursts.  They are also "dragging' me out to movies and other things on a regular basis this summer and that has helped enormously!  One of the most helpful things for me was when my mother came over and helped me clean the house up after 2 years of neglected housework.  Keeping the house up is a snap compared to trying to dig out after so long of not being able to muster up the energy to do anything but the most minimal housework. 

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    NativeMaine,

    I am sorry you aren't able to find a cancer support group, but I am happy that you have such caring friends and family. I wish my family was around. I just adore my sisters and they have come a few times to jumpstart me on the housework. I have gotten buried the last few weeks and started digging out yesterday. Oh the kitchen is today. YUCK! I know I will feel better when it is done and will just keep pushing myself to finish. Thanks for the support about crying. That is nice that the PCP has tissues on hand for you Wink I sure hope the flashbacks lessen for you. Can't remember whether you see a therapist or not. There is a technique called EMDR that has helped many with flashbacks.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited July 2009

    cleomoon-I'm not seeing a therapist right now, was earlier.  I'm not familiar with EMDR--what is that?  I'm seriously considering finding a good massage therapist and getting massages on a regular basis.  I've had some and they were sooooo helpful--I would sleep better for several nights after a massage. 

  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Here's a site that explains EMDR. Hope you find a good massage therapist...anything to help with a good night's sleep.

    www.emdr.com

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited July 2009
  • cleomoon
    cleomoon Member Posts: 443
    edited July 2009

    Oh bother. My tail fell off again. And today I just don't feel like putting it back on. I am starting to sleep a lot again to escape. I've got that slept too much headache. Does anyone get those?

  • konakat
    konakat Member Posts: 6,085
    edited July 2009

    Yeah -- I hate those slept too much headaches!  I've been sleeping a lot too...

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