Trigger Finger Questions...PLease Help!
Hi Ladies,
Today I was diagnosed with "trigger thumb" and it appears the same thing is happening to my pinky. (Joints start making popping sound and lock up, if NOT treated!) The specialist I saw told me this is only caused by diabetes or thyroid problems. I told him I was on Femara an aromotase inhibitor and I thought that is what mine came from. So I am doing a survey to see how many of us were "blessed" with the thumb or finger issue. I plan on taking it back to him when I return for follow up visit. So if you could please answer these questions if they apply to you. Thank YOU ALL! Questions below......
1. Are you or were you diagnosed with "trigger finger" while on an AI?
2. If so were you also diabetic?
3. Or did you have thyroid issues also?
for those not on AI's and triple negs..
1. Are you diabetic and diagnosed with "trigger finger or thumb"?
2. Have Thyroid issues and diagnosed with "trigger finger or thumb"?
Again thank you so much for your help. I truly appreciate it!
This issue is NOT fun LOL! Mine is pretty bad, got a cortizone shot and it hurts tonight. Praying for relief soon. If shots don't help, I will have a small surgical procedure. The reason for my asking these questions is because I am not diabetic and NO thyroid issues either! (as far as I know). My MOM is diabetic, but so far Thank You GOD! I am not. This didn't happen to me until beggining Femara. Trying to see if there is a correlation here!
Thank you,
Susan
Comments
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Susan,
I'm not on an AI, but I am in menopause. I'm not diabetic and I don't have thyroid disease. I was diagnosed with trigger thumb about a year ago. Had 2 cortisone injections about 6-8 weeks apart and each time the triggering and pain began to return again after about 4 weeks. When it returned after the 2nd injection, I decided not to have a 3rd injection and instead decided to have surgery but postponed it for a while because I was about to go away for a wedding out of state. About 1-2 weeks before the surgery date, the pain and triggering began to go away on it's own, so I cancelled the surgery just a few days before the surgery date. It's been almost 6 months now and it has not returned, so apparently it can sometimes self resolve if given enough time.
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Hi Susan,
I had a "trigger thumb" about 3 years ago. Had a cortisone injection, which didn't help, followed by surgery. I was on tamoxifin at the time. About 5 months ago I developed a " trigger thumb" in my other hand. I decided to just have the surgery and skip the injection. I was a little apprehensive because it was the arm that I had lymph nodes removed from, but no problems. This time I was on aromasin. I also had carpel tunnel syndrome in both my wrists that started about 3 months after I started on aromasin in May of 2007. I had surgery on my right wrist and had scheduled surgery for the left, but a few weeks after I had the right done my left wrist completely cleared up and hasn't given me anymore problems. I have no problems with diabetes or my thyroid
Maria
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Hi Susan:
Your specialist needs to go back to med school! My sister, who is not diabetic, and has no thyroid problems, and was not on an AI, developed trigger thumb several years ago. She also had cortisone, and then surgery, and has been fine ever since.
Cheers, Linda
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I am on an AI, am not diabetic or have thyroid issues and was diagnosed with CTS and trigger fingers after starting Femara. First I had an injection which helped for awhile and then the doctor suggested surgery. Had the surgery in my right hand first and the trigger fingers are better. Now I need the surgery in my left hand. I know the AI's cause the problem. Most docs will tell you they don't but I feel strongly they do. In fact I went off my AI for 2 months and my symptoms completely went away. The lack of estrogen causes it but that is what the AI's are doing.
Sally
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Wow!
This is exactly what I was looking for.
I've been on Arimidex (Anastrole) for about 9 months, and for the past month or so I've been having pain, stiffness and snapping joints in my right thumb. I've wondered if it's related to the meds. About 3 months after I began taking Arimidex I was diagnosed with carpel tunnel. There's no reason for me to have this since I'm not diabetic, have no thyroid problems and don't do any repetitive motions.
I'm considering going off the med. and finding a more natural way to control my estrogen.
I'm suppose to get a bone density test this week. Will that show anything going on in my thumb or hands? It's reassuring to know that this may be caused by the Arimidex and not some other serious condition.
Thank you
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I was on Femara for 1 year when my trigger thumb started. No on the diabetes or thyroid issues. It got really bad after about 3 months but I just waited and it finally went away about 6 months after it started. As I have always said the Femara SE's seem to roll through my body. Usually they only last about 3 months so this one did last longer but did go away. It was painful and bothersome but somehow I just knew it would go away. Now the pain is in the right side of my neck. This so happened to be where it was about 3 months after starting Femara in Feb 2007. I am hoping it will go away soon. I have had some adjustments by chiro just to make it livable for now. Good luck with your trigger finger. I hope it goes away.
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My son had trigger fingers when he was eight...cotisone injections worked. he certainly wasnt on an AI... Very common problem so unlikely related to the AI.
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I developed trigger finger within just a few days of starting Femara. It lasted for a few months then just went away. I have been taking Femara now for 2 yrs. I am not diabetic nor do I have thyroid problems, so I am sure it was the Femara. But the good news is that it did eventually go away.....now if only all the other Femara se's would disappear!
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Sorry maryannecb but I will have to disagree. I am sure they are common but I am also sure mine was from the Femara.
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1. Are you or were you diagnosed with "trigger finger" while on an AI? - Not trigger finger, but CTS and DeQuervanes tendonitis. CTS is definitely a side effect of the AI's -it is listed as one of the less common side effects, but a side effect. I had surgery on the right hand. After 5 months on AI's it was Dx as severe and I was already having nerve damage. I switched to Tamox for 2 months and then went off everything for 3 weeks and during this time, the CTS went away in left hand. Went back on AI's and within 7 or 8 months had developed the tendonitis. It was bilat - I waited several months before seeing the hand surgeon. After two cortisone shots and no relief or improvment I had surgery on the right hand. Surgeon said it was one of the worse one she had seen in years. I am scheduled to have the left one done in a few weeks. A friend of my DH and mine is a rheumatologist and he also attributes the tendoinitis to the AI's. He says the only way to eliminate the joint pain, arthritis and tendonitis etc is to go off the AI's but he didn''t recommend that.
2. If so were you also diabetic? Nope -
3. Or did you have thyroid issues also? None
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had trigger finger and carpal tunnel while on Arimidex. It was severe at times and I had seen a hand surgeon..who injected me with cortisone..in my hand at least 3 times over a year's time. He wanted to hold off on surgery as long as possible. I ended Arimidex in Sept. and by Jan. my issues disappeared..I am now on Aromasin WITHOUT any of those issues.
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I was taking Aromosin and had problems with trigger finger and when I switched to Femara, it mostly went away. Been on AI's for 3 years. Not diabetic, no thyroid issues.
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I was diagnosed with trigger finger and had surgery for it. It's all better now. I was not at the time diagnosed with cancer and I have yet to receive any cancer treatments. I won't even have my surgery until the end of Oct. I'm also not diabetic nor do I have thyroid problems. It is a type of tendonitis and sometimes people just get it. It's not encouraging to me to find out that cancer treatments can cause it too.
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I have been on letrozole for about a year and have developed trigger finger, arthritis in my hands and generally hurt all over. I am not diabetic and don't have any thyroid problems. I take celebrex to help with the inflammation.
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My husband and daughter were both diagnosed with trigger finger this year. My husband has done well with the cortisone shot but it didn't work for my daughter and she opted for the surgery to correct it.
The doctors were surprised with my daughter because she was only 21 when diagnosed. It was her pinky and even though the doctors couldn't confirm it, we feel it's a result of playing oboe for several years because she also had carpal tunnel from that.
My husband has his middle finger affected on both hands. He's been an aircraft mechanic for more than 30 years and the doctors felt it was just a result of the type of work he does.
They're both much better now, but were in a lot of pain earlier. I hate to hear so many others are having trouble with this for whatever reason. Good luck to you in finding relief.
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Hello Susan,
I was just diagnosed with trigger thumb as well. Mind actually locks bending backwards. I was told by my oncologist this is very common after chemotherapy. I did Cytoxin, Taxotere and Adriamycin. I had six rounds from March to July. I am currently going to physical therapy for it, applying an antianflamitory gel four times a day and wearing a splint when I sleep. My thumb only locks when I am sleeping. It is week during the day. If PT does not work after 6 - 8 visits he is going to give me a shot of cortizone.
I would believe it is from the chemotherapy as I have not started on a AI yet.
1. Are you or were you diagnosed with "trigger finger" while on an AI? No start Femera on Monday.
2. If so were you also diabetic? No I sell insulin for a living and I have never heard of trigger finger having anything to do with diabetes. Nueropathy (numbness in your fingers or toes) can be a side effect to diabetes.
3. Or did you have thyroid issues also? I do have hypothyroidism for the last 20 years and I have never heard of this being a thyroid issue.
for those not on AI's and triple negs..
1. Are you diabetic and diagnosed with "trigger finger or thumb"?
2. Have Thyroid issues and diagnosed with "trigger finger or thumb"?
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Hi Susan,
I suggest you send this link or a copy of the article to your "specialist". AIs have long been associated with arthralgias and joint problems particularly of the hand and wrist.
http://www.current-oncology.com/index.php/oncology/article/viewFile/179/152
Particularly point out to him page 6 and section 2.3 Investigation of AI-Associated Arthralgia
Clinical signs included severely limited mobility in the affected part of the hand or wrist. "Trigger finger" and carpal tunnel syndrome were the most frequently reported clinical signs,
I developed severe hand and wrist pain with trigger thumb and trigger pinky about 5-6 months after being on Aromasin. It was very painful during the acute phase but after about 3-4 months it got better on its own. I have been on Aromasin now for 2.5 years and I just experience stiffness in my hands but the locking trigger fingers and acute inflammatory pain is gone. I think it just took time for my body to adjust to the AI. I am glad I did not pursue surgery on my hands.
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I have recently developed locking thumb and finger joints and severe stiffness, when they release the pain is excruciating. It is worse 1st thing in the morning.
I received radiotherapy teatment in May but no chemo. I have been taking arimidex since February 08, I take Glucosamine & cod liver oil for a knee problem and have taken this for several years before starting arimidex, evening primrose oil for hot flushes side efect of arimidex. I have also suffered with sleep problems since starting on arimidex, wake up every 2 hours a night, it doesn't matter what time I go to bed I still wake up every 2-3 hours per night.
I do not have diabetes or thryoid problems, I had carpal tunnel surgery on both wrists 6 years ago.
My GP has ruled out arhritis with blood tetsts, I am seeing the oncologist next week as GP thinks the finger problem is side effect of Arimidex.
Anyone else had similar problems, what is the answer, cure?
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Bump for Notme
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Hi Susan,
I have been on Aromacin for almost three years. At first my joints were extremely painful but they are much better now. I have recently been experiencing trigger finger.(my middle finger) I wake up with it completely locked. I have started taking Motrin and I splint it at night which seems to be helping a little. I now it is from the aromatase inhibitor but it seems like a small price to pay if it blocks that estrogen which is another whole discussion.
Good Luck
Luann
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I had a trigger thumb release procedure done in Oct 08. My BC was diagnosed in Nov 08. I started Femara in March 09 and my L thumb began to lock. (I do have a thyroid condition which was diagnosed in Sep 08). I had my L thumb released (surgically) in June 09. I too was concerned since my left side was where lymph nodes were taken. All has gone well, both thumbs are operational and no signs of swelling in my L arm. I am achy from the Femara (I guess).
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Luann: Just to let you know that I developed trigger finger (third finger both hands) after about 4 months on femara. It doesn't hurt, just feels strange! My onc said she's had several patients on femara with the same problem, so we know what to blame!
Cheers! Linda
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I am on arimidex (into my fifth month) and have just been diagnosed with "trigger thumb" by my orthopedist. Not diabetic and no thyroid disease. It is my right thumb and I am right-handed. It is a major nuisance. I have a splint on it now and am supposed to take lots of advil. I had no idea it was related to the arimidex until I googled them together. Who knew?
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After DD AC then Taxol I developed trigger finger on my R Thumb(never ever had any problems with my joints before) , got a cortizone shot and it took care of it. That was about 1 year ago. Have been on Femara for a couple of months now and the same thumb started clicking again, along with my left middle finger, especially at nights.
The cortizone shot was extremely painful for me so I am just hoping that you girls are right and these will go away by themselves in a couple of months. Plus I am not a fan of cortizone.
I do crew, sculling and dragon boating.. guess that is not helping either but hey ! a gal has to do what she wants to do right ?
Oh I do not have diabetes and my thyroid is fine although I have found out that my body does not know how to absorb iodine so now I am taking tons of iodoral with atp co factor.
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I have had a trigger finger for 4 years. First hand specialist gave me a cortisone treatment and I developed a ganglion cyst. Still have both. Went to another specialist a year later. Wanted to do surgery, but I didn't feel comfortable. Went to another specialist last week. Set surgery date for yesterday, but did not go through with it. I couldn't floss my teeth without prying my finger loose. I have a sonic relief that I purchased a year and a half ago.I paid about $150 for it. Used it for tennis elbow and sore wrist and sore knee. How stupid was I to not use it on the trigger finger for the passed year and a half. It is a small hand held instrument with a head about the size of a half dollar. It sends sound waves. The sound waves vibrate so fast that they create heat. The head of the instrument doesn't get hot. Actually, I don't feel a thing. I have been using it for the passed 3days, 3 times a day. My finger is sore, but it does not locked anymore. I have also started taking glucosamine everyday. I just ordered a couple gripp balls to exercise my fingers. I can't believe that I have seen this much improvement in a couple of days,
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How frustrating this is but I'm relieved I'm not the only one!! I have been on Arimidex since early March and had the joint pain in knees and ankles. My hands felt tight in the am. About one month ago my right thumb started locking and is really sore. My other symptoms are improving but not my thumb. Ironically I had my exchange surgery one week ago and my only pain now is my thumb!!! My onc had suggested the glucosamine and fish oil so I'm hoping it helps. I really don't want more surgery!!!
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I am negative for diabetes and thyroid problems--in fact just had routine blood work for both and came back normal. However, I had trigger fingers for years while on AI's. My sister who is a massage therapist in Boston taught me some simple exercises which completely eliminated them for years--hard to describe here. She got the exercises out of a professional massage therapist journal. Never had trigger thumb but the thumb on my right hand used to ache and throb.
With palm of hand up grab the fingers of that hand with your other hand. Bend all the fingers back as far as you can without pain and then release. Do this about ten times. Then turn you hand over so the back is up Curl your fingers up into a ball. Grab that ball with you other hand and bend the fingers, curling them into a tighter ball for a few seconds then release. You should be able to feel the tendons pulling. You are stretching the sheath so the tendons don't get pinched anymore. This is hard for me to describe--I could show you in a quick minute. Really helped me more than anything else.
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weesa- Thanks for the helpful post. I tried the stretches and think I figured them out. It is mostly my thumb that hurts the most but in the am both hands are sore. I'll give these stretches a try. Thanks!!!
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I had a cortisone injection in my right thumb which helped quite a bit after a week or two... although the thumb still doesn't feel normal, I can bend it. This morning I woke up and I had trigger finger in the left thumb!
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I saw my oncologist today and told her about my very tight/sore fingers in the mornings and my "trigger finger" in my right thumb. She said it can't be from the Arimidex because I would have the same joint issues in all the fingers. Thanks to all of you, I know that isn't true!!! I can hardly bend it anymore and the area around it is sore. She said to meet with my primary MD who will refer me if neede. Frustrating!!! I see my breast surgeon next week for my 6 month checkup and see what he says. He originally set me up with PT after my mastectomy and I'm thinking that may help now.
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