first chemo done
Comments
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You have bangs, I'm jealous! LOL....I think mine is going to get curlier, even though it's shorter then yours, it's starting to like stick out in places...and mines coming in gray and black! Jill I've never had black hair before, natural was a light brown with reddish tones! Mines really soft too..and not knowing what yours looking like before, yours looks good in the pic!
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JILL: I love the hair....happy for you...hopeful for me! How long since your last chemo? It seems as if everyone says that when the hair grows back it is much grayer then before. Chalk that up to the experience/stress of cancer. It will be interesting to see if mine comes in gray, as both my mother and grandmother never had gray hair, even in their 70's!
Your son sounds like a great kid! How wonderful of him to provide solace and encouragement to a new friend. (Sounds a lot like his mom!) We are taking my daughter to camp today (why in the world a 15-year old girl would want to spend the week in a tent, I'll never figure out!)
LAURA: Nice shirt...I'd wear it to chemo if I were you.
CRUISE: You are putting me to shame as you keep putting up new pictures! I haven't even put up one yet! (To be honest, I really haven't looked into how to do it. ) I wanted to get one up before the hair left, but since that boat sailed, you'll have to see me in the wig (and you all know how I feel about that!)
Well, I'm off to camp!
Janet
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Hi Ladies...
I just posted another picture...I went to a great event yesterday with my DH, my niece and her DH. It was called "Blending for Boobies" an event that raised money for women who cannot afford mammograms. (A Solano Midnight Sun Foundation) We were able to taste some great wines and then make our own blend and bottle our very own bottle of wine. I was glad to see so many of my old friends who were very surprised when I told them I have BC. They could not believe it or that I had a wig on...The two women who founded Midnight Sun both are BC survivors. One was a customer of mine and the other I played golf with in many tournaments. They asked me to be on their board. I really want to help others who are dealing with this...so of course I couldn't say no.
There were vendors there from the local area and one that I thought was cute was "Bras for a Cause" and these women made a calendar of pictures of Cancer survivors dressed up in glamour shots...and sold their calendars with some of the proceeds going to Blending for Boobies and then to their Bras for Cause.
Jill ...Love the shirt....where did you find it?
Happy Fathers Day...to our wonderful DH's who put up with our CRAP....
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I hope you don't take this the wrong way, Jill... but the way you describe your hair makes me want to come touch it - soft and wavy - it sounds so very lovely.
I actually think gray hair looks really pretty on younger women. It's the surprising contrast that's so striking - young face (which you have) and gray hair. Very cool.
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Love the new picture, love the t shirt.....you guys are the best.
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How is Mom doing mommy2dex?
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Hey ladies,
I just had my herceptin treatment today with benadryl... is it just me, or does the benadryl injection knock you on your a**?
I've taken bendadryl orally for allergies and it makes me sleepy for a bit. But when I get it in an IV, it hits me like a shot of heroin (not that I'd know what heroin is like) and I am still woozy 8 hours later. It feels like the injectable version is a dozen times stronger.
Or maybe it's the Herceptin?
L.
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Mrs. Cindy,-mom is in her 2nd week of rads. Continuing with the monthly Herceptin. Awaiting results from the heart work up and the BRCA testing.....mabye this week. She is plugging right along. I wrote down the names of the ointments that you and Mrs. Jill put out there a week or so ago and mentioned them to mom. They say that can make anything available to her when needed so.....other than that she is just keeping busy between all of the Dr. appts and work. I still check up on everyone daily and hope all is quiet tonight. Thank you for asking. Til net time, Shannon
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Hello all !
Nice to hear from you all again. Lots going on.
Janet - Hey there ! Nice hearing from you. And.. would love to see that picture ! PM me if you want instructions on how to do this. To answer your question, I am exactly 6 months out from my last chemo, which was December 22. Hair (on my head) started coming back in about 6 weeks after chemo ended - although brows and lashes came in faster for me. I felt comfortable going without the hat toward the end of radiation which was early/mid March. Or course, I got out of the darn hats as soon as I could. It came in flat as a board until just recently when it decided to go insane on me. But, thanks for the compliments.
As for my son.. thanks. And yes, he is his mother's son. If I were a boy, I know exactly what I would be like. Sometimes I almost feel sorry for him. Also, so you know, my 15 year old daughter decided to forgo camp this year. That was fine with us.. the marching band eats those kids alive every year. So, I was OK saving the money. Let us know how things are going with you - your chemo and what you decide in regard to reconstruction!
Cindy - Nice event - although for the record, I never need an excuse to drink wine. Got a glass right next to me now. It's yummy. As for the shirt, I got it at the following place:
Lots of fun stuff there. The shirt was just too Laura to pass up - and if you can cheer up someone going through chemo... then why not?
Speaking of Laura - Gosh.. I think I am getting a little turned on by all the compliments and offers to touch my hair.
OK.. kidding on that. You know, you are not the first person who has mentioned young face/gray hair syndrome and mean that positively. I last got carded for beer when I was 33 - so have always dealt with the looking young thing (and couple that with being short). So.. I think I am going to see where this goes and stay gray. What the hell do I have to lose?
Anyway, as to Benedryl... yes, the IV stuff kicked my ass, but I think the herceptin plays in too. I get the Benedryl orally now, but get the 90 minute dose of herceptin, and it STILL kicks my ass the day I get it. I literally have to sleep it off for like three hours the afternoon I get it. And since you appear to be my tall clone (inside joke), I suspect it is hitting you the same way. Not a whole lot you can do but sleep it off.
Oh.. and by the way, I have found that the Olay daily cleanser with "blemish control" helps keep the zits a little better under control without over drying my face. I use once per day off herceptin weeks and twice per day on herceptin weeks. Herceptin just makes me feel oily. I still get a zit or two, but it is really different than if I did not use it (in which case, I would revisit my teen age years).
Shannon - Great to hear from you ! I had been wondering about you and your Mom. Glad to hear she is doing well. Use those creams! They do help.
Have a great night everyone !
Jill
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Morning Ladies....
Shannon...great to hear mom is doing well. Just let us know if anything pops up or you need help. We are here for you and mom. Give her a big hug from me!
Jill...thanks for the website. You know I don't need any excuse to drink wine either...and my pillow on my bed says it all..."Life's too short to drink CHEAP wine". Since we live so close to Napa its hard to drink plain water. LOL
Kaidog...I could use some Benedryl...haven't slept much since my radiation blasts...the open sores are so painful. I saw a new rad onco doc today (mine is in Spain on vacation) and he prescribed Sulfadiazine to help heal this mess. I told him it was ooozing green and not healing very well. Hopefully this will help it heal. I have completed my regular rad zaps and now only have 5 boosts to go and then I will be done next Tuesday. I can't wait. I thought chemo was hard...this seems to be worse. At least it is for me.
Have a great day...stay cool it will be a HOT day from what Al on the TODAY show says...LOL
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Okay, BIG DAY TODAY! Two weeks from my first TCH and, yes, my hair started to come out. I got rid of it. This really feels like a milestone for me, but it was harder than I expected.
I woke up this morning and ran my fingers through my hair and, hmm, there was a lot of it in my hand. I turned my head upside down, ran my fingers through it, and it was like pulling out loose grass - I just kept shedding and shedding and shedding. It all seemed to be coming out in a spot near my hairline, right smack in the middle of my forehead. I was kind of torn - to buzz or not to buzz? Then I thought that I'd rather not wake up tomorrow morning with a pillow full of hair, and I called our local Aveda salon and had them buzz it. My mom came with me and she was awesome because she brought along a huge bag of scarves from her closet, probably 20 or so. Some of them are really really pretty. I thought I'd hate myself without hair but, weirdly, I don't. I kind of think I look like a Buddhist nun. I find myself thinking longingly of flowing linen robes, incense and rope sandals...
Janet - I did wear the shirt to chemo and one woman stopped me and laughed so hard she had to sit down. It was a hit! I might order a couple more from Zazzle to wear to chemo. They've got some pretty clever ones.
Shannon, I'm glad your mom's doing well, and I hope you are, too!
Jill... OH BABY! Gotta touch that hair. More seriously, I got my B./H. cocktail yesterday at 9 AM and it wasn't until about 9 PM that I finally started feeling normal. I think you're right - it's the Benadryl/Herceptin together that's getting me. I felt pretty good today, except for being a little emotional and weepy about my hair.
At least my face hasn't broken out... yet.
Cruise, I am SORRY about the radiation. A friend told me that it was the worst part of her treatment, worse than chemo. I am counting down the days for you.
L.
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I did it!! I got the picture off my phone and changed my avatar. Can't you see the balding area in the middle of the front of my head???
Sigh.
Love y'all!
Laura
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Hi Laura....Your friend is right...RADs are the worse. Love your new DO...Now you are part of the club....officially LOL
I had my first Boost today and only 4 more. It wasn't as bad as the regular rads...although I woke up this morning with blood all over my nightgown. I had to use peroxide to remove the stains. This is getting really ugly and I hope I can heal now that the other rads are finished.
I am resting for the next few days...this really SUCKS....
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CRUISE: I am so sorry that the rads are treating you so terribly. You're almost finished...keep fighting,( I know that you will) Hey, stop posting new pics every day! You're making me feel like a slacker in the avatar department. Someday I'll get around to it.
Laura: Your picture is really cute too! I know, the whole hair thing was harder than I expected it to be also. I think my big problem was that I couldn't find a wig that I was happy with. Now I'm just happy to have one to wear out, because, I'm not a beautiful bald women.
So today I had some friends over. We're all teachers at different schools so it was good to get together and catch up. The theme of my little soiree was "Life Gave Me Lemons..so I'm making Lemonade!" I had lemonade (naturally) lemonade punch and pink lemonade (for breast cancer of course) and all kinds of lemon snacks - lemon squares, lemon/raspberry cake, lemon meringue pie, etc. It felt good to be able to show people that things are good even as I fight this battle. We all had a good time. Kind of felt like a debutante - as it was the first time a group of people saw me in my wig!
Take care all.
Janet
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Crack, stick it out babe, you're almost done!!!!! But I'm telling you, if I get that bad, I will quit...they told me I was cancer free, have hmmm, 19 more to go...which includes boosts, the techs say this doc likes to do 5-8 of those........so so far nothing..(Knock on wood)...EXCEPT under Big Bertha, which is still a DD...from rubbing the skin under it, it has really irritated it, beet red and itches like mad...........gotta show the doc tomorrow, hope she gives me something for it...........
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Janet - that sounds like a great little get together! Did everyone leave all puckery from all of the lemon? I found Crystal Lite raspberry lemonade the other day, and it is so good.
Deb - definitely mention / show the red areas to your doc, they will probably want to make sure you use that special lotion you got (the one with the gold in it!) or something thicker, like aquafor (be prepared for ick mess). Keep it moisturized, the entire area getting radiation, and you might not have anything. Then again, I broke out in blisters on my last regular treatment, so who knows!
Cindy's photos are great - I love seeing the different views every day! Janet, come on girl, get a photo up!! Wig or no wig .. . though if I can finally post one with my baby bird head, then so can you!
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Hey Ladies....
I have been taking the pictures/avatars with my iPhone and then I email them to my address and save them as an avatar...it seems to be the easiest way to take a pix.
Wow I can really see the shiney head...I hope to take more as the hair grows....I need something to amuse me while I go through this rad crap...
Janet..you had a great party...the lemon snacks sounded yummy....and the support from your friends just can't get any better...
Deb...the last two weeks of rads will be the test....that's when I started to get worse. I PRAY that you don't you have been through enough....
chelev...Cute picture too! We are growing......
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Janet, I WANT TO GO TO YOUR PARTIES! I love lemonade and lemon squares and lemon meringue pie and lemon tarts and lemon curd.... Basically, if it's got lemon, I'm all over it.
Cruise and Chelev, you look great with no hair. Janet, you probably look better than you think you do. In fact... I think we all look pretty darned good.
I walked our dogs this evening and it was cool and a little rainy, and the wind felt soooo good on my scalp. An unexpected benefit! I can't say I'm glad I buzzed it, but there are some rather nice things about not having 15 inches of thick hair on my head.
Now, if my leg hair would just drop off soon, that'd make all of this very bearable.
I am going to bed now! Love and sweet dreams to all!
Laura
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Janet, the party sound like fun. What about some recipes they all sound great. I could use a "When life hands you lemons so make lemonade" party! I think my girlfriends would love it. It a great way to celebrate, and I know just when to spring it on them. I just finished chemo and will start rads in a few weeks. So when I start rads would be perfect timing.
kathy
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Ymmm, Kathy, I want to come! But NY is a little far away.... maybe I should throw my own!
Except that the last thing my rear end needs right now is a lemon square. I realized last night that I am dealing with my stress by eating anything that's not nailed down. I often eat from stress, but this is getting absolutely ridiculous. I really don't want to grow out of my jeans, on top of the baldness and periodic acne.
Okay, I am going to work out, then I am going to have oatmeal for breakfast. No croissants for me.
Have a great day ladies...
Laura
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Laura, I am a stress eater too, but I figure if I have a party to look forward to that I might just be able to keep myself under control till then. I know I have to start walking and working out. So, at work I started parking my car accross campus on nice days. It's more than I was doing, every extra step counts.
Have a great day...enjoy your workout.
kathy
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Hey Kathy, that's a GREAT idea. I'm going to start parking my car at a distance, too. Thanks for the suggestion!
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Laura...I just started shaving my legs after 2 months post chemo....it sure was nice not having to bend or stoop in the shower to shave everyday....the "Va jay jay" is still bald...and I noticed some eyebrows peaking through the skin...it won't be long now before I will look human again and not like an Alien.
Kathy...that's a great way to get extra steps and more exercise in...we all have a habit of circling parking lots to get the closest spot...I will do the same when I go to Costco...
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Ladies -
The events of the day have got my overactive brain twirling. I have a thought I need to assemble. So... unfortunately for you all, this means I am in philosophical mode. As usual, move past to the next post (and someone else post quick!) if you are not interested.
When I heard of the deaths of Michael Jackson and Farrah Fawcett today, my first reaction was sadness, quickly followed by anxiety. These two figures were icons of my youth and teen age years. So, in a sense it is a sad reminder of the passage of time and an age never to be re-visited. Although I had never met these individuals, it was personal because they represented a part of my life - dancing to MJ's "Off the Wall" album as a high schooler, or remembering all those silly boys in my class going nuts over that poster of Farrah (even my younger brother had one of those). It was also a sad reminder that despite the talents God gives, in the end we are all mortal. This especially hit home for me in the case of Farrah Fawcett. Watching her struggle these past couple of years through her brave fight with this insidious disease - and still lose it. Well.. that's enough to make anyone who has been affected by this disease angry.
Then.. oddly... I felt something that I did not expect. I felt... lucky. "What?!", you ask. She has gone mad. Actually no. I know in my case that my prognosis is good. Yes, this year has been no fun and one I never want to repeat. But, think about it... this year (at least for me) has been like having a giant "reset" button on life - dodging a bullet. Use what ever metaphor you like. The point is, we have an understanding of what it means to live like we are dying (which we technically are from the day we are born) - recalibrating to what is important and what isn't.
So.. while we mourn for those individuals we have lost and the lost youth they represent for many of us, let's look forward with the knowledge that there is still a lot of life left and revel in the second chance granted.
OK.. thought assembled. Will post something more mundane in a minute.
Jill
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Good evening to my ladies,
Just stopping in to say a quick hello. Mom had some good results from the heart work up. Doc says she tolerated the chemo very well and things look just as good as they did pre treatment, so that is a bit of good news. We were concerned about the heart function, she has been so out of breath lately. But, seems all is well on that front. The BRCA testing was negative too, so we will have to blame it on some other genetic problem I suppose. But seriously, this was a bit of good news as well. She is begining to experience some burning already from the rads and they are supposed to prescribe some lotion tomorrow so we shall see if that helps any. Other than that things are going well in our little corner of the world.
Hope you all are well tonight. Laura, you look beautiful in your photo and I would say that the first things I notice about you is you smile and your kind eyes. The chemo may have taken your hair, but those are the things it will never touch. Moms is starting to come in a little here and there. It is all white so far, but it is returning slowly. Cindy, you are the prettiest "alien" I have ever seen (and I know some strange folks). Happy that you are almost finished with the rads and I am sure I will have some questions soon. Sorry this part is proving to be difficult for you. Almost better now. Hang in there ladies. Thinking of you all..............Shannon
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Calling all breast cancer sisters ... can you do me a favor? I know this is off the topic and I hope it's okay to post this but...I am trying to win a contest for my son (to meet his idol - Joe Perry, Aerosmith)... all you have to do is click on this link and click on the thumbs up icon to vote for our entry (legit site, legit contest, MOST deserving young man!)... can you please help me? Just trying to bring a little joy into my son's life after all this depressing /chemo stuff... voting is only June 23-26... please vote? It'll only take a second... help me bring joy to this boy!
Thank you so much! P.S. vote as often as you can. lol We are only in second place by about 30 votes and voting ends Friday at 5p!!!
http://www.aeroforceone.com/index.cfm/pk/view/cd/NAA/cdid/1177058/pid/1175576
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Ladies -
Hi again. You all have been busy ! Because I think we could all use something funny, I wanted to tell you about something that happened at work today.
Tomorrow is "Take your child to work day" where I work. My son is going in with me, and they have all kinds of activities planned. Accordingly, they erected a big old tent on the front lawn of our building.
Well... my office is on ground level looking right out at that front lawn. And it is REALLY hot here right now. What this means is that I got a front row seat this morning to watching these young, hunky SHIRTLESS guys put up that tent (we're talking six pack ab material here). Let's just say, my work morale has never been better. I want to float a proposal that in order to improve work place morale (at least for the women), that everyday these guys should be putting up the tent or taking it down. Tent up.. tent down. Easy.
I have not told my husband about this idea yet. But, if I did, it is likely he might demand "Take your husband to work day" such that he can police the situation. So.. think I will keep it to myself.
Anyway, sounds like most of you are doing well.
Janet - Great party idea! It sounds like you are doing great.
Cindy - I hear you on the rads thing. Last couple weeks really suck. Sounds like you warranted the antibiotic cream too. The only thing I can tell you, though, is that you will be AMAZED at how fast your skin heals. Trust me on this one. Now that you are in the boost week, the healing has started. Hang in there lady ! Almost done.
Talk to you all later.
Jill
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Hi Ladies...
Jill...I really know what you meant. It is so hard seeing them passing away. We have been given a second chance to enjoy life and make a difference. Someone on the news commented that those three that passed were OLD, WEAK and SUDDEN...(McMahan, Farrah and Michael) If we look at it...these three were well known celebrities. What about those who pass away each day who are not...we can't forget them either. We can only measure those who touch our lives in one way or another...family, friends and those we know through the media.
Do any of you remember Dr. Jerri Nielsen FitzGerald? She passed away on Wednesday. She was the Dr. who was stationed at the South Pole about 10 years ago. While there she found a lump in her breast and because she was so remote from the rest of the world... she had to perform a biopsy on herself with the help of an electrician/mechanic who was stationed there. Finding that it was malignant she had her chemo drugs flown in and dropped by plane as it was not an option for planes to land because it was too cold. After months and the weather had opened a window of opportunity they got her out of there. She wrote a book which I read a few years ago. She was a very strong woman. She was quoted as saying.."It doesn't matter how or when you die...what matters is How you LIVE..."
That hit it for me yesterday....
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Hi all,
Last A/C done 10 days ago, and while the effect on my stomach - quesy, heartburn- was more so this round, I just keep reminding myself that the A/C is done...and I'm still standing! Yeah!
I meet with the onc on Tuesday to discuss the Taxol/Herceptin - that combination will be weekly for 12 weeks, then the Herceptin for the balance of a year. We're all getting there, and I thank everyone for their thoughts this last round.
Geri
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I am really sorry to hear about Jerry Nielsen Fitzgerald - that was a hell of a story. What a brave woman.
Tomorrow I begin my second cycle of TCH! I'm not looking forward to the week of nausea and fatigue, but I got through it once and dammit, I'll get through it again. My sister is in town to take care of me. I told her to get ready to prepare chicken soup and rice pudding, then watch me pick at it and go back to bed.
Oh, Jill, I'd like the tent crew in my front yard, please. That would really help with the nausea.
Have a great week ladies.
L.
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