Got Cancer? AGAIN????
Comments
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here I am 1st time here.
I was dio 5 yrs ago. lumpectomy on the right side followed by chemo and rad. Then In just 5 yrs, I got it again.
You would think there would be enough meds to kill an elephant in me, and that cancer didnt have a chance.
Yearly check up, guess what, left side. Oh caught early, but it was still there.
Had a double mastectomy on Dec 5th. I Have only been home a week.
1st time I got this I read that if you could make it past 5 yrs you can consider yourself a survisor.
I have considered my self a survisor from the day I heard. YOU HAVE BREAST CANCER. This thing will not get me. 2'xs in 5 yrs. I will not let you get me, breast cancer, I will not let you get me -
WTH! June 2007 DCIS on the right... lumpectomy and radiation... I barely got back on my feet when BAM November 2008 MRI shows 3 suspicious areas... they turned out to be invasive. So, here we go again... had a bi-lateral mastectomy 2 weeks ago (Dec 2).... can it be over now? At first I was pissed... now I just feel grateful it was a Stage 1. I just wish we could have found it all last year.... and done the bi-lateral a year ago.... but they see what they can, test what they can, do what they can...... I'm with grandma8.... I will not let you get me either
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Hello, this is my first time here. I had IDC 2005 3 neg chemo radiation. Dec 8th had mam and they found a spot had biopsy and now I am facing IDC again er+pr-hr2neu-. I am scared to death. I will have surgery Tuesday at 8:00 am bilateral mast. Any advice would be so appreciated.
Thanks
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Hello.
First dx, I was 21, pregnant, DCIS in Left breast 6/92. Even though it was DCIS, it was the size of the small pear and necrotic at the center, also attached to my chest wall. ER+/PR+. Don't know about he HER status...don't remember that one. Had mastectomy at 32 weeks pregant. Started radiation when my son was 10 days old. Found the lump through BSE which I did regularly starting at age 16.
Found the second lump in the right breast the in 1/93 the morning I was leaving to schedule my reconstruction. Went to see my oncologist instead. Same dx, DCIS. Had mastectomy 2/08. No further treatment needed as I caught it so early.
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I'm being treated for the third time.1st time May2002.Mastectomy,6 mo chemo 45 radiation trtmts.Took Arimidex.Almost made 5 yrs,came back in lymph nodes in my neck.surgery,9 wks chemo,took Aromasan.Came back Nov 2008 also in lymph nodes in my neck.Surgery,couldn"t get it all out.Wrapped around nerves & blood vessels.Started rads Dec 11,having 25 trtmts.Then 12 wks chemo.Really hard this time to be optimistic.
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Just like the last poster, I am on my 3rd round of breast cancer and am having a hard time being optimistic. I was first diagnosed in 1/2002, had 2 lymph nodes involved, had a lumpectomy, axil node dissection, 7 months chemo, 35 radiation treatments. Finished the first round 1/2003. 2nd round of breast cancer diagnosed exactly one year after finishing first treatment, this time had a bilateral masectomy and hysterectomy for further cancer prevention. I really thought I was good to go at that point because all my womanly organs were gone and where could it spread to? 4 years of check-ups ensued, every 3 months, which made me think if I got cancer again it would be found early. Noooooo! 3rd breast cancer diagnosis in 1/08 of 5 tumors in chest wall, 3 of them over 2 cms each. Since then I have had 10 months of chemo, concurrent with 25 radiation treatments. The radiation decreased the tumors alot, but in the last month a tumor has been growing rapidly on my trachea. Next week I will have a petscan and catscan to see what is going on. I am getting through this by taking it one day at a time, but as my airway is being obstructed by this lump in my trachea, it makes me wonder what is going to happen next?
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two times for me- first dx was october of 04- ILC - 0.9 cms- negative nodes- 6 weeks of radiation and started on arimidex - august of 05 calcifications noted on mammo- DCIS found on steriotactic biopsy and back for another lumpectomy but this time the tisse was totally benign- no DCIS - no cancer anywhere- the surgeon made them run the path twice until he felt comfortable i was clear- still had 6 more weeks of radiation considering my history and remain on the arimidex- all normal labs and mammo's up until now but believe me there is not a day that i am not depressed -angry- frustrated and scared ____less- just like all of you i continually ask why?? keep the faith ladies-
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twice for me too, it all seems to go in twos for me as I have had cervical cancer twice too!
my first breast was in 2002 with lumpectomy, 9 bouts of chemo and over 30 rads. that was my left breast, then 2 years later in my right another primary no chemo this time just lots of rads again. both receptor negative. 2007 decided to have hyster just to be safe!!! i have no family history of bc, was fit, not overweight had bf all five of my children and also had them at a young age!! just luck of the draw really. now am really tentative when i need to go for yearly check don't want it again thanks!!!!
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1st Diagnosis: DCIS (About 5cm.) with 2 lumpectomies and radiation and 5 years of tamoxifen
2nd Diagnosis: 5 years later (Dec., 2008) : IDC, .9cm, Grade 2, clean margins, ER/PR+, Her2 Neu neg.
My Oncologist says bilateral masectomies; my breast surgeon says just do the radiation.
What do you all say? Just curious! (I think I know your answer.)
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Scaredstraight, It's a hard decision, but I did the mastectomy in 2002 was on Tamoxifen But in 2006 I found a lump on the mastectomy site, it was IDC ER/PR+ her- AGAIN!!! Second time I had full round of aggressive chemo and RADs. So in my case the mastectomy made no difference.
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Hi Gals. New to the club. First dx in Dec. 2007, IDC, lumpectomy. TAC x 6, then Arimidex. I finished rads in Aug. 2008 and had had a clean mammo in June. Went for 6 month mammo f/u in Jan. 2009 and found 2 suspicious spots. Did u/s and had wire biopsies. Positive for cancer. Now I'm plotting a bilat mast.
Scaredstraight--That is such a personal decision. It was difficult to come to my decision, but feel my life is on the line. But I didn't have conflicting advice either. My surgeon recommended a mast for me, I'm opting for a double. I may not have insurance later, and I couldn't stand the waiting for it to invade my other breast. (my recurrence is in the same breast.) Only you know what you can live with or will be second-guessing. After my lumpectomy I worried I wasn't aggressive enough and here I am now 14 months later making the harder decision.
And Karin--what depressing info about getting it again after mast. I thought the most I'd have to fear is mets. Cancer really sucks.
Maz
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First DX August 2004 aged 44. Stage 1 Grade 1 3 x multi focal IDC. Had immediate reconstruction/ skin sparing LD mascectomy. Declined Tamoxifen,
Multi focal recurrence in skin of reconstruction Nov 2007 aged 48. Reconstruction removed. Rads and Tamoxifen.
Dec 2008 had partial tram/diep replacement reconstruction and awaiting surgery to match other boob in!
Nikki
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Seems like everybody did or is doing better than I do.
2004: first dx at 28,right breast, IDC, triple neg, grade 3, 10cmx11cm tumor, 0/22 node. I had mastectomy and axillary clearance, 4 neo-adjuvant FAC, 2 post surgery, 15 rads.
2007: had TRAM-flap.
2008: tested positive for BRCA1
2009: second dx at 33, left breast, IDC, triple neg, grade 3, 2 tumors, 11/30 nodes. I had mastectomy and axillary clearance. Can't check for distant mets because I'm currently 26 weeks pregnant. Will go for c-sec at 30 weeks gestation and chemo abt 2 weeks after that, while my baby is still in the incubator. I also have a 2 1/2 year old daughter who is very attached to me and would cry when I do and would scream and hit anybody who hurts Mommy.
What do I do?
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Marlina, I cannot imagine being pregnant, having a young child and learning of a new diagnosis. What I am wondering is if you have a good support system around you? Family? Friends? Neighbors that might be able to help with your youngest and the other things we normally have to do to give you a break for an hour or two once in awhile?
Have you tried a search thru this forum for others who have been diagnosed while pregnant?
Of course you are worried about your baby and yourself. If you have good trust in your doctor than they will take care of everything to the best of their ability. You are going to have to find a way to calm down, take a deep breath and try not to look too far off at this point. Maybe sometimes try going hour by hour, one step at a time.
Having a second diagnosis is a real slam, I too have had that happen although I was not pregnant. You can do this, it is crappy but you can do this. You know you will need your rest for yourself and the baby and stress is not good for either of you.
Please discuss any concerns you are having with your doctor so that everyone will be able to get thru this difficult time and find some help if you can.
Big hug and stay posting, ok
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New to this but so glad I have found these discussion boards.
I was diagnosed September 2005 with Stage 1, 1.6cm IDC, no nodes, clear margins. I did radiatherapy, tamoxofen for 2.5 years and femara for 1 year.
I have just found another small thickening next to the lumpectomy scar so am off to have a core biopsy done on Wednesday.
Has anyone else experiences a recurrence or new cancer from an original diagnosis of Stage 1? I have always been considered low risk so this is scaring the hell out of me.
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Dear Marlina,
Just wanted you to know about my friend, Julie, whose recurrence of BC (with liver & bone metastasis) showed up during her pregnancy. Her "baby" is 10 years old! I pray that the same will be true for you. I will hold you in my heart.
Love from Pat
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Dear Pat,
That' the best news I've heard in ages!!
I managed to persuade my onco to let me have the c-sec at 32 weeks instead of 30. Chemo will start a month after that. The thing is, I'm triple negative...there's no way to control the ca other than chemo. No hormone theraphy whatsoever...
And this is my second dx, which statistically means, more difficult to manage...
But...liver and bone mets? What did she do, or is still doing, to survive so long? I really would like that 10 years...
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Well, I guess it's all in my sig. The DCIS Double Whammy. Had a lumpectomy last Monday and the BS didn't get a clean margin in one area (this also happened last time) so am looking at a reexcision. But path report confirmed it is DCIS and noninvasive. So thus far, same dx, pathology, and prognosis. It's a little harder this time - I understand it's not a recurrence but it FEELS like one. I'm doing OK but I'm more pissed off this time around. Last time seemed like random bad luck. This time feels more personal.
This time I'll be tested for HER2 and if I'm +, will enter a Phase III clinical trial, which adds Herceptin to the standard radiation tx for DCIS.
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My first cancer showed up while I was pregnant. That baby turned 24 last month. Hang in there!!!
Mandy
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Second time around for me too...a local recurrence the initial DX from 1/2000. Went to two different oncologist B4 starting 25 Rads-have only made it to #15 due to bad skin burn. Going to have a weeks rest, hopefully skin will bouce back. Then it's 5 years of Arimidex. (after 5 of Tamox & 2 of Femora..) Does any of it really work?!? Some days I have my doubts.
All I have to say is LIVE each day to it's fullest and STAY PRESENT, putting one foot in front of the other :-) That's been my Mantra for the past 9 years!
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Am I being completely unreasonable, or is it possible to dodge bullet #3? I was first diagnosed in 1992 at age 31 -- IDC stage 2 lumpectomy rads chemo. Many years of routine visits, then a bleeding nipple in 2007 lead to a new diagnosis -- same breast, IDC, mastectomy, chemo again. Considered a double mastectomy at the time, but somehow couldn't get used to the idea. About a month ago I started having shooting pains in the opposite breast. Mammogram normal, ultrasound normal, but met with my surgeon today and she expressed blood from the nipple. Thinks it could be benign -- possibly a papilloma -- but wants an MRI and biopsy. I'm having a hard time not jumping to conclusions -- doesn't seem possible that it wouldn't be cancer, again, and this time we would be out of options. Eek!
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Wow...that's a lot to deal with...hugs to you! Try to stay positive...
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This is the first time I've seen this thread. I never imagined it would happen again.
I was first dx in Nov. 2004 - IDC, triple negative, BRCA2+, 3 cm, no lymph nodes ... did lumpectomy, chemo (CEF) rads, PBSO,......was positive I had put it behind me. Jan/Feb 209 ... ILC in other breast ... 2 cm, 4 lymph nodes, ER+/PR+/HER-....had bilateral mx, now doing chemo and then rads again....this sucks. I found this harder than first time. Am feeling very dejected and hopeless. This is a new primary according to onc.
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hey you all,
I looked up top and realized I started this thread two years ago..
For those of you who just found out you are re-dx'd again....
first ((((((hugs))))))
second, I did chemo for the second time, adriamycin, Abraxane and Xeloda.(my chemo the first time was CMF) I had rads and was put on Lupron and Femara. I am also on prophylactic Zometa, to prevent bone mets, twice a year.
My hair is shoulder length now.
I managed, somehow, to make it through two separate chemos and rads a lumpectomy, bilateral mastectomy and recon.....
It is emotionally harder, somehow, to do it a second time. But if it helps, I am on the other side now and hanging in!
Big hugs to all,
love
g
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no surrender-
WOW!!!!!!!!!!!!!!!!!! That was a BEAUTIFUL POST and it really made me feel better tonite. Even though no chemo this time-raw, burnt skin is a different type of challenge.
Thank you, Margo1
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No surrender, thanks for your words of encouragement
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hi ladies,
I'v been lurking on this thread for the last couple of weeks. I had a fine needle aspiration of a lump last tuesday. Surgeon said he was going to excise the lump regardless of what is was. Had that done yesturday. Dr. called today and said pathology from aspiration was suspicious and inconclusive at the same time. Now I have to wait another week for that path. report. I'm just 2 years out from initial dx. I don't know if i can do this again. I'm supposed to have recon. on July 8 and haven't said anything to PS yet.
I just don't know which way to turn or what to do. The waiting sucks. God give me strength!
Sherry
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Calling all 2x breast cancer sisters... can you do me a favor? I know this is off the topic and I hope it's okay to post this but...I am trying to win a contest for my son (to meet his idol - Joe Perry, Aerosmith)... all you have to do is click on this link and click on the thumbs up icon to vote for our entry (legit site, legit contest, MOST deserving young man!)... can you please help me? Just trying to bring a little joy into my son's life after all this depressing /chemo stuff... voting is only June 23-26... please vote? It'll only take a second... help me bring joy to this boy!
Thank you so much! P.S. It says you can only vote once, but if you have more than one computer I think you can vote twice.. lol We are only in second place by about 30 votes and voting ends Friday!!!http://www.aeroforceone.com/index.cfm/pk/view/cd/NAA/cdid/1177058/pid/1175576
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holtbolt - I gave it a thumb's up
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Hi Sherry- you're right the waiting is hard. Just try not to get too far ahead of yourself. Deal with one thing at a time. I just had a bilateral after a lumpectomy followed by radiation and tamoxifen in 2001. It was almost harder the second time around because you know what's coming. (But at lease you know the language this time!) I saw my onc yesterday and he is sending me to a bc specialist 3 hours away who wants more scans and another MRI even though the first ones were okay. I was ready to get started with chemo, but now I feel like I'm on hold again and I'm scared of what the next tests might find. I have to keep reeling my imagination back in. I will keep my fingers crossed that your path report comes back okay. Good luck!
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