APRIL Rads Anyone?
Comments
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The PET scan is scheduled for Saturday, June 27, and the doctor appointment to get the results is on July 1.
This seems like a long wait. It is no use worrying. What is there is there. I am praying that this is just another scare. If the worst happens, and it is stage IV BC, we will deal with it on the 1st.
Please pray for us as we wait, and I undergo the scan.
Bette
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Praying hard to hear that everything is fine.
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Bette, will keep praying and will not even entertain the thought of anything bad. I am so happy that you are able to keep it in perspective as stress does no good.
Blessings.
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sending you many prayers!
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Thanks for the prayers! Prayer is what is keeping me going right now.
Really tired right now, four weeks post-rads. Hoping to have the strength to make it to school tonight. Only two classes to go before the final. All my written assignments are done. Just have to study.
Bette
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Prayers still going up. You can do it - I know you can! Only 2 classes left - Yippee! Study in short spurts, taking a power nap in between.
Blessings.
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Bette, I can't believe how calm you are about the whole thing. You just got done chemo & rads, IT CAN'T BE CANCER!!! Let us know when you get results. One sure thing is that you found yourself a great guy to be willing to marry you in the midst of all this. You'll be fine
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Caroline, Thanks for reminding me that I do have a great guy, and he will be at my side no matter what happens. If cancer were going to scare him off, he would be long gone by now.
It is late and I can't sleep. My heart is not so calm this evening.
I made it to class. Only one more to go!
Bette
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Bette, I am praying for you girl! I'm also praying hard for a cure to cancer completely.
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Lainey. Won't it be great if they find the cure in our lifetime?
Today my worry turned into panic. Tom called the doctor, and I am on medication to quiet me down and help me sleep.
It will be such a relief if this is just another scare, but my gut feeling is that it is something.
Bette
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Hi all! I haven't posted since right after finishing rads on April 6th. I am wondering if anyone out there who's been done awhile is still having problems from rads/lumpectomy such as sharp pains, swollen or hot breast and/or some skin peeling?
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Hi Karen43. Many on this thread have only finished a few weeks since we only started in April. I think we would then still have lingering issues such as you describe because the healing process does take some time. I have occasionally felt sharp pains since finishing (May 18th). My breast is not hot nor swollen and I had an easy time with only minor skin darkening; no skin peeling.
Have you also posed your question on the Feb and March 2009 threads where there are probably other sisters who finished about the same time as you? They may be able to give you a better idea of where you fit into the healing process since they would have finished rads around the same time as you did.
But, don't hesitate to ask questions on any threads as someone will be able to assist.
Blessings.
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Karen, I still get twinges in my rad breast. I think it's a combination of the axillary node dissection, lump, chemo and rads. I've been told and continue to remind myself that the pains and twinges I feel is my body healing itself. Think about all the trauma and stress your body has been put through, it's gonna take some time to get back to normal!
Bette, the panic attacks are totally normal and understandable. I'm glad Tom called the doc for you to get something to help you sleep. I'm so sorry you're having to go through this. It' just not fair. I am going to pray extra hard for you today.
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Hi everyone,
Today I had my 30 day post rads and was told I don't have to see the radiation Dr. for 9 months and then that will hopefully be my last with her.
I scheduled three tests and 4 other doctor visits that I've been putting off. It's time to try to get back on a normal schedule. By the end of August I should have all of the visits behind me.
I joined LA Fitness Center and am working for a less chunky body for next Summer.
The last of my 3 children got married last week and now it's time for my hubby and I to enjoy life.
I plan to. Hope you all do too.
God bless you!
Debbie
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Thought I'd log in for a few minutes tonight, but just can't seem to think of anything to say. Farah Fawcett and Michael Jackson on the same day...guess I am just a little stunned. I grew up with both of them. Wow, just so hard to believe.....
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Beth, I know. I was sad to hear that Farrah lost her battle but when I turned on the news last night and heard about MJ, that really stunned me.
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Been watching all the coverage and it still seems so unreal. I think part of what I am feeling/experiencing, is that this is "my generation" and I am starting to realize that I am no longer as young as I used to be. Hurting my back, the bc dx, and stuff like this, and I guess it kinda hits you in the face that death is a possibility and maybe its not so far away anymore. I certainly don't want to dwell on dying, but it's no longer something that doesn't enter my mind. I put my Mom in the nursing home 2 yrs ago and now it's something I have started to think about in regards to myself. Things like what I need to put in place for my kids, and my wishes being documented so I don't live as a vegetable because it is too painful for my kids to let go, or what will they experience if I get dementia too, etc etc. I think I am starting to realize that I am on the downside of life now, that hopefully I have 30 yrs left, but how quickly time passes. I have the feeling one day I will wake up and wonder where the time went?
Well...too much heavy thinking for now. Saw my BS this week, well, her NP, as she had knee surgery. But anyway, she said things looked really good. I guess I go back every six months for a mammo on my right side for two years and I continue to see her every six months for five years. So I don't have a mammo again until just after Xmas. I could have gone in before Xmas, but I didn't want to deal with that anxiety before the holiday. I figure I'll be so busy that I won't really think about the upcoming mammo as much as I would during a different time of year.
I also met with my MO, and he said I'll be seen in Nov, and then every six months after that. I guess I get a blood test when I go in Nov before I see the doc.
I got a card in the mail from my gyn a reminder for an appt I think. He'll be the one monitoring me for any uterine issues due to the tamox, so I am not sure how often I will need to have that checked.
A part of me is so glad that the surgery and the rads are over, a part of me is worried that treatment is basically over except for the tamox and I find myself thinking "what if", and then there is a part of me that is just sooo done with doctors and appts and yet I will never be done I don't think. How very different life is from what it was just a year and a half ago......I want to go back in time....
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I just went back and read the posts, thought I had done that, but guess I didn't. ...
Bette-we all know how stressful waiting can be, that seems to be the worst part in all this. We can deal with dx and tx, but the waiting kills us. July 1st is not too far away, it will be here before you know it. Nothing more touches us April rads group...remember we are woman!
I am so glad you have Tom to be by your side through all this, that must be a great comfort. Maybe a romantic weekend getaway would take your mind off things for a while??
My thoughts are with you as I hope for the time to pass quickly for you and that this is all nothing.....
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I missed out on all the fun because I forgot the ice cream social -- SORRY! It sounds like you all had fun.
Bette -- I'll be praying hard and thinking my best thoughts for you. It's good that you got some meds to help you get through this stressful time.
My rads were finished on June 8th and I feel pretty good. The onc sent me for an MRI about a week ago because of really bad pain in my neck. There's no sign of cancer (whew!), but Monday I will have a CT scan so the spine doc can figure out what's causing the pain.
It is so sad that Farrah and MJ are gone -- unbelievable.
Thinking of all of you....
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Hey I meant to mention...did you guys read about the PARP Inhibitors? Pretty interesting stuff for people with BRAC1 and 2 genes. Here is the article:
www.msnbc.msn.com/id/31512315/ns/health-womens_health/
Also found it in the New England Journal of Medicine but it is pretty wordy. Can't get the cut/paste or link method to work, too long to type lol, so if you go to the main page and type parp inhibitors in the search option, it will pull up the June 24th article.
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Just watched "Farrah's Story" on TV which was probably not a good idea because she had lots of disappointing PET scans.
I am hoping for sleep tonight. The PET scan is at 11:45 AM tomorrow. Not allowed to eat anything after 6:45 AM, so I need to get up early if I want breakfast.
Thanks for all your prayers.
Bette
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That was Farah's Story, not yours ...good luck tomorrow!
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bethaib, you are right.
Did not sleep well last night. Am up getting ready to go. Praying for a clear scan.
Bette
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Bette Sorry you didn't get much sleep...hope the scan went well for you...
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Bette, we are claiming victory that the scan is clear. Remember we are here for you.
I also watched Farrah's Story and was very moved but Bethaib is right, it's not your story. You know how individualized this journey is.
BKokie, sorry you mised the ice cream celebration. It was YUMMY!!!
Blessings.
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The scan is over. Being in the mobile scanner unit reminded me of a jet with the AC on high and the lights down. The scan will be read at Hospital of the University of Penn, where the scanner is based, so we will have no results til Wednesday.
I am very tired, but cannot fall asleep.
Bette
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Bette - I'm thinking about you. Just remember, "independence day" is right around the corner.
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Bette -- you are in my thoughts. Is there any way you can get the scan results sooner than Wednesday? That just seems like a long time to wait when you are so stressed.
Bonnie
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Bonnie, Wednesday is a long way away, it seems. Perhaps they will call me on the phone if it is clear? If the cancer has spread, I don't know if I want to hear it on the phone, though.
Bette
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Bette--Sending you huge thoughts of support and prayer that your scans are good. And if it's okay with you, I'm going to stay in denial that you could have a recurrence so quickly after tx.
Catherine
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