Anyone starting chemo in June 08

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited June 2009

    Gals, done with surgery.  Not out of hopital yet.  That was a doozy.  Will write more later.....Hunkydory

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

     Hunkydory,

    I'm glad your doing well, take it easy!

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Hi Ladies...hope everyone is enjoying the weekend.  So nice to be home for me even though I can't do much of anything for myself yet.  Tram surgery is a big ordeal, I don't care what anyone says.  If they tell you otherwise, tell them they are full of it. 

    Our dog knows that I am laid up so if some food drops at the side of the bed...it's hers for the taking.  She is by my side a lot these days.  Pretty smart dog!  LOL!  I am not very hungry but husband seems to think that is one of his responsibilities now....dietary chef.  I am still on major pain meds and tons of antibx. Can't wait until I can walk NOT stooped over at a 30 degree angle.  Enough about this surgery, anyway, how is everyone doing with summer starting?  We have had rain the last 2 days.  Cloudy again today and 55 degrees. Yesterday last year at this time was my first chemo day.  Hope you gals that are still getting some trts, herceptin, etc. are doing ok with them.  We have all come a long way and still have a long way to go.  Everyone with pain, lumps, mammos, etc....hope your tests come back good.  I will try to keep up a little more.  Didn't keep up very much in hospital. Thanks for all the encouragement too!  It means a lot to me!  Later...HunkyD 

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2009

    HunkyD

    Glad to hear that you are at home, it is always much easier to recuperate at home in your own bed and surroundings.  Sounds like the surgery was pretty rough, sure hope the end result will be well worth it.  You take care, and get plenty of rest.

    Hi to everyone else, hope everyone is doing well and has a good weekend.

    Bonnie

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

    HunkyD,

    Take advantage of the care taking, you'll be on your feet soon enough!  My dog loves it when I'm sick at home, he doesn't have to run after me, just lay on me...

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  • KKing
    KKing Member Posts: 425
    edited June 2009

    HunkyD...glad you are home and have a faithful friend with you.  It sounded like a really rough surgery...what are they saying the length of recovery will take for this and what are the next steps for you??

    Well, two weeks until I am back to work.....can't wait....LOL.   It is a very humid day today and it will be this way for the week.  I don't mind, the sun feels good.

    Hope all the Junies are doing well.  I can't beleive it has been a year since the start of chemo.  At the beginning I didn't know if I would make it through it all but here we all are.

    Cheers to good health.

    Karen

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Karen, I am glad to be home too.  Had to go to ER yesterday afternoon.  Called Doc and he told me to get there pronto.  Had severe swelling in my legs so I spent the afternoon getting ultrasounds up and down my body making sure there where no clots.  Plus another series of blood tests.  Anyway, everthing turned out ok there, so they upped my diuretic concentration and I was ordered support hose to wear that are thigh high.  I look like a walking mummy. Probably worse...5 JP drains hanging out under an abdominal and breast binder.  White cotton nightgown.  You can get the picture.  I am surprised I don't scare the dog!!!   LOL!!   I am going to be off work quite a while I'm afraid.  I am like you...I wondered if I would even be here this year.  I still have one of the worst attitudes of our group, but I am learning to try and at least not zombie out every day about it.  I am up and walking around a bit.  I go to plastic surgeon on wed so will know more then. I know I will have at least one more surgery but that will be a few months down the road.  While you are slaving at work I will be going to appts...etc.  Actually, I hope to start walking again.  I know thats going to be a while yet though so maybe I just better try for a healthy eating habit.  Later all....HunkyD   

    P.S.  ER is quite the zoo on Fathers day Sunday afternoon.  Everything ther from meth heads to illegals.  I shouldn't be so rude about it but I am.      

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  • Wyoming
    Wyoming Member Posts: 381
    edited June 2009

    HunkyD You have gone through a lot in the last couple of days. Keep your sense of humor. My dog is by my side always hoping for a drop of food. She loves it when the grandbabies are around as they drop a lot of food. She is a food whore. HAHA. I don't think you have a bad attitude. I laugh at what you say and enjoy your point of view.

    Junies we have come a long way. I didn't think I would make it this far. We need to keep our conversations going and share our stories. OK enough of seriousness.

    Hope everyone has a good week.

    Wyoming

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2009

    Wyoming, I think you are right we should all stick together and keep in touch as to what is going on with our lives as things can change later on, and hopefully nothing does except for good things of course.  I finally go for an ultrasound on Thursday for a lump the doc found on my last checkup under my arm on the same side as my mastectomy.  I am hoping it is just something from the surgery.  Always seems to be something, it is like I want to say stop looking but I guess that would be a little stupid.  Oh well, better go now I am overtired and will start rattling off.

    Everyone take care

    Bonnie

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    I am with you gals on hanging around here.  This is my safe refuge.  Maybe I just don't have as close a network of friends as other people.  It seems like those of us that have had cancer, and are living with the disease just seem to "get it!"  Not any of my closest friends really understand, and I don't really expect them too.  I would just as soon been spilling my guts to you all.  I have always felt since my diagnosis that this disease would certainly take me at some point.  No one knows for sure when or how one might really expire though.  My dream is by all means for a cure, but more realistically, a humane way to treat late stage cancer and keep a person living with good quality of life...like diabetes for example.   OK, so that was my somber gut spill for this week!  LOL!   

    Bonnie...good luck on Thursday.  If you have any meds for mental anxiety...I would use them while you have to wait.  Leggyj....so glad you had good news.  On the topic of dogs...wolfie(sp?) is so much smaller than our dog.  I would be physically crushed if ours laid on me.  Wyoming...I laughed so hard about your dog being a food whore.  That is what ours is too.  What a coincidence.  I think there are a lot them out there.  Kelly...good luck with your decision on reconstruction.  If you ever have a question, feel free to ask or PM me.  I can answer you as to what I know thus far regarding the types of recon I am going through.  A consult with some plastic surgeons would certainly be my recommendation.  Bonnie, same goes for you.  I know you have other things on your mind right now.  Three whole days at home with husband.  My husband never takes off work.  He is really busting his butt being a caretaker.  Not a vacation for him by any means. I know he can't wait to get back to his real job.  By the way, before last surgery I had haircut #2.  Can you believe it?  I just had back and sides trimmed.  Nothing off the top or bangs.  I am going to wait for a while now and next time have a big blast of more blonde foil highlights put in it.  I am still doing my eyebrows on a daily basis however.  I think next time I will have them waxed and totally reshaped if they ever grow all the way in.  Enough chatter from me.  HunkyD   

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  • Wyoming
    Wyoming Member Posts: 381
    edited June 2009

    I'm ready to have my #2 trim also. Not on bangs but the rest shaped up. It seems to have slowed down growing or maybe I can't see it. I'm actually getting bed head. I didn't think I would ever be excited about that. LOL Eyebrows are still in need of the pencil. Eyelashes are about 1/2 the length they were.

    Good luck to everyone who has tests coming up. I'm in agreement with HunkyD as to take anti anxiety meds. Might as well sleep well.

    HunkyD, I share you sentiment about this being a "safe refuge" and I also would rather vent, talk, and discuss to all of you. My friends really don't understand the reality that this disease will most like  take my life. Enough somber thoughts.

     Enough rambling. Everyone take care and think good thoughts.

    Wyoming

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  • Kellke
    Kellke Member Posts: 424
    edited June 2009

    I only have a few close friends I can be normal with.  I am mostly sick of thinking about cancer.  They tend to be so overly careful about what they say that I feel like I also have to be careful so they don't worry.  In my head the cancer is always there but I don't let it stop me from making other plans etc. 

    If anything, it has freed me up to say I am tired I am going to bed at 8:30 or made me more likely to plan trips and things I would have put off previously.  But I love listening in and talking with you all because we have all been going through this together.  I wish I would win the lottery then we could all get together and visit in person...

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2009

    Kellke I think that is a wonderful idea that we could all visit in person, now all we have to do is one of us win the lottery. Do you know how many years I have tried to win, don't think there is much chance (but maybe).

    I find this is the only place I can really say how I feel because people just don't understand how you feel and how you are thinking. In the back of your mind no matter how hard you try there is always that what if.  I know my friends and relatives just say oh think positive and that will work, well that is pretty hard some times. Though I don't say it to them, I just say yes I do think positive smile and change the subject.

    Everyone have a good day.

    Bonnie (one of these days I am going to put up a proper picture of me)Tongue out

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  • Wyoming
    Wyoming Member Posts: 381
    edited June 2009

    Kelly and Bonnie you said exactly what I also feel and think. I do like that I can say I need to nap without apologizing. I too have planned trips and events that I might not have done right a way. I say that I think positive but there are days when it gets me down.

    I keep playing the lottery. I have to go out of state to get my ticket. If I win we will all get together. (Keep dreaming) I don't have the best luck.

    When I get a good picture of myself I will upload it.

    I never know how to end my talk so I will say Good Day!

    Wyoming

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

    Hi all,

    Still waiting for CYP test, and then I don't see my Onc. for about 4months.  So I'm going to try and not freak out anymore about the pain in my shoulders and ribs...Went to see a really good movie last weekend, called Easy Virtue.  Love it!!!  Colin Firth is in it and I just love him.

    LeggiJ 

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  • KKing
    KKing Member Posts: 425
    edited June 2009

    hey LeggyJ ..what is a CYP test...maybe I am just dumb but I don't know that.

    I agree with all of you... I love coming here to read what everyone is doing and to let you know how things are with me.   I feel like you will always be my sisters and maybe one day someone will win that lottery and we can hang out.   I always know you guys will understand, no matter what is written.  

    Bonnie.. keep my fingers crossed that it is scar tissue.

    concerning hair..yes I just had my second trim...it was becoming a puff ball so  she trimmed it down.  Now, I think I will let it go and see how long I can go before I cut it.   HunkyD... highlights sound like a good idea for the summer.

    Wyoming... what is with the eyebrows...or lack of them.  I am still using a pencil to show I have them. 

    You all take care. 

    Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

    Hi KKing,

    My Onc. had me take a genetic test, to see how I metabolize Tamoxifen, which I need to take for three to five years.  Tamoxifen has a lot of SE, so no point in taking it if it's not working.

    Just finished work and my shoulders and ribs are killing me, but I have to go take Wolfie for a walk...

    Bye all,

    Leggyj 

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited June 2009

    Oh, the test is called CYP2D6, and it's a blood test, results take about 7 days.

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  • Bonnie02
    Bonnie02 Member Posts: 193
    edited June 2009

    Well everyone went for my ultrasound today to see what the lump was under my arm and the radiologist said he is pretty sure it is  scar tissue. Boy what a relieve, feels like someone took 10 pounds off of me (but I checked the scales they didn't lol)

    Bonnie

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited June 2009

    Bonnie, that is GREAT NEWS!  So happy for you. You are going to sleep well tonight.  Or, maybe celebrate.  HunkyD

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  • Wyoming
    Wyoming Member Posts: 381
    edited June 2009

    Bonnie great news. That damn scale just won't cooperate.

    LeggyJ what does the CYP2D6 test for? Is it the genetic test for Tamoxifen?

    HunkyD how are you feeling? When do you get your drains out? Are you walking upright? And now for the most important question-is your tummy flat? HAHAHA I hope it isn't too sore.

    Karen send a picture of hair.

    Kelly how is everything going with you?

    I will be gone this weekend as my hubby drew a moose permit over in Kemmerer, Wy so we are going there. He is scouting and I relaxing. JC Penney started his company there so I will go to see that. Kemmerer is on the other side of Wyoming about 6-8 drive. Should be relaxing and fun.

    Have a great weekend

    Wyoming

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Wyoming...I got the last of the drains out yesterday.  I am still a little sore.  Let's put it this way....if the police saw me walking down the sidewalk, I would be arrested for public intoxication or something.  Just going to take a while.  We did take a nice drive today up to a mountain lake.  I got out for just a small walk.  Husband is going back to work tomorrow so I am on my own.  Belly is definately flat, but it is definately sore too.  Still wearing a binder around it.  What is neat is the no bra deal and having some teen boobs. One more surgery to go to tweek everything but that wont be for about 3 months.  Hope you have a good time with hubby.  My hubby would love to get moose permit.  Isn't that once in a lifetime?  I don't know.  You just rest and have a great time.  HunkyD 

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  • Kellke
    Kellke Member Posts: 424
    edited June 2009

    Hi guys, major drama here!  Well~ not really but on a lighter note...

      I have been trying to step out of my comfort zone ever since the whole cancer thing started so I invited my partners and their families over for dinner on sunday.  Then feeling foolishly confident I also invited our corporate head and his wife.  Now I am panicing because I am not good at entertaining and my husband burns everything on the grill.  Yikes!!

    Lucky for me, my mother is visiting this weekend and is great at entertaining so I am going to recruit her to help me.  That is why I am up at 2 in the morning watching infomercials and searching "easy backyard entertaining"      :)      I know it might be silly to worry about this but I am a worrier and can't stop freaking out about it.  14 adults and 7 kids is way above my normal capabilities.  Tomorrow I will head to sams club and investigate my options. 

    Why do I do these dumb things?       ugh     Kelly

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited June 2009

    Kelly, that is a pretty big crowd but with with moms help you will pull it off.  Kids will eat anything and I have never heard of too many adults that don't enjoy bbqued burgers, steak, chicken, or even grilled k-bobs that includes your vegies as well.  I don't know.  My husband loves to grill so I never have to worry about that end of it.  Have fun, and don't stress. Hope for good weather, get everyone hungry, and you've got it made.  Just love your new avatar...can't remember if I told you before.  Have fun...HunkyD 

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  • Wyoming
    Wyoming Member Posts: 381
    edited June 2009

    Kelly how did dinner go? I bet everything was wonderful and everyone had a great time. Good for you to go outside your comfort zone. I think every one should try to do that at least once in a lifetime.

    Kemmerer, where hubby got his moose permit is a nice place. A lot of history. Had a good time.

    It is hot here. Doing laundry good thing I have air.

    Take care

    Wyoming

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  • hunkydory
    hunkydory Member Posts: 1,241
    edited May 2011

    Hi all my June Groupies...Happy Cananda Day? (I think) and I hope today finds you all without pain.  I, however am still in quite a bit of pain from this surgery.  I have been sleeping at least 12 hours a day.  I guess I'm catching up from all the sleep time I missed at the hospital.  Wyoming, glad you had fun on your trip.  See you are a teacher... I learned the origin of JC Penneys.  Hope you are doing well with your trts.  It has been warm here also, in the high 80's. Hope you get to see those grandbabies again soon.  I can't imagine how much they have grown.  I remember seeing their pictures when they were just wee little ones last year.  Kelly, hope your dinner was a good one.  Karen, do you start work next week or was it this week?  It really will be a change for you.  My boss emails me a lot with questions, and did today but I slept in until 3:30pm.  Really weird.  Body is healing I guess. I will have to email him back tonight.  Leggy, I was never given the tamoxifen metabolizer test.  I just pop the little pill every day and pray it does its job.  I think I will be on it for 2 years then switch to an aromatase inhibitor.  I see my onc Tues. for 3 month check up next week......yuk!!  One thing about it...I won't be getting much of a breast exam I don't think. I am trying not to think about it now.  I go to PS on Monday also. 

    I want some new living room furniture. I am waiting until I can walk upright for at least 20 minutes, and through the large furniture store we have in town.  I guess I could sit down and rest in there, LOL!  Maybe by next week I will feel up to it.  Husband has been taking me on short walks at night.  Bonnie...quick shout out to you....hope you are doing OK.  Better go now.  Son is cooking dinner for us tonight.  What a treat.  Later to all!  HunkyD

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  • Kellke
    Kellke Member Posts: 424
    edited July 2009

    Hi everyone,   my get together was a success.  I chickened out and had it catered.  They made it and dropped it off on warmers so all I had to do was set out plates etc.  It was great.  Not too expensive either, I probably would have spent more buying a lot of stuff at sams club.  So I will do it again later this summer.  Thanks for all the good wishes.

    On to my next stretch... hubby wants to go camping and fishing by saratoga wyoming.  I said I would go if I can approve the cabins website first.  :)   I will let you know how it goes.  My 7 year old is so excited about having s'mores.  :)           

    Hunky I am sorry you are still hurting.  It will go by quickly and this time next year you will be glad you had it done.  Remember it has been over a year since we all started this thread.  Kelly

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  • Wyoming
    Wyoming Member Posts: 381
    edited July 2009

    Kelly Saratoga has the most private jets in the State as there is a great golf course. Around Saratoga is some pretty country. Good idea about having dinner catered. I'm sure it took a lot of stress off you.

    HunkyD keep up the walks. Keep sleeping as it lets your body heal. I have slept the last couple of days myself and I haven't had surgery. Go ahead to the furniture store and lay down on the couches. You can say you want to see if is comfortable to watch TV. LOL.

    Karen how has work been?

    Bonnie how have you been?

    I'm off to have blood taken.

    Wyoming

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  • KKing
    KKing Member Posts: 425
    edited July 2009

    HunkyD..sorry your are having pain but like Kelly said..when we are all talking next year you will be feeling wonderful.  Great that you are able to go out on the walks.

    Kelly...we are going camping in three weeks...sleeping on an air bed with hubby and two dogs...we go to Killbear park in Parry Sound...it is beautiful there..I can't wait.

    Wyoming...hoping good things for you and the blood test is all good.

    Actually, I start on Monday...three days a week for two weeks.  Then 2 weeks holiday.  Then through August I work up to full time again.  Will let you know how it goes.  Going to enjoy the next couple of days of freedom.

    To all the other Junies...hope all is well.  

    Karen

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  • LeggyJ
    LeggyJ Member Posts: 726
    edited July 2009

    Hope everyone is doing well!  Happy 4th of July!  I'll be able to watch the fireworks, from my front porch, and plan on staying home and resting.  My work week, has been busy, which is good for the company I work for, but I'm really DAT.  Monday, I see my surgeon's NP, for an exam.  She's supposed to be the best, and see's breasts all day.  My rads. doctor recommended I see someone, every three months, someone other than and including my onc.  My surgeon said she's good at taking on our worries...good luck there.  HUNKYD, I'm glad your doing much better, you sound better.

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