Spiritual/Christian Thread

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  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005

    Pat, you're so right. The bond we have with the cancer patients is unbelievable! I wonder, do they feel this bond for us, as strongly as we feel it for them? It is so hard to describe, isn't it? It's just there, and it makes your heart feel so full with compassion, and love, like you've never felt before. It's so hard for me to put into words, I know you understand tho. It's a blessing to be back at work now, and I hope we never lose this bond we feel for oncology patients. It's truly a blessing to be able to feel so deeply, it's so intense, and we know we're alive! I remember when I had severe depression in my 20's, I felt nothing, like a vaccum had come in and sucked all emotion from me, no anger, no joy, no happiness, fear, absolutely nothing. It was such a horrible feeling. Now, I am abundantly blessed with emotions, some good, some not so good (like my menopausal irritatibliity) LOL Life is good. I was at Springfest in P'cola last night, before work, and I realized that during chemo, all I could think was "I hope I don't have to wear a bandanna to Springfest this year. I hope my hair has grown out enough by then to go bare headed. It's just so hot this time of year, being outside all day with my head covered seemed unbearably hot" well, sitting there listening to Cheap Trick, I realized I had lost my bandanna exactly 2 months ago! and I've dyed my hair again, recently! Life is good, God is good, that's for sure. I know it seems ridiculous, but just knowing how much I longed for the spring to come, and to be able to go to Springfest this year, maybe appearing normal again, that was a my goal, my dream and to realize I had far exceeded it, OMG how wonderful! truly wonderful. And the fact that I went in and was able to work 8 hours afterwards, who would have dreamed it? Not me, for sure. Now, I'll be stiff, sore, cranky and tired, bloated and whiney when I get up this evening. LOL But right now, coming in from work, all I can say is life is good, and thank you Lord for wading thru this with me. Your grace has seen me thru so much.

  • NPat
    NPat Member Posts: 485
    edited May 2005
    Rachel,

    I am sooo happy you had a great time. I spent this weekend with our son in Tallahassee. Just 13 months ago he called me unexpectedly late one night (the day I was diagnosed... was going to wait until the weekend to tell him and his sister)... anyway... when I answered the phone he asked, "Mom, are you OK?" I was taken by surprise and had to tell him in a disjointed fashion that I had breast cancer. He cried and cried and finally said that he was calling the campus minister to pray with him.

    The year has passed and I am also back to work... the weather was gorgeous and though we spent Saturday getting groceries and doing laundry... we were together and I was well again! We capped off the day with the new Star Wars movie and then went to church today... I enjoyed so much being in his presence and remembering that I was advised to abort him 21 years ago because of heavy bleeding but refused and sought another opinion. What miracles God performs when we trust in Him!

    Pat
  • Kathy_Verett
    Kathy_Verett Member Posts: 38
    edited May 2005
    Carol,
    Congratulations on the house; sounds wonderful and perfect for your family. I always look for a house with a yard for kids to play. We live in a very good neighborhood for walking and bike riding.

    "Much Ado About Nothing" IS Shakespeare! Ha! My daughters love it, too. That is usually what I start with in class. We do some history of the Globe theater, the customs and traditions of the times, and the beliefs of the people. I have them write a sonnet and we talk about ballads, too. Then, we watch "Much Ado About Nothing"; followed by reading it in parts. Over the years, we have done MacBeth, Hamlet, King Lear, A Midsummer Night's Dream, A Comedy of Errors, Merchant of Venice, and Taming of the Shrew. The kids really do enjoy the class for the most part. I had one girl that got an attitude, but my percentage is still good. Our public library has a 1936 version of A Midsummer Night's Dream with Mickey Rooney playing Puck. He was a kid and it is really a good production, black and white, but good considering the technology of the time. The newer movie of Hamlet is good, too. The Taming of the Shrew with Richard Burton and Elizabeth Taylor is classic; so much like their real-life story I think.

    As for the weight thing, I know all the facts about food, it is just a matter of putting too much in my mouth. I need to practice more self-control. I just need people to ask me now and then if I am staying on track or indulging. I don't know if you have heard about the Weigh Down Workshop, but the founder, Gwen Shamblin, got to the real problem of overeating. She tromped on my toes, but she says that we make food an idol. I do that in so many ways - comfort, feeling that it is so important that I cannot waste it, and indulging in the sensual side of food. Anyway, I try to not eat unless I'm truly hungry and eat moderately. I also try to work out three times a week at the gym. I was going to do that this morning, but scheduling things got in the way and I'm using my gym time to hang out on the boards.

    How was your check-up? I go to the PT today to get measured for another LE sleeve. It is getting hot here and I'm trying to stay cool. It was 99 on Saturday and 101 yesterday; that's hot for May in Texas. It usually doesn't get to 100 until June, then it stays that way until September.

    Where do you live? You mention Mexico, so I am guessing that you must live somewhat close to the border.

    Rachel and Pat,

    I am a nurse and reading your posts makes me want to jump back into work. I am currently home-schooling my two kids 16 and 14, so I can't do that right now, but I am making plans for the next few years. I could probably do part time in a couple of years. I might need to do that for college at that point, too. So far we've only had to pay for college for one at a time, but these last two are closer together. My oldest has just graduated from nursing school and is moving to Lubbock to work in a level I trauma ER. She moves in June 3rd and starts work the 6th. My son is getting a job with an ambulance service; he is an intermediate EMT and trying to get into medical school. Please pray for him that he will be yielded to God and obedient to His calling. I think that God has called him to be a medical missionary, but he has to know that. I can't tell him what God has for him; he has to hear God for himself.

    God bless your day!
    Kathy
  • NPat
    NPat Member Posts: 485
    edited May 2005
    Kathy,
    When you do return to nursing, you will be such a blessing to your patients! I saw a new patient today with a BC history and she was able to communicate her fears and expressed her thanks to God that He arranged the appointment with me... she didn't know my history before coming to our office. The doc saw her husband and I saw her. We shared how this whole trial has made our faith stronger and rearranged priorities. We must daily lift up our children that they will hear the call of God in their lives. I pray this everyday.
    Be blessed this week!
    Pat
  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005
    Pat, what a bittersweet memory, 13 months ago. And what a wonderful testimony you have, in so many ways. Imagine, being told to abort him, cuz he wouldn't have made it etc. Little do they/we know. God is certainly good.

    Kathy, are you thinking of doing oncology when you go back to work? I bet you would love it so much that you'd do it for free (better not tell them, they'd try it)Between your spiritual and physical witness to those patients, they would surely be blessed. Thanks again for the lovely reply during my frenzy yesterday morning. I am soo soo sooo glad that I tore up those pages of hurtful words. Imagine, the devil telling my pride that if I tore them up it meant I was afraid of confrontation! Don't he know me well??? LOL I am gonna look up that part of Peter and see what it says, bet I can guess. Is it about how dangerous our tongue can be??? My son and I have had that conversation so many times, and bless his soul, he has the same issues that his father and I had. Luckily, he isn't violent, and hopefully will never be. He was mortified when I signed him up for football. He just couldn't come to terms with hurting someone, and he's basically that way today. He is like 5ft 9 inches now, and not 13 yet. I love the show The Contender, and asked him about boxing someday, and same answer, "no Mom, I just can't hurt anybody". So, he may have inherited our flaws, he also inherited out big hearts. LOL Okay, going to bed. Had a great night at work, I am blessed beyond belief, just have amnesia about it sometimes. Nite.
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    Kathy,
    Thanks for the "congrats". I was wondering where you were. We will be beginning our move this "Memorial Day" weekend. It will be a memory maker. I am going to be so glad to put this little apartment behind me. It screams of cancer treatment memories!

    I am going to rent some of those movies and watch them. I'll be talking with you about them.

    The weight thing - I have a friend, a very, very dear lady who does that with food. She really does idolize it. She is such a caring person, and I think really doesn't get enough TLC for herself. Always giving. I think food is just her subconscious way of getting something back, or something. It is very hard for her. I'm encouraging her, and asking her how she is doing at least a couple of times a week, and it is helping her get motivated.

    Kathy, get out and walk, EVERY DAY, two times a day. I started gaining weight, I think because of the Arimidex. Just a few pounds, but I'm not eating much, not enough to cause weight gain. So, I figure that if I walk, more and more, then I probably won't gain weight, might even lose a little. If I walk even more, then I can eat more. Yes!!!! I like that idea. Also, I want to do my part to win the battle against breast cancer, and exercise is on the list.

    Plus, you know, though I was a missionary, and still am, I am so very imperfect. Funny, I say I was a missionary and people get this idea formed in their heads that I'm, uh, just, I don't know, just different than who I am. I have so many faults and imperfections, my tongue being my worst enemy. So, anyway, I have prayed and begged God to help me with this, and I have found that walking really helps. It's a self control thing, I guess. And when I feel frustrated, I walk. I talk to God about what's bothering me. This morning I took a paper on which I had printed up Psalm 34, and worked on memorizing it as I walked, which wasn't difficult because the first 4 verses I already know as a song. It struck me this morning, saying that verse over and over, "I will extol the Lord; his praise will awlays be on my lips." Well, I thought, if indeed I make it my intent for His praise to always be on my lips, then other it will be impossible for other words to be there too. Make sense?

    Anyway, sorry for rambling. I didn't get enough sleep last night.

    I have my first PT appointment this morning, actually in another hour, so I gotta get off this board, huh? I'm gonna have to hurry, I see.

    Anyway, I live in Salem, Oregon. Not close to the border at all. It takes us about 48 hours of driving time to get to our place in Mexico. Where we will be going next month.

    Well, best go. Got lots more to share. About what we might be doing here, now that we're not going to be going to be living in Mexico full time.

    Well, just let me say - we had a board meeting the other day for our non-profit organization that we have, and discussed our possible options for ministry here. We are going to keep involved in our church, my husband leads worship, and he's going to be starting a Sunday night service, teaching through the book of Luke. I'm going to be taking over the children's ministry there. (Aren't many kids now, but watch out, it'll grow. I love kids, and love teaching them, and involving myself in their lives, soccer games, etc. That's what it takes, love.) And then, we're going to get involved in the Union Gospel Mission here, and also I'm considering mentoring ladies in the women's prison, at least I'll be visiting one lady, a friend of a friend of mine, who is in there for 6 months. I want to test the waters in many areas, and see what works. I'm just not afraid of people, and love them, and so want to test different areas. I've always wondered about visiting people in prison. I have a friend, a nurse, who works in the ladies prison.
    Anyway, and then, I have been involved with a place here, where we get help for our handicapped boy, and they like me there and are encouraging me to start up a support group here in Salem. There is nothing, nothing, nothing for parents of handicapped children to connect with each other, no support system at all. So, I am going to research and see what I can do. Maybe I can help, maybe not.
    I'm just open to letting God stretch me, and use me, however He will. His strength is mine, he can equip me to do His will, to help people, to love people. To point them to Him.
    Well, gotta rush.
    I'm so glad to hear from you. Thought I'd lost ya.
    Please, go for a walk today. I will check up on you and ask you. Don't worry about the food. Just WALK. K?
    Caroltina (Carol)
  • Kathy_Verett
    Kathy_Verett Member Posts: 38
    edited May 2005
    Carol, Rachel, and Pat,

    I did 2.25 miles in thirty minutes today on the elliptical trainer and did arm weights, too. I have really been working on getting my pulse back in the sixties as a resting heart rate. It was in the nineties post chemo and that really bothered me. It has always been in the sixties as far back as I can remember. Heart disease is the thing that runs in our family and I do not want to do anything that will cause problems.

    If you are renting movies, Enchanted April is a good one, too. It appeals to older audiences that have experienced some of life beyond the teen years. We watched Napoleon Dynamite the other day just to see what the kids were quoting all the time. It is so stupid that it is funny. I would not recommend it as "good" movie; just the result of some kids making their own movie and it grew into this production. The kids love it, though.

    There are so many ministry opportunities available. I can see why it would have been a temptation for Jesus to take the whole earth and make it work the way it was intended to instead of listening to His father and dying for all of us instead. I have to be careful to hear God telling me the things He wants me to be involved in because Kathy wants to fix things and get them going. We currently have a woman living with us and we are trying to get her to the point of seeing what God would have her do with her life. She is a believer and has been hurt, but tries to stay in the past instead of moving on. We have a small group that meets at our house on Sunday night for a simple meal, sometimes Bible study and encouragement, but always spend time in prayer. My husband alternates with another man teaching our Sunday school class. We have an open home where a lot of casual ministry takes place. We try to make this our way of life instead of having a compartmentalized life.

    I can so relate to the tongue thing. We tried a home church group for a couple of years or so and I did not do well with that. I seemed to be in conflict with the leaders almost constantly. I do not consider myself to be a contentious person, but I will not tolerate what I believe to be wrong. My husband wanted to do this and I tried to be submissive and go along. However, I went kicking and screaming. I could not buy into their view of this group being the "true church" and others just did not "get it" like they did. It was a very arrogant and elitist attitude from my perspective and they weren't used to a woman speaking out like I did. After we left that group and became involved in our current church, my husband came home one day and said he found a book he thought I could relate to - Redefining the Strong-Willed Woman! It is by Cynthia Tobias and it is very good. It helped me understand me. I found out why I could offend someone and not mean to at all.

    Anyway, I've got to take my daughter to piano. Enough rambling for now.

    God bless your day!
    Kathy
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    Hey, I've seen that movie "Napoleon Dynamite" with my husband, daughter, and pastor (who is an old time friend, for 35 years). I felt sorry for the guy, so wasn't as humored by it. What I did find humorous was watching all of them laugh so hard at everything. Now, that was funny! I'll have to check that book out. Thanks for sharing. I had a good pt visit. I posted about it. I'm glad you are walking. Keep up the good work. My pulse was high through chemo, too, and was high before, too, but not as bad. Maybe the walking will help? I hope so.
    Yeah, I could just get involved and more involved in things, without knowing for sure which way to go. That's why I'm just testing the waters at this point, and asking people to pray, and praying, that God will guide and equip us, and help us know for sure what He has for us. It's good that you are so involved in sharing your lives. Be careful with the lady living with you. I'm sure it's fine, but, that's what happened with our daughter. Shared her home with her best friend who needed help, and her two children, and poof, her husband fell, and now they are divorced. We thought it would be no problem, and were in favor of helping her. It is not wise, though. None of us ever thought anything like that would happen, or could happen, to them. They were very happily married. So we thought. Don't be weird, or anything, but do be wise. K? I hate saying that. But, oh well, you know where I'm coming from.
    Got to let my hubby have this computer now.
    Woops. Went passed my time.
    TTYL
    Carol
  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005
    I really enjoy reading everyone's posts. I so look forward to what you all say, it is so helpful to me. Just wanted to tell you, I've found if I don't say something when I feel it, the moment passes, and well...how can that person ever know what impact they are making on my life? Course, saying something when I feel it kinda backfires when you're really upset!!! LOL Carol, walking, as self control, influencing our tongues seems like a great idea. I will have to try it, and SOON TOO!
    Has anyone ever thought about how women seem to have such a hard time with their tongues, even more so then men? I don't want to sound terrible, but I've talked to my husband about this many times. It seems like we are bascially the trouble makers of this world, we seem to be tempted to gossip more than men, we are definitely much more difficult to work with in the work place than men (I don't believe hormones are the reason), etc etc. I've noticed it time and again, our tongues and temptation to brew trouble ...I tend to think that it's related to Eve, the trouble she brewed up in the Garden of Eden, became tempted by satan, and talked Adam into giving in to temptation too. (I don't mean Adam wasn't responsible for what he did, he made the choice, please don't misunderstand what I mean). You know how the Bible talks about women suffering when in childbirth? something along those lines? I wonder if our tendancies and temptations are related back to Eve? I hope this made some sense, and didn't sound insane. LOL I tend to get stuff confused from the Bible, and never remember the exact phrases or where it came from. I would never mean to imply that we are doomed to repeat Eve's mistakes, or that it's a curse. I guess what I mean is that we will struggle with these issues as a result of her actions.

    Anyways, gotta get back to work. Will look forward to the next posts from you all, they are so uplifting and full of information. God bless each of you.
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    Hi there, Rachel. Glad you could identify with me, and my tongue. I understand what you mean about Eve. You are right, in a way. But you know what, it really was the devil who was the one behind the whole thing, tempting her. She was the first to sin, for sure, though, and then man. The Bible says somewhere that woman is the weaker. However, they did both choose. Oh, where is that? I could find it. The Bible says that Eve was deceived, and so she was punished for her sin. But, it says that Adam sinned with his eyes wide open, knowing exactly what he was doing, intending to do it. He was even more accountable for what he did than she was. If you're interested I can find that for you. Anyway, because of them we all are born with sinful natures, even a little child, you can see that selfish nature in them. Me first! Listen to me! It's just human nature. We all have it. That's why we need a redeemer, a perfect redeemer, and that's why none of us can be that redeemer. The only one born without that sinful nature was Jesus, (as well as that He chose to never sin, was always perfect) whose father is God, and who is himself God. That's why He could pay the price, the penalty for our sin - because He was and is perfect, holy, the perfect lamb of God. Isn't that great?

    I don't know about you, but this cancer garbage has made me feel like a horrible sinner, which I am. After my surgery, when I thought I was going to die any day, I was scared to death (oh, what a play on words!). I was so scared, thought that death would just be dark, emptiness. Scared, even though a month before that, and all my life, I had such faith in God, and trust in Him.
    Anyway, I was scared, too, of, well, that I wouldn't be accepted by God, because of how grumpy and, well, it's a bad word, but, the b word, you know b - i - t __ __ y.
    Rrrr. Funny. I don't swear, you know, too good for that.
    Confession is, that when I get upset, with my dear hubby (who can really pull my strings, and I his) I let come out of my mouth quite a flow of such words. Ohh, how I don't want that, but how it still happens. Just does.

    I have felt, how on earth, dear God, can You continue to forgive this horrible habit I have, of blurting out such garbage, when I'm upset, or hurt? How?

    Then, after treatment sometime, it occurred to me to look at Jesus. He, upon the cross, with what upon Him? Awwww, yes, my SIN. That was right up there with Him. He took it upon Him. So now when I think about my sin, which I feel like the worst sinner in the world when I let myself yield to my mouth, I try to get a grip, and look at that sin, up there with Him, and ask Him to forgive me and think about that, and know that this is what He died for.

    And yes, I've asked Him to help me get a grip on this bad quality of my personality. He didn't just pay the price for me, so I could just keep on in that, but so that I would be free from it. And I want to be free from that. I want that more than anything. I do not want to go the rest of my life giving in to that. I want to be done with that.

    Now how is that for a TRUE CONFESSION. No, it's not some horrible thing, like adultery, or murder, or pornography, or drugs, or whatever. But, somehow, it sure made me feel like just the worst sinner in the world. Totally unacceptible, unforgiveable. I would never tell anyone else that they were the worst sinner in the world for that, if they told me this. But, for me, I just felt HORRIBLE!

    This walking has really helped me. When I feel a stressful situation about to occur, if possible, I sneak away and walk. It is so good! And pray, or sing, or just listen to whatever I hear. I feel so good, like maybe I'm on to something. Maybe I'm going to get a grip on this. I really and truly PRAISE GOD for this hope. He is so good, isn't He?

    And the verse came to my mind (don't know where it's found - should, but don't) "If it be possible, as much as lieth within you (garsh, King James Version is stuck in my memory) live peaceably with all men. (IF IT BE POSSIBLE) Guess that includes my hubby, huh? He's the only person I've ever in my life talked to like I do, swearing and stuff. The ones we love the most, they are the ones we are most vulnerable to show our worst side, isn't it true? I get so sensitive, and hurt so easily, and react, and then he reacts, and then, back and forth, until, those words come out. Those horrible words!

    Garsh, I feel so vulnerable sharing all this. But, oh well. It's probably good to make myself vulnerable. Maybe it will help someone. Maybe not. But, I'm sure you'll pray for me, and I value that a lot.

    But, whether I fail again or not, I know something now that I didn't know. Should have. Thought I did. But, I didn't, not like I do now. Thing is, I'm forgiven. Always will be. He saw to that. I'm so glad I know that!

    Let's keep encouraging each other, and building each other up. K?

    Caroltina
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    Kathy,
    My daughter said she also saw A Midsummer Night's Dream, but that she didn't like it, because she didn't understand the plot. She said something about someone turning into a donkey or something. She would like to understand the plot, and thinks she would probably like it if she understood it. Can you help? I think she saw a newer version of it.
    Caroltina
  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005
    Carol, isn't it the absolute most infuriating thing when you realize what you've said or done, and would have never ever done this under normal circumstances? My mouth is my very very worst enemy. So many times if only I stopped and thought rationally, and simply asked the Lord what He'd have me do, that would be the end of it, and I'd never take it a step further. My husband and I are extreme opposites and he generally is very thoughtful before he says something (maybe that's why I was livid when I read his journal the other night, it was so out of character to hear him talk or think like that). LOL Yes, one would HOPE that taught me a lesson, but ..... with me, you just never know. When I first met him 4 years ago, I did the same thing, found a journal he kept a year before I even knew him, read it, and got my feelings hurt, felt like he would never love me like he had loved the person he was writing about....Can you believe what a repeat offender I am? I told him what I did, and in a way of apology, I bought him this nice leather bound journal that I so secretly read the other night. 4 years later, and still acting a fool. I tell him straight out, how nosy I am, put passwords on anything like that if it's in the computer... and I really mean it, keep me out of temptation. I didn't tell him about the other night, never brought up what I'd read, and thanks to Kathy, I saw that he was a being a decent person, but not keeping his feelings stuffed inside and not venting to me, or someone in our lives, just writing it all down in there. A much safer, more mature option. Thank God for good advice and compassionate friends. Gonna get in bed, have a good day ladies.
  • NPat
    NPat Member Posts: 485
    edited May 2005
    I got a new Leslie Sansone walking tape... 4 miles in 45 minutes and then a 15 minute toning session... very good! The media is relaying today about the 50% reduction in recurrence of BC with 30 min of exercise daily... Hmm... we are responsible for or bodies aren't we?
    I gotta go... got charts to do and I want to walk tonight before it gets too late.
    Be blessed sisters,
    Pat
  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005
    Pat, I hadn't heard of this walking tape, but glad you recommended it. I will try to find it. I need to get going so bad. How I hope that survey is correct and the exercise will cut recurrence by 50%. That's as good as treatment! does it mean I can stop my Tamoxifen if I start walking every day????? Oh how we wish that was the case. Walking is another opportunity to regain some control over this disease, empower ourselves. Do you think it matters if we walk that long or longer, but in shorter spurts like 10 or 15 min @ a time?
  • Kathy_Verett
    Kathy_Verett Member Posts: 38
    edited May 2005
    Pat and Rachel,

    Wow, Pat, 4 miles in 45 minutes is hooking it! I am working hard to get 2 miles in 28 minutes. I read that walking 30 minutes a day at a rate of 2 to 2.9 mph was enough. I'm pushing my heart rate into the 140's to try for more cardio fitness. I think chemo really did a number on our bodies.

    God bless your day!
    Kathy
  • Kathy_Verett
    Kathy_Verett Member Posts: 38
    edited May 2005
    Carol,

    The plot for A Midsummer Night's Dream is that Theseus, the duke of Athens, is getting married. As part of the celebration, a group of working men decide to put on a play and go into the woods to rehearse. As a subplot, Hermia is in love with Lysander, but her father wants her to marry Demetrius. Helena, Hermia's friend is in love with Demetrius. This foursome are out in the woods as well, because Hermia and Lysander are running away from her father. Puck is a mischievous little fairy imp who casts spells on people for amusement. There is a whole host of fairies in the woods that night. The play is convoluted, but it is such a good comedy. I have not seen the later version. Hope this helps. My husband and son just came through the room while I had the Shakespeare book down to see how to spell the names for you. They said why are you quoting Shakespeare on the breast cancer site? My son said what does that have to do with breast cancer? When I told my husband it was just women and we find out about each other besides breast cancer he said that was right. He is amazed at what I can find out about people just by talking to them. He calls me Nosey-Rosey because there is not much I will not ask, although I don't think I'm rude. There is a fine line. Anyway, need to go to bed; I'm going to chemo with a friend tomorrow and her chemo lasts six hours.

    God bless your day!
    Kathy
  • Roxwooood
    Roxwooood Member Posts: 102
    edited May 2005

    I'm taking large doses of C0 Q10 to help my cardiac function. I read a few years ago that they did a study on it's effectiveness with heart failure, and there were patients on the waiting list for heart transplants, given huge doses of this, cuz they had nothing to lose, the traditional medicine wasn't winning the war being waged against their hearts. In most of the people, they saw a huge improvement, and since reading that about 8 years ago, I've noticed it's become one of the hot things to use/take. I found no side effects or risks involved with it, had taken it for a year or two back then, but it got expensive. Has either one of you heard anything like this about it? I wish I could recall the source of the study I read, it seemed pretty credible at the time. I had that mild congestive heart failure stuff on my echo, but I am still sustaining my cardiac output/function. I wish I had the report with me right now, so I could type out what it said. I believe that in time my heart will regain what it lost with chemo, if I act wisely. My ejection fraction was 59% prior to the chemo. I don't know if I'm in denial or what, but I just don't want to go have a PET scan, or another MUGA scan or CT scan. I want to live in faith that I'm gonna be fine for years, and it seems like if I request these tests, that I am searching for "proof" that I am healed. Or am I just running from the possibility of having results that I simply don't want to deal with? I think the devil would have me believe that I am weak and in denial, afraid of what the tests may reveal. It's always some kind of war going on inside us isn't it? I think until I really feel lead to do otherwise, I'm gonna leave good enough alone. I prayed for my onc's wisdom, he is a wonderful man, and I feel hand picked by God. He is pretty conservative with tests etc. and once realizing his thinking behind it, I agree. He'd order any tests that I wanted, if it "would make you feel better". LOL How much more agreeable could the man be? I love him. I can have any of these tests done where I work absolutely free (except for the radiologists reading fee) but money wasn't the issue. What is your all's thoughts on this?

  • Kathy_Verett
    Kathy_Verett Member Posts: 38
    edited May 2005
    Rachel,

    I don't know about CO Q10, but I do know about exercising. I have proven that to myself. The heart is a muscle and the more workout we give it the stronger it will be, within reason, of course. I have read Dr. Ken Cooper's books and I was faithful in running in my early 20's before I had kids. I have had a weight problem most of my life. I had been walking before I was diagnosed, trying to get in 2 miles in less than thirty minutes. My knees and current weight make it hard to run very much. I don't know if I will ever run again, but walking can give me a good workout. Given your original ejection fraction, I think it could be improved with exercise that is consistent and moderate. Cardio three times a week and milder forms three to four times a week would do it. It will take a month or so for you to notice improvement, but I bet it will happen. I just got back from the gym as I type this. I try to let my arm cool down before showering, so it is a good time to be on the boards. When I went to radiation, it was all I could do to walk from the parking lot to the radiation area. I pushed myself to try to get faster everyday and it worked. As I got in better shape and my blood counts rose, I could definitely feel the difference. It felt good.

    God bless your day!
    Kathy
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    Kathy,

    Thanks for the info. I'll have to watch the movie now.

    I think men just don't understand women. We like to share stuff, and like to connect with other women. Men don't much like to share all their stuff. I mean, watch two men together, or listen them, and what do they talk about? They talk a lot, sometimes, but not usually in regards to relationships or mistakes they've made, but mostly about their jobs or accomplishments or something. We always amaze them when we can know so much about each other, so quickly, without maybe even having met each other.

    Anyway, I had my first day yesterday, volunteering. I posted a little about it under "moving beyond cancer".

    Caroltina
  • NPat
    NPat Member Posts: 485
    edited May 2005
    Rachel,
    I think 15 minutes a day is better than nothing. We have to keep moving. I like the 4 mile tapes because I can always stop at any point if I need to and do the cool down. I just found out that the nurse of one of my surgeons is moving down the street and she walks 2-4 miles a day. I told her to come by and nag me to go with her. We have to keep this temple in shape.
    Pat
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited May 2005
    I was thumming through a bible of mine the other day - the bible I used when going through treatment, I'm reading in another one now. Anyway, I came across some verses that I had underlined, dated Oct.15, 2004, and said "Started chemo. Feel horrible, burning, fear, crying out to God - I don't want to be doing this! Help!" I wrote that, by these verses - - Psalm 20:1-5 Actually those verses don't ring out too much, I suppose, just reading them. But I remember that dark moment, and how God used those verses to speak deep into my heart, and give me hope. They still do that, as I read over them again, now. Key words in those verses- - in day of trouble - - Lord be with you - - send aid - - remember with pleasure - - grant heart's desire - - news of victory - - answer your prayers.
    God is good. He is always near to those who cry out to Him.
    He hears, and answers.
    Caroltina
  • Heidi521
    Heidi521 Member Posts: 46
    edited May 2005
    Caroltina-our diagnosises came at almost the same time-I was diagnosed on Oct 11, 2004! I also really just turned it over to the Lord. I read a great book and reread, The Red Sea Rules. It is 10 chapters, very small and explains that we are right where the Lord wants us to be and is a comparison to the Istraelites being sved by crossing the red sea. It shows that no matter how hopeless we feel the Lord will take care of us. Some days it is easier not to remember that and try to take this all on ourselves.
    You were the second person yesterday to comment on Phil 4:13. I have run into that verse so many times on this journey it is unreal! Heidi
  • Roxwooood
    Roxwooood Member Posts: 102
    edited June 2005
    Kathy, Carol, Pat, you have convinced me that I must make time for walking/exercise. Thanks so much, I will definitely try. I am have decided to try to drink at least a gallon of water daily too. I love water, not a problem usually, just remembering to do so. One thing about chemo, it really zaps your taste for water a while, I hated that the worst. Kathy, as you said, my heart is a muscle, it can and will become stronger with use and exercise. What a convincing statement, if ever there was one! Just like my legs and arms, my heart can become stronger and more effective with proper use. We must take care of our temple, that's right Pat. In a way, it's not really ours to abuse anyways. LOL

    The verses that sustained me during chemo was about the Lord never leaving me or forsaking me. It kept me sane. I remember once just crying out, "Lord this is so hard" and I lifted up my hands to Him. It was if I could feel Jesus's hand take mine, and I knew it would be ok. It's real hard to explain, but it was a turning point for me, and one of my best memories with chemo. I guess I had forgotten that I actually needed to tell Him how hard it was, duh. How we forget how much He really cares about such simple things, let alone the big ones. I'm grateful to be at work and signing on this morning. Life is good.

    There is someone missing from the boards that I have gotten more concerned about. I don't know that she would be comfortable with me broadcasting her name on here, but would you please remember one of our sisters in prayer? She has just dropped out of sight, even her very best friend has had no contact with her for weeks now, and that's quite unusual.
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited June 2005
    Heidi,
    Actually my diagnosis was much earlier. I had surgery September 13. Then started chemo October 15. When was your surgery, and when did you start chemo? What are your stats? lymph nodes? etc.? Mine are: bilateral mastectomy, grade 3 tumor, 14+ lymph nodes, 100% estrogen positive.

    I will check into that book. Sounds very good. I love the OT.

    Caroltina
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited June 2005
    Rachel,
    Sorry. I was going to give my opinion on that, and see that I never did. Thing is, I don't know. I have a brother-in-law who is a heart surgeon. He is a very busy person, and we hardly ever do talk to him, but the next time I talk to him I should ask him about this for you. We probably will be talking to him in the next week or so.
    About the test, you know, I think I would do it. But, we are all so different. I'm into tests these days. Just had the ultrasound of my uterus, ovaries, and now tomorrow going for colonoscopy. I want them all to be good and free of cancer, and hope they will be, and will feel so good to know that. I have this wrap around my arm now, and it is DRIVING ME CRAZY!!!! And, I can't eat all day. I'd edgy! Have a headache, haven't had one of those in a long time. What can I do about all of this? Yeah, well, I know, and I will, give it to the Lord. Drink lots of water, read my bible, and talk to God about it all.
    Good to be like minded with you all.
    Caroltina
  • NPat
    NPat Member Posts: 485
    edited June 2005
    Just finished my "temple molding" (exercise). I have gotten back in the habit so I actually look forward to it and it isn't such a chore. This has been a good week. Able to "stoke the spiritual coals" of a few patients. So many times when we meet adversity... the question is "Why, God?" But God has often been left out of the mix until the crisis has occurred. He loves us and wants a RELATIONSHIP. My husband's favorite gospel song is Dottie Peeples..."He's an On-time God"..."He's not there when yah want Him. He's there when yah need Him. He's right on time!" He is ALWAYS there because we always need Him but we use Him like an "on-call God". This whole BC adventure has certainly reinforced the desire God has for open communication with us. I got the book, "Give Me 40 Days for Healing" by Freeda Bowers when I started chemo... it is a 40 day prayer journal and very powerful. I have recommended it to several patients and fellow church members. Freeda (a pastor's wife) prefaces the book with her own need for healing through prayer during a tough time in her life. Each day has a lesson and prayer focus. The reader then reflects on the lesson and applied it to his/her own situation through journalling. I have been able to read back over last year and see how God has brought me through each day and I have become so much more aware of His love for me. I have shared with each of my physicians that I pray for them daily. One has told me how much that means to him... the others have been silent but that is OK. We are the messenger, not the Savior. Sisters, to those we encounter, we are a visible manifestation of God's love when we testify about how He continues to bring us through our trials... even if we are bald, chunky and, like me, have LE garments. The curiosity is there, "How can you praise God when you have had breast cancer?" For me that is a door wide open and I have no trouble sharing the provisions given me because I am His.
    Sisters, may your joyous hearts doeth good like a medicine!!!
    Pat
  • Carolina9943
    Carolina9943 Member Posts: 40
    edited June 2005
    HEIDI,
    I FOUND THIS ON THE WEB:

    The Red Sea Rules - Review
    The Red Sea Rules by Robert J. Morgan

    I found this book sitting in the basket of books in the bathroom. So it started off as a "bathroom book" but it eventually made its way to my book bag, and then onto the side of this blog. I think its short, easy to read chapters drew me in. Here is my review of this book:

    Summary: The Red Sea Rules is a short study on the situation that the Israelites found themselves in on the shores of the Red Sea. It uses this story and the lessons to apply them to today's situations. All of us find ourselves in tough situations from time to time.

    The book, which is full of great quotes and some excellent short story illustrations begins with this quote from C.H. Mackintosh:

    The sea was before them, Pharaoh's hosts behind them, and the mountains around them. And all this, be it observed, permitted and ordered of God.


    Ultimately, we all need to recognize this truth. God is and always will be in control of the situation. And His purposes are good.

    Here are the rules that are outlined in the book:

    Rule 1 - Realize that God means you to be where you are.
    Rule 2 - Be more concerned for God's glory than for your relief.
    Rule 3 - Acknowledge your enemy, but keep your eyes on the Lord.
    Rule 4 - Pray!
    Rule 5 - Stay calm and confident, and give God time to work.
    Rule 6 - When unsure, just take the next logical step by faith.
    Rule 7 - Envision God's enveloping presence.
    Rule 8 - Trust God to deliver in His own unique way.
    Rule 9 - View your current crisis as a faith builder for the future.
    Rule 10 - Don't forget to praise Him.

    My Thoughts: I thought this book was a great read. As I mentioned before, the short chapters made this book easy to read, but those short chapters were full of really good content.

    I always love books that are full of quotes. The work of this author compiling the wisdom of several other authors is both enlightening and enjoyable.

    Sometimes when books like this are written, I feel like they are trying to pull a point out of thin air. But I didn't feel that way about this book. The Bible tells us that the things that happened to those people in the Old Testament, happened as an example for us. Sometimes the example is what to do, sometimes it is what not to do. But ultimately, these things happen as an example of who God is, and how He works with us.



    TO ALL YOU GALS:
    I THINK WE OUGHT TO GET A COPY OF THIS BOOK AND READ IT. I JUST CHECKED ON E-BAY, AND THERE ARE LOTS OF COPIES OF THIS BOOK, REAL CHEAP. I'M GETTING MY COPY TODAY! LOOKS LIKE A VERY, VERY GOOD BOOK!

    CAROLTINA
  • Roxwooood
    Roxwooood Member Posts: 102
    edited June 2005

    Caroltina, I am gonna go look for this book right now on Amazon, I love that site. That sounds like a great book, and reading your words right now, feel like they were meant for me. I have a co-worker, Pam who does housekeeping in our unit, that may have lost her job due to harassment, and unjustified claims by a secretary in our unit, who is known for being mean and ugly to people. Pam has 3 small kids, and just so happens that Tuesday night, she shared a little with me, and told me she had prayed for her job, the Lord had given it to her, and the devil wasn't gonna ruin her, or make her retailiate, she was set on doing the right thing, and ignoring the crap basically. Well, on Wedneday, she was suspended...and probably will be fired Monday if it didn't occur Friday. Everyone is in shock, we had no idea what was being done or said against her, she doesn't gossip or complain. I believe God sent her to talk to me Tuesday night, so I'd be aware of what was going on. Otherwise, nobody would have known, secrets @ work, nobody allowed to tell anything when someone is fired, etc. So, anyways, I am real upset for her, and the sad thing is, we don't know her phone number or how to contact her. It's against policy to give an employees number out. So, several of us got together and wrote our feelings down, and this will be presented to her main boss Monday. As it turned out, the boss that is 4 levels up from her immediate boss was there last night, isn't God good??? And of course, he was glad I talked to him, and told him how upset we were, that Pam was nothing but excellent in her work. I have been her supervisor, as the co-ordinator of my unit for 9 months before being off with bc. All of us have written up a complaint that she has been dismissed, and we have emphasized that she is nothing but excellent, quietly goes about her job, anticipates what you need done, you NEVER have to ask her! So, I guess upper management may not be real happy with us, but that's what we did, and I want you all to please pray for her to get her job back. I think the devil is testing her faith. How ironic, that it happened the very next night. She told me "Rachel, sometimes how you react to something is more important than anything you can say to them. Your actions speak louder than words." I know we were meant to have this conversation, the Lord was wrapped up in all of it. Sadly,she's not in the phone book. I don't know what church she goes to, so I sent word by her co-workers in housekeeping that if anyone knows her phone number, please call her and tell her we are trying to get her job back. I also made copies of all of the wonderful things we wrote about her, so that the evidence won't "disappear". It's not the first time that someone has been falsely accused of something by ONE person, and got fired, without a proper investigation. I am so proud of one of my coworkers, she is so red neck, like me...LOL but so much braver. She actually spit it out, and told the truth on the matter. The woman who caused Pam to lose her job is racist, and hates Pam cuz she is black. (all of us are white that wrote the letters). So, thanks for listening, please pray for Pam, that God will bless her with peace, and to keep the faith. She is being tested, but I know her faith is strong.

  • Carolina9943
    Carolina9943 Member Posts: 40
    edited June 2005
    There, I bought the book, for $5, including postage. Got it used on e-bay.
    About your co-worker - yes, it is against policy and probably the law to give out phone numbers of employees. I think it is o.k., though, if they specifically give you permission to do so. So, they could give your phone number to her, and she could call you back. Do you think they anyone there, who is in a position to do so, would do that for you?
    btw - I didn't write that review, I just copied it off the internet, from what someone else wrote who had read the book.

    Caroltina
  • Heidi521
    Heidi521 Member Posts: 46
    edited June 2005
    Caroltina-wow our diagnosis is close. I had bilateral surgery, grade 3 tumor, 3 nodes+ ER+70% and her2neu+++.
    Thank you so much for posting that about the Red Sea Rules. I read a chapter when I feel that "scared of the unknown" feeling creep in. It is more like a guide for me.
    Rachel-that is some story. You are such a good person thinking of others.
    I hope you all have a good weekend. Heidi

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