I WANT MY MOJO BACK!

Hi Barbe.  Thanks for the warning. I've done so much reading the past couple of days that I know the estriol poses the same risks as any other estrogen product.  I would rather a doc. order estrogen level and 2:16 ratio tests and Rx an estrogen vaginal cream to resolve this issue.  And then retest in a couple of months.  I just don't think my docs are going to help me.  I am so ready to start a more penetrating relationship with my DH again. And, well, he's never not been ready.  I just don't see any other way except a little local estrogen for a while.  Even tho I don't want to, if I have to do it myself I will.  At the same time, I don't want to take any unnecessary risks if the stuff doesn't even work.

Ok Ladies, here's what I found out at my PCP appt. today.  He of course didn't want to do any estrogen products without checking with onc.  I told him onc would say no according to his PA.  So PCP calls him on the spot and had quite a lengthy discussion about quality of life, treating the whole patient, etc.  So, Onc said yes IF I try a silicone lubricant called Pink first.  He said I could find in any any sex store.  Not.  I went on line and the cheapest place I found it (in various size containers) was at cheaplubes.com.  Onc said it has to be the silicone based and not the water based.  Pink comes in both. He said a patient told him about it and it worked really well for her.  I ordered and it should be here for the weekend.  I'll let you all know how it works as far as atrophy and tearing is concerned.  

Barbe, you know what's worse?  My onc knew right where one is located.

Yes you are!

Not to worry Barbe.  I've seen your posts and I know how you roll.  I love a scathing wit.

I'm still laughing that there is a site called cheap lubes.  Wonder how many people come across it looking to get their car worked on.  Barbe you know I love your sense of humor. 

Firni, happy your PCP went to bat for quality of life for you.  

Barb, I LOVE your sense of humor and look forward to it everyday!!  Why all the sighs today?  You OK??

Mick is still bothering you!  I wish you could blast him away!  Hope you feel better.

I know, I just WISH they could so yo would feel better!

I hope you find some!

(I waited 3 months to see a specialist, then they bumped it another month. I finally saw him and he wanted a second ultrasound (2 months later!) then followup. If I was a man, I bet he would have had it out by now. I am on 24/7 pain meds! He did say he would have had me in surgery based on my first ultrasound except my CT scan didn't think it was that big! So take it out anyway! I liken it to looking at a can of Coke. If you look from above, it looks smaller than if you look at it from the side.)

I still think an afternoon of gently rolling around in the sheets with my DH and a lot of petting going on would be a wonderful therapy! Unfortunately, my DH just "isn't that into me" anymore...sigh. (brain tumors) So I take my physical contact when and where I can. I have him put lotion on my scars and have him rub my back and feet. At least I get some human touch!

Barbe, it sounds like you need to scream, yell, pi$$, moan, complain and cry to get anything done with this stone.  Don't they think it would have been easier to treat 6 months ago?  Damn doctors. No one should have to wait 3 months to see a specialist.  It's insane that you have deal with this neglect on top of everything else.   Maybe you can talk DH into a nice front and back body rub.

When she is ready, I hope we will see Mena back. In the meantime, she should be proud of her legacy.

I will never get any work done today.  I'm loving this thread and mesmerized by Mena and her love of life.  I'm going to have to read the whole thread, this is great!  Sending some love her way......

Lisa

Mizsissy,

I have a feeling you are very lucky to call her your friend.  I cant wait to read them all! I dont know how I missed this thread since joining this board. My heart aches and smiles for you both!

Lisa