Appt w/ Oncologist - what to ask/ expect?

My best advice to you, is take a good note taker with you!  Your onc. will give you the information you need, and it's very difficult to remember everything, much less understand it. 

Your onc may be screening you for BRCA (if you haven't already been screened.) If you do have risk factors, they may refer you to a genetics counselor, usually found at major institutions, who are the experts in this area.

You may want to refresh your memory about your family history of certain cancers.  In some families, this can be more complex than you would think. (My grandmother, who had breast cancer, had only sons, so of course they didn't want to remember anything about those 'female problems', particularly in the 1950s.) The most important features they would want to see is who in your family has had breast cancer, and at what age (trying to find if it was premenopausal or post menopausal), or  ovarian cancer.  In some families, they purposefully/incorrectly hear the cancer origin, so for ovarian cancer they may call it stomach cancer.

"A woman’s lifetime risk of developing breast and/or ovarian cancer is greatly increased if she inherits a harmful mutation in BRCA1 or BRCA2. Such a woman has an increased risk of developing breast and/or ovarian cancer at an early age (before menopause) and often has multiple, close family members who have been diagnosed with these diseases. Harmful BRCA1 mutations may also increase a woman’s risk of developing cervical, uterine, pancreatic, and colon cancer (1, 2). Harmful BRCA2 mutations may additionally increase the risk of pancreatic cancer, stomach cancer, gallbladder and bile duct cancer, and melanoma (3).

Men with harmful BRCA1 mutations also have an increased risk of breast cancer and, possibly, of pancreatic cancer, testicular cancer, and early-onset prostate cancer. However, male breast cancer, pancreatic cancer, and prostate cancer appear to be more strongly associated with BRCA2 gene mutations (2–4).

The likelihood that a breast and/or ovarian cancer is associated with a harmful mutation in BRCA1 or BRCA2 is highest in families with a history of multiple cases of breast cancer, cases of both breast and ovarian cancer, one or more family members with two primary cancers (original tumors that develop at different sites in the body), or an Ashkenazi (Eastern European) Jewish background (see Question 6). However, not every woman in such families carries a harmful BRCA1 or BRCA2 mutation, and not every cancer in such families is linked to a harmful mutation in one of these genes. Furthermore, not every woman who has a harmful BRCA1 or BRCA2 mutation will develop breast and/or ovarian cancer" http://www.cancer.gov/cancertopics/factsheet/risk/brca

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Other than the biopsies, have you had surgery yet?  Has your surgeon talked to you about the type of surgery he/she is considering? What size is your tumor? Is it confined or has it spread? Please provide us with a little more information so that we can better help you.

Ask for copies of all your test results and final surgery reports. I have found it very helpful to read through this information and to have copies to take to the various doctors I am seeing.

My biopsy showed ADH but it turned out I had DCIS throughout the entire breast and I had a mastectomy.  At first the BS planned a lumpectomy but then a 2nd review of my mammogram found a 2nd questionable area. The 2nd biopsy also said ADH. Surgeon said my choice was either 2 golf ball sized lumpectomies that would leave me pretty mangled or a mastectomy. Luckily, I went with the mastectomy as DCIS was found.

My surgeon said to think of ADH as a stage before cancer. Biopsies only take a few slivers of tissue and could completely miss the cancer that is sitting nearby which is what happened in my case.