MAY 2009 Rads
Comments
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I know!!! Here I thought, oooh, goody, I'm done with chemo, let's rev up the body and feel good! Take those vitamins and supplements, pick up the weights, break out the exercise videos and go go go. Until the rad onc say, "oh, you don't want to do that just yet" and it was like someone pulled the rug out from under me. I'm counting the weeks until I am done, and then will start this all over again - and nobody better tell me not to this time!
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BKokie yippee for you! So some day it does end huh??? I can't wait!
Debonthelake My Rad Onc was okay with me losing weight and weight training and exercising. Because I continued to do all the exercise through chemo (well some exercise
) she was okay with it. They also are using xrays of my bony mass to line me up so the techs said it didn't matter how the outside changed so much because they are lining up the insides. So just check with your doctor we all want to do the right thing we've done so much so far.
I really appreciate having the two day respite from treatment, I feel like it builds up everyday and I'm sort of sore by the end of the week. I have #19 down with 14 to go the last eight I think are boosts and localized. I'm a touch pink but I don't think by breast is anymore uncomfortable than it has been since surgery and chemo. My arm is sort of numb from the lymph node removal and the breast was twingy during chemo so I'm just trying to cream and ignore it.
All you ladies with young children deserve a special salute. I can't imagine how hard it is to try and be "happy mommy" and carry on. I had a hard enough time just working and taking care of me. I truly admire your strength!
I've got some housework to do and gardening, but I really want to rest too. I think we need to rest our bodies and prepare for the week ahead. I'm just trying to remember that everyday I get closer to the end!
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ddlatt: chia head!! LOL! I am going to use that term!
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Hey Radiators, Now I equate Radiators to Gladiators. I have always been a worrier of sorts. When I was young and in acting I wanted to do a Conan movie with Arnold Schwarzenegger. Now I would like to get up a flight of stairs. I can not post the picture in text from my photo library without publishing it first to the web, is that correct? I will just show you on my avatar for now.
I am 1/3 done 11 out of 33. So Debonthelake aka CRACK! I am still with you sister.
I am a little sore and get a few stabbing pains in effected breast. Still tired but in a much better place than last week. (Mentally) The weather has been very overcast for the last 2 weeks and the plants are loving it. I am grateful that is is not real hot yet. I hope it stays cool until I can go in the pool.
Hope everyone is diggen there weekend.
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kathy, LOVE the avatar!! That's what I feel like too!
Going to go lay in the little kidde pool we bought for the dogs, but they won't use it (afraid of the water, Pekingese are not water dogs) so we do in the summer. 94 today, and it feels like every degree! Of course, slathered myself silly with this wonderful sunblock milk I bought in England, SPF 40 - usually only use it on my face and chest, and use 15 on the rest of me, but not today. Then, to make sure I'm really covered, have a thin white t-shirt on too. Now, I'll lay in the pool, listening to the stereo from the rock speakers, with a cold lemonaide and my wide brimmed sun hat. Trying to cool the pinkness, ease the breast tenderness and just pretend its a normal summer day!
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Wow Bold, VavaVoom!! I never looked like that! What a shape!!
Judy
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Morning Radettes...
Belinda....The Calendula Cream I found is made by California Baby it can be purchased at Target or on it's website...www.californiababy.com. I bought the cream and use it and its wonderful...no staining...it is a white based cream. Also bought their Aloe Vera Cream....I also have Miaderm that the rad nurse gave me a sample of...just about the same effect as Calendula cream. It sure helps with this diaper rash I have under my boob.
Jess...good for you...going out of the hat closet....doesn't it feel good? Wait until summer hits and we start getting hair....I think about staying BALD.....just for the summer of course.
Bkokie....YEAH..you are done and no peeling that is fantastic...you are blessed!!! Now go on with life and enjoy your FREEDOM.......
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Bold, Cruise is Crack...LOL, will let her explain that one if she has the nerve to do it again....bahahahhahahaha.............
Cruise aka Crack! uh don't know bout where you are, but Summer is here darlin...it's hot enough, this next week we're going to almost 90, how much hotter ya want it?
Course since I'm always cold since chemo, the heat, I love it!
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Hello everyone! Sounds like all is doing well this weekend. Trying to stay cool here. In the 90's in East Texas.
Cruise: I'm 3 treatments behind you. So far so good. Tomorrow begins another week of Rads. Counting down....
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Yes, I like feeling free from my hat. I am not sure I can go into the big city without my hat.
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aglive - i'll be at caddo lake in july for my annual trip there. i grew up in dallas, but love east texas and louisiana! are you near caddo?
well, my doc warned me that my "fair skin" might break down, and it has. i have finished 19 radiation treatments and have 16 to go, and i have hundreds of red bumps on my chest, and i have broken skin up near the clavicle. lots of scabs everywhere. really annoying and itchy. i use aloe vera for the itching. i've been trying to keep the area mostly dry, rather than put on the aquaphor like i was before, because it seems like the aquaphor makes the sores worse. my doc said i might have to quit radiation a few days early because of the skin reactions. very disappointing.
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ddlat: Live in Kilgore which is about 40 miles from Caddo. Sorry you are having skin issues. Hope it improves. So far I have only used Aloe Vera. Have turned pink after the last couple of treatments but goes away.
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22 treatments down for me. i was given a prescription for extra strenght hydrocortisone....it really helps with the itching.
so far, no peeling or blistering. the weekend has helped alot......last friday, i thought i'd never make it. i have 6 more regular treatments. so, this week is crucial for me. if i can make it thru this week, i'll be home free!
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ajlive - i had family from kilgore years ago. one of my cousins, linda galavin, was a rangerette.
lisaliaa, i'll ask about the hydrocortisone!
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ddlatt - it's 2.5% comes in small tubes. i've almost gone thru one of them. so, have the doc give you refills!
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DDlatt: so sorry to hear you've got skin issues. You've been so strong throughout all of this. I know you'll find a way to make it through radiation!
I've got freckles for the first time in my life -- the radiated area doesn't even look like it belongs to the rest of my body.
As for hair? I'm so ready to lose this wig. Just not brave enough to do it in public yet. And the LE compression sleeve is nightmarishly hot in 95 degree weather!
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Like the rest of you, I am so grateful for the weekend rest. My energy level definitely improves. With some good sleep and some nice walks in the country my mental state improves as well.
Hoping all of you had a restful weekend.
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Hey all....well I've ended up with 3 blisters as of today. They are on the inside of where my breast used to be....next to the other breast, but inside of the purple marks they are using for the boosts. Filled with water just like the one on my neck. Yippie.....I'm so happy......NOT!
Not sure if she will do treatment with them being there.......she did last time until the one on my neck became red and infected looking....then I was off for a week.
I only have 5 more boosts and 6 regular tx's left........my problem SKIN!!!!!
hugsssss
love ya all
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Genia: I am so sorry you are having problems. You are so close to being done. Hang in there.
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This evening I talked to my sister in law. She had ER+ breast cancer about 8 years ago. Now the docs have found a tumor behind one of her optic nerves and a tumor on one of her ovaries. She'll have surgery on her optic nerve Friday and then a couple of weeks latter she'll have a hysterectomy. This would have been frightening news under the best of circumstances but, when one also has a diagnoses it causes extreme anxiety. !@#%^ cancer. I'll do what I can for her and for myself. I hope in trying to provide support I don't succumb to nervous laughter. Sometimes I do that inappropriately when my anxiety level rises. Lord help us all! Thanks for letting me vent.
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Deb, so very sorry to hear about your SIL. That is so scary and unfair.
Genia, good luck with your treatment today. Hope those blisters don't hold you back.
I start my last 7 treatments today and I'm thankful there's a weekend in there too because hopefully it will help my skin hold out for just a little while longer. Tomorrow I go for a bone density test then back to the oncologist to talk about hormone inhibitors.
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Deb - what horrible news for your SIL - I'm so sorry!! I hope she does just fine in her surgeries - best of luck and best wishes for her to beat this monster again. I can only imagine what that is doing to your pysche - I'm sure she'll understand if you suddenly break out in laughter or tears. Best of luck to both of you!!
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Oh Deb: I am so sorry. It is hard to hear a friend is ill but this is hitting you so close to home. I will put her in my prayers along with all of us. Did she do chemo and Rads?
Lisa wow can you believe that time is going by so quickly you are 2/3 done. Hang tough.
Genia: Yikies!! I hate that you are have skin breakdown Come on Medical Advances it seems we could circumvent that some how. Be strong.. I am so sorry that you have you go through this.
I am 1/3 through. 11 out of 33. I have pain internally. Sharp stabbing pains and a continuous dull pain. But if this is as bad as it gets I could handle it. Oh hell I could handle a lot just hope I don't have to. I better go get dressed for rads. I hope I have more energy this week. Last week I felt depleted. I think walking into City of Hope everyday is depressing seeing advanced cases and children etc... Its tough. I have to remind myself that I am early stage and have a very good chance of long term survival. We are still Kicking Cancers Ass!!!!!!!!
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Bold, What does your doc say about the internal pain? Where is it? It doesn't sound like anything to do with rads. And you have only had 11 treatments...Take care of yourself. JUDY
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Deb -- I am so sorry about your SIL. That must be so difficult and scary for both of you, but she can beat the beast again and you are well on your way to good health, so keep the faith.
Bold -- Love your avatar! Rads went very quickly for me and I hope that happens for you too.
Texas -- You are getting so close to the finish line -- I hope your skin holds out! I had the Bone Density test and went on Arimidex before rads -- the rads kept me from focusing on the Arimidex SEs too much.
I finished 28 rads last Monday, saw the onc on Thursday -- he doesn't need to see me again for 6 months unless something comes up! He did order an MRI that will be done this Thursday to find the source of pain in my neck that radiates down into my shoulders and up into my head, Two of the discs in my neck were removed and replaced with a titanium plate in 2007 and the pain is the same as before that was done. Guess I just need to wait and see what the MRI shows, but suspect there are other discs that are degenerating in my neck -- bummer. --bonnie
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Lots of new people since I last checked in .. had 17 /35 today...tomorrow will be my half way mark! getting a little red especially around my bra line.. so not wearing any around the house.. just for work And trying to stay moisturized!! Sometimes I swear my t shirts are sucking the cream right off me.... Hope everybody is doing fine.. and those that have finished congratulations!!.. I will try to check in more often..
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Hi Deb, Hugs and so sorry to hear about your sister-in-law.
Bkokie - - I think you are the first of our group to finish rads! Thanks for hanging out and letting us know how it's going. Are you taking tamoxifen/an AI?? Who in our group will finish last?
I'm on my count-down now; I have three more "full" treatments and then five boosts. The RT's did a planning/measuring session for the boosts after my treatment session today. My armpit has an area of open/raw skin under a silver dollar sized "peel." It stings / hurts, but the RT and RN both say it looks "not that bad" compared with what they've seen. Will keep doing what I'm doing...
My husband gave me Sat night off from mom duty and I went up to the Sonoma Coast with four of my close girlfriends. Very fun but we went totally off diet. I perfected my margarita recipe and we took long walks on the coast, stayed up too late watching chick flicks (Dangerous Beauty and Love Actually), and talked. Fun.
Bold, Thanks for the warrior princess photo, beautiful
- - is that you? My brother-in-law was an actor. They lived in the Bay Area and he mostly did commercials, but he had some small parts in movies. He played Johnny in The Enforcer, but his character gets killed before the opening credits.
You know, my Oncologist told me to stay off the Internet, but she was mistaken. I really appreciate all of you, your support, and this place to commiserate and share ways to best get through this time.
Love & Light,
C
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Deb....so sorry about your SIL. This disease is horrendous.
Princess.....my onco told me to stay off the internet too......HA. Not gonna happen.....and he found that I became very well "educated" while doing chemo and even told me that once! I had to laugh......
Bold....I had rib pain.....that's why they did my scans. I guess it's not a common thing to have internal pain during rads........but I did........and there was nothing wrong. Just sayin....but you should get it checked regardless!
I am off rads for today and tomorrow. More burning....and my Rad Onco said she was gonna wait til Weds and check it again to make sure I can finish my boosts. I hadn't heard of anyone burning during boosts......leave it to me!!!
To the rest of you.....hope you all do well with the continued radiation.
hugssss and love
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Well today was 14 out of 33. 19 left to go. That's starting to sound a little better. A little pain in the small scare under my arm. It's the first time I noticed that. But then most of my pink skin has been under the arm.
My SIL had a mastectomy and reconstruction and also receive chemo. No radiation due to the mastectomy. She had all of her lymph nodes removed and 3 or 4 of them were positive. That's all I remember about her initial diagnosis and treatment. Thanks for all of the support. I keep hearing about stress leading to breast cancer. But, I'm not sure how we avoid stress. I mean life happens and keeps happening cancer or not.
There were times when I kept telling myself I needed to quit reading about my type of breast cancer, It's pretty scary reading. I never talked about with my oncologist, but, he seemed more positive than the Internet did. So, I choose to believe him. But, I'm so glad that I found this support group.
Early in my diagnosis I searched for support groups on myspace. I found when but, when I went there, there were a lot of bikini babes wiggling their boobs. It seemed pretty insensitive to me. But, latter in my treatment I found you guys. This is much better.
Well, today my energy level is good. Hope it stays that way this week.
Bold I love you're Conan princess warrior pose. We all need to take up a sword and go after this beast.
Best to all
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Heck yeah this site is wonderbar!!! I was told also to stay of the web. That ain'nt going to happen. I got My PHD in breast cancer before I even started chemo. I logged over 100 hours in research. It has empowered me. Even though I was a PA and practiced med. I did not know that much about cancer as the patients were referred out. So this has been a real eye opener for me.
I to am curious who will be the last. Don't worry Genia not you!
You will heal and be done with this China syndrome soon enough. I am suppose to finish on the 14th of July.
In reference to the internal pain. I believe and I am not sure that it is still healing from surgery. When you think that she took out a tennis ball size chunk o me on a size c cup Believe it or not you can not tell. She brought up the bottom of the breast and sewed it up to make it full and centerfold ready. Well not quite, I got carried away. But still did a wonderful job. The left one could use a bit of a boost.
Princess: Just a quick funny story. My father was a gladiator in the movies he was in Spartacus, Barabus, Demetrius and the Lion and Ben Hur. Maybe thats were I got the desire to do that kind of movie. Now I am to old but still have wonderful memories. I loved acting and who knows maybe if the right part came along I might do it again. My daughter is a cinema producer and is always after me to act again. Tight now I have to regain my physical. You know it is only in the Western world that people feel like the body is separate the person. Like a vehicle for our minds and not really the same thing. I am guilty of this and as I have gotten older I am kind of a walking head. Weird huh? I want to get my balances back. As soon as I can catch my breath. (gasp) Well judging by this post I am long winded
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