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mrsmas
mrsmas Member Posts: 11

Around 4/1 I noticed a sore hard lump on the side of my right breast. Since I have always had that fibroid breast disease and I was close to a tax deadline, (I'm a tax practitioner) I opted to wait until the tax season had ended. I went for an exam around 5/15. By this time the soreness was constant and at times, more than uncomfortable. The doctor sent me for a mammogram, and I took along the mammogram that I had done in 2007 which was clear. A few days later he called me to tell me that I indeed had a 3.3cm (1-1/2") lump. As a cardiac patient, I had not bothered to pay much attention to cancer risks over the years. My mother had a post-menopausal mastectomy but it was my understanding that post-menopausal cancer does not harbor the genetic risk so I didn't pay much attention to that either. I reached menopause at 52 and I am now 59. He recommended either a needle biopsy or an open biopsy. I have selected open, so I have been referred to a surgeon who I meet with this coming Thursday afternoon.

I faxed the doc a list of questions after doing some research. By this time I have developed a "dent" in the side of that breast (They must have noticed the dent before I did, and they call it dimpliing. It's easily viewable) The response was that I have clustered calcifications that are asymmetrical and in conjunction with the dimpling are suspicious of malignancy. Earlier this week I developed a burning or stinging sensation that lasted for a couple days. The soreness has remained consistently throughout. My cardiologist has cleared me for this biopsy.

We are meeting with my surgeon on Thursday, but I'm not sure what questions to ask him? I have read that some surgeons do "frozen sections" through which they can oftentimes offer up a preliminary diagnosis before you leave the hospital. Is that a good idea? Or do most surgeons see enough of this that they can reach reasonably accurate conclusions by sight alone?  What if they see a problem? What about the lymph nodes? Should I allow them to biopsy those at the same time if need be? 

There have been no MRIs or US of this lump. We appear to be going from point A to point C without benefit of any side trips. I think I am more than ready to lose this lump so unless there is a reason not to, I'm ready to go. 

I'm thinking that the voice of experiences might be useful here and welcome them. Thanks!

Comments

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    You have good questions and questions that should be asked and answer BEFORE you do anything treatment wise..  When you are speaking of a "frozen sections" you are talking about a biopsy - so that has already been addressed.  And yes the frozen sections (from the biopsy) will be looked at and a judgement will be made as to IF this is cancer AND what stage of cancer it is if indeed it is cancer.  I would think though that a breast MRI might be helpful, however the biopsy would be done after that anyway and they have found an "area of concern" on the mammography.  An MRI could help you understand if there is any reason to suspect anything in the other breast or another spot that you might not "see" without the MRI on the same breast..  It can help to understand how spread out the cancer might be as well as help the surgeon when he/she actually does the biopsy.    If the biopsy comes back DCIS then you have time before you need to make any treatment decisions as DCIS is first stage cancer (a non-invasive type).  But I wouldn't put off the biopsy too long - but if the biopsy does come back positive it will help you decide on treatment if you know what an MRI shows too..

    I hope this helps..  I will be thinking of you and hoping that it turns out to be a beneign body and after it is removed no further treatment necessary!!!  Take care!  Deirdre

  • Lisa68
    Lisa68 Member Posts: 12
    edited May 2009

    I think you have made a good decision to have the open biopsy.  I had a stereotactic biopsy for calcifications that lead to an open biopsy anyway.  Praying for you friend. 

  • mrsmas
    mrsmas Member Posts: 11
    edited May 2009

    Is the frozen section always done before you leave the biopsy recovery? Or does that vary from surgeon to surgeon? The did do a comparative film of the other breast at the same time and I was told that it was unremarkable. I'm not wanting to put off the biopsy at all, but as typically happens, I am left to wait on the surgeon's schedule. I'm assuming he will schedule it at the consult today, and I am hoping that he won't push me out too far timewise. I'm ready to move on, so would be just as happy if they would biopsy tomorrow, even though I know they won't. Does it make sense to do an MRI after the biopsy? Also, a friend of mine whose husband had a melanoma on his ear wonders why they don't do more pet scans on women with breast cancer. Struck me as a good question. Is there a good answer aside from cost restrictions? Her husband has been given many pet scans.

  • mrsmas
    mrsmas Member Posts: 11
    edited May 2009

    What is a sterotactic biopsy? It also occurs to me, IF they do find cancer, and IF they don't find clean margins around the lump, what about lymph nodes? When my mother had her mastectomy, they removed her lymph nodes. She had a lot of trouble with her arm and it swelled to twice the size of her other arm. Granted, she didn't stay on top of this like she should have, but I must admit that I find that problem as or more intimidating than sacrificing the breast. What cause that? Can a biopsy of the lymph nodes affect the arm or is it limited to removal of the lymph nodes? Will I be asked to agree to a lymph node biopsy before they undergo the initial biopsy just in case?  Thanks, I covet those prayers!

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    Hi mrsma:  First of all the tissue collected from the biopsy will have all the tests run on them (for ER/PR results as well as staging).. that's standard practice - so at biopsy as well as final surgery the tissue slides will be run.  As for the MRI yes it can make sense after the biopsy to see if anything else "lites up" on the MRI.. that could help you decide whether you need a mastectomy or have a lumpectomy.. Sometimes the film will even show something on the other breast (though I certainly hope you are completely clean!).  MRI's are expensive but PET scans are REALLY expensive.. I believe that is probably the biggest reason they don't do too many PET scan on women with bc.. though they are done and it truly depends on your doc's preference, unless you have a preference and want you doc to move on it.  I did have a PET scan because we had a friend of the family who was a doctor and he suggested it and so I pushed for it.. It  was quite a relief for me when they found no other areas of concern in my entire body.  That can be relieving but you also must remember that for the PET scan to 'see" anything the size of the lession or tumor is very important.  I don't know the exact sizing but smaller tumors can be missed by the PET scan.. But I felt much better knowing that the rest of me was clear..  So I'm with your friend about their use!  I'd be willing to bet there is an analysis on how much it would cost to have every women with bc to be given a PET scan and it most likely is very cost prohibitive..  The key is to know what you want and ask for it - at least it is for those of us who have insurance in the US.  If you do research and reason that you need a PET scan then you have to convince your Doc you need one - that's not always easy but as soon as they (doc) understand that you know how it works and what it might do for you they tend to approve them.  It's probably a CYA in that they are afraid that if you ask for a particular scan and then they turn you down only to find another cancer soon after they could be liable.. I think doc's in the US take more courses on liability than they do on medicine (joking)..  

  • mrsmas
    mrsmas Member Posts: 11
    edited May 2009

    The surgical consult was yesterday afternoon, and the surgeon's prognosis was grim. Because it is visible without touching, and he had had the benefit of previewing the mammogram, he sat down and stated that if he were a betting man, he would put money on it being a malignancy. He explained that the size (3.3 cm) in conjunction with the dimpling, on top of the mammogram views and visibility gives him confidence that this is not an IF but rather a question of what type of cancer and how involved the lymph nodes may or may not be. My surgery will take place next Thursday, June 4 at 9:30am. After he saw me, he was very much in favor of scheduling the lumpectomy asap. We had to schedule the surgery at a time that a pathologist was available to do the frozen section.

    We have agreed to try and save the breast. As it was explained to me, the surgeon will remove the lump, pass it off to pathology, who will determine if I have clean margins or not. Then they will perform a sentinal dissection which will again pass off to pathology. If there is cancer involvement, the surgeon will then deal with the other nodes. His nurse has just confirmed for me that there will be no radiation done at the biopsy. Instead, the radiation will be done within a short time after the lumpectomy. She also told me that radiation is a mandatory procedure. If they find cancer in my nodes, they *may* recommend chemo before radiation. The surgeon explained to us that the tumor sits adjacent to my lymph nodes so he has a concern that the nodes may already be involved. In the event of the worst case scenario, a mastectomy will not considered unless deemed to be necessary  after the chemo therapy at which time they will also begin reconstruction. I'm comfortable with that because it affords me some time to wrap my head around it, and I don't feels as though anyone is rushing to judgement.

    My husband is already a basket case. He hasn't stopped crying since we left the doctor's office. I have arranged for some close friends (also cancer veterans of a different sort) to sit with him while I am in surgery. Dealing with his pain is going to present a whole different ball game that I will need to figure out.

    As I just spoke with the nurse on the phone, I asked her if I could be handed off to the Susan B Kolman clinic in nearby Peoria for radiation and/or chemo if that were necessary.  I'm assuming that they will be the cutting edge on cancer treatment in our area, thus my chances of survival would be greatly improved. The surgeon's office is in agreement with this. I liked the surgeon and felt comfortable with him.

    The chemo treatment may present yet another piccadilly, because I have a significant number of health ailments, not the least of which includes cardiac issues and kidney disease. Another reason for going somewhere well-versed in such matters and thus better able to design a treatment specific to my health issues if necessary. 

     I'm thinking that a lot will depend on the type of cancer that it is in terms of aggressive or otherwise, so the fat lady hasn't sung yet, Any explanation will be preferable to this limbo that I appear to be in currently. I'm ready to move forward and can't do that until we cross this next bridge with the surgery.

    BTW, I brought up pet scan to the surgeon and he did indicate that they do them, although he seemed to minimize by saying that they do MRIs, Pet scans, etc but the important thing is how it is treated, not how it is found.  Perhaps whatever that was that I was sensing might be because I think the only availability for a pet scan in in Iowa City. Not sure why, but I'm thinking that if I am handed off to the Kolman clinic or Iowa City (depending on what our PPO will agree to) they may be more receptive to such a scan without the arm twisting. 

    Is there anything I need to know before the surgery aside from the obvious?

  • makingway
    makingway Member Posts: 799
    edited May 2009

    Ask about lymphdema. Ask what the % of you developing it is, if you get an Axillary Lymph Node Dissection. Ask for the Sentinel Node Biopsy for determination at what stage you are in. Ask your insurance company what options you have as far as where you can go for treatment. From what I understand the Suan B Komen Foundation is geared to getting people mammogram referrals and cancer research, not treatment.

    Ask if the cosmetic reult would be better with a mastectomy than with a lumpectomy.

    Sorry you had to join our club, but be glad you found us. There is so much information to digest. Your surgery is scheduled 3 days after mine.

    I wish you the best. Take Care of Yourself,

    Cindy

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    MRSMA:  I'm so sorry this sound so bleak - and it sounds like you are a "take charge" individual and that was incredibly sweet to make sure you husband had some comfort while you are under. 

    Your surgeon is right about how things are treated being more important but if you look at his answer he really didn't answer you question.  Your treatment options might be different if you had an MRI and or PET scan and you should pursue this if you do indeed want to..  The surgeons are skilled at diversion as well as surgery..  So if there is something you want and need please just say, in your own words - "I have researched  ___(MRI or PET etc) and I would appreciate your ordering one for me.  I think that would be in my best interest".  It (the results of tests) can help YOU decide what to do (lumpectomy or surgery).

    And I agree with makingway about Komen they won't be much help with treatment - It isn't their goal to help us with the treatment - their goal is research and finding it early.. But that doesn't mean there isn't another organization out there that will help.. 

  • hrf
    hrf Member Posts: 3,225
    edited May 2009

    I know people (including myself) who have post menopausal bc and still have the genetic risk. There are no hard and fast ruls

  • mrsmas
    mrsmas Member Posts: 11
    edited June 2009

    The biopsy is over, frozen section complete, paraphrased verbal version of the pathology report recited. I will up to the next level. I hope I don't see you there if ya get my drift.

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited June 2009

    Mrsmas:  Keeping you in my thoughts and heart!!  Stay strong now - break later if you need to - if ya get my drift!!!  Best!!!

  • mrsmas
    mrsmas Member Posts: 11
    edited June 2009

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