michiganders with bc

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  • Sphynx
    Sphynx Member Posts: 611
    edited May 2009

    Jess - you should be feeling better every day. 

    Thought I would mention that the last day to join the Race for the Cure, Team Wings of Hope is May 12th.  We have 29 members and 11 survivors.  Maybe this will be the year we have the most survivors?  If you'd like to see pictures of our Team from past years, visit this site...

    http://teamwingsofhope.shutterfly.com/

    Sue, is your PS out of Domino's Farms (UofM)?

    Where are those lunch pics?! 

    Hope everyone is enjoying the Michigan weather.  

    Nancy

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited May 2009

    Hi Nancy - yes, my PS is at Domino Farms there on Plymouth Rd.  His name is Dr. Wilkins - I really like him.  Trudi took the pics of us at lunch - but I don't know where she's been lately?!?  I will try to call her .... maybe she can post a pic.  I will be thinking of the team on May 12 - I hope to join you guys next year!  this year, just too much is going on and I don't have my strength back yet ... I went for a walk the other night with my 5 yr old daughter and 3 blocks wiped me out .. how pitiful is that!  So good luck!!!!  sue

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited May 2009

    P.S.  I am holding a benefit concert on June 14 here in Midland to raise $$ for b/c.  I have an acoustic trio that will be performing, as well as lead singer of popular Michigan band, The Verve Pipe.  It's going to be a GREAT great night of live music.  We held a similar event last year and raised $960 for Big Bros/Big Sis. This year, it will hopefully be double that amount!!  :)  If anyone is interested in going, the location is 1309 N. Parkway, Midland - $15 recommended donation/person.  June 14 - 7 pm. 

  • Sphynx
    Sphynx Member Posts: 611
    edited May 2009

    Hey Sue, I thought so - XX is my PS also!  Reconstruction is his spectiality so you are in good hands.  I was hesitant to mention his name, is that allowed on here?  My re-do turned out to be 'Spectacular'. 

    The concert sounds great.  I'm afraid I't past my bedtime for getting up the next Monday morning for work.  Maybe we can have you as our PR person next year for the Team?  

    Our walk is actually on May 30th.  May 12 is the last day to join the team. (Wings of Hope).

    Everyone- you don't have to walk the Race and can still meet up at Hockey Town for lunch.  They have a trolley with TROLLEY GIFTS for those who cannot walk.  It's a bird's eye view of the entire Race path.   Several people have used the trolley and say it works out great.

    If anyone wants more details about joining the team, please let me know.  Look at the pictures on our site and you can see what the Trolley looks like.  

    http://teamwingsofhope.shutterfly.com/  

    Hope Trudy checks in soon.

    xxxooo

    Nancy

    Edited to take out the P.S. Name.  I don't think there is a problem when the doctor is good and we are recommending him.  If we named a doctor who was really bad, it would be setting ourselves up for defamation of character.  

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    Thank you Rockysmom.  I love they happy dance.  May 14th is ps appt to set up the exchange date!!!! Yahooo!

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Sue and Nancy:  I am getting ready to schedule an appt with a PS from U of M.  I am glad to see that you are both happy with your Dr.  I was going to ask if anyone could recommend a PS from U of M, but now I don't have to.  I probably can't start reconstruction until July, but figured I should make my consultation appt now, since they take so long to book appts at UofM..  

    I am sooo nervous about the whole thing, I hate the thought of surgery again. 

    Hope you all are having a Happy Mother's Day!

    Judy

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited May 2009

    HI Judy, Hope you had a great Mother's Day yesterday!  It's nice to meet another Michigander.    I am very pleased with the care I've been given at UofM - the staff is excellent too. So best wishes with getting your treatment with someone you trust.  Let me know if you have any questions!  Have you had a masc yet?  What type of recons are you getting? I didn't have enough belly fat for a TRAM or enough back/shoulder fat for the other type of recons, so I had to go with implants.  I'm done with my fills now, so I'm relieved to have that behind me.  Good luck & keep in touch!  sue

  • tg33
    tg33 Member Posts: 43
    edited May 2009

    Hello I am here

    Jess great job on hanging in there through all of this...last chemo ...congrats!!!!

    welcome not me---glad you joined us

    Sue i am here...I have been so busy crazy busy I do tell you I may have to program your # into my cell just to talk lately...I am having more spasms than before..More like electric shocks..I don't know why...tomorrow I see the PS and exchange and nips?? on June 22. 7:30 am ...

    how are you doing since your last fill..?

  • ktym
    ktym Member Posts: 2,637
    edited May 2009

    I wanted to put my 2 cents in, may not be worth much and you can ignore it but: I was very sensitive about my cancer information, I only wanted it to go to those I told, and asked that everyone respect my privacy and not tell anyone else.  I know from these boards that many others felt the same way.  Someone on the Ta Ta Reunion thread just reminded everyone today that this is an open internet forum, and what is posted here has no privacy.  There have been other threads about information posted here being used against those that posted it and reminding people that this really isn't a private forum.  Employers, etc. have found out things that someone posted here in "confidence." Just wondered how the PS above would feel if he knew someone had put his recent cancer diagnosis on the internet.  Obviously many here know him well, or they wouldn't know the information to begin with, perhaps they know him so well they already know he wouldn't mind.  It just really hit me when I saw it posted.

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited May 2009

    Yikes - I wasn't even thinking about that, kmmd.  Thank you - I've removed the personal remarks from my post - could you remove the reference in yours as well?  thanks!  I'll keep that in mind for future posts too....sue

  • Sphynx
    Sphynx Member Posts: 611
    edited May 2009

    Judy,

       We took out the name of the PS.  If you didn't write it down, send me a PM and I'll give you the info.

  • ktym
    ktym Member Posts: 2,637
    edited May 2009

    suegmomof3: I just plain delted it.  No problem, like I said didn't know any details, but I had just been on another thread where someone had reminded us and it was fresh in my mind.  Seriously good luck with your reconstruction, it sounds like you are in excellent hands

  • gcpommom
    gcpommom Member Posts: 883
    edited May 2009

    Sue:  Yes, I had my BM in January, and finished AC, and am on tx #6 of 12 Taxol. I will finish in June, and hope to start recon in mid-July.   I don't think I have enough body fat either, so it will probably be implants--although if I keep gaining weight with the Taxol, you never know!   I was kind of scared of the length of the surgery with the flap-type reconstrution anyway.

    Nancy:  Thanks, I have the name, but it does still appear on this page under one of Sue's posts---I didn't know we couldn't post dr's names here, I've done it myself (I think on page one of this thread).  Do I need to delete it? 

    Judy

  • Sphynx
    Sphynx Member Posts: 611
    edited May 2009

    I thought I would read the community rules to see what they say about mentioning a  Doctor's name that we recommend and here it is....

     "You agree not to submit any personally-identifiable information about any person without their prior consent."

    I think it would be easy to get his consent since UofM has a website with his bio and picture.  It's all positive so why would he object?

    Judy & Sue - You could go through your posts and edit with "name upon request" or something in place of the actual name.

     

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    My exchange date is July 8.  It of course cuts into all sorts of dates my famiy wanted to go places, but I think I am going to stick with it and have extra time to recup.  Plus, I want to go camping with my daughter and just sit around a veg out!!!! 

  • DebbieKu
    DebbieKu Member Posts: 8
    edited May 2009

    Laura,

    Where about in Clinton Township are you from?  I live in the 16 Mile Gratiot/Groesbeck area.

    Debbie

  • Caseysmom
    Caseysmom Member Posts: 507
    edited May 2009

    Debbie:

    I live at garfield and canal in the Shultzs Estates.

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    Well, I have had a bit of a surprise.  They want to radiate my right chest wall.  The latest info/studies says I should.  SO I am off to rad simulation and so I don't think my exchange will happen for three or four months from now.  I am a bit bummed.

  • suegmomof3
    suegmomof3 Member Posts: 168
    edited May 2009

    Jess, sorry to hear about the change in treatment plans ... I hope they go smoothly for you!

    sue

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    Thanks , Sue.  I hope they will be smooth as well.

  • DebbieKu
    DebbieKu Member Posts: 8
    edited May 2009

    Wow!  We're practically neighbors.  Where did you go for your treatment?

    Debbie

  • Caseysmom
    Caseysmom Member Posts: 507
    edited May 2009

    I went to Michigan Cancer Specialist on 10 mile in Roseville.   My once is wonderful he has a great staff. I do not know if I can put his name down so I will just put his first initial.  Dr. A.

    Laura

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    Thanks , Sue.  At least I am two weeks out and NO MORE CHEMO!!!!  I went on a walk today and my legs held out for most of the walk and then they just got tired. 

    I have gone to Grand Rapids for treatment.  ANybody else??????

  • DebbieKu
    DebbieKu Member Posts: 8
    edited May 2009

    I was treated at the Webster Cancer Center at St. John's Macomb Hospital.  I hope all is going well with you!

     Debbie

  • Caseysmom
    Caseysmom Member Posts: 507
    edited May 2009

    Thats were I had my rads done.

  • runnerlori
    runnerlori Member Posts: 15
    edited May 2009

    My name is Lori, I had my partial mastectomy April 13th and the port a cath insertion a week ago Friday, May 15th and a D&C day before yesterday, May 22nd...

    I live in Commerce Twp and will be starting chemo soon.  I have no idea what to expect. How sick will I get?  Can I continue to live alone?  My boyfriend lives near Manistee and I commute back and forth to his place regularly, but hope to continue treatment here.  My brother and sis-in-law live in the U.P. and want me to move in with them while I get treatment...

    feeling a bit overwhelmed by all of this. Although I am trying to stay positive, I know I'll get thru it.  It's just when I am alone that the anxiety tries to peak.

    looking to connect with others going thru this thru this site.  hugs, Lori

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    Lori- So sorry you have to go through all this.  There are many great threads on this board and the women are awesome to talk to.  You ask good  questions.  It is very scary to be dx with this disease! 

     You have gone through a lot already.  My goodness.  Hey, where is Commerce Twp? 

    Whenever I had a question, or slight doubt about the ses of chemo, surgery and now radiation, I called the doc and came to bc.org to talk to  people and get their input.  The expertise and experience of the people on this board is invaluable.  I also spent a huge deal in the chat room.  that is another wonderful group of people. 

    I worked throughout my chemo tx, and again, everyone is different.  I told my doc I pretty much had to, and they were very good about helping me get around the ses.  I guess in that regard I was lucky, though in retrospect, I would probably take more time off.  At the time, it seemed important that I maintain the status quo for the benefit of my daughter who is an 11th grader.

    HUGS!!!!!

    Good luck, Lori.  

  • Caseysmom
    Caseysmom Member Posts: 507
    edited May 2009

    Lori:

    Everyone reacts to chemo differently I was given 4 A/C  treatment followed by 12 treatments of taxol.  I did get sick after my first treatment.  When I had my second treatment they gave me Emend and steroids and with this combo of medications I did not get sick.  I was able to live alone at the time I was going through treatment my boyfriend lived in Flint I would dive up there the next day. 

    Hugs

    Laura

  • Sphynx
    Sphynx Member Posts: 611
    edited June 2009

    Hi Michiganders.  I thought I'd bump this up.  I didn't see the YSC at the Race but after we got home and looked at the pictures, your sign is in a few of the pics!  I was trying to get a picture of a woman with wings on her back.  Was she part of your group?  Did you guys take pictures?  Hope all is well with everyone.

    Nancy

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited June 2009

    Thanks, Spynx.  A few of us have gotten together to meet for lunch.  I didn't go to the Race you are talking about, but certainly hope to be involved next year.  thanks for the bump!  Hope all is well with you.

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