5 months and counting with open wounds (Tram flap)
Hi ladies,
as I am writing I have had a lot of frustration and am terribly worried with the long and on-going wound problem......I am desperate to hear your stories. I am more or less lost and praying for a magical day!
back in Feb I posted one thread about my mom's surgery. she had a total mastectomy followed by immediate tram flap on her left breast. Surgery was performed Dec 21, 2008.
Abdominal incision is fine and healed up nicely. Breast area, however, is not doing so well.
up until now, we have two open wounds. One is with a dent, the other one is left open.
The wound is cleaned everyday. We also had some infections along the way, as well as necrosis, debridement etc. My mom is also allergic to all types of paper tapes so at first we were frustrated big time with unnecessary blisters - biggest thanks to silicone tapes. without having found the tapes i just could not imagine what it would be like !
anyway, anyone with healing problems? please please share your experience.
we are very frustrated and pretty much lost.
Comments
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Uma, I'm so sorry to hear of your mother's healing troubles. I know that some ladies have been put on wound vacs to help heal open wounds more quickly. Perhaps you can ask her doctor if she can try one. I had a reaction to steri strips and ended up with big bloody blisters and that is not fun at all. It took quite a while, but there are no longer any visible marks from that.
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Hi, uma ~ I also had an open wound as the result of an area of necrosis about the size of a quarter that had to be debrided after my Diep surgery. I think it was one of the worst parts of my recovery because I get very squeamish around anything like that (I could never have been a nurse -- my knees get weak at the thought of blood!), and, like you, I had to clean it with saline solution twice a day. As I recall, it took about 6 weeks to close. It sounds like your Mom's is taking much longer than that, so I'm wondering if hers is healing properly. Can you tell if the open wounds are making progress closing? Is her plastic surgeon still checking her regularly?
I remember my PS told me it would be best if my wound healed by itself because it would close from the bottom up. But I also got the idea that he could close it if necessary. Has your Mom's PS ever suggested that?
I'm also very allergic to most surgical tape. I forget which one worked for me, but it sounds like you have that part of it under control. Deanna
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Thank you for quick replies Momsdaughter and dlb823
we see surgeon regularly
the surgery went really well. on 7th day doctor removed the drains and we came home. after we came home, not-so-good signs started to show. We had seroma fluid removed pretty much every other day for weeks and two infections. We wondered if the drains were removed too early....
it started with one open wound and 3 months post-op, there was this one week it was looking good and dried up. we were really excited. all the sudden we made some much progress in that week. but then we had what look like a small blister with some fluid underneath the skin and got bigger. Later our surgeon cut it open and now we have two open wounds.
we cleaned the wounds daily and some days they look better and some days they ooze and don't look so good. but overall, we are better. it is not as messy. it looked better we had a nurse to change so we hadn't seen our doctor for 2 weeks. latest visit debridement was painful and breast is now a lot smaller.
our doctor also wants wound to heal by itself.
i googled wound vac and saw some info. what conditions and type of wounds are wound vac suitable?
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Wound vacs are suitable for most any wound, but are most frequently used for wounds that are having a difficult time healing. They promote healing from the inside out or deep to superficial - which is the way a wound should heal to prevent further problems. It would be a good question to ask your MD, as although wound vacs have been around for years, there are still some docs that are not all that familiar with them. Usually a wound care nurse or physical therapist will put it on (and it can be done in a home care situation), then they follow up for dressing changes. If the wound is draining severely, there is a container that captures the fluid and it may be something that you will have to empty/change between dressing changes. Wound vacs are great and often expedite healing very well. Your doc would not want to close a wound from the outside - that would cause further problems as the wound should heal from the inside out. Good luck and definitely ask.
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Hiya Nordy!
Marcia
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MARCIA!!! I am always so happy to see you!
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Uma,
I have an open wound as well. I finished rads in March and a couple weeks later found a lump which the surgeon wanted to biopsy.About three weeks after that I got an infection to the area so they opened about one inch to let it heal. Infection got worst and i had some tunneling so the surgeon opened up the whole original mast. scar about 8 inches long. I clean it and pack it twice a day. It is now about 4 inches long and about 1/4 inch deep. Dr. said it is healing nicely but it sure seems like it is taking FOREVER! The lump ended up being scar tissue THANK YOU LORD!
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Yup.
I think you could say that I have experience. 385 days with open wounds on my chest.
It can be very upsetting, and depressing...and a serious, stinking drag.
WARNING: THESE PHOTOS CAN BE UPSETTING.
http://i41.photobucket.com/albums/e284/i5am5ladyt/IMG010.jpg
http://i41.photobucket.com/albums/e284/i5am5ladyt/020_18.jpg
http://i41.photobucket.com/albums/e284/i5am5ladyt/019_17.jpg
http://i41.photobucket.com/albums/e284/i5am5ladyt/IMG010-1.jpg
Wound vac. I think I would push for the wound vac.
It is also a drag...and, it's expensive.
However,
After 385 days, my wounds finally closed.
http://i41.photobucket.com/albums/e284/i5am5ladyt/090.jpg
http://i41.photobucket.com/albums/e284/i5am5ladyt/091.jpg
Yes, m'am. I do think I understand the misery.
I am so sorry your mom is having to deal with this.
My sympathies.
tl
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P.S. Always with wings. Pantyliners stuck on the inside of clothing seems to help keep the mess to a minimum.
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BLM with immediate DIEP on Jan 22. Had 2 open wounds immediately. Once caused by blistering from tape on boob. Those just healed in the past month or so. Another wound, however, opened up in February and it is a tunnel wound. Not too deep - the head of a q-tip all around. But, it still won't close up and it's driving me nuts, and I still can't swim until it heals! My surgeon and I talked about going back in and stitching it, but it started making a little progress again so we're waiting. But, the progress is slow and frustrating!
I know what you're going thru uma. Hang in there!
sue -
I had a couple of large wounds post DIEP. My Doc RXed Accuzyme and Xenaderm and I was AMAZED that I was healed in time for Stage 2...roughly 8 weeks,
Gentle hugs, and I know how badly this s*cks,
Marcia
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Tl - thank you for those photos - I love the honesty! So sorry you had to go through that - was that after a Tram? Diep?
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Oh the Tram - I think I am goig to stick with basic implants...
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TammyLou-
That looks like it was painful but I bet you were numb. I had a hole in my side that wouldn't heal and it was very depressing. It looked worse than it felt but kinda made me sick to look at it. It took 3 months to heal because there was a seroma under it. After the seroma was dried up (thru multiple aspirations) it did heal. The scar is worse where the hole was though.
Thanks for the photos of what can go wrong. How are you doing now?
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Marcia - I didn't know you had wounds after surgery! Is that common? I am glad they healed up quickly - hurray!
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The honesty of non-healing wounds are shared bravely and generously here. Thank you TL, and many wishes for an easier time here out. Pictures say a thousand words: your willingness to share breast cancer chest wall reconstruction helps educate the general public and reminds physicians and team that it's never just a "walk in a park" type disease. I'm glad your wounds finally healed up.
One thought for everyone, please always make absolutely sure you are not a undiagnosed diabetic, a common condition which plays havoc on wound healing. A simple blood test, HgbA1c (hemoglobin A1c), reflects how one's blood glucose has ranged over the last 3 to 6 months (established norms and abnormals). A fasting and one hour sugar, or even better (some may not think necessary) a three hour blood glucose test, is not unreasonable when wound healing is difficult.
With encouragement and admiration of your strength,
Tender
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My initial attempt at reconstruction (an IGAP) tunneled.
The vessels turned out to be very tiny and the flap developed venous congestion...the most common cause of failure.
Took a boatload of heparin and the flap appeared to recover...then, it tunneled, and tunneled and tunneled.
Major surgical debridement and wound vac to close.
The following fall, I had MS Free Trams...zero complications.
(Sometimes, it just isn't your day.)
Successfully reconstructed.
I'm sorry for those who are struggling...it is definitely a drag.
tl
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Nordy,
I was a smoker prior to my procedures (30 yrs) I believe if I had been in better health and a non smoker for more than the 4 weeks prior,
I wouldnt have had any healing issues. I was just unlucky, but in the end I have NO scars from those wounds...0 ...nada...nothing!
Hugs ,sweet one~
Marcia
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I had an opened abdominal incision that took 4 months to heal - it was gross - and very depressing to look at, but eventually it did close up. My PS had to debride it a few times - and he had me apply Santyl ointment which helped also to debride the dead tissue.I agree with Tender - be sure to get your mom gets her blood sugar tested. Wound healing problems are often the first sign of diabetes.
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my friend did the wound vac and swears by it. Says it cut her breaking time down by almost half.
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