APRIL Rads Anyone?

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  • Jane_M
    Jane_M Member Posts: 1,549
    edited June 2009

    Beth - I don't know what I did with the magazine once I finished it, but a recent women's magazine had an article in it on bcc.  The woman in the article was given some sort of cream that works on the cancer cells without operating on them.  Take a look at the check out stands and maybe you can find it or maybe you can google it.  It was a good article.  It talked about using it to prevent skin cancer, too.

  • eadsla
    eadsla Member Posts: 217
    edited June 2009

    It's so great to see that the ice cream social count is getting higher and higher.  Here's to everyone having a great weekend with skin that is either healed or in the process of healing!

    Catherine 

  • bethaib
    bethaib Member Posts: 125
    edited June 2009

    Sorry ladies...all of you who are dealing with the "crispy" burnt peeling skin   : (     Hope it continues to heal quickly for all of you.

    Saw my doc Thurs, said my skin is doing really well, she was surprised I did as well with my fair skin. Told me to continue to use the creams another month and come back to see her in two months. I have a rectangular "tan" pretty much now, not so pink anymore.

    Tamox SE "hot flashes" have been pretty much the same. Though noticed at home I don't seem to notice them as badly, must be the air conditioning lol   Need to buy a fan for work!

    I've been pretty tired, still have some fatigue. But then have not rested as much as I should I am sure. But I pretty much am able to do whatever I need to do during my day. Life feels weird not going for treatments every day. Have been busy with dentist and mole appts since though. It will certainly feel strange when I finally have just the occassional dr appt.

    Hot fudge sundae....hmmmm...caramel....tough choice    lol 

    Off to take my shower. Sundays seem to be veg days for me lately....hope everyone is enjoying their weekend....

  • shan1171
    shan1171 Member Posts: 138
    edited June 2009

    Heya ladies!  I pulled the muscle that runs along my collar bone (on the left side), and spent half the night last night, looking up symptoms of heart attacks, just knowing with my luck...........

    Wouldn't that just be the icing on the sh@t cake?  It was really miserable and painful....and of course I had just given my few remaining pain pills to my mother who is having fits with a knee replacement.  I mean I'm just a magnet for rotten luck (kinda like my magnetism for rotten men)!  HA!  I wonder if the radiation could have caused some issues in the muscles on that side?  I know that lugging around my 30 pound 1 year old is not helping matters, but that's what mothers DO.  Even mothers who have been treated for BC.  I'm not going to look down at him when he reaches up for me and say,"Sorry kid, I read that I should avoid lifting you because of lymphedema and possible other complications."  I actually read that.  To avoid lifting your child/carrying purse/whatever on side where lymph nodes were removed.  What if that is BOTH damn sides?!  It's very frustrating, because it's impossible. 

    Oh, well, my rant is winding down.

    Have a great night all!

  • Debbi5108
    Debbi5108 Member Posts: 182
    edited June 2009

    Completely done!!!!! YAY!!!!!    I am not sure what I am supposed to do with myself tomorrow after not having to spend 2 and 1/2 hours in the car driving to and from rads and not have to get up at the butt crack of dawn any suggestions pastb the idea of sleep ???? LOL

    Shan I know that muscle and the heart attack feeling as I dealt with it last week SCARY eh? And the burnt skin Oh Yeah!!! got that too other than that  all is well.

    Waiting for the party Gals.

    Hugs, Deb

  • eadsla
    eadsla Member Posts: 217
    edited June 2009

    Shan--Sorry to hear about the pulled muscle.  That does not sound like a good time.  I hate to say this, but maybe you should think about not carrying too much for now.  For now...not forever.  I think that we all get so caught up with finshing the formal treatments and just want to get on with our lives that it's easy to forget that we have been exposed to what amounts to radiation poisoning whose effects are cumulative.  Just because the zappings are done doesn't mean the effects aren't still assaulting our bodies for weeks afterwards before the healing part of it can even really start. 

    Yipes, I don't mean to sound like a schoolmarm.

    Deb--Congrats on finishing!  Another bowl of ice cream is getting set up.  And you know, you joked about sleeping with the extra time you'll now have with rads...I say do exactly that.  For me, I got hit with fatigue.  Hopefully you won't, but if you do...sleep.  There's a reason for fatigue, and it usually hits after treatment ends.

    Okay, I'm starting to have a running rant of a theme going on.  So, I'll stop.  Or maybe I'm just tired and I should follow my own advice.

    Nite All!

    Catherine

  • susan13
    susan13 Member Posts: 732
    edited June 2009

    Hey Ladies!

    Shan-sorry to hear you pulled a muscle... like u really needed that! Hang in there!

    Congrats on everyone who is finishing!  I am not up on the posts, just got back last nite from being away for a few days.  We went camping in the mountains on a beautiful lake. There was a nice sandy beach that the kids played in, and I sat under an umbrella for most of the time. I was so paranoid about the sun hitting my chest.  I even wore a t-shirt.

    I started my Tamoxifen last nite.  I sure hope my hot flashes don't get worse.  I took an ativan last nite and I slept pretty good.  Elaine-I'm going to try and take a half... but those pills are so tiny, how do u even cut them in half???

  • shan1171
    shan1171 Member Posts: 138
    edited June 2009

    Deb - Congrats!  It is scary, isn't it?  I just knew it was a heart attack, because after all I've been through, the pain took my breath a bit (and that takes some doin')!  Mine is actually feeling a bit better, I've tried to take it easier (at least on that side)! 

    Cat - I hear you!  I know, I know........you are definitely right!  I am a bit stubborn and maybe I tend to overdo sometimes just to prove to myself, I've never REALLY been sick at all!  I should kick my own ass, I guess.  Nobody to blame but myself.  I actually have asked my strong, strapping nephew to mow for me for the rest of the summer (for a fee, of course....modern kids)!   I'm trying to pick up Cam with only my right arm, for now.  Sometimes I even let him follow me around and fuss a bit (GASP)!  I've learned that distraction is the name of the game with toddlers!

    Well, I'm off to KY with my grandmother.  Gonna hang with her a few days (trying to enjoy my quickly dwindling month before my return to work (hell)!

    Everyone have a great week! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    Deb, congrats on finishing - YAY!!!

    Shan - hope your muscle pain gets better soon.  Did you pull it from picking up Cam?  Smile  Was going to suggest that instead of picking him up you get down on the floor and roll around but then he'll probably take a flying leap onto your chest - Ouch!!!

    Time to make the ice cream - anyone still in tx?

  • susan13
    susan13 Member Posts: 732
    edited June 2009

    Make mine a triple fudge mint chocolate chip sundae with whip cream!!!!!!!!! oh, and a cherry please!

  • Lainey64
    Lainey64 Member Posts: 740
    edited June 2009

    Congratulations everyone who finished!  I've been MIA a few days myself.  I'm ready for some ice cream though!  Make mine chocolate in a waffle cone!

  • BonnieK
    BonnieK Member Posts: 655
    edited June 2009

    Congrats to everyone who has finished rads!  Today was my last treatment, and I hardly know how to feel but will definitely figure it out.  Looking forward to a hot fudge sundae with the works!

    Bonnie 

  • eadsla
    eadsla Member Posts: 217
    edited June 2009

    Woohoo Bonnie!

    So, who else is still on the train?

    Catherine

  • bethaib
    bethaib Member Posts: 125
    edited June 2009

    Hey Shan- much as you want to pick up your little one, you still need to be careful...pulled muscles aren't fun. I pulled one at least 5 years ago carrying my son on my back on a hike for quite a while...yep though I was having a heart attack too afterwards... and I still suffer with pain/problems now and then. So be kind to yourself,  try to find an alternative if you can for a little while to allow yourself to heal. Maybe you sit down on a chair and let your little one get hugs against your knees/side. Try hugs instead of lifting and come down to where your child can reach you instead of you trying to lift him. Maybe he climbs up next to Mom and lays down or sits with you. But see if you can find a way to give that love and attention without hurting yourself.

    Congrats Deb and Bonnie!!!!!

    For those of you on tamoxifin, Femara or Arimidex...I read the article below:

    www.msnbc.msn.com/id/31088185    "Cancer patients seek alternate remedies"

    and it mentions staying away from red clover, dung quai (whatever they are lol), and licorice because of estrogen stimulating components.  I love licorice and eat black licorice quite often. Guess I need to stop?  Has anyone else heard this about licorice too? 

    Not feeling too well tonight, been sick to my stomach, and hot and cold. Though it could be those dang hot flashes too. Nervous a bit as my son's school has had a couple cases of the "swine" flu. Hopefully I will feel better in the morning. Think I'll try to go get some rest now...night ladies!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    Bethaib - feel better - get some rest.

    Bonnie - congrats on finishing.  

    Nooooooooooooo, not licorice - I love licorice.  Can't I give up the arimidex instead?  Okay, guess not - phooey!

    We're all done with chemo and/or rads but saw med report on the news this evening that during active tx needed to stay away from Vit C, Vit E, Selenium and Beta Carotene.   Said antioxidants had bad interaction.     <  Sigh  > 

  • Debbi5108
    Debbi5108 Member Posts: 182
    edited June 2009

    Hey all, I want chocolate with fudge and brownies Oh so fattening but I DO NOT CARE!!!!! lol

    Shan: Yes it was very scary and I too over did it and Catherine you may sound like a schoolmarm but, at least you care and if Shan and I (sorry Shan) weren't acting like we were invincible teenagers we wouldn't be suffering from muscles problems LOL anyways I think I need to find myself a gardener like I use to have only this time I think I want him to be young and cute (not to young) so that I have some eye candy to recuperate around lol I think I might be feeling better ha ha. 

    Bethaib: Hope you get to feeling better and soon

    Lainey I love the look and glad that you are doing so well.

    Patoo: Your doing so well with this ice cream party thanks so much.

    Susan13: Only a Cherry MAke that 5 cherries you deserve it.

    Bkokie: Congrats.

    I am so proud of each and everyone of us ladies we have accomplished alot and I also want to thank you all for being there for me and making this part of my journey so much easier.  One question Where do we go from here??? besides weight watchers ????

    Hugs to all,

    Deb

  • susan13
    susan13 Member Posts: 732
    edited June 2009

    Patto-What did they mean "during active treatment"... even on tamoxifen or arimidex?? I specificaly asked my onc. when he gave me the tamox about any interaction with anything and he said absolutely nothing. Exept for stuff like black cohosh, etc. that act like phytoestrogens.

    Ladies I am really feeling great these last few days and I so hope that it is going to stay.  I even went on my mountain bike yesterday after work!  I need to loose 10 lbs... after I eat that sundae of course... so I am on a mission!  I'm so scared of that tamox putting weight on, I don't need any extra that I've put on since chemo/surgery/rads, been so inactive!

    My skin is almost back to normal, but parts are still dark.  My underarm which was THE worst ever has healed so nicely, thank goodness!

    CHEERS!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    Tomorrow morning at 8 AM I see the neurologist. Hopefully he can find out what is causing the dizziness. 

    I am two weeks past the last Tx tomorrow and fatigue has hit me really hard.

    My skin does not hurt, but looks awful with all the patchy peeling!

    Tom is sleeping and I am up craving ICE CREAM.

    Bette 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    Debbi5108 - "active treatment" only meant while doing chemo and rads. 

    How's Friday evening, June 19 for ICE CREAM?  Time-TBD.  Anyone here not in US or Canada so we can sync if needed with Aussie, Europe, whereever.  If 6/19 is not good, let us know - we are flexible!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    I will be joining the ice cream party on June 19!

    Saw the neurologist today and he referred me to an ENT specialist. He is hoping my dizziness is inner ear inflammation. I was unable to walk a straight line or stand erect with my eyes closed . ENT appointment is next Thursday.

    My chest still looks ugly with all the peeling, but I was able to tolerate my mastectomy bra and prosthesis for the first time in weeks. Makes me look more "normal" when I am out in public.l

    Fatigue is still a factor. Time for a nap.

    Bette 

  • sdavis
    sdavis Member Posts: 96
    edited June 2009

    I only have 1 more. Tomorrow at 1:30 central time I will be done with Radiation. Still have a few surgeries to deal with but so glad to be done with this part of it. In some ways Radiation was harder than Chemo. My arm peeled after my week off and feels better, still sore and touchy but not raw. I was truly worried for a while there that I would have scar tissue that would impare my reach forever. I still HURT when I reach up but at least I can do it if I have too.

    Anyway I am not one who thinks congrats are in order since I was only doing what I had to do to live another few years. As a woman my days are filled with things that must be done no matter how I feel so I do them. Radiation and chemo were two of those things, I tried not to let them interfer with my life. I told my husband once in the middle of this that with all the different hats I owned I loved the MOM hat most and that was the most important one.

    People keep asking me what my prognosis is. LOL I have no idea neither do the doctors. I usually reply that when I die at the age of 98 of natural causes I will then know that the cancer was gone. I get to spend the rest of my life waiting for the other shoe to drop.

    Sorry didnt mean to rant on. Hope all are having a wonderful day.

    Sue

  • Debbi5108
    Debbi5108 Member Posts: 182
    edited June 2009

    June 19th is good for me, wouldn't htink of being anywhere else.  Hello to all Bette let us know what you find out as I too am getting a little dizzy every now and again and they are saying that it is due to my sinuses ( showed blocked big time lasy July).

    Debbi

  • Lainey64
    Lainey64 Member Posts: 740
    edited June 2009

    Hi gals.  I've been MIA lately.  I think it's because of my PMS or something.  lol  Sonia, I'm so glad you're finishing rads today.  Now on to bigger and better things!

    I've been having soreness on my back (rads side).  Has anyone else experienced this?  It's tender to the touch and almost feels like a bruise.  I've read that rads go out the back but it's still hard not to let myself get scared. 

    Bette, let us know how your doctor visit goes.  Just to let you know, I catch myself feeling occasionally dizzy.  It's weird. 

    Fatigue still comes to pretty easily to me as well.  When it's bed time, I'm sooo there!!

    Have a great day ladies! 

    Elaine xoxo

  • Debbi5108
    Debbi5108 Member Posts: 182
    edited June 2009

    Elaine,

          I have the back thing going on and sometimes it can be quite painful almost like I pulled a muscle or something as well as that bruised feeling.  The bedtime thing I so have as well.

    Debbi

  • Lainey64
    Lainey64 Member Posts: 740
    edited June 2009

    Thanks, Debbi. I'm really trying not to panic at every little ache and pain.  But you know, it's so hard sometimes! 

    As for sleep, I was nursing my last bottle of Lorazapem determined not to call for a refill.  Well I bit the bullet and called my onc's nurse and asked if she could send another script to the pharmacy for me.  She called back and said she would but in the future I'd have to call my primary care physician for this since I'm finished with treatments.  Gosh, they're just cutting me loose! 

  • BonnieK
    BonnieK Member Posts: 655
    edited June 2009

    Hi everyone,

    Sue -- Congrats on finishing rads!

    Bette -- When do you see the ENT? 

    Lainey and Debbi -- Sorry about your lingering SEs.  I just finished rads on Monday and don't have the back pain you describe, but do have a terrible time sleeping and am also very fatigued.

    Today was my 3 month check up with oncologist and everything seems to be going well.  He told me that most of the side effects from chemo, rads and Arimidex will get better with time.  He is sending me for an MRI of my cervical spine because I have radiating pain up to my head and down to my shoulders and arms.  I had a fusion in my neck a couple of years ago, and this is may be more disc problems.  The doctor doesn't believe it is related to breast cancer, so that's a huge relief! 

    Take care...

    Bonnie 

  • BonnieK
    BonnieK Member Posts: 655
    edited June 2009

    Hi everyone,

    Sue -- Congrats on finishing rads!

    Bette -- When do you see the ENT? 

    Lainey and Debbi -- Sorry about your lingering SEs.  I just finished rads on Monday and don't have the back pain you describe, but do have a terrible time sleeping and am also very fatigued.

    Today was my 3 month check up with oncologist and everything seems to be going well.  He told me that most of the side effects from chemo, rads and Arimidex will get better with time.  He is sending me for an MRI of my cervical spine because I have radiating pain up to my head and down to my shoulders and arms.  I had a fusion in my neck a couple of years ago, and this is may be more disc problems.  The doctor doesn't believe it is related to breast cancer, so that's a huge relief! 

    Take care...

    Bonnie 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2009

    Sdavis, we all do what we must because we intend to be victorious.  Finishing rads is just another milestone we have reached and we, as people who wear many hats, deserve congrats because we did it in the midst of all our other multi-tasking.  Don't get many pats on the back for most of that so may as well give and receive it here from each other.  I do like your attitude; I also intend to live many more years.  So, congrats on finishing today - YAY!

    Bkokie, congrats also on finishing - way to go!  Hope all goes well with the MRI.  Keep us informed.  You should have learned by now that the docs always say 'it's not related to bc' - just their usual denial mode LOL (I'm just kidding with you!).

    Lainey64, I agree that it's hard not to wonder with the aches and pains.  I've felt little stabs in my rad breast a couple times the last few days and it's tender still (3 weeks out).  My upper arm on the side where some nodes were removed feels somewhat numb (had gone away after surgery and comes back now and then).  Should I be worried about any of this?  At what point do we know to have something checked out? 

  • Jane_M
    Jane_M Member Posts: 1,549
    edited June 2009

    I got a statement from the hospital where I had my rads today.  Can you believe $40,532.55?  My copay was $30.

  • EleanorJ
    EleanorJ Member Posts: 752
    edited June 2009

    My worse lingering SE from rads, which I'm not even sure it's a rad SE but started with rads is my hand getting numb. It's so weird! I wake up in the middle of the night with my hand (usually right hand, opposite side!) completely numb! During rads, it was every single night. Now it's every 2-3 nights. I asked my onc about it and he pretty dismissed it, saying it was the way I sleep putting pressure on my elbow. Well, I've been sleeping the same way for the past 30+ years. So who knows what it is, but quite annoying.

    So glad to hear most of us are done with rads. Let the summer fun begin :)

    Anyone still in rads?

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