I'm back and worried

Great thanks for the feed back...  I live in Arizona

Yes, I am in Glendale AZ so about 45 minutes drive to Scottsdale.  Not sure if she was a oncologist or not.  But she seemed pretty sure it was not IBC.  She said very rare to have in both breast and I would be a "text book case" if IBC in both breast's.  She also said she had seen IBC and you know it when you see it, mine did not appear to look like it.....  When the puch biopsies came back she said the report said no IBC, no Padgets disease, just "chronic inflammation".  Is that not what IBC is?  Inflmmation of the breast tissue????

Maybe I should try to find a Oncologist breast doctor?  Any of you ladies out there who can guide me to Arizona doc's?  Is the Mayo clinic the best place?

I'm pretty scared at this point and it's been going on for way to long with no diagnosis.  I did have food allergy testing yesterday so waiting for that to come back.  I have a lot of stomach symptoms with this as well.  Can't eat much, Nausous a lot, bloating etc so not sure if this is all tied together????

Thanks again... All of your feed back and suggestions mean a lot to me!

I have a call into the breast sx I saw to ask about false negative etc.  All my bllod work came back normal.  No allergies to foods etc.  I will keep you posted.

Thanks ladies,

I talked to the doctor who I saw a few weeks ago, the breast sx today over the phone.  She is so nice.   She said she did some research and the chance for a false negative bio is like less then 12%.  She also said that IBC is more of a clinical diagnosis and you know it when you see (she said I did not have all the classic sx) and in both breast is almost never heard of.  She feels stongly my rash is not IBC but did ask me to come back in and see her next week.  She said we could talk about it some more and she would be willing to do repeat bio's if it would make me feel better.  So I don't know I see all the posts where you were undiagnosed for so long and blood test were normal etc and just feel so scared to continue to ignore this rash... Also nervous about the mammo that said prob a lymph node not a lump on my right breast.  Should I ask her to bio that too?  My G-ma died in her 40's of breast cx.  I am just so worried....

Hello all,

So I have another appointment with the breast sx on Wed am.  My rash is actually looking a bit better now.  I did receive my bio report in the mail.  I thought someone said for it to be accurate it has to include breast tissue???  On each breast that was bio it says no breast tissue for evaluation.  What is that suppose to mean?

So I am just wondering how accurate this bio really is?