mom just diagnosed.... needing help :(

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my mom is my best friend and the most important person in my world, and she was just diagnosed with breast cancer. i feel like my world is crumbling, i have been crying for 3 days straight but trying to be strong and not show i'm upset when i am with her. it is so hard to think positively and i keep fearing the worst, even though i know the best thing to do is stay strong and happy for her. does anyone have any advice on how to stay strong and help her beat it???? im really struggling and in need of some help. also, it's really bothering me that we keep having to wait for her next appointment and that she was diagnosed 3 days ago but they havent started treatment. i want them to take care of it right away, i know thats unrealistic but its SO frustrating!!

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  • mom_of_2
    mom_of_2 Member Posts: 347
    edited May 2009

    First...the waiting game is awful and there isn't anything to do but have your mom be her own advocate.

    I can share my story and how my kids have coped and hope it helps you. I was diagnosed with IDC and DCIS almost one year ago on June 2, 2008. At the time, my kids were 17 and 13. I am unusually close with both of them. My daughter was scheduled to leave for 7 weeks the day before I got my results and wanted to cancel. I forced her to go with the promise I would keep her up-to-date by the minute. My 13 year old son was home with me and it was really hard on him. He was in denial first and then mad as hell. He wanted to fix me and couldn't. He went every step of the way with me through getting my diagnosis, shaving my head, surgery etc. Even though I talked to my daughter daily and visited her 5 times over the first week she was gone...distance made it seem like a bad dream. Once she was home reality struck. She was at my side for every chemo until school started. I told my kids constantly...don't play happy for me...I wanted them to be true to their feelings. I had a long road and I wasn't sure I was going to make it. I was told my cancer was very aggressive not only by first and second opinion doctors but by a very good friend who was chief epidemiologist at American Cancer Society. Needless to say I was scared. The "what ifs" were the worst..."what if" I wasn't here to see them graduate etc etc etc. Mom guilt about what I was putting my poor kids through...it just wasn't fair. As you worry about your mom she is worried about you.

    Fast forward one year:

    20 weeks of chemo, countless MRI's, PET scan, 3 surgeries, 49 weeks of herceptin and 5 months of tamoxifen. Cancer is gone! June 15th is my last herceptin and final reconstruction surgery including port removal! 7 months out from chemo and I have almost 4 inches of very curly hair! I feel better physically than I did pre-diagnosis! My kids and I are even closer...if that is possible! AND I WAS AT MY DAUGHTERS GRADUATION WITH TEARS STREAMING! 

    I do know how hard this is on you. How scared you are and worried about losing your mom. Treatment is tough to watch. Bad days will be bad but then she will come through this and believe it or not...life goes on. There is a "new normal" that takes hold. I was able to take my daughter on a trip in February that I physically couldn't have gone on a few months earlier. Next week we are going to the beach together. I have decided...I tried this cancer thing...didn't really like it so now I am done with it!

  • soprano
    soprano Member Posts: 44
    edited June 2009

    Hi. I just went through this with my mom.  Went to many of the appointments and tests and did a lot of research.  If you want to PM with any questions of just to vent- please do.  My mom and I are really close too; so, I understand where you're coming from.  Be strong.  Be the one that she can go to who deals with this well.

    Soprano

  • TBird1964
    TBird1964 Member Posts: 58
    edited June 2009

    Hi there

    My mom's battle with bc was 4 yrs ago. She is a Survivor. :) Her and I are very close also so I was there for her every step of the way. There's alot of questions, confusion and fears but it will all come together as you progress through appointments. Don't hesitate to write everything down, before, during and after appts. It's way to overwhelming (for your mom and you) to try to remember.

    Of course you're upset and crying. I did my share behind my moms back and sometimes with her. It's so scary, but you and your mom will come through this together. And she will need your strength, support, love and compassion through this journey.

    My mom's cancer was capsulated, but was a very aggressive type so she had a lumpectomy, 6 chemo treatments and then six weeks of radiation.

    I'm thankful for my close relationship with my mom. Because of that, she communicated everything to me and my sister. "We" were all on the same page every step of the way.

    You and your mom are in my prayers. Take good care of her and yourself.

    Teresa

  • StayingStrongForMyMama
    StayingStrongForMyMama Member Posts: 8
    edited June 2009

    Hi. I am going through the exact same thing. My mom, who is also my best friend, was just diagnosed on Monday and I feel completely helpless. It also irritates me that the appointments are taking so long and that nothing is being done immediately. I know this isn't reality, but I want this to be taken care of now before it gets worse! I am so confused and sad also. Just try to be strong. We can get through this. Both of our moms will be survivors. I know it is hard but try to be positive. I am trying to do this to the best of my ability. Negativity will get us nowhere. Seek the support of your family and friends because trust me they want to be there for you and I'm sure they are all praying for your mom. I will say a prayer for your mom and you and if you need to talk feel free to message me. Be strong and stay positive. We will get through this!

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