Don't Think I've Ever Felt This Pain

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prettypink
prettypink Member Posts: 41

My moms cancer was diagnosed in April of this year.  Within a matter of weeks, she has been for 3 mammograms, 2 visits to the surgeon, and finally her surgery this week. Her chemo will start in 3 weeks, then radiation.   I have pretty much closed my home which is about 3 hours away, and am going to stay with her until she gets better.

I look at my mom, and I know she is not well at all.  I see it in her eyes.  It completely breaks my heart.  Monday we find out at what stage her cancer is at.   She had 3 lymphnodes removed as well and that really frightens me as well.  I try so hard to not let her see me cry, but Im crying like crazy.  Every chance I get...a ride to the store, a washroom break...tonight i massaged her legs and feet (she loves that) while she was falling asleep...there i was crying in the dark.  Im so afraid of losing her.  In front of her though, I am soooo positive and happy.  Cracking jokes, anything I can to make her smile.  Her cancer has consumed me.

I know its not very positive to say, but she is 65, has high BP and is over weight.  This summer we are going to exercise and eat as healthy as possible.  Im ready to fight this right beside her, i just wish it didnt hurt so bad.  Some mornings I still wake up and think it was all a dream.  Ugh.

Sorry to bring anyone down ..just needed to get that out.

Elisa

Comments

  • pbcc1
    pbcc1 Member Posts: 659
    edited May 2009

    You just get out whatever you need to, and this is the place to do it. A positive attitude is a wonderful asset to have. All"doom and gloom" is not mentally healthy. You will both have your good and bad times. Perhaps, you should have a good Mother/Daughter cry and get this all out in the open. If you are going to be there for her, the last thing either of you need is the added stress of each trying to protect the other. It is, what it is..... and the best you can do is fight ! Learn what you can that may help, but careful on the internet, as it can overwhelm you very quickly. This is going to be a marathon, and not a sprint so try going one day at a time, go slowly and plan. Once you have all your plans in place, everything will be a lot calmer.

    During chemo, activity and hydration is important. Perhaps you can both start some short walking now, and get into the habit. Also, dropping some pounds decreases the risk of recurrence, as does a low fat diet. I was totally shocked at some of the things I was eatng when I looked at some labels  UGGHHH !! 

    Best of luck to you both, and please keep us posted on what is happening. You may also want to join the chat room... lots of ladies there with everything from A - Z. Had all the surgeries, took all the meds, etc etc...you can get some good support there and information that is first hand.

  • prettypink
    prettypink Member Posts: 41
    edited May 2009

    pbcc1

    Thank you for you kind words of wisdom and support.  I will keep you posted.  :)

  • cjbonz
    cjbonz Member Posts: 4
    edited June 2009

    Let it out I have cried many nights suitting alone while my wife sleeps.  She had surgery in May back to work in 2 weeks. She was a Stage IIB and 2 out of 24 lymphnodes were positive.  Just let her know you care and Love her and dont be afraid to let her see you cry, it is not a sign of weakness.

    Carl

    ETC/SS USN Retired 

  • prettypink
    prettypink Member Posts: 41
    edited July 2009

    ThankU Carl. 

     I did in fact break down today in front of her.  The doctors office called because they saw something during her MRI last week, and she has to do a brain scan Monday morning at the cancer center.  I just want this all to stop.  Everytime I exhale, and think maybe the worst is over, the phone rings again.

  • ddoyle
    ddoyle Member Posts: 40
    edited July 2009

    Pretty pink,

    I understand, it feels like you are in a nightmare that you wish someone could just wake you up from.  As soon as my mom was diagnosed they put her into hospice because she refused any treatment to fight this disease, and since that day it has been really hard. The pain will not stop until either your moms cancer is gone or she gets better and even after that it will hurt but please know it is okay to cry.  Hospice has taught me that no matter where you are at it is okay to cry and express your feelings, that is how you heal is by your tears.  Also if need be it's okay to cry in front of your mom because maybe she needs to feel like she is not alone as far as feelings goes and then maybe your mom might start crying to which will help heal both of you.  Please know that no matter what you are not alone God is always with you and your mom, he is holding both of you in his hands and if you ever feel lonely or upset just cry out to him he will send you peace and comfort no matter how dark the days can become he is there night and day.  I would say you can lean on friends and family but the nights can feel lonely and if you can't reach anyone God is always there. 

  • prettypink
    prettypink Member Posts: 41
    edited July 2009

    ddoyle

    just reading your words made me cry.  its nighttime, im alone in my room internet -studying what our next few weeks will hold.  and yeah, it does feel worse at night.  my heart breaks for my mom the most though, not me.  Its so easy for us on the outside to say be strong, positive etc., I know she is terrified. 

    I talk to God often throughout the day.  I could not go through this without Him, and i know He is here with us.  I tried to go to our church last Friday when we got the call for a scheduled brain scan...but the doors were locked.  So, i walked back to my truck and just prayed as hard as could be. 

    Elisa xoxo

    PS.  Tonight i will pray for everyone here. Goodnite all.

  • trigeek
    trigeek Member Posts: 916
    edited July 2009

    Elisa... I just happened to see this thread. I am not a caregiver I am a survivor reading your words kind of terrified me as I never knew what my family daughters, husband felt when I was going through treatment although I did catch him crying 1-2 times in the initial diagnosis stage.

    As my surgeon said 'sh..t happens' we just go through the motions and make the most of it. Reading the diagnosis DCIS her prognosis is excellent .. well.. actually I think one is better off having dcis than high blood pressure even ! But why chemo for dcis ? cause the grade is 3 ?

    It is good that you are with your mom and helping her along the way, however as a mom I would not be happy seeing my daughter stop her life and attend to my needs, maybe that is me as I see this as my personal fight although I am extremely appreciative of all the support that I get from my friends and family.

    Take good care of yourself Elisa that is the best gift a daughter can give to her mom and cherish and enjoy the time you get to spend with her, cancer gives everyone a different perspective and we learn to appreciate everything and take nothing for granted. 

  • trigeek
    trigeek Member Posts: 916
    edited July 2009

    Oh and dont forget from now on if she has hickups docs are going to be all over her with tests/scans.. do not make much of it.

  • prettypink
    prettypink Member Posts: 41
    edited July 2009

       Trigeek.

          Well you see in my teen years my mom and I weren't as close as could be.  it has only been in the last 6-8 years or so that we have gotten closer.  Through all my troubled times though, my mom was always there for me.  She loved me unconditionally, and i just wanna give her some of that love and support back ya know.  Who knows?  Maybe its my way of making up for lost time...but i just couldn't see my mom go through this alone.  I am her only child. 

    The DCIS...well I did not know that was a positive.  We have our appt with the oncologist on Wednesday, so maybe she wont need chemo at all.  it was the radiation doctor who said chemo would probably be strongly considered by the oncologist.  I wish I even understood what exactly grade 3 means as far as the future.  It sounds so bad, but maybe its just me reading too much.

    And LOL @ the hiccups thing...she is already starting with wondering if the back pain she has , is because its spread to her kidneys.    

    Thanku  for your words.

    Elisa xoxo

  • prettypink
    prettypink Member Posts: 41
    edited July 2009

    Re-reading my mom's report this morning, and its invasive ductal carcinoma, so I made a mistake in her DX.  IDC is what it is not DCIS..involving 3 out of 4 cores.  Now Im completely lost.  I am assuming that means something different.  I will edit her DX

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