Swelling...need advice ASAP
My ankles are swollen up like balloons and this have never happened before and I don't know if I should be really alarmed or just keep my feel elevated and see if things go back to normal or what. Would feel like an ass going to ER just to have them tell me it is nothing. I had my treatment Wed...the works this time...abraxane, avastin, faslodex, and zometa....and of course the premed with the streroid in it which they are trying to adjust....since I was feeling totally pooped and told them to up it a little it is now at 40%,,,,,we are searching for that happy medium so I feel good, but still can get some sleep. Last night I got almost no sleep and was baking and icing a cake and cleaning getting ready for company so perhaps I was just on my feet way too long....noticed some swelling when I got home from work after 1, but they really swelled this afternoon. I elevated them this evening after our sightseeing and going out to dinner with my cousins and Uncle who are visiting and when I put them up it made my lower leg and knee replacement hurt so I have just been lying with my legs stretched out flat. I called a friend with health problems and she was asking me if an indention remained when I pushed on them, if I was having trouble breathing or felt tightness in my chest....she is probably thinking blood clot, but I have had those before and this does not feel like that....also my coumadin level was actually a bit high when they checked it Wed. so do not think there is any danger of a clot. But I will say this swelling has me concerned. I did not know where to post, but since I am Stage lV decided to start here. If anyone has an advice, please send it. I plan on calling my onco;s office or stopping by there lst thing in the AM if they are still swollen. I have never had dainty little ankles, but now they look like I have elephantitis or something. I am drinking lots of H2O hoping to flush myself out, but am not really going all that much.
Comments
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Marybe - the taxanes have a tendency to cause edema/swelling. You overdid it with your baking and sightseeing and so on and on. Actually a coumadin patient has to be carefully monitored; it sounds like you have a complex medical history. And even 'simple' people get edema. You are doing the right thing by keeping hydrated, now you need to elevate your feet higher than your heart.
Lisa
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It sounds like you overdid it on your legs. Standing is one of the worst things you can do. And if you sit all day in an office, your legs still hang. If the fluid is not causing you to be short of breath, or continuing up your leg or getting worse, I would call onc in the morning for sure. If you become short winded with or without activity, go immediately to the ER. You may just need to be on a diuretic for a while. I have one that I take only when needed, and I haven't needed it in quite some time. Orange juice is a good natural diuretic if you can have it, but continue drinking water also, and put your feet up if you can. Clots don't generally cause bilateral swelling like you are describing, and they are frequently painful.
Good luck with that fluid.. it can be a real pain !!
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Thank you both for responding I thought it was most likely due to the fqct I was on my feet too much, but needed to get opinions from someone else as it was really quite alarming to see my ankles looking like that. My mind tends to race and can jump to all sorts of wild comclusions, but I myself was not actually thinking blood clot since I had already had several of those and did not have swelling like this with those. It was just scary since this has not happened before and actual chemo is still new to me and it seems like every day there is some new side effect showing up, I AM on my feet a lot at work, if I am not standing, I am sitting on a stool. Right now I am stilll in bed and my ankles look a lot better....not normal, but not grotesque, In the past few weeks I have been standing on laddars, climbing lots of steps and doing a lot of things that used to never bother me at all, but am sure that those things in addition to work and staying up half the night all caught up with me. I have been trying to get my father;'s house in shape for his 87th birthday which is this Sat, Just to be on the safe side I will call my onco's office tomorrow and see if they think I might need a dieuretic, I took an allergy pill yesterday which I had not taken for awhile and that pretty much dried me up,,,,think that may have been a contributing faqctor also? I know I am supposed to drink a lot of water with the chemo I am on, but dont always get it in because I am working and sometimes we get so busy I truly do not have time to go to the bathroom so don't get my water drunk. I don't want to be wonderwoman, but want so much to be "normal" and to carry on with the activities I have always done and know I am trying to do too much most of the time, but just can;t seem to make myself slow down. The steroids sure don't help the situation any, but when they cut them way down since I was complaining so much about not getting enough sleep, they upped them, not to where they were a few weeks ago, but up from last week when I was feeling totally drained. Thanks again for reassuring me. I am going for a glass of OJ and then back to sleep. I had not heard of that one before.
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Do see or call your oncologist; they may want to put you on lasix or something to reduce the swelling. My mom (also with cancer) goes through that periodically and it can get serious but she's been able to get it under control and back to normal every time. If your ankles/legs start pushing drops of fluid out, let your doctor know that, too. They should look better in the morning after being elevated all night, but as soon as you get up and start moving around, the swelling may come back (even if you're just sitting or something, just being upright makes them swell some).
It sounds like you're doing all you can. Good luck! and let us know what happens...
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I am going to onco's office as soon as I clean up. This is one heck of a weekend to have something like this going on as I feel like I have to feed the masses......more company is coming to my Dad's and they will arrive in the AM tomorrow. Our group is go go tour a dam on the way to his place and then we are to lunch along the river at this winery....BUT I feel finding out what is wrong with my feet is more important so I just may meet them all later at my father's.....it's a 2 hr drive from here and I wish I was riding with them instead of driving myself, but have to haul food and stuff, plus they are all leaving on Sun and I have Mon off so was going to stay til then. See this is how, I am.....am supposed to be discussing my swelling and just get off the beaten path....this is something that happens a lot and I am attributing it to Chemo brain.....I can forget a story in the middle of telling it. ANyway, my ankles dont look so bad this AM, not normal, but not really big, but my feet themselves are a little swollen and red and they feel tingley so I am going to go over there and at least have a nurse take a look at me. I worry about everything....if you have seen my history you will see I have been dealing with this for a long time and I actually deal with it quite well, but I do tend to worry about everything and anything, but I am hoping this is nothing. If I don't post again about this it is because there is no computer access at my Dad's. Thanks to all of you for your advice. Hope you all have a wonderful weekend.
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I would definitely check with your doctor on this, marybe. My husband had swelling and they called it congestive heart failure - fluid was building around the heart also.
He was told to get a very good scale, weigh each and every morning and IF weight was up 2 pounds or more, take diuretic pill. But you need to weigh the same each time, either before peeing or after. AND, if weight went up 2 pounds or more during the day, call doctor and get to ER.
I know how each and every thing with our bodies sends us into hyper drive with worry. Do NOT hesitate to ask doctor. Mine says it is NOT dumb to ask, it is dumb NOT to ask.
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They called in a Rx for diazide for me, but by the time I got it the swelling was much better and now I would say in the morning my ankles are normal. I had been on my feet a lot trying to get everything done for my Dad's birthday and company. I am seeing the onco tomorrow and have all this written down so I can tell him what happened when. My feet are such a mess....I am getting corns and callouses on my toes from the way I am walking....why the way I was has suddenly changed I do not know.....am also still getting cruddy toenails which break off. I have been told this is all due to chemo.....know I am getting off easy with side effect some of you all have, but don't really know if I want to spend the rest of my life dealing with these annoyances....especially since it is painful to walk. I called about disability today and the guy I talked to basically told me that I make too much and that unless I quit working and have proof that I am unable to work, I may as well forget it. I am going to the SSDisability topic on this message board to see what I can find out.
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Hi Marybe,
I just tried to send you this private message and could not get it to work.This in reply to your private email to me.
I just had a problem trying to send this message. I had so many problems with Abraxane, pain, fungus of several nails and onc gave me script called Penlac for them but it says nails will fall off so I don't care to use it. I just hope it goes away. I am bald and don't know if I will get my hair because all the chemos say hair loss so it doesn't have a chance to come back. Did you lose your hair? I have neuropathy bone pain and now I have a really bad pain in upper back and shoulder so she put me on Gemzar and it was the worst I only had 2 treatments and it wipe all my counts so low I had to be rehydrated. I told her I want a break so yesterday I got my Zometa and she set it to run 40 mins and what a difference I just hope tomorrow is just as good. She want to put me on Navelbine and I read up on it and it sounds alot like Gemzar. I really dread going back on chemo but I have no choice. My scans always show some progression. I just pray we all get cured.
Take care,
Geech
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I still have this problem and for some reason my onco does not seem to think it is a big deal, but I think it is since I did not have the problem before. Lasix didn't do much so I am back on the diazide, but if I don't take it every day, my ankles and actually my legs below the knee swell. One topic on here, Clinical edema, I believe did offer some good advice and opinions. I went off the chemo I was on this week......only had two more to go, but discussed it with my onco and he agrees I was having bad SEs so I an now taking a break and am not going back on it, but will have to resume something in a few months. Swelling was not even one of the major ones....it was the neuropathy that finally got me.....first toes, then the entire foot and I had several falls. When it started in my hands that was it for me.....I know some women that never did get their feeling back adn I did not want to risk that. A lot of other SEs were and still are bad, but it was really the neuropathy that was the last straw. In the meantime I am taking diazide, but still feel we should be finding the cause for this problem and not just masking it with diuretics. I gained 6 lbs in a day so know I am retaining water like mad....the peson who weighed me did not even comment on this which I thought odd. 6 lbs in one day?....that would make me at least ask if something was going on. Oh well,.....maybe things will get better now that I am off the chemo. An going to bed now as elevating them and getting off them always helps. Maybe I should have edited the title of the topic cuz I no longer think there is urgency with this as it's been going on for quite some time now.
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