Accountability in a police state.
Comments
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Sometimes I can't believe it. It's really rough at times.
We are planning a family wedding right now and I miss his great ideas and calming demeanor.
I just plain miss him.
I'm so sorry you are going thru the same.
The index cards is a great idea. So many of my friends would love one of those dolls.
I don't think there is a person on this planet who is stress free.
I'm surprised I haven't seen the dolls ever before. Keep the great fun ideas coming Nancy.
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I am a bit limited (only 30% use of my left, dominant hand) due to 7 reconstructive surgeries thanks to a drunk driver 30 years ago. So, I seek out easy crafts and have one of those rotary cutters for easy fabric patterns. My sewing machine is older than dirt, but it IS electric.. only straight and zig zag. But it does the trick for me. Portable, but weighs about 75 pounds, so it does not jump around on the table when I get it going.
I too miss my hubbie. His ashes are in Arlington National Cemetery and I live near. Monday I will go over and take roses, pull the petals off and say "I miss you, I love you" as I pull them off. I will cry a bit, walk around a bit, probably stop and talk to others, share stories of our loved ones.
Peace, blessing and LOVE, Nancy
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Gentle hugs to those who have lost dear ones and those who are missing family/friends who are away.
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I think that doll would be a great idea for our regional Bereaved Families group. A great way to raise money. Do you know if the poem or idea is free to use?
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I am pretty sure the poem is free to use, but the nurse one (if memory serves me) is copy righted.
Several sites have poems if you google "Dammit dolls"
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Well, I swore I would not get involved in another thread here at bc.org but after hearing through the grapevine about THIS thread, curiosity got the best of me and here I am...........
I have many opinions, but I dont want to type that long, and ya'll dont want to read that long. LOL All I can tell is what I witnessed PERSONALLY.
Most of this started back in the political threads. Both sides would get pretty heated, tempers flared, and posts were reported. Some posts deserved to be reported, most did not. One week after Christmas is when all "heck" broke out and MANY posts were "reported" on the republican thread, getting about 10 members either restricted or banned, 2 being permanently banned.
Now it is very easy to assume who the "reporters" were. No proof of who, just who was most likely. And the "most likely" would almost have to be from members who did not agree with the republican thread. It could have been from members who never even participated in the political threads, but the damage was very unfair and unfortunate.
Shirley, you know I love you most in the world, you were my first friend here and I will defend you till I draw my last breath. But, no, we did NOT "welcome" those who differed with us on the republican thread. We assumed they were there to cause trouble, and asked them to leave. You know it, I know it and they know it. It was RARE that differing opinions were "welcome" on either thread in that forum. BUT, the reality was, that most of the time the "differing opinions" were posted just to cause trouble. That is why they were asked to post elsewhere.
With ALL this said, there were so many women and one man from the republican thread that were UNFAIRLY banned and/or restricted as a DIRECT result from missuse of the "Report This Post" button. Emails to mods went unanswered.
I do not know if others were banned or not, I only know of the ladies from the repub thread.
As a result of this autrocity, several of us got together and decided to make our own breast cancer site and message forum. It took several months to get it up and running, but it is going really good now.
We have NINE mods who are constantly visible on all the threads to keep things fair and balanced. We do have rules that others may deem unfair, but as it has been pointed out, it is a public forum, but those of us who own it just have things that we wont compromise on. Particularly profanity, threatening, spamming, etc. The word sensors are set to "disguise" profane words such as "dang", "darn", he!! or a$$. Yes we know what they mean but for some reason, not quite as offensive if not spelled out exactly. And no we dont get paid and yes mods can see who reports a post.
So far we have about 100 members and so far, not a lot of turmoil. Yes we have had turmoil, but with nine mods, it gets handled fairly quickly, and I have even seen a few apologies!
New members have to be approved by the administrator so it keeps spammers out. There is no restrictions on how many posts per day for new members either. But as I said, nine mods help keep things in check.
The whole thing is that breast cancer survivors and family and friends of survivors want and need a place to come to for support and information and yes a place to vent. But the venting still needs to be mindful of others, and most of the time is mindful of others.
Yes ALL are welcome, including any political affiliation and the mods are sworn to uphold fairness on all forums. Most of us there are republicans and that is, again, because they are who were banned from here. But Democrats and Libertarians are welcome and free to post also. And if any turmoil starts up, the ADMINSTRATOR and MODS step in so that members dont have to.
So if you would like to take a look please feel free to do so here:
http://www.breastcanswers.com you will see a link on the side called "Discussion Corner" and it takes you to the message forum.
Come on over as you will see some familiar faces, and many who were unfairly banned here.
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Wouldn't it be great to see the name of the person who clicks away at names of posters just to get them banned.
I wonder whose name would come up lit up with fire works. Any idea?
I think we all have a pretty good idea.
For someone who doesn't know me (or do you) you sure seem to single out a sentence or two of my previous posts. You seem somewhat familiar.
I say we petition the moderators to get the names posted of the clickers. That would "out" the offender (s).
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I ADORE you too, Moody. But I have to disagree. Of course you know I'm OLD and FORGETFUL! I'm the oldest living person you know that's living.
Okay, if memories serves me correctly, we DID NOT ask the opposiition not to post on our thread. We'd discuss things with them. Then, it's possible (I don't have the entire threads copied..wish I did for proof) that much later we did say something about IF YOU DON'T LIKE IT DON'T READ HERE. I would have to have other ladies who are NOT as OLD AND FORGETFUL as I am to REMIND me. It's not chemo brain..it's OLD AGE!
Ya think I can find anyone to help me remember.
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Shirley, Moody, what I remember is that as both a Canadian and a Clinton supporting Democratic, I was welcomed with open arms on the Republican thread. There were quite a few Canadians who posted regularly on the Republican thread, and quite a few Clinton supporters too. We were all - particularly the Clinton supporters - most unwelcome on the "other" thread. Until the election, I found the Republican thread to be a great place to talk about both sides of the contest. After the election, however, things changed and at that point I stopped posting there.
While I understand that the social threads provide a necessary outlet for many of the women here, but I've observed is that most of the biggest arguments and worst language start on those threads, and then unfortunately sometimes spill over to the rest of the board. Someone who is a friend on a social thread inadvertently says something that seems insulting to someone else, or voices an opinion that isn't shared by others, and suddenly this person is a mortal enemy and there's a battle brewing. PMs fly back and forth, groups gang up and launch attacks, publicly and through PMs. I've seen ugly, vicious posts in the social threads - sometimes openly so, sometimes more subtly (but vicious nonetheless). I rarely venture onto any of the social threads these days, unless I see a topic that is important to me (such as the recent thread about missing AlaskaDeb).
If it were up to me, the social threads, which seem to be springing up in great number all across the board, even in the diagnostic and treatment forums, should all be moved to a different discussion board. That way, those of us who come here to help and support women going through diagnosis and treatment can be left in peace to do just that, and those who come here for social interaction can have their own place to do it. Different rules can be put in place on each board, and if the social board gets ugly, at least it wouldn't overflow to the board where newbies are coming for support. It's because the two are mixed that we continually run into the types of problems that started this thread. It's because the two are mixed that there is a problem with the Report this Post button, which is necessary to quickly eliminate spammers on the diagnostic and treatment threads but which is abused by those in certain "social" clubs. That's my solution. I know it's not realistic, and most of you would probably disagree, but it sure would make this a better board for those who come here seeking help with their breast cancer concerns.
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"ShirleyHughes wrote:
I ADORE you too, Moody. But I have to disagree. Of course you know I'm OLD and FORGETFUL! I'm the oldest living person you know that's living. "
Shirley, you are the oldest person I know still breathing on your own.....
Anyway, it was me with chemo brain. I do now remember others coming to post on the repub thread that did not agree with us, but as long as their posts were not instigating a fight, they were welcome. I think Beesie is right, it was after the elections that things got heated and very ugly. And it was due to people instigating trouble, not legitimate conversations. So I guess we are both right.
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Moody, I guess. <sigh> I know things got very heated. I suppose I'll agree to agree....LOL
Beesie, you were ALWAYS polite. I'm sorry that our passionate, hatefullness (LOL) chased you away. Actually, conservatives are not mean people. We are not the monsters we are made out to be. REALLY WE AREN'T!
Shirley
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People want the front of the bus, the back of the church, and the center of attention.
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Hmm. I'm resurrecting this thread though it may not be the right thing.
I have never ever, in my 7 years on the board, deleted or reported someone's post. Today I was planning on it, but the 'report this post" button is not there for me. Where did it go?
It's a post where someone's character and professional reputation was maligned. I've stewed about it for 24 hours. I was even going to own up to the report in the thread and send a PM to the poster, telling her why I did it.
Maybe it's just as well. I'm a bit paranoid about retaliation and being banned from here (I'm such a middle child!) when all I want to do is help.
But someone's note here helped me a lot. It was about first-time posters. This person wrote her first post in a moment of anger and fear. I am sure she didn't stop to think about the harm she was doing. But I still don't think a post like that should be allowed in the archives. I think my best option is to PM a moderator and ask for advice...
You ladies are great. (And I love the BGPs--big girl panties--and the Dammit Doll!)
Anne
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Anne it is on the left side now under the date that the post was made.........
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Funny, I'm not seeing posts here from the psycho bitches who reported my posts so often in the Alt forum that my account was "temporarily" suspended.
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See LJ ... this post should be reported .. you were stirring up their threads arguing with them about almost all of their alternative choices ... all they wanted was to learn about alt choices not be condemned and as I remember you were a bit condescending. Granted, many of your posts that I have read have been informative in that forum but you know you could have just created your own thread for those that did appreciate all you do have to offer .. calling them names is against the rules ...
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Ah, here we go. Jader, it had nothing to do with being condescending.
It had to do with the people controlling that forum not liking hearing the truth.
Read the guidelines for reporting posts. Not liking what someone says is not grounds. But it doesn't matter. Because the mods don't evaluate content. They're too busy to deal with it. It's just easier to kill the scapegoat than to get at the truth.
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Some might think that referring to any of the women on this site as "psycho bitches" could be interpreted as a violation of number 5 under the site's rules of conduct: You agree not to submit content that contains material that is inappropriate, unlawful, threatening, abusive, hateful, profane, defamatory, infringing, obscene, pornographic, or indecent.
It also seems odd that someone with so few posts would use such forceful language about women on this site.
If you're here to ask for help or to help someone else, then please do that. If not, there are lots of places on the internet where you can find and/or create drama. One of them might be better suited to your needs right now. The women here have plenty of drama in their lives already, and don't need your help creating more.
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LJ I believe you owe the women here an apology for calling some of them psycho bitches......As PatMom stated that is definitely against posting rules.......We really don't WANT your kind of drama with the nasty name calling............Put on your big girl panties, drop the drama and apologise or there will alot of reporting of that post.........We are all adults here but we also RESPECT each other and leave the name calling out of it....It doesn't belong in a support group.........
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All I can say is WOW. I just stumbled on this thread when I clicked on a member's name to see what 'the story was' since I have seen some recent posts that made me WANT to push the "Report this post" button (which I THOUGHT just brought it to the mods attention....didn't know 'AutoPilot' was running in the BG). My big question is (and where I THINK that many problems arise) is WHY do some people come on a BREAST CANCER board just to cause controversy and drama??? I just don't get it. It seems so outrageous. For those peeps, take the drama elsewhere. BREAST CANCER is a REAL event and needs no EXTRA drama. I hope someone can find a good solution to this problem. Best wishes to all!
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Ruby,
I've asked myself that same question. Drama makes me anxious. This thread that I've been relating has cost me way too much angst and energy. I will never understand drama junkies, or people who enjoy pushing buttons and name calling. I just don't get it. It's so far from what I understand.
"Psycho bithces" is so slanderous. It's so cruel. Be careful who you point to, that finger may end up in your very own face...It's all about the Golden Rule for me.
Anyway, I now know where the delete button is, and how to contact the mods. I hope I never have to use these tools again.
Anne
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I know I must be nuts for posting on this but I will anyway..LOL. I have reported 2 posts from the discussion boards in the 2 yrs I have been a member. Both were by the same person on the same day. I did tell the forum I did it. I will probly never report another post. I had many PMs and emails thanking me for reporting but I had far too many hate emails who were ripping me apart for reporting their friend. When I went to post on the forum again , unrelated to that problem...I received several emails telling me I was no longer welcome and to go away. I waited awhile and tried again but the same people said to go away again. So I have chosen to stay away from the forum since I feel that if I ignore them and continue to post..it will start all out war. It's only a handful of ladies but they dominate the board..so I bowed out.
So if anyone starts slamming me here for anything I have written...I probly wont respond LOL. I just wanted to share my experience with you all. I am a nice person and dont take kindly to being bullied. God bless you and keep you safe..Hugs, Mazy
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Anne, at the risk of hate mail, etc. I stumbled across that thread this weekend and was appalled at what the person wrote. (and I mean stumbled, try to avoid the drama myself) I want to think it was out of fear and pain for a first time poster, but the way it was written also made me wonder if it wasn't the person who was angry at the doc pretending to be "a friend" and using it as an excuse to vent her anger at the PS. I'm never comfortable with people posting names here, even when it is for a good recommendation, I think those belong as PM. My understanding of the BCO rules is no one's name is supposed to be posted without their prior permission. So, given how one sided that post was in naming someone who can't defend themselves and the terrible things said about their work and character, I think it was a good idea of you to ask for advice from the moderators, particularly when you know another side to the PS.
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kmmd,
I think it was the person who had the surgery problems, too. And that shocks me, because she and I have been spent a lot of time PMing each other, pre and post op. If that hunch is correct, I ache for all the pain she's going through--it's not just about the surgical outcome. She is truly feeling overwhelmed.
But that doesn't excuse the behavior.
One thing most people don't realize--the surgeons often know what's posted here. Either their staff is lurking on the website, or another patient alerts them to problems. I did not tell Dr. Massey about this incident, but she found out. She was crushed that someone who didn't know her could be so cruel. Lost flaps are like a lost child to the good surgeons.
Anyway, the damage is done. I haven't gotten any hate mail, thank goodness.
Mazy, I had no idea there was such a vicious core of people here. Well, yes, I did realize that during the heat of the political threads here, but I ended up far away from those topics, for that very reason. I wish you could re-enter without fear of hate mail. I guess you could ignore it and delete it, and hope maybe they'll grow weary after a while?
Anne
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Mazy you should report those people!...They have no right to tell you where you can and cannot post!....That is bullying.....PM me who they are and I will look up their posts to you and report THEM!........I too have reported a few posts and I also let them know I did...I also would PM the Moderators and let them know I was reporting and why........As for the girl who blasted that nice PS, I think she was a disgruntled employee or something like that cause no one in their right mind would do such a thing because that is slander..............I personally had heard nothing but good things about that particular PS and was appalled at the post.......I don't remember if I reported that one or not but I was not happy with the poster at all.........You know we are all adults here (at least in age if not in mind) and i personally am not easily offended by anything (I may cringe at some of the stuff and blush but I am not offended)........It DOES offend me when another poster tells one of us who have been here a long time that we're not welcome........THAT is bullying and is against the rules..........Mazy you should send those PM's to the moderators.....That isn't right!..............Hate mail is a form of bullying and also terroristic threats which is a felony............
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i find it extraordinarily sad that bc.org does not monitor their boards to the degree that sisters are made to feel unwelcome. there is no room for this in anyone's cancer journey.
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TOTALLY agree that anyone who 'bullies' thru PMs needs to be 'outted' to the mods. That is so HS and totally unacceptable!!
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The boards would be less contentious if people would PM each other if there was a problem, rather than take it publically and draw others into the problem. I doubt calling someone out publically is going to cause create positive change. I believe that following the adage "you can get more flies with honey than with vinegar" is the way to solicit positive chage. There's a wonderful feature that allows for ignoring posters that get under our skins. Engaging in public fighting never seems to result in resolution on the boards, it only causes rifts, especially when people takes sides or gang up on each other. There are a lot of great people here, but there are also trouble makers and bullies, as there are in life. I say, who needs extra stress and negativity in their life? Surely not me. If there's a problem, PM the moderators so they know what's going on, that's much better than fighting it out. I'd rather fight the war on cancer, not people with cancer.
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