anyone have rads to the supraclavicular area?

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karenn
karenn Member Posts: 35

HI.  Has anyone had radiation to the surpraclavicular lymph node regions (above collar bone)  I am wondering what to expect.  I did some research and saw photos of people having to where a mask over the face?  I am a bit worried.  I don't really want my face involved in it or the possibility of it getting fried.  But still would like to be prepared if that is going to happen.  I am also going to have rads to the mastectomy and underarm lymphnodes as well.   

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  • JacquelineG
    JacquelineG Member Posts: 282
    edited May 2009

    Hi there,

    I had rads to supraclavicular nodes (as well as chest wall, IM and axillary nodes) and it went great! I just got a little red in that area, and it can actually go through to your back so you may notice some redness there. But that was actually the area least affected for me. And I had NO mask -- hopefully you won't either!

     Good luck -- rads was a very good experience for me (especially after chemo) and I hope it's like that for you as well!

    Jackie

  • susan13
    susan13 Member Posts: 732
    edited May 2009

    I had rads to supra. and axilla area. The supra area is barely red, I also have a pink area on my back.  My axilla is another story! OUCH!!!!!!

  • SusieMTN
    SusieMTN Member Posts: 795
    edited May 2009

    I had it done there and also the axilla.  With rads, red raw spot at neck and collar bone, rash and slightly red on back, red raw and ozzing around the mastectomy site and the middle of chest.  Really just sort of an outline of a circle which in now (some 2 weeks after Rads) the middle is starting to fill in!

    KateriT  - I have a question for you (pm me if you are more comfortable with that).  First, my biopsy is ILC however both my MRI and I believe something in the surgical report by my surgeon says evidence of IBC.  My situation is I missed several MAMO'S so.... it is either locally advanced bc or IBC.  My breast blew up like a ballon but it was not RED by any stretch, pink at best. Nothing that looked like a spider bite, just an area close to the areola that was slightly raised and a different color.  Symptoms of neglected primary and IBC are similar......How did yours start? 

  • nelia48
    nelia48 Member Posts: 539
    edited May 2009

    I also had it and noticed a little discoloration on my neck, but not the face area. 

  • BonnieK
    BonnieK Member Posts: 655
    edited May 2009

    I am having radiation in the supraclavicular and axillary nodes and have not had to wear a mask.  With 10 more rads to go, my throat is mildly sore. skin is a little tender and reddish in spots, and I have a rash on my chest, but it's all very manageable.

    Good luck to you -- rads has been easy for me and I hope the same will be true for you.

    Bonnie

  • Majanumba1
    Majanumba1 Member Posts: 99
    edited May 2009

    Hi, I am on tx 16 of rads that are to axilla, masectomy scar, back, clavicle and superclavicle area. So far I haven't had any real problems. The second week I had a bit of a sore throat and some acid reflux. When I mentioned this to my rad onc he had the techs have me turn my head/chin a bit more to the left.I haven't had any problems since. They also re-marked some of my areas at the end of week two. I have not had to wear any mask.



    Hope that this helps.

    maja

  • Majanumba1
    Majanumba1 Member Posts: 99
    edited May 2009

    Hi, I am on tx 16 of rads that are to axilla, masectomy scar, back, clavicle and superclavicle area. So far I haven't had any real problems. The second week I had a bit of a sore throat and some acid reflux. When I mentioned this to my rad onc he had the techs have me turn my head/chin a bit more to the left.I haven't had any problems since. They also re-marked some of my areas at the end of week two. I have not had to wear any mask.



    Hope that this helps.

    maja

  • Seabee
    Seabee Member Posts: 557
    edited May 2009

    I think the method used depends on the age of the equipment. With more recent models with very exact targeting, they just instruct you to turn your head and face away from the beam. It worked fine for me. Older equipment may require the use of a mask, which will just shield your face, so it's nothing to worry about. As a rule the axilla and the area under the breast for large-busted women get the worst of it, and that heals very quickly once the treatments stop.

  • pip57
    pip57 Member Posts: 12,401
    edited May 2009

    Same story as most of the others here.  No mask.  Small burned area above collar bone and red spot on my back.  Radiation really didn't pose any issues for me.

  • sharalou
    sharalou Member Posts: 223
    edited June 2011

    did anyone  have a mass in this area?  I do. I just finished 18 rounds of rads (12 more to go-i think). It seems a bit smaller, but not much. My rad onc. said it even gets smaller after rads? I have indigestion, and now for the past couple day, some pain right under right ribs-HELP!

  • sharalou
    sharalou Member Posts: 223
    edited June 2011

    Why a mask? That was not mentioned to me at all. Interesting though. I went today, and didn't even know my rad. onc change my treatment a bit. Getting booster now (have 9 more). The techs told me, not him, and I just saw him yesterday. Just put a phone call in to where he is at today.  

  • Fitz33
    Fitz33 Member Posts: 243
    edited June 2011

    I've had a week of rads and the supraclavicular region is included.  I was told that it's standard treatment for BC radiation.  I have another 5 weeks to go.  So far there haven't been any problems other than the simulator device seems to bother my neck a lot but there's nothing I can do about that.  I'm just grateful to have the rads.  No mask has been mentioned.

  • ProudMom_Wife
    ProudMom_Wife Member Posts: 634
    edited June 2011

    karenh - I think it depends on how your RO approaches it.  Today I finished the last of my 25 tx of radiation to my superclavical and axilla.  My RO administered the radiation beams as if I had lymphoma.  Went from right along the side of my neck where the carotid artery is and then went along my clavical to my axilla.  My arm was up over my head for positioning as I layed on the table.  Got pink in the area, but actually my back, where the beams came out is redder.  The technician said because I was laying down and the beams shot through me and hit the board I was laying on, it scatters and affects more of the skin back there.  I know the beams hit a tiny sliver in the upper area of my lung.  I did have a bit of a sore throat and a dry cough, but that was about it and it wasn't bad.  Be sure to take care of your skin and keep the sun off of the areas that get radiated as much as possible, even for a few weeks after treatments are done.  Don't know why folks would use a mask, I just turned my head and closed my eyes and remained still.  Maybe Seabee is right, it depends on the age of the equipment.

  • sharalou
    sharalou Member Posts: 223
    edited June 2011

    Is the head always turned to the left?  This indigestion and burping is killing me. They are also radiating my mediastinum.  6 more to go, CAN'T WAIT!!!

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