DH

Thanks everybody.  I'm praying hard for that Temodar to do it's work!

Girls,

Well, it truly sucked at the NIH yesterday.  Dave's cancer is back in a big, bad way.  We are just dealing with it the best way we can.  Last night, he told me that "we're going to be on TV when we beat this shit!".  He is truly an inspiration to me.  The guy never feels sorry for himself, and his attitude is awesome.  He makes me laugh all the time, and he's ticked me off on more than a few occasions. 

What do I tell the boys (8 and 6 now)?  I have a therapy appointment this week, and I will get  his opinion, too.

Everyminute, God bless her, sent a little care package to my boys.  I know they will be thrilled.

Love

Bobbie

When we were down at the NIH, I met a little 8 year old girl named Hope.  She was undersized, and wore hearing aids in both ears.  Her daddy had her there for an MRI, and I helped her take out her earrings and aids.  About five minutes later, they came out, she was crying, and her daddy said she just couldn't do it.  She was an amazing little girl.  I also saw another child who was bald sitting on his/her mommy's lap waiting to go back.  It is truly humbling to see kids go through these terrible things..........About an hour later, DH and I were down in the cafeteria and I saw Hope leaving with her daddy, and she was smiling and waving at us.  I smile now just thinking about her-a bright, shining light.

Ladies,

You are so not going to believe this.  Today, for the first time, DH and I went down to the NIH to get another scan and to see if he would qualify for another clinical trial.  If you recall six months ago, the news was dismal and he was given three to six months to live.  Well, we were absolutely stunned, in the most wonderful way, to find out that his scans had markedly improved since then!  The edema that surrounded the tumor was gone, and the pressure that was showing on the cavities that separate the brain's hemisphere's was gone!  The cancer is still there, but it seems to not be as "active" as it was then.  The doctor, who only treats brain cancer and is tops in his field, told us that he has NEVER seen this happen before.  His best "guess" was that Dave had a lot of necrosis (cell death) going on, and that it was reabsorbed by his body over the last six months.  Necrosis is hard to differentiate from growing tumor on scans. 

We're not entirely sure what this means, except that it is great news today, and gives us hope and time that we feel we didn't have before.  This is a great example of the many routes that the cancer journey can take, and how even the best in their field can't predict your future or your individual outcome.

Keep the faith, everyone!  Thank you for all your prayers and support.

Love

Bobbie