MAY 2009 Rads

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  • PrincessKauai59
    PrincessKauai59 Member Posts: 288
    edited May 2009

    Bold, I too so want to go swimming; my nurse told me no swimming and no hot tubs (no chlorinated/brominated water on the skin).  Maybe I could have just a short swim this weekend since my skin is still pretty much without side effects.

    Ddlat - I'm with Kaiser Permanente, being treated in Oakland, and they validated our parking for chemo sessions.  For Rads, they do free valet parking for us so I just drive into the new parking facility and get out of my car right by the radiation oncology department.  I'm in and out in 30 minutes or less. They're learning.  

  • lisalisa
    lisalisa Member Posts: 824
    edited May 2009

    Parking is $11 per day at UCLA.  My oncologist filled out a form for me to get a temporary handicap placard.  So, I use that and get free parking at UCLA.  Can you imagine $11 a day!?!?  That would add up FAST!

  • Cruise4life
    Cruise4life Member Posts: 394
    edited May 2009

    Paying for parking at clinics is HIGHWAY robbery....especially for patients....geeze...add more tax to cigarettes or alcohol....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    That is just ridiculous!!  To make patients pay to park and then have to go through whatever treatments they are doing.  At the main cancer center adjacent to my hospital where I was getting my chemo and my initial rads sim, there is designated parking for oncology patients, rad onc patients and cancer center visitors - those fill up fast, so I would just park in the adjoining parking garage and take an elevator straight up to the proper floor.  Where I go now, the rads onc unit is part of a medical center that is run by my hospital, and the other entrances for doctor's offices, clinics, etc. are very busy and it's a scramble to get a good spot, but the rad onc is on the far side of the building, and there usually aren't too many people coming and going - we share the entryway with a physical therapy unit, so I can pretty much pull right up in front and dash inside.  Valet parking would be nice, but here where the med center is there are a lot of retirees (a big clump of them live in a community right next door), so I'd probably have some geezer trying to park my car (crookedly) or back it into something.  They are dangerous enough on their own - we almost ended up in some old guy's trunk yesterday - he whipped out from a parking lot into our lane, which was doing a solid 45, and proceeded to do all of 15 mph, with no way to get around him, until he turned a few blocks later.  Good thing our brakes work!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    We have a parking lot across the street and valet parking.  I remember the olden days in San Francisco!  The cost was incredible.  I found it easier to use the trolly car or bus to get around.  People would literally fight for a spot! 

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    I'm lucky. If I were going downtown, all of the hospitals have pay parking. But here in the suburbs, we even have free parking reserved for radiation patients right outside of the office door. I have to walk an entire 50 feet. Very convenient.

  • Cruise4life
    Cruise4life Member Posts: 394
    edited May 2009

    Hi Ladies....

    My DH and I are heading to San Francisco this morning to meet some friends and stay overnight at a great hotel located near the wharf...and the hotel parking there is $35.00 a night. I didn't ask for a hotel room for my car....geeze...No wonder the economy is so bad...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Ouch!!  It was about that expensive the last time we stayed in Orlando - to save some $$, we had 1 day left on our parkhopper ticket, this was right before I started chemo, and we used my marriott miles to stay in a JW Marriott resort for free.  But they charged us $28.50 for parking.  Good thing we already had the other big ticket items covered!

  • Deb-from-Ohio
    Deb-from-Ohio Member Posts: 1,140
    edited May 2009

    Well lguess I get to join this group after all, go for my first visit to the rad doc today.......not lookin forward to it. I've had a whole month with no one sticking me, prodding me or anything else, it's been so nice..........So much for peace and quiet!

    Hey to Cruise!!!!!!!!!

    Hugs and Prayers

    Deb

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    Welcome Deb!

    Ivorymom: I wasn't told NOT to shave, just to use an electric razor. So far, the hair hasn't regrown so I don't have anything to worry about yet.

    I got marked up for my boosts today. I look like a kindergarten class had a field day with magic markers on my chest! They warned me that the ink they used today can stain, and will come off easily. I'm still supposed to use the vitamin e cream they recommended, just need to "color" between the lines with it because it will remove the new lines.  Yeah, right. I've got all the time and patience in the world to do that.

    But I'm 13 rads completed today, with 20 more to go including the 3 boosts. My first boost comes next week after treatment #18.

  • Bold
    Bold Member Posts: 692
    edited May 2009

    Good morning: I hope that everyone had a wonderful weekend! I sure did. It came to a sudden halt this morning as today is my dry run. I hated that they marked me up so much on Thursday and then told me not to swim (for the last time) and the marks showed in everything but a turtleneck.

    I am now 6 weeks out of chemo and not hint of hair. Kinda freaking me out. Come on hair!

    Has anyone experienced trouble with there throat. I was warned that some people get inflamed esophagus.Do they cover the part of the body that is not being radiated. They even do that at the dentist and this is much stronger. I'm just saying.

  • FACECRAFTER
    FACECRAFTER Member Posts: 1,092
    edited May 2009

    Wow. I only have one mark in ink- covered with tape on the upper pole of my breast,
     and three little pinpricks of tattoos - I can't find them they are so small-- on my torso. 
    i guess it all depends on where they are radiating. 

    Bold, worry when the times comes, you may get none of the symptoms spoken of here.  As my sister says "don't waste worry."  My first day turned out to be a final-final check.  The first day will be  the check.  They took X-rays today.  .

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Deb, welcome to the rads group!!  Don't sweat the rad onc visit - I swear, they don't poke or prod nearly as much as with chemo - I've gotten one blood draw in my arm, last week, but the tattoos they do are pretty much painless and the most uncomfortable you should be is the time it takes to get you set up in your mold, you hold your arms over your head for about 45 minutes.

    Going for #10 today - I get marked for my boosts on Friday - and am not thrilled about having ink that can come off - hopefully it won't be too messy for me to wear my work clothes afterward!  My first boost should be then next week.

    Bold, I have not noticed anything with my throat - the most so far my side effects are is that I am tender and swollen in the lymph node area and breast on the side.  If I lay on my right side for a long period of time, or really bump it, it's sore.  and, getting a little tanner on the right side.  Hopefully this will be the most of the se's!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    I'm off this week due to our work schedules, and for the first time since I was dx'd, I actually took the morning just for me - when I was dx'd, a group of co-workers presented me with a gift certificate at the spa I go to.  I was floored - it was such a generous and sweet thing to do.  I decided to book the appointments for this morning, and I haven't been there in about 6-9 months - I usually get a gift certifcate from my DH every christmas.  I walked in, with my scarf on my head and it took them a few minutes to recognize me.  I had a facial and mani/pedi, and OMG, the facial felt so good - it was wonderful to lay on a table that was padded, and warm with booties and mittens, soft sheets and blankets, and they did a special facial for me to help reallly moisturize and revitalize my skin from the chemo.  It was so nice to just relax and enjoy.  The mani/pedi was great too - I've been getting them all along, but in the spa setting, with some nice tea to sip, it was great to just not think about bc, or stress or the job or money or anything.  It was nice to feel like a GIRL and not a patient!!!

  • Cruise4life
    Cruise4life Member Posts: 394
    edited May 2009

    Hello Ladies...

    Hi Deb...glad you came over here..and now on your way to RADs...with me finally.

    chelev...pampering is good for the soul...glad you enjoyed your SPA day....

    Update on the Parking fee for my car in SF...got the bill when we checked out...the parking for our car was $50.00 not $35.00....OUTRAGEOUS.....

    We had a great time in the city and enjoyed visiting with our friends who just got of the Panama Cruise....and it was good that I didn't have to hurry back for Rads...

    Today I had #8  and I am 1/4 the way done...YIPPEEEEE....

    Happy RAD day....May Radettes....

  • Deb-from-Ohio
    Deb-from-Ohio Member Posts: 1,140
    edited May 2009

    Well today wasn't nothing but her examining me and telling me all about radiation! She was amazed I knew as much as I did, thank to all you guys!  LOL have to go back Thursday to get setup...then she says they do a ct scan to make sure they're going to hit the right place and have to enter all this in the computer, says I won't actually start getting treatments for 2 weeks..(BUT I'm staying here! I seen her today so  that counts as May! LOL) And NO Tatoos, they use markers.........

    So sorry Cruise, yer stuck with me! LOL

  • Majanumba1
    Majanumba1 Member Posts: 99
    edited May 2009

    Bold, I was getting a bit of a sore throat the first 2 weeks. When I told the rad dr. he had them turn my head a bit more. No more problems. No real se's for me after 16 txs so all is good.

    maja

  • Genia
    Genia Member Posts: 1,335
    edited May 2009

    Hi all.....

    I'm getting the sore neck/throat thing goin.  My Dr. saw me today and gave me two different RX's for it.  One was a liquid that I swallow right when I lay down to sleep at night.  Not supposed to drink anything afterwords.  She said it would coat my esophagus.  And the other liquid she gave me was a mix of something to help numb my throat if it gets really bad and hurts when I try to eat.  Apparently I'm not having trouble eating....gained 2 pounds since last week.....grrrrr!!!  lol

    I'll be so glad to go on a diet!!!!!!

    I have 9 more regular rads and 10 boosts left.  Gonna be a happy camper when I'm finished with these....then on to Tamoxifen.  

    I get Herceptin this Thurs.  Doesn't bother me at all......except them trying to find a vein!  My veins are horrible.

    hugssssss

    Genia

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    Hi, everyone.  Cindy - glad you had a good time in SF, but what a rip off - I just don't understand how these hotels can justify charging so much money for a little, tiny piece of concrete!

    Deb - what a bummer it will take so long to get started with treatments, but yes, you DO count as a May rads, or what did Cindy call us, Radettes?, since you officiallly talked to the rads onc, and it is still May!

    Had #10 today - uneventful for the treatment.  Saw my rad onc for our weekly exam - I told him about the swelling and tenderness on the right side, where I am getting treatment and he did a little poking, and ouch - it's not the breast so much that is swelling, it's the ribs getting tender.  He said sometimes that happens in that area, under the arm, next to the breast, and sometimes also in the middle of the chest.  Not much to do about it, except just baby the area so I don't bump and make it hurt more.  I've been taking Tylenol back and body, which has a mix of acetometaphin (spelling?) and ibuprofen, and it seems to help.  Though, this does take the wind out of my sails a little about starting in with crunches, which I had started this week.  He said not to do anything like that, or lifting light weights, or any kind of exercising more than riding my bike or walking until we're done, just to minimize pain and swelling.  Yipee. 

    Genia, hope the meds help your throat.  Sorry to say, my appetite, except during the worst of the chemo se's, never went away, much to my dismay!  Weight today on the scale was the same as last time.  Darn!

    Get bloodwork done tomorrow.  16 treatments left!

  • Texas357
    Texas357 Member Posts: 1,552
    edited May 2009

    My radiation oncologist told me to always turn my head away from the area being treated. That's to try to minimize the amount of radiation scatter hitting the thyroid gland.

  • Genia
    Genia Member Posts: 1,335
    edited May 2009

    Tex....I turn my head so far around away from the beam....sometimes I feel like the Linda Blair in the exorcist....lolol.  She told me today....that sometimes they can't help but get the edge of the esophagus.  I figure it's a small price to pay to get rid of those stray cells in there that were left after my surgery.

  • americanpinay
    americanpinay Member Posts: 338
    edited May 2009

    Hello ladies...hope all is well with each and every one of you...

    Cruise...great to hear to you had a great time in SF...despite the $50 parking fee...geez...

    Chelev...that spa day sounds really nice...

    Bold...good question...they do NOT cover any of the parts that are not being treated...supposedly, the rad beams are highly focused and there should be minimal "scatter"...it was zap 14 for me today and it was the first time, while he was lining me up, that the rad tech asked me to move my chin up to "get it out of the way"...why hasn't he said anything before? Yikes...

    As far as SEs are concerned...area being treated feels tight and has some sunburn "spots"...both of my girls felt sore yesterday...kinda weird ‘cause only the right is being zapped...more later "as the rad machine turns"...

    Take care y'all.

  • lisalisa
    lisalisa Member Posts: 824
    edited May 2009

    Today was treatment #9 for me.  I'm 1/4 of the way done.

    From day one, I've been told to turn my head to the left and have my chin up.  So far, no SE's other than a minimal amount of "pink" on my breast and on my back. 

    My rad onco went to China for a week to give a talk.  I was supposed to see another doc today for my check in but the wait was long....I'll do it tomorrow instead.

    I also had my port flushed today.  I'll do that again in another 6 weeks.  It literally took longer to park than to have the port flushed.  It was wierd to go back to the chemo place!

    I'm 6 weeks out from chemo today and I have hair covering almost my entire scalp!  Some is even longish....if I was a guy, I'd need a trim around my ears LOL!

  • jrgolomb
    jrgolomb Member Posts: 1,236
    edited May 2009

    I had my simulation today, and I was glad to see it was counted as one of my "tx", so now I am 1 down 32 to go!!!!!!!!!! 

    I am 26 days out from my last chemo tx and I have the baby duck fluff and a wee bit of dark hair on my crown.  Can't wait for that itty bit of dark to cover my head. 

  • Cruise4life
    Cruise4life Member Posts: 394
    edited May 2009

    Ladies...

    Where are you getting your rads if you have been told to turn your heads?????  My BOOBs must hang so low that it doesn't matter..SurprisedLOL  You ladies must be PERKY as all get out..Wink..LOL

    There better not be any scattering of RADs....they are not suppose to...

  • Genia
    Genia Member Posts: 1,335
    edited May 2009

    LOL...Cruise...I don't HAVE a boob on the side they are radiating so it is VERY perky!!!  lolol

    That made me laugh....silly woman!

  • Deb-from-Ohio
    Deb-from-Ohio Member Posts: 1,140
    edited May 2009

    ROTFLMBO@ Cruise...............LOL, almost said Crack!

  • lisalisa
    lisalisa Member Posts: 824
    edited May 2009

    I'm getting rads in 3 locations......including my superclavical.  The rads go up to my neck....and they make me turn my head to the side and chin up so that the rads don't hit the crease of my neck.  kwim?

     oh...and yes, my boobs are perky!  they are NEW.....not the ones I breast fed 2 kids with LOL!  I had a DIEP....so they are made out of my belly fat but they are perky!

  • Debonthelake
    Debonthelake Member Posts: 244
    edited May 2009

    I am so excited!.  Finally, they called me today.  My planning is complete.  I start my radiation at noon tommorrow.  The other good news is that I have very definite stubble on my head.  Can you believed it?  Life is starting to look up.

  • lisalisa
    lisalisa Member Posts: 824
    edited May 2009

    Deb - how funny are our lives....in that STUBBLE means life is looking up LOL!

    who would have EVER thought!?!??!

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