Natural Progesterone and Herceptin?

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I don't want to take Arimidex due to its effect on bones.  However, I am considering Herceptin.  Can I take Herceptin alongside Natural Progesterone does anyone know?

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  • swimangel72
    swimangel72 Member Posts: 1,989
    edited May 2009

    Hi - not sure if you're already had Herceptin with your prior chemo treatment. Have you talked to your oncologist? Since you are Her2+ it's standard procedure here in the US to start a patient on chemo with Herceptin. My onc was able to give me a "light" chemo - Navelbine for four months with Herceptin continuing for the year - I didn't lose my hair or have any heart damage. I finished the Herceptin last month and have been on Arimidex for 8 months without any serious problems. A bit of bone and joint pain hit me last month pretty hard, but it's so much better now - even today with the bad weather. Also - have you checked out www.her2support.org for more information about Herceptin - it's a very informative site. Good luck with your research!

  • anondenet
    anondenet Member Posts: 715
    edited May 2009

    >

    Yes, you can combine progesterone with Herceptin. They have two completely different mechanisms of action.

    It is unlikely that your oncologist is familiar with progesterone or its beneficial properties with respect to breast cancer. You may need to consult a savvy naturopath.

    <

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    Anomdentet:  Or anyone who might know the answer to this one..  how long should an individual be on natural progesterone or is a lifetime committment?  I can't find any long term studies and for that many much that helps progesterone position as it relates to bc..  Best!

  • moonwolf
    moonwolf Member Posts: 130
    edited May 2009

    I have already had chemo - finished about 2 months ago - FEC and Taxotere.  Here in UK some take Herceptin at same time as chemo and some don't - we are all so different in our treatment it seems!  Am now half way through rads.  Oncologist wants me to start drugs after rads. Not looking forward to asking Onco about Nat.Prog.  She won't have a clue about that!

    Thanks for link - looks like a lot of info on there.

    I am drawn towards Nat. Progesterone, but can't decide if it is the right thing to do Undecided. A Naturapath told me that it can be taken for rest of life and that she has been on it for years.

  • anondenet
    anondenet Member Posts: 715
    edited May 2009

    What Your Doctor May Not Tell You About Breast Cancer by John Lee, MD and David Zava, PhD, is a good book about how progesterone works. They studied progesterone for 30 years.

    Oncologist Julie Taguchi, MD, has been involved in research on progesterone and prescribes it to her breast cancer patients.

    There is also a medical case study of a 60 year old female dentist in Poland whose breast cancer would not respond to surgery, chemo or radiation. The doctors gave her injections of progesterone for a while, then when she responded (mets disappeared) they let her take her progesterone in pill form in a reduced dosage. She has been remission for years now. I'm sorry I don't have the citation for this but maybe searching pubmed.com will yield results.

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  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    Hi Anomdenet:  I have read the book by Dr. Lee and am taking his dosage with a natural prog.  even though my dcis was positive for prog.. But I was hoping that since Dr. Lee has passed that there might be other information to confirm or negate his info..   I guess I can search for Dr. Taguchi's information thanks!!!

  • anondenet
    anondenet Member Posts: 715
    edited May 2009

    Dr. David Zava is still alive and actively running ZRT labs. He should be able to explain the progesterone receptor-positive reason for taking progesterone. He is a genius! I've heard him speak several times.

  • moonwolf
    moonwolf Member Posts: 130
    edited May 2009

    So, those of you who take Nat. Prog. did you get breast cancer while you were on it?  Or do you now take it because you had breast cancer diagnosed?

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited May 2009

    I started taking progesterone because they actually put my family member with bc on it when there was a recurrence.  Their (medical community) form was different from natural progesterone but it was progesterone - so even the medical community uses progesterone in the treatment of bc, but there really are no solid studies...  I should say no solid studies within conventional medicine there are quite a few good studies in complementary medicine...

  • fairy49
    fairy49 Member Posts: 1,245
    edited May 2009

    My naturopathic MD, confirmed she feels progesterone is the key, however she couldn't actually put that in writing, nor would she "officially" ok me to use it, too afraid of lawsuits, due to the fact that there have been no human studies......Dr. Lee's book is my go to book, I will be using progesterone, the brand Dr. Lee used in his studies is KoKoRo, it comes in the exact dosage amount needed, no guess work.

  • moonwolf
    moonwolf Member Posts: 130
    edited May 2009

    fairy49 - at what point will you be taking progesterone? I've done chemo and am doing rads.  They want me to take Arimidex and Herceptin now.  I will probably turn down Arimidex and just do Herceptin and Nat. Prog.  Will you be doing the standard hormone drugs as well?

  • anondenet
    anondenet Member Posts: 715
    edited May 2009

    There was a woman who had bone mets to the "thoracic" area.  It disappeared in six months after taking progesterone. This was three years ago. I lost rack of her until recently and found her email to ask how she was doing. She said she was fine. In other cases , progesterone has also failed to stop mets so I'm not passing off an anecdote as a cure.

    A form of progesterone (synthetic) called Megace used to be used by mainstream oncology about 15 years ago.

    I wish they would do a trial with one group doing progesterone/iodine and the other group doing Armidex or Tamoxifen. Anybody got five million dollars to underwrite that research at a Medical School???

  • fairy49
    fairy49 Member Posts: 1,245
    edited May 2009

    Hi Moonwolf! I am from Reading, Berks, but live here in CA! I did refuse Tamoxifen, I am still mulling over when to start progesterone, I am engrossed in Dr. Lee's book, have read it and read it and various other documents, research on progesterone, so I am think I will start pretty soon, in my mind it seems to make sense, but thats just me!  Anom, I actually emailed a British research group in London to BEG them to consider a human clinical trial with DIMSurprised and various other things such as iodine and progesterone.......guess what! they actually emailed me back! They are taking my suggestions under consideration! I think they MAY be humouring me, however, I am impressed that they even emailed me back, so who knows, I shall keep plugging away! AND if I win the lottery that is what I would do with the money, no hesitation whatsoever!  I wonder how one would go about trying to raise money for a clinical trial? I will have to think about that as I don't anticipate winning the lottery anytime soon!

    Peace sisters!
    Lorraine ox

  • Ruthy81674
    Ruthy81674 Member Posts: 67
    edited May 2009

    Hello All!

    I went through treatment 6 years ago. I was placed on tamoxifen. Since I was pr-menopausal I developed severe hot flashes, insomnia, loss of libido. I also am an ER nurse and really was no longer quick thinking. I began doing a lot of reading including Suzanne Summers book, and also Dr. Lee's. Although I was very afraid of trying bioidentical progesterone, I was more afraid of existing with the decreased quality of life I was experiencing. I began using a bioidentical progesterone cream and after approx 2 weeks, my hot flashes and insomnia were gone. I also noticed a great improvemnt in my hair, skin and libido. I quit taking the tamoxifan after 3 years and now see a doctor who specializes in bioidentical hormones. I take many supplements like the ones Suzanne Summers recommends. I would not go back to the poor quality of life I was experiencing for anything. I feel good, sleep well, am sharp mentally again. Do your research, pray about your decision, and do what you believe is right for you.I

    God bless you all,

    Ruthy

  • Yazmin
    Yazmin Member Posts: 840
    edited May 2009

    fairy49, you wrote:

    ".........if I win the lottery that is what I would do with the money, no hesitation whatsoever!  I wonder how one would go about trying to raise money for a clinical trial? I will have to think about that as I don't anticipate winning the lottery anytime soon!"

    I thought I was the ONLY ONE to be thinking exactly that. I am glad there is an Alternative section to this Board, that way I can see that there are more and more and more of us thinking the way that we are thinking. And we can express ourselves, communicate together, all without any fear of "reprisals." 

  • moonwolf
    moonwolf Member Posts: 130
    edited May 2009

    Ruthy - thanks for that.  Was your cancer an aggressive Stage 3?  Had it spread to lymps?  Were you HER2?

    You did well to stick at it for 3 years!

    Do you live in UK?  I am looking a doc in UK?

    I was just about to start NP - read the leaflet and when I saw '... if you have a high level of oestrogen, progesterone will make you more sensitive to the oestrogen in your body...(for first 3 months)'  I panicked and wonder if that would actually trigger the cancer off again!  Does anyone think it would?

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