If you have just been diagnosed....

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  • laj6142002
    laj6142002 Member Posts: 9
    edited April 2009

    I have just been diagnosed with invasive DCIS. I am having a lumpectomy on The 22nd of April w/radiation port to follow.. If you can give me any comments or information I will appreciate it.

  • walk58
    walk58 Member Posts: 2
    edited April 2009

    I have just been diagnosed with infiltrating pleomorphic lobular carcinomas in my right breast and not sure what any of this means except  some things I have found on the net that were not good can someone that knows something let me know what this all means??????????

  • Helz22
    Helz22 Member Posts: 1
    edited April 2009

    Hi I'm a 25 year old Mother of 2 and have just found out I have (Ductal Breast Cancer Stage 3).  I know of ladies who have had Breast Cancer before but they all seem much older than me.  To make it worse my Doctor has told me he has never seen anyone as young as me with Breast Cancer.  Is there anybody out there who can relate to me?  I just feel so alone!!!

  • tinkimoon
    tinkimoon Member Posts: 1
    edited April 2009

    you know..........i am not for sure. BUT i had the core biopsy............not really bad.

    I think the clips as far as i understood is so the doctors can clearly see where they have already tested u. I hope that helps. and I hope that is correct.  i have two clips in myne....:) 

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2009

    Helz ~  I just came across your post.  Did you know there is an entire section on this website for younger women with breast cancer?  Click on FORUM INDEX above to find it.  I'm sorry that you're here, and I'm especially sorry that you've been diagnosed at such a young age. Unfortunately, I think you will find out that you are far from alone; but, thankfully, there are many threads within this website that talk about the unique concerns of younger women with young children.  And I know there are several women on here from New Zealand and Australia.  There are also threads for each stage of treatment by the month you're going through it or start it.  For example, when you know when your surgery will be, you might want to look for the May 2009 surgery thread.  Hope this helps, and please come back and let us help you however we can  ~  Deanna  

  • EleanorJ
    EleanorJ Member Posts: 752
    edited April 2009

    Helz22 - You're not alone, I was diagnosed last year at 33. While I'm slightly older than you, it's still a young age going through this. I've always felt like a baby going through chemo at my cancer center, not too many people my age hanging around those places ;) I'm also a mom of 2 little (they just turned 5 & 6). You're not alone.

  • jezza
    jezza Member Posts: 698
    edited April 2009

    Hi Helz

    I have sent you a Private Message about an Aussie and New Zealand forum where you will get lots of support.

    It really does help to join in these forums. Sorry you are going through this at such a young age.

    Go to MY Home at the top of the page to retrieve your message.

    hugs

    jezza

  • Jackmd1
    Jackmd1 Member Posts: 10
    edited April 2009

    Dear all,

    I hope this post finds everyone in the best of health...  

     While I'm an orthopedic surgeon who deals quite a bit with bone cancer, I would like to share a recent non-conventional treatment modality that has shown significant improvement in a patient with breast cancer.    As I was researching various alternative treatment regimens (evidence-based research), I stumbled upon CAAT (Controlled Amino Acid Therapy) produced by Angelo John at the Cancer Research Institute. 

    The rationale behind CAAT is the following:   Cancer cells require at least 10-fold the energy that a normal cell would as a result of their large size (multiple nucleuses).  They obtain their energy from an enzymatic chain reaction called "glycolosis".  That said, inhibiting certain amino acids (essential amino acids) in the body starve cancer cells by depriving them from their required energy pathway.  Moreover, most proteins are known to stimulate the synthesis of DNA, a paramount step in the formation of a cell.  By inhibiting certain amino acids, a significant number of cancer cells self-destruct.    If you'd like additional information on this treatment, youre welcome to email me at jackmd1@aol.com.  I'll be glad to direct you to the appropriate medical literature which supports the rationale of this non-conventional treatment.   

    Best regards,

     Jack  

    Jack Haddad, MD, MBA
    Orthopedic Surgery
    San Francisco General Hospital, San Francisco, CA
    San Jose Orthopedic Medical Group, San Jose, CA
    Highland Hospital, Oakland, CA

    Director of Research and Education
    Central Coast Nutrition, Santa Cruz, CA

    Hedge Fund Manager, Merrill Lynch, Santa Clara, CA

  • tr55
    tr55 Member Posts: 3
    edited April 2009

    On 4/20/09 my biopsy showed infiltrating carcinoma (favor lobular). Estrogen and Progesterone are neg.  HER-2 pos.  oN 4/21/09 the lumpectomy showed two tumor ductal. poorly differentiated. Two out of four lympnodes isolated tumor cells. I don't know what that means.  It was staged 1.  My surg. is concerned that this is an aggressive cancer. He is referring me to an oncologist.  I'm so confused. The surg. said I'll need chemo and radiation. Any help in making this more understandable would be greatly appreciated.  Good luck to you, Toni

  • cheers247
    cheers247 Member Posts: 270
    edited April 2009

    I was diagnosed with IBC on 4/17/09, I am 34 years old.  My breast was slightly pink, (my ONLY symptom) I could not palpate a mass of any sort.  My MD said it looked like mastitis, but I have not been pregnant or lactating in many years, so it was unlikely, he prescribed antibiotics and sent me for a mamogram and ultrasound.  The manogram showed a mass, but even the MD could not feel it.  The radiologist said "I am positive this is cancer", even before she took the biopsy samples.  And she was right... I will have 6months of chemo starting on 4/28, and then surgury then radiation.  This has been a lot of information to absorb in a week... my head is spinning!!  Jessica

  • Jackmd1
    Jackmd1 Member Posts: 10
    edited April 2009

    Cheers247,

    I totally support an immediate chemo for IBC.  Don't worry... at 34, your body could take the rigors of chemo.  From now until the 28th, I urge to begin limiting sugar intake and meals that contain large amounts of carbohydrates.  Both molecules are a great source of energy for cancer cells.  Bear in mind that cancer cells, due to their hurrendous size compared to normal cells, require 20-fold the food intake of a normal cell.  Therefore, by limiting carbs and glucose, you starve them and they will self-destruct. 

    Jack Haddad, MD, MBA

  • nancyjowatts
    nancyjowatts Member Posts: 2
    edited April 2009
    CryI HAVE JUST BEEN TOLD BY PHONE THAT I HAVE BC.I AM SO SCARED . I HAVE CRYED AND CRIED THE DOCTOR SAID I HAVE TO HAVE A MASTECTOMY ON MY RIGHT BREAST MY OPERATION WILL BE ON MAY 11 2009 EVERYTHINGS HAPPENING SO FAST I FEEL LIKE I CAN'T BREATH I JUST FOUND THIS SITE A FRIEND SAID IT WOULD HELP TO TALK TO OTHER PEOPLE WITH THIS SAME THING I HAVE                     NANCY FROM SOUTH CAROLINA
  • hollyann
    hollyann Member Posts: 2,992
    edited April 2009

    Nancy great big cyber hugs to you...So sorry you had to join our club...Yes this is a wonderful site to meet others going through what you are going through and also women who have already been there and done that.......Nancy, how old are you?...Do you have family close?...Where are your mets?.....I am a 2 yr survivor.....You can see my diagnosis below....I had a bilat mastectomy with immediate TRAM recons.....Please feel free to ask ANYTHING here.........You can also vent any all frustrations here, too......

  • nancyjowatts
    nancyjowatts Member Posts: 2
    edited April 2009
    HOLLYANN I AM 51 I HAVE MY HUSBAND AND A 26 YEAR OLD SON THEY BOTH SAY EVERYTHINGS GOING TO BE OKAY I HAVE 2 BROTHERS AND MY MOTHER BUT THEY LIVE 600 MILES AWAY I HAVE 2 GRANDDAUGHTERS ONE WILL BE 2 IN JUNE AND THE OTHER WILL BE 5 IN JUNE THEY ARE MY LIFE I DON'T KNOW WHAT TO TELL THE 5 YEAR OLD THAT SHE WOULD UNDERSTAND WHAT IF I LOSE MY HAIR IF I HAVE TO HAVE TREATMENT
  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2009

    Nancy ~  I'm so sorry about your diagnosis, which I'm assuming was from a biopsy.  Did they tell you anything else about your bc?  Is your doctor recommending a mastectomy because the lesion is large, or for some other reason?  One thing you will quickly learn is that not all doctors agree on treatment, and sometimes you may have more options than you realize or are led to believe.  Is your doctor a breast surgeon?  Have you had a second opinion?  

    I certainly understand how devastating a dx of bc is, but you, Jessica, Toni, and all of the others who have recently posted here are not alone.  Please let us know how we can help you ~  Deanna 

  • gibby
    gibby Member Posts: 105
    edited April 2009

    nancyjowatts; Right now you are in shock! I'm 50 and have just had the worst year of my life. My son is 27 and my daughter 26. Your kids will keep you going. When it comes time for chemo, be honest with your granddaughters. I don't have any but my friend took her grandkids to the hairdressers when she had her head shaved and let them help pick out a wig. Don't worry about crossing those bridges until you come to them. Just know that you are going to get through this!

    I'm sorry you have to go through this but we are all here for you and believe me we do understand.

  • amlg1
    amlg1 Member Posts: 596
    edited April 2009

    Just recieved my Dx yesterday ILC In a few nodes,I can't believe it because I have been so healthy,I'm 62.I don't know what stage yet, or grade,getting a second opinion on which way to go.All of this has to sink in.I love this site.

  • Nicole_Bronx
    Nicole_Bronx Member Posts: 29
    edited April 2009

    Joining the group want to say hello.  Hope to get some guidance and info, will come back with the "medical jargon" once i have a chance to look it over...Thanks

  • juststarting
    juststarting Member Posts: 8
    edited April 2009

    I am 39 (barely) and i get all the time...you are too young.  Well, that may be so but I still have breast cancer!!!  I am waiting on my results to the BRCA test.  Maybe this is something you should look at as well.  If positive, then surgery will be needed

  • Nicole_Bronx
    Nicole_Bronx Member Posts: 29
    edited April 2009

    Doctor wrote "infiltrating ductal carcinoma"...i am doing my research and working on getting a copy of the actual results so i can know what i am researching.  Also getting a second opinion (want options other than surgery) in the mean time maybe someone can shed some light on this in "lamen terminology"?

  • suez219
    suez219 Member Posts: 5
    edited May 2009

    Hi Nicole-I grew up in the Bronx!  I am sorry about the news.  I was diagnosed on New Years Eve.   Thankfully I wasn't planning on a big celebration.  I had infil. duct. too.  There is no other option for surgery.  The 1st thing you need to do is remove the tumor/cancer.  What can vary, and that depends a lot on your biopsy and surgery results is what your treamtents will be.  Mine was considered Stage 2A.  The dr.s will look at the tumor size, lymph node invovlement, and the results of  your pathology report.  That will tell them what your tumor was made of or responsive to.  After my lumpectomy I am having chemo. and then I am having radiation.  I will then be on meds. after that.  I used Sloan Kettering.  I understand NY Hosp. is also very good. You want to go where they see lots of b/c patients and use the latest research.  I haved learned more than I ever, ever want to know about this challenge.  Anything you want to know e-mail this former Bronx girl.  We're tough and supportive.

  • Nicole_Bronx
    Nicole_Bronx Member Posts: 29
    edited May 2009

    Hi Suez! Thanks for the response :-) and I am sorry for ur news as well, def not the best way to start off the New Year.  How long after the diagnosis did you have the surgery? As far as determining the stage the cancer is in, is this determined after the surgery?  My mother has been diagnosed and I am helping her through and trying to understand the condition as much as I can for myself and also for her.  I want to be able to ask the right questions to the doctors...Her diagnosis came from a doctor in the Oncology dept. at Montefiore (dont know if you remember the Bronx but its on Eastchester road, we live on Castle Hill).  She will be getting a second and third opinion as well.  I came across Sloan Kettering in my research, but she is going to visit 2 other places.  Thanks so much for the info and I will definitely be in touch :-)  I begin to feel a little better each day as I become more knowlegable about this...

  • Nicole_Bronx
    Nicole_Bronx Member Posts: 29
    edited May 2009

    To Nancy:  Although I am very very new to this whole experience, (my mother was just diagnosed less than 2 wks ago) I'd like to extend a supportive hand as well.  I suppose my advice at the present time would be to be sure that you are well informed every step of the way.  Some of the things you find out may be scary, but I find that the more informed I am, the better I feel.  DLB asked if you had a second opinion...I think that's important.  Take care!

  • DebeDawn
    DebeDawn Member Posts: 14
    edited May 2009

    Hello Ladies,

    Yesterday I was told that I have Invasive Lobular Cance with a 2.1cm tumor.  I live in Canada and do not have a family doctor so I use the Urgent Care Clinics (sort of like an emergency ward but not in the hospital).  I am waiting for appointments to be set up with an oncologist and a surgeon, but the clinic doctor was not very helpful (knowledgeable?

    I did not find a lump rather I had lesions around my nipple - about 11 of them - very sensitive and sore.  Originally I was told that they were an allergic reaction and was given a topical antibiotic cream and they went away for a couple of weeks.  THEN they came back.  The technician that did the mamogram mentioned that they looked like Pagets Disease but the clinic doctor had not heard of this???  

    When I filled out the profile I couldn't answer half the questions ie. grade, etc.  Is this information I have to wait for from the oncologist or should I know this before I see him?

    I haven't broken down and cried yet... maybe I am in denial still?  I look forward to any info and support you strong brave women may have.

    Thanks

    Debe Dawn

  • Cajunlady54
    Cajunlady54 Member Posts: 7
    edited May 2009

    Hi,

    I am new to this post but was just diagnosed last week.  Met with the surgeon Wednesday and  scheduled for an MRI on Monday.  He wants to see if their are any leisons behind the lump mass.  I am 54 and this has hit me very hard since it doesn't run in my family. I have gone thorught many different emotions and not sure what to expect next.I will be visiting this site often for support.  Thanks for any info that could help me adjust to the news.

    Cajunlady54

  • suez219
    suez219 Member Posts: 5
    edited May 2009

    I lived 2 blocks away from Monte for a few years.  It's a good place for a many things.  Breast cancer is not their specialty.  You live 20 minutes by train from some of the best hospitals in the entire world, have your mom take advantage of Sloan and NYU they are top notch facilities for this.  Sloan takes most insurance as I'm sure NYU does.  Her #1 priority is to get the tumor out.  From my day of diagnoses to my surgery was exactly 1 month.  I hussled my bottom off gathering my films and initial pathology report.  I took the first available appointment from a breast surgeon and scheduled the surg.  The surgeon will examine and review the films and tell you what type of surg. is advised.  After the surgery is when I saw an oncologist.  Until they go in, get the tumor size and test the lymph nodes an oncologist won't know the best plan of action for treatment.  If you go on the Sloan website they have a breast ca link that lists the surgeons and the office #'s. 

  • Mymercy
    Mymercy Member Posts: 1
    edited May 2009

     I was diagnosed with IDC April 29th Grade 2.  Talk about information overload!  Whew!  I am 41 and this was my first mammogram.  I had 3 biopsies on the left breast and all came back the same.  They span about 7cm.  All the tumors are aprox. 1.3cm.  There was a comment on my original mammogram report about a possible benign fibroid thing.  Now I'm waiting for a sonogram to get a visual of that before making my final decision.  I am a 46 DDD and have always hated my chest.  Always dreamed about a reduction...but not this way.  Oh well.  I have an almost 5 year old and an 8 year old boys.  That is what will get me through this.  This was no where on my radar and it has been a rough couple of weeks.  And the fight of my life just starting.  I am so very nervous about the surgery and what to expect following.  I didn't realize you couldn't drive for so long and have to rely on caretakers for me and my boys.  So many decisions and so little time.  I am looking for any support and encouragement.  Thank you for all of your honesty and availability.  Blessings to all of you! 

  • DeborahG
    DeborahG Member Posts: 1
    edited May 2009

    Hi, I have been diagnosed with DCIS and have been scheduled for surgery on June 2, with radiation to follow. They will remove the tissue and insert a wire for the radiation. Can any one tell me how soon radiation might start? In other words, will they wait until I have had time to heal????

    Thanks All....

  • sherriz3
    sherriz3 Member Posts: 6
    edited May 2009

     I just found out tues. that i have breast cancer. Don't know what stage yet. I will have surgery next friday. It was a big shock to me and my husband. My children are 10 1/2 and 12. They are doing pretty good. I find myself crying  just whenever and then i'm fine. I'm trying to just take it day by day. That is all you can do. Right? My parents aren't handing this very well. And i don't know how to help them. I can't handle them being negative. I'm trying to be positive. That's what i need to be. What can i do? 

  • got2bme
    got2bme Member Posts: 7
    edited May 2009

    I doubt that anyone is out there right now; but I was just diagnosed last week. 

    Met with surgeon two days ago to discuss options. 

    I can't sleep, focus or even feel comfortable in my own skin. 

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