When do you call yourself a survivor?
Was just wondering when do you say your a BC survivor? At the time of your DX or at the end of a particular treatment? My treatments are lumpectomy, radiation and Tamoxifen. I haven't started radiation yet (that will start next week).. Can I consider my self a survivor now? Just curious on when others considered themselves surviviors..
Comments
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I use my surgical date as my anniversary date so I am a 2 + year survivor. Since I am on Tamoxifen I can't really start from end of treatment unless I want to wait 5 years.
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I was a survivor the day I was diagnosed...because I decided that I would beat this thing! I think different people choose different dates.
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My surgeon told me that they consider you to be NED (no evidence of disease) when you finish all of your standard treatment (chemo, surgery, radiation). I had chemo first, then surgery, and then radiation, so my date is the last day of radiation. I'll be NED for one year tomorrow (May 13th)...I'm so excited to celebrate it!!!!
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I think the day you start any treatment for breast cancer should be the day you say you are a survivor! If you can survive surgery, chemo, radiation, hormones, and whatever else they throw at you, you truly are a SURVIVOR! You are surviving things most people don't have too....Tami
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I have heard all different ways to determine it. I think whatever date you choose to use...after tx, or day of dx...go with it.
brst26...congrats tomorrow on your one year of dancing with NED!!! You go girl....live a LONG and HAPPY life!!!
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Exactly...what day YOU choose ....
brst26...CONGRATS
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For me, the day they took my lump, I survived the surgery, and there was NED elsewhere is my survival date.
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ALL-
Thanks.. much for your input. it gives much to think about ..I think I will us my DX date as that is when this rollercoaster of a ride started.. I survived the intinital news, the surgery, Radiation (when it starts) and I will survive what everelse is thrown at me.
brst26-
Congrats!!
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If I go by the end of treatment, I'm a ONE MONTH survivor!!!!! At this stage of the game, that sounds great after all the treatments, etc.
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My personal thing is this, and it may seem wierd but hey that's just me, and you should be used to me by now!!!
I have never personalized this as "my cancer" or "my tumor" or "my" anything. So even putting the words cancer and survivor in the same phrase give me the heebe jeebees. I just think of myself as a SURVIVOR in all caps. I think I will count years later from the end of chemo only if it comes back. But if the 90% chance of never dealing with this again that my oncologist told me holds true I will only ever think of myself as a SURVIVOR.
Love to all
Robyn
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I don't like the term "survivor" either. I don't call myself a BC survivor. I say I had BC and went through all the garbage to get rid of it.
I have "survived" many things in life 3 car accidents, an emotionally abusive relationship and a c-section. But, I don't use survior in the same sentence as any of those life experiences.
I will be 1 year out of treatment next month, and 2 years out from diagnosis in September.
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I get you on the "survivor" thing too. I am also a child abuse survivor and a rape survivor. I don't like thinking about it in those terms also because its like am I supposed to get a medal or something?? What am I supposed to do? What person anywhere is NOT going to fight when faced with things like this. I like your way of thinking of it in terms of time out of treatment and diagnosis. It lends less importants to the disease. I am all for demeaning this disease at all times. Its a nasty thing not worthy of my attention!
Love to all
Robyn
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It's not that I generally dislike the term "survivor" as it applies to breast cancer, but I just don't think it applies to everyone just because they've had breast cancer. I don't mean to upset anyone who feels differently about it - just my opinion. Undoubtably, some with BC have been through the fight of their lives with the disease, but not all of us have. I've had literally no treatment other than a lumpectomy and SNB for my BC and so I really don't feel like I'm a "survivor" of BC at all. My life went on as normal soon after the surgery.
I've had and still have other medical problems that were/are much more likely to be the death of me than the breast cancer I had. I lost a kidney to a huge stone with pyelonephritis some 20+ years ago, and that infection could have easily killed me if it had gone untreated much longer - yet I don't consider myself to be a kidney stone/pyelonephritis "survivor". I have a heart valve problem from taking weight loss drugs 10+ years ago - bad enough that a drug company paid me over half a million dollars, yet the only treatment for that has been yearly echocardiograms and keeping my B/P normal. Again, a medical problem with a potential deadly consequence but still not something I feel entitles me to think of myself as a "survivor".
If I someday actually find myself down for the count and manage to come out the the other side still alive, that's when I'll consider myself a survivor. Until something like that happens to me (and so far it hasn't), I consider it all, and specifically my brush with breast cancer, just another bump in life's long rocky road.
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It is really a personal thing. I was diagnosed less than a year ago so to me, it's too early to even think about it. Maybe in many years from now, I will look back and say gee, I really survived this thing, never thought I would! But if I had to count, I would probably do so from the time of diagnosis.
Just when I was reading this thread and thought of the word 'survivor', I started thinking about 'Titanic'. Shows yet again I can't focus anymore!
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Wow !, never thought there would be sooooo many thoughts,ideas and meaning about the word "Survivor"...
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According to an online "medical dictionary":
Cancer survivor: Someone who has received the diagnosis of a potentially fatal form ofcancer and is therefore forced to face his or her own mortality. The phrase was coined on July 25, 1985 in an essay in the New England Journal of Medicine by Dr. Fitzhugh Mullan. Mullan's essay was entitled "The seasons of survival: Reflections of a physicianwith cancer." As a young physician, Mullan had learned in 1975 that he had a deadlymalignancy, a mediastinal seminoma. He then began passing through what he called "the seasons of survival."There is far from universal agreement among those who have had cancer about the term cancer survivor. Some object to it, saying they are cured. Others say they are living with cancer. And still others prefer to put cancer behind them, and argue that being called a cancer survivor stigmatizes them. However, there is no term that by consensus might be better and the term cancer survivor seems here to stay.
So, it appears to be different from just plain "survivor", which mean to live with, to withstand something. I got into an argument with one man who has had 2 cancers and he told me I am NOT in treatment any longer since I had surgery and am "only" getting Herceptin every 3 weeks. News Flash: I had a MUGA scan, which I would NOT have had if I had not gotten BC. And I had a stereo biopsy last week for suspicious area on the good breast, because of my history. Those without BC would have had a wait and see "treatment" plan to come back in 3 or 6 months for a repeat mammo.
Most times I consider myself a cancer warrior - fighting with all I have to conquer it, in MY body, in MY life, and for the many others who have been diagnosed.
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I think we should all just consider ourselves Amazon Warriors! We are one kick a$$ bunch of women just to get out of bed in the morning when facing this thing! Even when treatment is over, fear of "the nasty" is still somewhere in the background threatening to come back and bite you. Will it come back? Who knows, we all hope not and do everything humanly possible to keep it from happening.
Just never forget you are all an awesome, amazing, heroic, strong, fabulous, group of INCREDIBLE women!!!!!!!!!
Love to all
Robyn
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HI, I consider myself a 1 Year survivor now. I was DX on May 23 2008, So, I have my anniversary on that date. Now, For Awsome news!! My wonderful MOM who is now 86 1/2 yrs old is Truly a SURVIVOR of 30 Yrs.!!! Hugs to all! Jeanie
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I also don't think in terms of survivor, but I do think in terms of the years because my risk of recurrence decreases as time goes by. My BS told me that my risk decreases two years after my bilat mastectomy, at which point she will begin seeing me every 6 mos. instead of every 3 mos. It will be two years in June. Hallelujah!
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While I was out walking last week I was thinking of all the chatter about DCIS being the "lucky" breast cancer. Even with that being the case, I will consider myself a survivor when I die of something other than cancer!
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I love this!
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hey there we all are told different I used when my treatments were done each yr i make it without recurrence which Praise God is 23 yrs going on 24 this yr. Positive thoughts and Always have Hope..ms Phil idc stage2 0\3 nodes 3mo chemo before n after Lmast got married 2nd then rads 7wks and Tamoxifen for 5yrs..God Bless Us All.
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You give me hope @msphil.
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When I went wig shopping, there was a box on the form I filled out - asking if I was a cancer survivor. I was puzzled about what to put. I had had no surgery, no treatments yet. All I had was the port in my chest and a huge journey ahead of me. My best friend was with me and she said "of course you're a survivor - it hasn't killed you yet" and we laughed and cried.
I don't know how I'll figure out years of surviving. I just know I'm still alive. 😘
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I've struggled with this particular question myself. I don't know if I'm a survivor from March of last year when I was diagnosed. Or Aug when I finished chemo. Or Sept when I had my mastectomy. So I did what I always do. I googled it.
"The National Coalition for Cancer Survivorship (NCCS) pioneered the definition of survivor as being any person diagnosed with cancer, from the time of initial diagnosis until his or her death. This expansive definition of "survivor" includes people who are dying from untreatable cancer."
So with that definition I guess I am a one year survivor as of March 6.
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Congratulations!! I agree...the moment you're diagnosed with cancer, you're a survivor. Cancer sucks!! But, the way you handle it makes you the survivor...you are strong and a fighter so that make you a survivor!
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I started considering myself a survivor right after the mastectomy last August, but really I like the broader definition of it that was googled above!
Hugs to all.
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I count from the day of diagnosis, July 20, 2015. So, I'm a 2-1/2 year survivor.
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